The Social Significance of Sleep for Older People with Dementia in the Context of Care

2007 ◽  
Vol 12 (5) ◽  
pp. 235-247 ◽  
Author(s):  
Wendy Martin ◽  
Helen Bartlett
Keyword(s):  
Older People ◽  
Social Care ◽  
The Body ◽  
Care Staff ◽  
Family Carers ◽  
Social Significance ◽  
Night Time ◽  
People With Dementia ◽  
The Social ◽  
Health And Social Care

While the social aspects of dementia have been increasingly researched over the past decade, there has been little focus on sleep and its significance to older people with dementia within the context of care. This paper attempts to address this knowledge gap by exploring the experiences of sleep among older people with dementia and the perceptions of family carers and care staff in different care settings. The paper is drawn from a larger research project that explored the empowerment of older people with dementia, and involved 18 in-depth interviews with older people with dementia and 8 focus groups with health and social care staff and family carers. The discourses of the older people with dementia and family carers, emphasised vulnerabilities associated with sleep, thematically represented as: (1) interconnections between health, care, the body and sleep; (2) memory loss and perceptions of sleep, time and place; and (3) a sense of vulnerability around night-time, sleep and safety. The sleep discourses of the older people with dementia and their family carers focused on meanings associated with experiential dimensions of sleep and were closely connected to their social identities and roles. The key concern for the health and social care staff was the organisation of sleep, including: (1) temporal management of sleep and sleep practices, and (2) management of sleep across public/private space: safety, surveillance and privacy. The sleep discourses of the health and social care staff predominately focused on sleep practices and environmental dimensions of sleep. These different perspectives denote varying positions and concerns in relation to sleep between waking conscious actors and dormant bodies, thereby highlighting the social significance of power relations and vulnerabilities within the context of care for older people with dementia.

Socio-pedagogical knowledge expertise across the social care sectors in Northern Europe

2018 ◽  
Vol 8 (1) ◽  
pp. 5-13
Author(s):  
Irena Dychawy Rosner
Keyword(s):  
Social Care ◽  
The Body ◽  
Northern Europe ◽  
Special Issue ◽  
Care Services ◽  
Body Of Knowledge ◽  
Social Pedagogy ◽  
The Social ◽  
Health And Social Care ◽  
Cooperative Process

A major challenge in contemporary welfare societies is the delivery of services affirming people’s expectations for their life standard, health and social care services. For decades, there has been a search to understand new ways of conceptualising social pedagogy as a field of practice, as a theory, and as a programme design and implementation. Despite the growing body of literature on social pedagogy, to date, little has been written on the subject of the unique complexities of social pedagogy knowledge expertise when bridging the supporting relationships between an individual and the social dimensions in his/her world. Based on research conducted in Northern Europe, particularly focusing on Denmark and Sweden, the aim of this special issue of International Journal of Papers of Social Pedagogy (PSP) on Contemporary Issues in Social Pedagogy in Northern Europe is to convey the central importance of social pedagogy for the study of vitality and diversity behind social pedagogy thought. The presented research projects in this special issue are, in their foundation, associated with a constructivist approach that views the body of knowledge development as an active and cooperative process of knowledge construction and its application in social pedagogy discipline. This article intends to provide a general perspective concerning the presence of various knowledge forms according to the search for, and implementation of, thinking and acting in a social pedagogy inspired way, and working under various conditions.

