Privacy Respecting Data Sharing and Communication in mHealth: A Case Study

Author(s):  
Michael Pleger ◽  
Ina Schiering
Keyword(s):  
2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Lihong Zhou ◽  
Longqi Chen ◽  
Yingying Han

PurposeThe provision of high-quality e-Government services requires efficient and collaborative sharing of data across varied types of government agencies. However, interagency government data sharing (IDS) is not always spontaneous, active and unconditional. Adopting a stickiness theory, this paper reports on a research study, which explores the causes of data stickiness in IDS.Design/methodology/approachThis study employed an inductive case study approach. Twenty-three officials from the government of City M in Hubei Province, Central China, were approached and interviewed using a semi-structured question script.FindingsThe analysis of the interview data pointed to 27 causes of data stickiness in five main themes: data sharing willingness; data sharing ability; data articulatability; data residence; and data absorptive capacity. The analysis revealed that interagency tensions and lack of preparedness of individual agencies are the main causes of data stickiness in IDS.Originality/valueThe case setting is based on China's Government, but the findings offer useful insights and indications that can be shared across international borders.


Author(s):  
Yu Niu ◽  
Ji-Jiang Yang ◽  
Qing Wang

With the pervasive using of Electronic Medical Records (EMR) and telemedicine technologies, more and more digital healthcare data are accumulated from multiple sources. As healthcare data is valuable for both commercial and scientific research, the demand of sharing healthcare data has been growing rapidly. Nevertheless, health care data normally contains a large amount of personal information, and sharing them directly would bring huge threaten to the patient privacy. This paper proposes a privacy preserving framework for medical data sharing with the view of practical application. The framework focuses on three key issues of privacy protection during the data sharing, which are privacy definition/detection, privacy policy management, and privacy preserving data publishing. A case study for Chinese Electronic Medical Record (ERM) publishing with privacy preserving is implemented based on the proposed framework. Specific Chinese free text EMR segmentation, Protected Health Information (PHI) extraction, and K-anonymity PHI anonymous algorithms are proposed in each component. The real-life data from hospitals are used to evaluate the performance of the proposed framework and system.


2020 ◽  
pp. 089443932097995
Author(s):  
Averill Campion ◽  
Mila Gasco-Hernandez ◽  
Slava Jankin Mikhaylov ◽  
Marc Esteve

Despite the current popularity of artificial intelligence (AI) and a steady increase in publications over time, few studies have investigated AI in public contexts. As a result, assumptions about the drivers, challenges, and impacts of AI in government are far from conclusive. By using a case study that involves a large research university in England and two different county councils in a multiyear collaborative project around AI, we study the challenges that interorganizational collaborations face in adopting AI tools and implementing organizational routines to address them. Our findings reveal the most important challenges facing such collaborations: a resistance to sharing data due to privacy and security concerns, insufficient understanding of the required and available data, a lack of alignment between project interests and expectations around data sharing, and a lack of engagement across organizational hierarchy. Organizational routines capable of overcoming such challenges include working on-site, presenting the benefits of data sharing, reframing problems, designating joint appointments and boundary spanners, and connecting participants in the collaboration at all levels around project design and purpose.


2014 ◽  
Vol 7 (1) ◽  
pp. 181-216 ◽  
Author(s):  
W. Zhang ◽  
T. Li ◽  
Y. Huang ◽  
Q. Zhang ◽  
J. Bian ◽  
...  

Abstract. Data scarcity is a major cause of substantial uncertainties in regional estimations conducted with model upscaling. To evaluate the impact of data scarcity on model upscaling, we introduce an approach for aggregating uncertainties in model estimations. A data sharing matrix was developed to aggregate the modeled uncertainties in divisions of a subject region. In a case study, the uncertainty in methane emissions from rice paddies on mainland China was calculated with a local-scale model CH4MOD. The data scarcities in five of the most sensitive model variables were included in the analysis. The national total methane emissions were 6.44–7.32 Tg, depending on the spatial resolution used for modeling, with a 95% confidence interval of 4.5–8.7 Tg. Based on the data sharing matrix, two numeral indices, IR and Ids, were also introduced to suggest the proper spatial resolution in model upscaling.


Database ◽  
2020 ◽  
Vol 2020 ◽  
Author(s):  
Braja Gopal Patra ◽  
Kirk Roberts ◽  
Hulin Wu

Abstract It is a growing trend among researchers to make their data publicly available for experimental reproducibility and data reusability. Sharing data with fellow researchers helps in increasing the visibility of the work. On the other hand, there are researchers who are inhibited by the lack of data resources. To overcome this challenge, many repositories and knowledge bases have been established to date to ease data sharing. Further, in the past two decades, there has been an exponential increase in the number of datasets added to these dataset repositories. However, most of these repositories are domain-specific, and none of them can recommend datasets to researchers/users. Naturally, it is challenging for a researcher to keep track of all the relevant repositories for potential use. Thus, a dataset recommender system that recommends datasets to a researcher based on previous publications can enhance their productivity and expedite further research. This work adopts an information retrieval (IR) paradigm for dataset recommendation. We hypothesize that two fundamental differences exist between dataset recommendation and PubMed-style biomedical IR beyond the corpus. First, instead of keywords, the query is the researcher, embodied by his or her publications. Second, to filter the relevant datasets from non-relevant ones, researchers are better represented by a set of interests, as opposed to the entire body of their research. This second approach is implemented using a non-parametric clustering technique. These clusters are used to recommend datasets for each researcher using the cosine similarity between the vector representations of publication clusters and datasets. The maximum normalized discounted cumulative gain at 10 (NDCG@10), precision at 10 (p@10) partial and p@10 strict of 0.89, 0.78 and 0.61, respectively, were obtained using the proposed method after manual evaluation by five researchers. As per the best of our knowledge, this is the first study of its kind on content-based dataset recommendation. We hope that this system will further promote data sharing, offset the researchers’ workload in identifying the right dataset and increase the reusability of biomedical datasets. Database URL: http://genestudy.org/recommends/#/


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