scholarly journals Concepts and definitions for “supportive care,” “best supportive care,” “palliative care,” and “hospice care” in the published literature, dictionaries, and textbooks

2012 ◽  
Vol 21 (3) ◽  
pp. 659-685 ◽  
Author(s):  
David Hui ◽  
Maxine De La Cruz ◽  
Masanori Mori ◽  
Henrique A. Parsons ◽  
Jung Hye Kwon ◽  
...  
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Hospice Care ◽  
Best Supportive Care

scholarly journals Caregivers burden in people in palliative care: an integrative literature review

2016 ◽  
Vol 49 (4) ◽  
pp. 344 ◽  
Author(s):  
Gabriela Rezende ◽  
Cristiane A. Gomes ◽  
Fernanda C. Rugno ◽  
Renata C. Carvalho ◽  
Marysia M. R. P. De Carlo
Keyword(s):  
Palliative Care ◽  
Literature Review ◽  
Supportive Care ◽  
Terminal Care ◽  
Hospice Care

Modelo do estudo: Revisão Integrativa da Literatura. Objetivo: sintetizar os principais resultados de pesquisas e analisar criticamente as evidências científicas relativas ao tema da sobrecarga de cuidadores de pessoas em Cuidados Paliativos. Método: Busca bibliográfica nas bases de dados MEDLINE, LILACS, CINAHL e na biblioteca virtual SciELO, com os cruzamentos entre os descritores: “Caregivers”, “Palliative Care”, “Terminal Care”, “Hospice Care”, e as palavras-chave “Burden”, “Supportive Care”. Resultados: Foram selecionados 23 artigos publicados em periódicos internacionais, no período de janeiro de 2004 a junho de 2014. Foram categorizados em três unidades de análise: a tarefa de cuidar e as consequências para a vida do cuidador (N=7); a sobrecarga do cuidador diante da proximidade da morte (N=8); programas e serviços de apoio aos cuidadores (N=8). Os artigos indicaram que a sobrecarga do cuidador varia de acordo com sua vivência da tarefa de cuidar e a evolução da doença da pessoa cuidada; o cuidador necessita ser acolhido em suas necessidades e ter acesso a recursos da comunidade e serviços de saúde para diminuir a sobrecarga e melhorar tanto sua qualidade de vida, quanto da pessoa cuidada. Porém, as evidências científicas são consideradas fracas, com níveis 4 (65,2%) e 5 (21,8%) e apenas 13% dos estudos apresentam evidências consideradas fortes. Conclusão: O tema da sobrecarga de cuidadores de pessoas em Cuidados Paliativos é relevante para a pesquisa e para a prática clínica, mas há necessidade de estudos com melhor qualidade metodológica e evidências científicas que alicercem o cuidado a essa população

Development of tools to facilitate palliative and supportive care referral for patients with idiopathic pulmonary fibrosis

2017 ◽  
Vol 8 (3) ◽  
pp. 340-346 ◽  
Author(s):  
Charles Sharp ◽  
Heather Lamb ◽  
Nikki Jordan ◽  
Adrienne Edwards ◽  
Rachel Gunary ◽  
...  
Keyword(s):  
Palliative Care ◽  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Supportive Care ◽  
Decision Aid ◽  
Hospice Care ◽  
Supportive Care Needs ◽  
Care Needs ◽  
The Impact ◽  
Care Decision

ObjectivesPalliative care is underused in non-malignant respiratory diseases, including interstitial lung diseases (ILDs). We investigated current practices around palliative and supportive care and explored the impact of a supportive care decision aid tool.MethodsThis was a single centre study in a UK ILD centre. Retrospective analysis of hospice referrals and patients with idiopathic pulmonary fibrosis (IPF) under the Bristol ILD (BILD) service were used to identify unmet palliative and supportive care needs. Using quality improvement methodology, we explored the impact of a supportive care decision aid on clinician behaviours for patients with ILD.Results108 patients with ILD were referred for hospice care between 2010 and 2015, representing 0.15% of all referrals, compared with a population prevalence of IPF of 0.9%. The median interval between referral and death was 124 days.Records were reviewed for 64 deceased and 89 living patients with IPF seen on July–December 2014. The decision aid was prospectively assessed with 73 patients. The deceased patients had greater markers of severity. There were no other differences between the groups.After introduction, the decision aid tool was completed for 49.3% of patients and resulted in significant increases in documented discussion of referral to palliative care (11.2%vs53.6%, p<0.01) and end-of-life discussions (15.7%vs91.8%, p<0.01). Tool completion led to an increase in referral for palliative care (2.7%vs16.7%, p<0.01).ConclusionPalliative care services are underused in ILD and a supportive care decision aid can prompt consideration of palliative and supportive care needs.