Abuse of people with dementia

2009 ◽  
Vol 19 (1) ◽  
pp. 35-43 ◽  
Author(s):  
Amber Selwood ◽  
Claudia Cooper
Keyword(s):  
Older Adults ◽  
General Population ◽  
Older People ◽  
Memory Impairment ◽  
Social Care ◽  
Care Recipient ◽  
People With Dementia ◽  
Health And Social Care ◽  
Vulnerable People ◽  
With Memory

SummaryPeople with dementia are particularly vulnerable to abuse. It is inherently difficult to study as it is a hidden offence, perpetrated against vulnerable people with memory impairment, by those on whom they depend. In the general population, 6% of older people have experienced abuse in the last month and this rises to approximately 25% in vulnerable populations such as people with dementia. We know that various factors in the carer and the care recipient can predispose to a higher rate of abuse and this knowledge can be harnessed to try and improve prevention. There are also valid and reliable scales available to help detect abuse in vulnerable older adults. All health and social care professionals have a responsibility to act on any suspicion or evidence of significant abuse or neglect in order to ensure that appropriate management is taken.

scholarly journals Supporting ex-service personnel moving to social care work with older people: a systematic rapid review of the role of education

2019 ◽  
Vol 23 (3) ◽  
pp. 127-141 ◽  
Author(s):  
Jill Manthorpe ◽  
Stephanie Bramley
Keyword(s):  
Older People ◽  
Social Care ◽  
Grey Literature ◽  
Care Work ◽  
Care Staff ◽  
Rapid Review ◽  
Content Type ◽  
Service Personnel ◽  
Health And Social Care

Purpose The purpose of this paper is to review evidence about the role of education in supporting ex-service personnel to move to social care work with older people. Social care has long-standing, well-recognised problems of staff recruitment and retention in many jurisdictions. Within ageing societies, the need for more social care staff is predicted to rise. Therefore, policy makers and employers are exploring if there are untapped sources of potential employees. Some ex-service personnel may be interested in exploring a move to social care work with older people but may need to gain additional qualifications. Design/methodology/approach Databases and grey literature were searched systematically to provide an overview of the evidence on this topic. Six articles were included in the review. Findings A narrative analysis revealed two themes: preparing ex-service personnel for enrolment onto health and social care programmes, and supporting ex-service personnel during health and social care programmes. Research limitations/implications This review was confined to English language studies published between 2008 and 2018. Few mentioned specific user or client groups. Originality/value This review identified evidence gaps relating to whether the skills, education, training and experience gained in the armed services are transferable to civilian social care work with older people; the types of support which are offered to ex-service personnel who are interested in completing qualifications necessary for social care roles and the views of ex-service personnel about their experiences of completing educational courses to facilitate a transition into social care work with older people.

scholarly journals New Ways of Working? A Rapid Exploration of Emerging Evidence Regarding the Care of Older People during COVID19

2020 ◽  
Vol 17 (18) ◽  
pp. 6442
Author(s):  
Éidín Ní Shé ◽  
Deirdre O’Donnell ◽  
Marie O’Shea ◽  
Diarmuid Stokes
Keyword(s):  
Older People ◽  
Social Care ◽  
Local Level ◽  
Care Staff ◽  
Care Programme ◽  
Broad Perspective ◽  
Team Meetings ◽  
New Ways Of Working ◽  
Health And Social Care ◽  
Changing Practices

Health and social care staff have had to quickly adapt, respond and improve teamwork, as a response to the COVID-19 pandemic. Our objective was to rapidly summarize the emerging evidence of new ways of working in the care of older people during this period. We conducted an exploration of the emerging evidence within the timeframe of 1 March 2020 to 11 May 2020. To capture a broad perspective, we undertook thematic analysis of Twitter data which was extracted through a broad search for new ways of working in health and social care. For a more in-depth focus on the health and social care of older people, we undertook a systematic scoping of newspapers using the Nexis UK database. We undertook a validation workshop with members of the interprofessional working group of the Irish National Integrated Care Programme for Older People, and with researchers. A total of 317 tweets were extracted related to six new ways of working. There was evidence of using telehealth to provide ongoing care to patients; interprofessional work; team meetings using online platforms; trust and collaboration within teams; as well as teams feeling empowered to change at a local level. 34 newspaper articles were extracted related to new ways of working in the care of older people, originating in England (n = 17), Wales (n = 6), Scotland (n = 6), Ireland (n = 4) and Germany (n = 1). Four main themes were captured that focused on role expansion, innovations in communication, environmental restructuring and enablement. The results of this exploration of emerging evidence show that health and social care teams can transform very rapidly. Much of the change was based on goodwill as a response to the pandemic. Further analysis of empirical evidence of changing practices should include the perspectives of older people and should capture the resources needed to sustain innovations, as well as evaluate gaps in service provision.

