Information Persistence Architecture for Informal and Formal Care Providers

2014 ◽  
pp. 365-375 ◽  
Author(s):  
Yosvany Llerena Rodriguez ◽  
Carlos Cardoso ◽  
Miguel Grade ◽  
Filipe Augusto ◽  
Alexandra Queirós ◽  
...  
Keyword(s):  
Formal Care ◽  
Care Providers

Inappropriate Accommodation in Communication to Elders: Inferences about Nonverbal Correlates

1994 ◽  
Vol 39 (4) ◽  
pp. 273-291 ◽  
Author(s):  
Ellen Bouchard Ryan ◽  
Maryanne Maclean ◽  
J. B. Orange
Keyword(s):  
Formal Care ◽  
Care Providers ◽  
Nonverbal Behaviors ◽  
Communication Accommodation ◽  
Communication Accommodation Theory ◽  
Instrumental Task ◽  
Conversational Style ◽  
Accommodation Theory ◽  
Adult Volunteers

According to Communication Accommodation Theory, overaccommodation in intergenerational communication with elders is frequently based on stereotyped expectations of frailty and dependence. This study examined the role of nonverbal behaviors in such overaccommodation. Adult volunteers ( N = 120; mean age = 29 years) read either a patronizing or neutral version of one of three conversations between a nursing home resident and a nurse. As in our earlier study, the nurse's use of the patronizing conversational style was rated as less respectful, less nurturant, and more frustrating for the resident than the neutral style. The main analyses indicated that negative nonverbal behaviors were rated as significantly more likely to occur with the patronizing style while positive nonverbal behaviors were rated as significantly less likely. The negative evaluative impact of patronizing style was especially apparent for instrumental task situations with high compliance demands. The effects for conversational style were essentially replicated for a smaller sample (N = 50) of formal care providers.

scholarly journals The factors associated with entry to formal care for the elderly in Scotland: A longitudinal analysis

2018 ◽  
Vol 3 (2) ◽  
Author(s):  
D. Helen Corby ◽  
Dawn Everington ◽  
John Starr ◽  
Ian J. Deary ◽  
Chris Dibben
Keyword(s):  
Population Density ◽  
Older People ◽  
Longitudinal Analysis ◽  
Housing Tenure ◽  
Future Research ◽  
Ageing Population ◽  
Formal Care ◽  
Care Providers ◽  
Factors Associated ◽  
Scottish Population

BackgroundLosing independence is a concern for older people, and sadly a reality for many. In Scotland there is an ageing population and unlike the rest of the UK, a policy to provide free personal and nursing care for those in need of assistance; this makes loss of independence high on the agenda of government, local authorities, care providers, older people and their families alike. ObjectivesThis study aimed to investigate the factors associated with entry to formal care for older people in Scotland. In addition to socio-demographic, geographical and health characteristics, this study considered three lesser studied or novel factors: living in a flat, population density and recent employment. MethodsA Scottish Longitudinal Study project (https://sls.lscs.ac.uk/) provided a 5.3% representative sample of the Scottish population for longitudinal analysis. This included people aged 65 and older in 1991 whose care-entry status was then followed-up in 2001. FindingsAssociations were found for age, sex, marital status, longterm illness, housing tenure, recent employment, urban/rural classification and population density. Notably, whilst living in rural areas had a protective association with formal care home entry (OR 0.35 [95% CI 0.29,0.43]), paradoxically, living in areas with a low population density was associated with greatly increased odds (OR 9.05 [95% CI 7.34, 11.19]). ConclusionsThis study indicates that the factors associated with care-entry in the Scottish population are similar to those in other Western countries. Possible explanations and justifications for the apparently paradoxical association found for population density are discussed. This finding might be relevant in populations outside Scotland, and future research should explore this.

scholarly journals LONG-DISTANCE CAREGIVERS’ SATISFACTION AND CHALLENGES WITH FORMAL CARE PROVIDERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S557-S557
Author(s):  
Francesca Falzarano ◽  
Jillian Minahan ◽  
Verena Cimarolli ◽  
Amy Horowitz ◽  
Danielle Jimenez
Keyword(s):  
Nursing Home ◽  
Formal Care ◽  
Community Nursing ◽  
Residential Setting ◽  
Care Providers ◽  
Information Communication ◽  
Long Distance ◽  
Inadequate Care

Abstract The purpose of this study (N=304) was to identify differences in LDCs’ experiences with their care recipient’s (CR) formal care providers (FCPs) among four LDC groups based on CR dementia status and residential setting (community/nursing home [NH]). Results show that LDCs of CRs without dementia living in a NH are less likely to be satisfied with information/communication provided by FCPs compared to LDCs of CRs with dementia in the community. FCP-related challenges were significantly greater among LDCs of CRs in a NH, with or without dementia, compared to LDCs of CRs without dementia living in the community. A significantly greater proportion of LDCs of CRs living in a NH, with or without dementia, reported dealing with inadequate care as a challenge compared to LDCs of CRs with dementia living in the community. This highlights LDCs’ unique experiences related to FCPs based on differences in CR dementia status and residential setting.

Formal Care Providers' Perceptions of Home- and Community-Based Services: Informing Dementia Care Quality

2009 ◽  
Vol 28 (1) ◽  
pp. 1-23 ◽  
Author(s):  
Lynn Jansen ◽  
Dorothy A. Forbes ◽  
Maureen Markle-Reid ◽  
Pamela Hawranik ◽  
Dawn Kingston ◽  
...  
Keyword(s):  
Care Quality ◽  
Dementia Care ◽  
Formal Care ◽  
Care Providers ◽  
Community Based ◽  
Community Based Services

scholarly journals WHAT DOES LONG-DISTANCE CAREGIVING LOOK LIKE?