Principles of Hospice and Palliative Medicine and Supportive Care

2018 ◽  
Author(s):  
Sriram Yennurajalingam
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Hospice Care ◽  
World Health ◽  
Skill Sets ◽  
Life Threatening Illness ◽  
Assessment And Treatment ◽  
Relief Of Suffering ◽  
Life Threatening ◽  
Health Organization

The World Health Organization defines palliative care as “an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.” Hospice care, palliative care, and supportive care are the common terms used to describe the delivery of palliative care. They essentially require the same skill sets and are often delivered by the same group of health professionals. This chapter reviews the definition and core principles of hospice and palliative care.

Reversal of ‘the dying’ diagnosis

2021 ◽  
Vol 14 (6) ◽  
pp. e240133
Author(s):  
Maimoona Ali ◽  
Andrew Goddard ◽  
Eleanor Smith
Keyword(s):  
Palliative Care ◽  
Intensive Care ◽  
Supportive Care ◽  
End Of Life Care ◽  
Surgical Intervention ◽  
Best Supportive Care ◽  
Lower Limbs ◽  
Life Care ◽  
Incision And Drainage ◽  
History Of

A 75-year-old woman was admitted with sepsis and treated with broad-spectrum antibiotics until examination of her lower limbs noted necrotising wounds. Surgical intervention was advised by the plastic surgeons; however, she was deemed unsuitable for intensive care. She underwent incision and drainage of the necrotic area and biopsies were taken. She deteriorated clinically and the decision was made for best supportive care and was therefore transferred to the inpatient palliative care unit for end-of-life care. However, she stabilised, and based on culture sensitivities, antibiotics were restarted. It was also noted that the patient had a 3-month history of loose stools, which had not been addressed previously. The biopsies were suggestive of pyoderma gangrenosum, prompting a dermatology review, and prednisolone and doxycycline were started. The wounds and her loose stools improved, and with ongoing rehabilitation, she made a full recovery. Referral to gastroenterology was made.

Early Integration of Palliative and Supportive Care in the Cancer Continuum: Challenges and Opportunities

2013 ◽  
pp. 144-150 ◽  
Author(s):  
Mellar P. Davis ◽  
Eduardo Bruera ◽  
Daniel Morganstern
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Cancer Treatment ◽  
End Of Life ◽  
Advanced Cancer ◽  
Hospice Care ◽  
Early Integration ◽  
Challenges And Opportunities ◽  
Policy Barriers ◽  
Complicated Bereavement

Palliative care has become synonymously associated with hospice care in the minds of patients and physicians. Supportive care is a more acceptable term and leads to earlier referral. Miscommunication and a “collusion of hope” centered on cancer treatment is detrimental to care at the end of life and results in complicated bereavement. Patients, despite being told prognosis, may not comprehend the news even if delivered in an empathetic manner. There are resource and policy barriers to palliative care. However, integration of palliative care early in the management of advanced cancer has demonstrated multiple benefits without reducing survival.

Cholangiokarzinome

Praxis ◽  
2002 ◽  
Vol 91 (34) ◽  
pp. 1352-1356
Author(s):  
Harder ◽  
Blum
Keyword(s):  
Supportive Care ◽  
Evidence Based Medicine ◽  
Best Supportive Care ◽  
Evidence Based ◽  
Systemische Chemotherapie ◽  
Chirurgische Resektion ◽  
Multimodale Therapiekonzepte ◽  
Based Medicine

Cholangiokarzinome oder cholangiozelluläre Karzinome (CCC) sind seltene Tumoren des biliären Systems mit einer Inzidenz von 2–4/100000 pro Jahr. Zu ihnen zählen die perihilären Gallengangskarzinome (Klatskin-Tumore), mit ca. 60% das häufigste CCC, die peripheren (intrahepatischen) Cholangiokarzinome, das Gallenblasenkarzinom, die Karzinome der extrahepatischen Gallengänge und das periampulläre Karzinom. Zum Zeitpunkt der Diagnose ist nur bei etwa 20% eine chirurgische Resektion als einzige kurative Therapieoption möglich. Die Lebertransplantation ist wegen der hohen Rezidivrate derzeit nicht indiziert. Die Prognose von nicht resektablen Cholangiokarzinomen ist mit einer mittleren Überlebenszeit von sechs bis acht Monaten schlecht. Eine wirksame Therapie zur Verlängerung der Überlebenszeit existiert aktuell nicht. Die wichtigste Massnahme im Rahmen der «best supportive care» ist die Beseitigung der Cholestase (endoskopisch, perkutan oder chirurgisch), um einer Cholangitis oder Cholangiosepsis vorzubeugen. Durch eine systemische Chemotherapie lassen sich Ansprechraten von ca. 20% erreichen. 5-FU und Gemcitabine sind die derzeit am häufigsten eingesetzten Substanzen, die mit einer perkutanen oder endoluminalen Bestrahlung kombiniert werden können. Multimodale Therapiekonzepte können im Einzellfall erfolgreich sein, müssen jedoch erst in Evidence-Based-Medicine-gerechten Studien evaluiert werden, bevor Therapieempfehlungen für die Praxis formuliert werden können.

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