Activities of Daily Living and Self-Care Agency in Patients with Multiple Sclerosis for the First 10 Years

Objective: describe the self-care and functionality levels of patients with multiple sclerosis and determine whether sociodemographic, clinical and functional variables interfere with self-care and/or functionality. Method: correlational, cross-sectional study with a quantitative approach performed with individuals in outpatient follow-up. We collected sociodemographic and clinical data and applied the Appraisal of Self-care Agency Scale, the Barthel index, the Lawtton and Brody Scale, and the instrument to investigate the performance in Advanced Activities of Daily Living. We performed descriptive and inferential analysis. Results: most patients were classified as “having self-care” (82.14%); with moderate dependence (51.19%) for the basic activities of daily living, partial dependence for the instrumental activities of daily living (55.95%), and more active for the advanced activities of daily living (85.71%). Patients with longer disease duration had a higher number of disabilities and, in those with better socioeconomic and educational profile, the functionality was better. Conclusion: disease duration was strongly correlated with a higher number of disabilities and better socioeconomic and educational profiles showed to be protective factors for functionality. Care planning should consider the needs observed by the multidisciplinary team, stimulating the development of self-care, functionality and sociability.

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Relationships Among Self-Care Agency, Health Perceptions, and Activities of Daily Living in Patients After Tracheostomy: A Cross-sectional Multisite Study

Wound Management & Prevention ◽

10.25270/wmp.2021.2.4047 ◽

2021 ◽

Vol 67 (2) ◽

pp. 40-47

Author(s):

Yasemin Altınbaş ◽

Sinan Aslan ◽

Türkan Karaca

Keyword(s):

Activities Of Daily Living ◽

Outpatient Care ◽

Daily Living ◽

Pearson Correlation ◽

Self Care ◽

Well Being ◽

Health Perception ◽

Cross Sectional ◽

Test Analysis ◽

Care Agency

BACKGROUND: Patients who have undergone tracheostomy may feel weak, perceive a change in their health status, and have difficulty performing activities of daily living (ADL) following hospital discharge. PURPOSE: To investigate the relationships among self-care agency, health perception, and ADL in patients after tracheostomy. METHODS: A cross-sectional multisite descriptive study was conducted between December 31, 2019, and March 31, 2020. The sample consisted of 123 patients discharged from 3 hospitals in different regions of Turkey who agreed to participate in the study, were discharged with a tracheostomy, and received home care for at least 1 month (maximum 3 months) after discharge. The Sociodemographic Characteristics Form, the Self-Care Agency Scale (SCAS), Perception of Health Scale (PHS), and Activities of Daily Living (ADL) Scale were used and completed during face-to-face interviews. Descriptive statistics, independent sample t-test, analysis of variance, and Pearson correlation analysis were used to analyze data; P < .05 was accepted as the level of significance. RESULTS: Sixty-three (63) of 123 patients (51.2%) were 65 years and older, 86 (69.9%) were male, and 62 (50%) did not receive regular outpatient care. Most underwent surgery < 45 days ago (69; 56%), had cancer (92; 75%), and spent between zero and 185 US dollars per month on tracheostomy care (94; 76%). Compared with patients who received regular outpatient care, SCAS, PHS, and ADL scores were significantly lower (P < 0.05) in patients who did not receive this care. Overall scores showed moderate self-care agency and health perception, and the average ADL scores (14.92 ± 3.05) were in the independent range. Statistically significant positive correlations were found between health perception and self-care agency (r = 0.628; P = .001), health perception and ADL (r = 0.238; P = .008), and self-care agency and ADL (r = 0.461; P = .001). CONCLUSION: Patients who underwent tracheostomy had moderate SCAS and PHS scores, were able to perform ADL independently, and the scores were correlated. Patients with access to outpatient care had significantly higher SCAS, PHS, and ADL scores than patients who did not. Follow-up care may affect all dimensions of health and well-being.

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Performance of Activities of daily living in people with multiple sclerosis

Multiple Sclerosis and Related Disorders ◽

10.1016/j.msard.2021.103342 ◽

2021 ◽

pp. 103342

Author(s):

Jelka Jansa ◽

Sofie Ferdinand ◽

Meta Milo ◽

Inger G Løyning ◽

Tarja Huilla ◽

...

