Family Quality of Life, Personal Well-Being, and Risk Behavior in Early Adolescents in Hong Kong: Related Phenomena and Research Gaps

The relationships between siblings are the most long-lasting in families. When one of the siblings is a person with intellectual disabilities (ID), this relationship assumes an even more important role since this brother/sister will most likely become the disabled individual’s main caregiver. This pilot study had two aims: to explore the experience as an adolescent or adult sibling of a person with ID and to understand the perceptions of these siblings about quality of life as a sibling and about family quality of life. In-depth interviews were conducted with six siblings. The results showed that the experience of a sibling is positive and the acceptance process is of extreme importance. The domains which, from the sibling perspective, contribute to family quality of life are as follows: Family relationships, Acceptance, Health, Influence of values, Financial well-being, Support from others, and Leisure activities. The implications of these findings for intervention are pointed out.

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The Influence of Attending Festivals with Children on Family Quality of Life, Subjective Well-Being, and Event Experience

Event Management ◽

10.3727/152599521x16192004803593 ◽

2021 ◽

Author(s):

Yi Liu ◽

Jason Draper

Keyword(s):

Quality Of Life ◽

Family Relationships ◽

Structural Equation ◽

Well Being ◽

Equation Modeling ◽

Family Quality Of Life ◽

Subjective Well Being ◽

Family Activity ◽

The Relationship

Participants attending a festival(s) with children is a family activity that influences family relationships. This study examines the relationship between attending status (e.g., with or without children), event experience, subjective well-being, and family quality of life (FQOL). A total of 585 festival participants’ data analyzed by structural equation modeling (SEM) revealed that participants attending with children have a higher level of subjective well-being and FQOL compared to those without children. Participants attending with children have a higher level of cognitive engagement and experience novelty in festivals compared to those without children. Event experience results in a significant positive relationship with subjective well-being. This study expands current event literature in terms of FQOL and provides a practical guideline to event organizers to better understand the significance of festivals.

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Emotional well-being and social support as important factors affecting the quality of life of parents of a child with cerebral palsy

Serviço Social e Saúde ◽

10.20396/sss.v18i0.8656805 ◽

2019 ◽

Vol 18 ◽

pp. e019002

Author(s):

Katarína Molnárová Letovancová ◽

Miriam Slaná ◽

Michaela Hromková

Keyword(s):

Quality Of Life ◽

Social Support ◽

Cerebral Palsy ◽

Well Being ◽

Average Score ◽

Family Quality Of Life ◽

Life Questionnaire ◽

Quality Of Life Scale ◽

Children With Cerebral Palsy

The birth of a child with cerebral palsy is an enormous challenge for the parents which has a direct impact on their quality of life. Therefore, we believe it is important to pay attention to this topic. To that end, we conducted research on the quality of life of parents of children with cerebral palsy in 2018. To achieve our goal, we applied quantitative research strategy and used a valid research tool, i.e. a standardized quality of life questionnaire – Family Quality of Life Scale ("FQOL"). The average score reached by respondents was 94.0918 points which indicates a higher quality of life in respondents than expected. The evaluation of the average score for each dimension of the scale showed that respondents scored the lowest in the "Emotional Well-Being" dimension (13.2551 points) and "Social Support" (15.6429 points). The research further confirmed that there were statistically significant differences in the quality of life of respondents depending on their age (t = -2.341, p = 0.021), marital status (F = 3.476, p = 0.019) and the territorial region (χ2 = 15.39, p = 0.031). A statistically significant relationship between the quality of life of respondents and the age of the child with cerebral palsy (0.288 **, p = 0.004) was confirmed. Despite a relatively high score that indicated a higher quality of life in respondents, the research identified two areas in which parents of children with cerebral palsy had a lower quality of life, namely, their emotional well-being and social support.

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Family quality of life and child psychological well-being in Palestine: A pilot case study

Journal of Social Work ◽

10.1177/1468017314549690 ◽

2014 ◽

Vol 14 (6) ◽

pp. 553-575 ◽

Cited By ~ 6

Author(s):

Guido Veronese ◽

Francesca Fiore ◽

Marco Castiglioni ◽

Miras Natour

Keyword(s):

Quality Of Life ◽

Well Being ◽

Family Quality Of Life ◽

Psychological Well Being

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Family Quality of Life and Partnership for Families of Students With Deaf-Blindness

Remedial and Special Education ◽

10.1177/0741932518781946 ◽

2018 ◽

Vol 41 (1) ◽

pp. 50-62 ◽

Cited By ~ 2

Author(s):

Kathleen Kyzar ◽

Sara Brady ◽

Jean Ann Summers ◽

Ann Turnbull

Keyword(s):

Quality Of Life ◽

Well Being ◽

National Sample ◽

Family Interaction ◽

Children And Youth ◽

Family Quality Of Life ◽

Social Emotional ◽

Factor Solution ◽

The Relationship

Family–professional partnerships are a key support for families of children with disabilities, but little is known about families of children with deaf-blindness. This study examined (a) the factor structures of the Beach Center on Disability Family–Professional Partnership and Family Quality of Life (FQOL) Scales utilizing a national sample of families of children and youth with deaf-blindness (age birth to 22 years), and (b) the relationship between family–professional partnership and FQOL at the subdomain levels. Results suggested a two-factor solution for family–professional partnership (Enhancing Connection and Enhancing Capacity) and a three-factor solution for FQOL (Family Interaction/Parenting Well-being, Social/Emotional Well-being, Physical/Material Well-being). Enhancing Capacity Partnership moderated the relationship between Enhancing Connection Partnership and Family Interaction/Parenting Well-being FQOL. The significance of these findings in light of the existing family–professional partnership literature is discussed, and implications for research and practice are offered.

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