scholarly journals Integrating health and social care in Brazil

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
L Sempe ◽  
P Lloyd-Sherlock
Keyword(s):  
Health Status ◽  
Local Government ◽  
Older People ◽  
Social Care ◽  
Integrate Care ◽  
Family Carers ◽  
Care Burden ◽  
Vulnerable Families ◽  
Health And Social Care ◽  
Care For Older People

Abstract Integrating health and social care is now a high priority for public health policy in high-income countries. It has received much less attention in low and middle-income country (LMIC) settings. There is particular value in assessing the potential to integrate care services for older adults, given the speed of population ageing in LMICs. The presentation provides findings of process and impact evaluations of novel local government initiatives to integrate care for older people in Brazil (drawing on a study co-funded by the UK MRC and CONFAP Brazil). Programa Maior Cuidado (PMC) was established in the Brazilian city of Belo Horizonte in 2011. It is jointly managed by the departments of health and of social assistance and involves close community-level collaboration between health posts and neighbourhood social service centres. A key element of PMC is the provision of paid trained lay carers to support family care for dependent older people in socially vulnerable families. We will present findings on the implementation process and operation of PMC, as well as its effects on the following outcomes of interest: reduced unnecessary hospitalisations, enhanced health status for older people and reduced care burden for family carers. Quasi-experimental analysis using spatial-based Propensity Score Matching shows promising results in terms of increasing planned attentions as well as access to rehabilitation services, which confirms the ability of the Program to improve interface with health services avoiding unplanned unnecessary attentions We will examine the implementation of similar interventions in other Brazilian cities, including Fortaleza and Contagem, and will study the role of national and international processes in dissemination, knowledge sharing and agenda-setting. Key messages The presentation provides findings of process and impact evaluations of novel local government initiatives to integrate care for older people in Brazil. Programme under evaluation lead to interesting outcomes of interest: reduced unnecessary hospitalisations, enhanced health status for older people and reduced care burden for family carers.

scholarly journals Partnership between Primary Health and Social Care Services in the Long-Term Care of Older People with Dementia: A Vignette Study

2020 ◽  
Author(s):  
Ausrine Kontrimiene ◽  
Aurelija Blazeviciene ◽  
Ida Liseckiene ◽  
Gediminas Raila ◽  
Leonas Valius ◽  
...  
Keyword(s):  
Older People ◽  
Social Care ◽  
Informal Caregiver ◽  
Three Dimensional ◽  
Term Care ◽  
Primary Health ◽  
People With Dementia ◽  
Health And Social Care ◽  
Relationship Perception

Abstract Background. Dementia is considered to be a significant cause of disability and dependency for older people worldwide and it raises difficulties in providing adequate formal and informal assistance. Research on the experience of long-term care (LTC) services for older people with dementia is scarce in Eastern European countries. This study aimed to understand the system of care for older people with dementia from the perspective of health and social care workers providing LTC services in Lithuania. Methods. A total of 72 primary health care and social care professionals from public and private institutions in Kaunas city participated in this study. One-to-one interviews were conducted with family physicians, community nurses, psychiatrists, psychiatric nurses, and social workers. A vignette situation of two fictitious patients with dementia and their informal caregiver was discussed during the interviews. Data were analyzed using thematic analysis by induction approach.Results. Thematic analysis of the data revealed two main themes: LTC provision trajectory, and three-dimensional relationship perception in realization of LTC activities. LTC provision trajectory reflected activities performed as a response to the described situation embracing formal procedures for the endorsement of LTC needs as well as the range of LTC services. Three-dimensional relationship perception in realization of LTC activities mirrored the participants’ relationships with themselves, with each other, and with the informal caregiver.Conclusions. Our study revealed the potential of complex measures that could be instrumental for the refinement of the caregiving process. First, a change in the special needs’ endorsement logic is needed, shifting focus from medical diagnosis to functional abilities assessment. Second, establishing clear procedures for formal cooperation between the health and social care sectors in the trajectory of LTC service provision. Finally, finding an adequate balance between LTC and institutional care by creating a wider range of LTC services. A more consistent and coordinated delivery of services by both health and social care sectors seems to be an untapped resource for the improvement of the LTC potential.