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S557-S557
Author(s):  
Amy Horowitz ◽  
Danielle Jimenez ◽  
Verena Cimarolli ◽  
Francesca Falzarano ◽  
Jillian Minahan
Keyword(s):  
Emotional Support ◽  
Care Management ◽  
Qualitative Data ◽  
Formal Care ◽  
Care Providers ◽  
Long Distance ◽  
Building Relationships ◽  
Wide Range ◽  
Emerging Themes

Abstract Long-distance caregivers (LDCs) are defined by geography, with little known about what they actually do when visiting and from afar. Both quantitative and qualitative data were collected from 304 LDCs. Half of LDCs lived more than 500 miles away from the care receiver (CR); 38% visited at least 1x a month, another 53% visited several times a year. Visit length varied extensively, ranging from one to 90 days at a time, with a median of 3 days. A wide range of care management tasks were common both when visiting and from afar; and targeted both formal providers and other informal caregivers. Emotional support and help with ADLs and IADLs were common during in-person visits. Other examples of emerging themes include: building relationships with formal care providers; personalizing care through, for example, special foods and/or activities; and the role of resources in determining visit length and help provided.

scholarly journals Perceived Usefulness, Satisfaction, Ease of Use and Potential of a Virtual Companion to Support the Care Provision for Older Adults

Technologies ◽  
2020 ◽  
Vol 8 (3) ◽  
pp. 42
Author(s):  
Ana Luísa Jegundo ◽  
Carina Dantas ◽  
João Quintas ◽  
João Dutra ◽  
Ana Leonor Almeida ◽  
...  
Keyword(s):  
Older Adults ◽  
Focus Group ◽  
Observational Study ◽  
Critical Incident ◽  
Ease Of Use ◽  
Perceived Usefulness ◽  
International Classification Of Functioning ◽  
Formal Care ◽  
Care Provision ◽  
Care Providers

This article reports a study aiming to determine the perceptions of older adults needing formal care about the usefulness, satisfaction, and ease of use of CaMeLi, a virtual companion based on an embodied conversational agent, and the perceptions of formal caregivers about the potential of virtual companions to support care provision. An observational study involving older adults needing formal care was conducted to assess CaMeLi using a multi-method approach (i.e., an auto-reported questionnaire—the Usefulness, Satisfaction, and Ease of use questionnaire; a scale for the usability assessment based on the opinion of observers—the International Classification of Functioning Disability and Health-based Usability Scale; and critical incident registration). Moreover, a focus group was conducted to collect data regarding the perceived utility of virtual companions to support care provision. The observational study was conducted with 46 participants with an average age of 63.6 years, and the results were associated with a high level of usefulness, satisfaction, and ease of use of CaMeLi. Furthermore, the focus group composed of four care providers considered virtual companions a promising solution to support care provision and to prevent loneliness and social isolation. The results of both the observational study and the focus group revealed good perceptions regarding the role of virtual companions to support the care provision for older adults.

scholarly journals The Effects of Home Care Provider Mix on the Care Recipient: An International, Systematic Review of Articles from 2000 to 2020

2021 ◽  
Vol 42 (1) ◽  
Author(s):  
Norma B. Coe ◽  
R. Tamara Konetzka ◽  
Melissa Berkowitz ◽  
Emily Blecker ◽  
Courtney H. Van Houtven
Keyword(s):  
Systematic Review ◽  
Health Care ◽  
Informal Care ◽  
Well Being ◽  
Health Care Use ◽  
Care Recipient ◽  
Publication Date ◽  
Formal Care ◽  
Care Providers ◽  
Care Recipients

In this systematic review, we examine the literature from 2000 to 2020 to ascertain whether we can make strong conclusions about the relative benefit of adding informal care or formal care providers to the care mix among individuals receiving care in the home, specifically focusing on care recipient outcomes. We evaluate how informal care and formal care affect (or are associated with) health care use of care recipients, health care costs of care recipients, and health outcomes of care recipients. The literature to date suggests that informal care, either alone or in concert with formal care, delivers improvements in the health and well-being of older adults receiving care. The conclusions one can draw about the effects of formal care are less clear. Expected final online publication date for the Annual Review of Public Health, Volume 42 is April 2021. Please see http://www.annualreviews.org/page/journal/pubdates for revised estimates.

scholarly journals Using Twitter to understand the COVID-19 experiences of people living with dementia (Preprint)

2020 ◽  
Author(s):  
Juanita Dawne Bascu ◽  
Megan O'Connell ◽  
Allison Cammer ◽  
Mahsa Azizi ◽  
Karl Grewal ◽  
...  
Keyword(s):  
Thematic Analysis ◽  
Formal Care ◽  
Collaborative Approach ◽  
Care Providers ◽  
People With Dementia ◽  
Care Partners

BACKGROUND The COVID-19 pandemic is affecting people with dementia in numerous ways. Nevertheless, there is a paucity of research on the COVID-19 impact on people with dementia and their care partners. OBJECTIVE Using Twitter, the purpose of this study was to understand the experiences of COVID-19 of people living with dementia and their care partners. METHODS We collected tweets on COVID-19 and dementia using the GetOldTweets application in Python from February 15 to September 7, 2020. Thematic analysis was used to analyze the tweets. RESULTS From the 5,063 tweets analyzed with line by line coding, we identified four main themes including: i) separation and loss; ii) COVID confusion, despair, and abandonment; iii) stress and exhaustion exacerbation; and iv) unpaid sacrifices by formal care providers. CONCLUSIONS There is an imminent need for governments to rethink using a one-size-fits-all response to COVID-19 policy and use a collaborative approach to support people with dementia. Collaboration and more evidence-informed research are essential to reducing COVID-19 mortality and improving the quality of lives for people with dementia and their care partners.

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