Keyword(s):

Multiple Sclerosis ◽

Activities Of Daily Living ◽

Daily Living

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The Relationship Between Balance and Activities of Daily Living With the Quality of Life of Patients With Relapsing-Remitting Multiple Sclerosis

Journal of Rehabilitation ◽

10.32598/rj.19.4.292 ◽

2019 ◽

pp. 292-301 ◽

Cited By ~ 1

Author(s):

Mansour Noori ◽

Seyed Ali Hosseini ◽

Vali Shiri ◽

Nazila Akbarfahimi

Keyword(s):

Quality Of Life ◽

Multiple Sclerosis ◽

Activities Of Daily Living ◽

Daily Living ◽

Relapsing Remitting ◽

Remitting Multiple Sclerosis ◽

Relapsing Remitting Multiple Sclerosis ◽

The Relationship

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Timed instrumental activities of daily living in multiple sclerosis: The test of everyday cognitive ability (TECA)

Multiple Sclerosis and Related Disorders ◽

10.1016/j.msard.2018.05.001 ◽

2018 ◽

Vol 23 ◽

pp. 69-73

Author(s):

Leigh E. Charvet ◽

Michael T. Shaw ◽

Kathleen Sherman ◽

Shannon Haas ◽

Lauren B. Krupp

Keyword(s):

Multiple Sclerosis ◽

Activities Of Daily Living ◽

Cognitive Ability ◽

Daily Living ◽

Instrumental Activities

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Effect of implementing designed educational training program for neurological nurses on clinical outcomes of stroke patients

Clinical Nursing Studies ◽

10.5430/cns.v6n4p121 ◽

2018 ◽

Vol 6 (4) ◽

pp. 121 ◽

Cited By ~ 1

Author(s):

Seham A. Abd El-Hay ◽

Amany K. Abed Allah ◽

El Sayed A. Tag El Din

Keyword(s):

Activities Of Daily Living ◽

Training Program ◽

Clinical Outcomes ◽

Daily Living ◽

Self Care ◽

Educational Training ◽

Stroke Patients ◽

Knowledge And Practice ◽

Educational Training Program ◽

Nurses Knowledge

Background: Stroke is a major cause of functional disability, it increased the need for continuous nursing care. Nurses need to pay attention not only to the physical recovery after stroke, but also to the psychological and social recovery. Therefore, it is important to provide training courses to nurses about care of stroke patients.Aim: This study was conducted to evaluate the effect of implementing designed educational training program for neurological nurses on clinical outcomes of stroke patients.Methods: Design: A quasi experimental research design was utilized. Setting: Data were collected from Neurological Intensive Care Units, Wards and Neurological outpatient clinics of Tanta Main University Hospital. Sample: All nurses (n = 35) who are providing direct care for stroke patients and a purposive sample of 30 stroke patients. Tools: Three tools were used to collect data. Tool (I): Assessment of nurses’ knowledge questionnaire sheet about stroke; Tool (II): Observational checklist to evaluate nurses’ practice regarding care of stroke patients; and Tool (III): Patient’s clinical outcomes assessment sheet.Results: The results revealed that there were significant improvements in nurses’ knowledge and practice regarding care of stroke patients post training program at p < .01. Also, significant improvements in self-care and activities of daily living among stroke patients were observed from immediately to 2 months later post application of training program.Conclusions: The study findings revealed that the implementation of designed educational training program within 2 months were successful for improving nurses’ knowledge and practice regarding care of stroke patients. Furthermore, there was improvement in activities of daily living and self-care among stroke patients.Recommendations: It is recommended to generalize implementation of designed educational training program for neurological nurses as a routine hospital care for stroke patients.

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A review of instrumental ADL assessments for use with elderly people

Reviews in Clinical Gerontology ◽

10.1017/s0959259898008089 ◽

1998 ◽

Vol 8 (1) ◽

pp. 65-71 ◽

Cited By ~ 27

Author(s):

Gillian Ward ◽

Carol Jagger ◽

William Harper

Keyword(s):

Activities Of Daily Living ◽

Standardized Tests ◽

Elderly People ◽

Daily Living ◽

Self Care ◽

Primary Level ◽

Instrumental Activities ◽

Hierarchical Nature ◽

The 1960S ◽

Definition Of

The concept of formal or standardized tests for assessing function came to the fore in the 1960s. Katz et al. acknowledged the hierarchical nature of activities of daily living (ADL) such as eating, continence, transferring, going to the toilet, dressing and bathing in his ’Index of ADL’ and by 1968 ‘ADL’ was an accepted Index Medicus category. The definition of instrumental activities of daily living (IADL) began in 1969 with the work of Lawton and Brody who presented two scales to assess function which recognized the different degrees of complexity required for performing functional tasks. The first scale, taking life maintenance and activities essential for self-care as the primary level, was called the Physical Self-Maintenance Scale.

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