scholarly journals Partnership between primary health and social care services in the long-term care of older people with dementia: a vignette study

2020 ◽  
Author(s):  
Ausrine Kontrimiene ◽  
Aurelija Blazeviciene ◽  
Ida Liseckiene ◽  
Gediminas Raila ◽  
Leonas Valius ◽  
...  
Keyword(s):  
Older People ◽  
Social Care ◽  
Informal Caregiver ◽  
Three Dimensional ◽  
Term Care ◽  
Primary Health ◽  
People With Dementia ◽  
Health And Social Care ◽  
Relationship Perception

Abstract Background Dementia is considered to be a significant cause of disability and dependency for older people worldwide and it raises difficulties in providing adequate formal and informal assistance. Research on the experience of long-term care (LTC) services for older people with dementia is scarce in Eastern European countries. This study aimed to understand the system of care for older people with dementia from the perspective of health and social care workers providing LTC services in Lithuania. Methods A total of 72 primary health care and social care professionals from public and private institutions in Kaunas city participated in this study. One-to-one interviews were conducted with family physicians, community nurses, psychiatrists, psychiatric nurses, and social workers. A vignette situation of two fictitious patients with dementia and their informal caregiver was discussed during the interviews. Data were analyzed using thematic analysis by induction approach. Results Thematic analysis of the data revealed two main themes: LTC provision trajectory, and three-dimensional relationship perception in realization of LTC activities. LTC provision trajectory reflected activities performed as a response to the described situation embracing formal procedures for the endorsement of LTC needs as well as the range of LTC services. Three-dimensional relationship perception in realization of LTC activities mirrored the participants’ relationships with themselves, with each other, and with the informal caregiver. Conclusions Our study revealed the potential of complex measures that could be instrumental for the refinement of the caregiving process. First, a change in the special needs’ endorsement logic is needed, shifting focus from medical diagnosis to functional abilities assessment. Second, establishing clear procedures for formal cooperation between the health and social care sectors in the trajectory of LTC service provision. Finally, finding an adequate balance between LTC and institutional care by creating a wider range of LTC services. A more consistent and coordinated delivery of services by both health and social care sectors seems to be an untapped resource for the improvement of the LTC potential.

Design of a Conceptual Bed Mattress for Reducing Pressure on Bony Prominences

2015 ◽  
Author(s):  
Ozlem Salman ◽  
Karolina Bezerra ◽  
José Machado ◽  
Vitor Carvalho ◽  
Filomena Soares ◽  
...  
Keyword(s):  
Older People ◽  
Social Care ◽  
Elderly Care ◽  
Daily Activities ◽  
Integrated Systems ◽  
Design Structure ◽  
The Social ◽  
Health And Social Care ◽  
Safety Design ◽  
Professional Assistance

Elderly care emphasizes the social and personal requirements of older people who need assistance with daily activities and health care, where almost always the main caregiver is the other element of the couple (husband or wife). In the context of Wellbeing, and from its perspective, it is important to have information regarding the type of care needed by bedridden elderly people. Regardless of the needs, they desire independence and autonomy in their life so they need better, more efficient and integrated systems for health and social care. Nowadays, there is an increase on the availability of assisted devices that can be used at home, decreasing the constant requirement for health professional assistance. The main objective of this study is to propose a conceptual solution consisting on the development of a bed mattress in order to reduce pressure points and protect fragile elders. Also, it intends to show a solution that may reduce the number of caregivers to only one. Besides it allows a safety design structure, to be able to take care of older people with disabilities in order to live independently and be active in their home.

