Ethical challenges of edtech, big data and personalized learning: twenty-first century student sorting and tracking

AbstractFor those who by the end of the twentieth century came to be termed “survivors” of child sexual abuse, different genres and forms have been available to narrate and evaluate that abuse. This article explores the reception and practical results of such disclosures: the unpredictable effects of telling, and the strategies of containment, silencing, or disbelief that greeted disclosures. I make note of the ethical challenges of writing the history of child sexual abuse and conclude that twenty-first-century observers have been too ready to perceive much of the previous century as a period of profound silence in relation to child sexual abuse. At the same time, historical and sociological accounts have also been too ready to claim the final third of the twentieth century as a period of compulsive disclosure and fluency in constructing sexual selves. The history of child sexual abuse reveals significant barriers to disclosure in the 1970s and 1980s, despite new visibility of child sexual abuse in the media and through feminist sexual politics. Attention to such obstacles suggests the need to rethink narratives of “permissive” sexual change to acknowledge more fully the ongoing inequities and hierarchies in sexual candor and voice.

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The impact of twenty-first century personalized medicine versus twenty-first century medicine’s impact on personalization

Philosophy Ethics and Humanities in Medicine ◽

10.1186/s13010-020-00095-2 ◽

2020 ◽

Vol 15 (1) ◽

Author(s):

Camille Abettan ◽

Jos V. M. Welie

Keyword(s):

Personalized Medicine ◽

Continuous Process ◽

First Century ◽

Objective Data ◽

Ethical Challenges ◽

Ethical Debate ◽

Twenty First Century ◽

The Impact ◽

The Relationship ◽

Philosophical Understanding

Abstract Background Over the past decade, the exponential growth of the literature devoted to personalized medicine has been paralleled by an ever louder chorus of epistemic and ethical criticisms. Their differences notwithstanding, both advocates and critics share an outdated philosophical understanding of the concept of personhood and hence tend to assume too simplistic an understanding of personalization in health care. Methods In this article, we question this philosophical understanding of personhood and personalization, as these concepts shape the field of personalized medicine. We establish a dialogue with phenomenology and hermeneutics (especially with E. Husserl, M. Merleau-Ponty and P. Ricoeur) in order to achieve a more sophisticated understanding of the meaning of these concepts We particularly focus on the relationship between personal subjectivity and objective data. Results We first explore the gap between the ideal of personalized healthcare and the reality of today’s personalized medicine. We show that the nearly exclusive focus of personalized medicine on the objective part of personhood leads to a flawed ethical debate that needs to be reframed. Second, we seek to contribute to this reframing by drawing on the phenomenological-hermeneutical movement in philosophy. Third, we show that these admittedly theoretical analyses open up new conceptual possibilities to tackle the very practical ethical challenges that personalized medicine faces. Conclusion Finally, we propose a reversal: if personalization is a continuous process by which the person reappropriates all manner of objective data, giving them meaning and thereby shaping his or her own way of being human, then personalized medicine, rather than being personalized itself, can facilitate personalization of those it serves through the data it provides.

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