“Sliding Doors”: innovative approaches to supporting culture change

2014 ◽  
Vol 22 (4) ◽  
pp. 154-164 ◽  
Author(s):  
Gill Walker ◽  
Laura Gillies
Keyword(s):  
Older People ◽  
Social Services ◽  
Social Care ◽  
Care Staff ◽  
Educational Drama ◽  
Content Type ◽  
The People ◽  
Health And Social Care ◽  
The Difference ◽  
Policy Direction

Purpose – Reshaping Care for Older People (RCOP) and Integration of Health and Social Care are central to providing a care system in Scotland that meets older people's current and future needs. Their implementation requires a workforce with the appropriate knowledge, skills and values to engage with older people across health and social care sectors, which requires a change in professionals’ thinking about services. The paper aims to discuss these issues. Design/methodology/approach – NHS Education for Scotland, the Scottish Social Services Council and a learning and development consultancy designed and delivered innovative education resources to support health and social care staff across Scotland to understand the new agenda and recognise its meaning for practice. Findings – Two related resources were developed: workshop using actors to depict scenarios from older people's lives to support participants to reflect on the new policy direction and outcomes-focused approaches; and an online resource using the same characters that can be delivered locally for groups and individuals. Participants were enabled to identify what they need to do differently and how they can support one another to make necessary changes. A formal evaluation has been commissioned. Originality/value – The resource characters represent the people the new policy is designed to affect. By following their lives through an educational drama approach, health and social care staff can understand the difference RCOP and the integration agenda can make and recognise their part in effecting change.

scholarly journals Health Inequities in the Care Pathways for People Living with Young- and Late-Onset Dementia: From Pre-COVID-19 to Early Pandemic

2021 ◽  
Vol 18 (2) ◽  
pp. 686
Author(s):  
Clarissa Giebel ◽  
Caroline Sutcliffe ◽  
Frances Darlington-Pollock ◽  
Mark A. Green ◽  
Asan Akpan ◽  
...  
Keyword(s):  
Social Care ◽  
Late Onset ◽  
Care Pathways ◽  
Family Carer ◽  
Family Carers ◽  
North West ◽  
Care Services ◽  
People With Dementia ◽  
Health And Social Care ◽  
Person With Dementia

Background: Little is known about how people with dementia and/or their family carers access health and social care services after a diagnosis. The aim of this study was to explore potential inequalities in care pathways for people with young-onset and late on-set dementia (YOD/LOD), including their family carers, with coronavirus disease 2019 (COVID-19) occurring throughout the course of the study and enabling a comparison between pre-pandemic and COVID-19 times. Methods: People with YOD and LOD with their family carers were recruited via local support groups in the North West Coast region of England. Semi-structured interviews explored the experiences of people with YOD and LOD and family carers on their access to both health and social care services and community-based services. Transcripts were coded by two researchers and analysed using thematic analysis. Fifteen interviews were conducted with seven people with YOD or LOD and 14 family carers between January and March 2020. Some interviews were conducted only with the person with dementia, because they did not have a family carer, and others were conducted only with the family carer, because the person with dementia was in the severe stages of the condition. Results: Four themes emerged from the interviews: (1) Getting the ball rolling: the process of diagnosis; (2) Balancing the support needs of people with dementia and carers; (3) Barriers to accessing support; and (4) Facilitators to accessing support. Inequities existed for both YOD and LOD, with emerging evidence of unequal experiences in accessing care at the beginning of the COVID-19 pandemic. Discussion: People with YOD and LOD and their carers require better support in accessing services after a diagnosis. Greater understanding of the pathways through which inequalities materialise are needed, especially those that might have been disrupted or exacerbated by the COVID-19 pandemic.

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