The Benefits of Family-Centered Care for Parental Self-Efficacy and Psychological Well-being in Parents of Children with Cancer

The incidence of cancer in children is increasing and has entered into the top ten most prevalent diseases in children. Cancer in children have an impact both physical and psychosocial changes that can occur as a result of the disease and the side effects of treatment. The treatment for children with cancer should be done continuously and lasts a long time, so the role of parents in supporting the treatment is very important. Parents are the important factors to implementation of family centered care in the treatment and care for children with cancer. The implementation of family centered care is influenced by the self efficacy belief of parents. This study aimed to identify parental self efficacy in the treatment of children with cancer at the Rumah Kanker Anak Cinta Bandung. This study used a descriptive quantitative. The sample in this study was chosen by consecutive sampling, and found 40 samples within a month. Data collection using questionnaires developed based on Bandura theory (1997). Data was analyzed using descriptive analyzes by frequency and persentation. The results showed that the majority of parents who have children with cancer have a high self efficacy as many as 23 people (57.5%). Parents who have children with cancer in this study had a high ability or confidence (self efficacy) in treating children with cancer. So that it can be very supportive for the process of care, treatment, and cure of children, which expected to improve the quality of life for children with cancer.

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Meta-Analytic Structural Equation Modeling of the Influences of Family-Centered Care on Parent and Child Psychological Health

International Journal of Pediatrics ◽

10.1155/2009/576840 ◽

2009 ◽

Vol 2009 ◽

pp. 1-9 ◽

Cited By ~ 45

Author(s):

Carl J. Dunst ◽

Carol M. Trivette

Keyword(s):

Structural Equation Modeling ◽

Psychological Health ◽

Self Efficacy ◽

Structural Equation ◽

Well Being ◽

Efficacy Beliefs ◽

Equation Modeling ◽

Family Centered Care ◽

Centered Care ◽

Family Centered

Background. Family-centered care is now practiced throughout the world by physicians, nurses, and allied health care professionals. The call for adoption of family-centered care is based on the contention that the physical and psychological health of a child is influenced by parents' psychological health where family-centered care enhances parent well-being which in turn influences child well-being. We empirically assessed whether these relationships are supported by available evidence.Method. Meta-analytic structural equation modeling was used to test the direct and indirect influences of family-centered care and self-efficacy beliefs on parent and child psychological health. Data from more than 2900 parents and other caregivers in 15 studies were used for the analyses.Results. Family-centered care had indirect effects on parent and child psychological health mediated by self-efficacy beliefs.Conclusion. The relationships posited in the literature about family-centered care were supported by the study results.

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Medical Student Self-Efficacy With Family-Centered Care During Bedside Rounds

Academic Medicine ◽

10.1097/acm.0b013e318253dcdb ◽

2012 ◽

Vol 87 (6) ◽

pp. 767-775 ◽

Cited By ~ 17

Author(s):

Henry N. Young ◽

Jayna B. Schumacher ◽

Megan A. Moreno ◽

Roger L. Brown ◽

Ted D. Sigrest ◽

...

Keyword(s):

Medical Student ◽

Self Efficacy ◽

Family Centered Care ◽

Bedside Rounds ◽

Centered Care ◽

Family Centered

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A comparative study of mothers of infants hospitalized in an open ward neonatal intensive care unit and a combined pod and single-family room design

10.21203/rs.2.13802/v1 ◽

2019 ◽

Author(s):

Nancy Feeley ◽

Stephanie Robins ◽

Christine Genest ◽

Robyn Stremler ◽

Phyllis Zelkowitz ◽

...

Keyword(s):

Self Efficacy ◽

Neonatal Intensive Care ◽

Sleep Disturbances ◽

Maternal Education ◽

Parent Support ◽

Family Centered Care ◽

Single Family ◽

Centered Care ◽

Family Centered ◽

Open Ward

Abstract Background: The well-being of mothers of infants requiring Neonatal Intensive Care Unit (NICU) hospitalization may be affected by the architectural design of the unit. A few recent studies suggest there may be some drawbacks of single-family rooms (SFRs) for infants and their mothers, such as isolation of mothers and reduced exposure to auditory stimulation for infants. Purpose: To compare NICU-stress, symptoms of depression, perceptions of nurse-parent support and family-centered care, sleep disturbances, breastfeeding self-efficacy and readiness for discharge in mothers of infants cared for in an open ward (OW) to those cared for in a unit that includes both pods and SFRs. Methods: A pre-post quasi-experimental study was conducted in a Canadian level 3 unit before and after transitioning to a new unit of 6-bed pods and SFRs. OW data were collected in 2014 and pod/SFR data one year after the transition in 2017 to 2018. Mothers of infants hospitalized for at least 2 weeks completed questionnaires about stress, depressive symptoms, support, family-centered care, and sleep disturbances. In the week prior to discharge, they responded to breastfeeding self-efficacy and readiness for discharge questionnaires. They described their presence in the NICU at enrolment and again prior to discharge. Results: Pod/SFR mothers reported significantly less NICU-stress compared to OW mothers. OW mothers had greater sights and sounds stress and felt more restricted in their parental role. Pod/SFR mothers reported greater respect from staff. Controlling for maternal education, pod/SFR mothers perceived their infant’s readiness for discharge to be greater than OW mothers. There were no significant differences between groups in depressive symptoms, nurse-parent support, sleep disturbances, and breastfeeding self-efficacy. At enrolment and again in the weeks preceding discharge, pod/SFR mothers were present significantly more hours per week than OW mothers, controlling for maternal education. Conclusions: Further study of small pods is indicated as these units may be less stressful for parents, and enhance family-centered care, as well as maternal presence, compared to OWs.

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A comparative study of mothers of infants hospitalized in an open ward neonatal intensive care unit and a combined pod and single-family room design

10.21203/rs.2.13802/v2 ◽

2019 ◽

Author(s):

Nancy Feeley ◽

Stephanie Robins ◽

Christine Genest ◽

Robyn Stremler ◽

Phyllis Zelkowitz ◽

...

Keyword(s):

Self Efficacy ◽

Neonatal Intensive Care ◽

Sleep Disturbances ◽

Maternal Education ◽

Parent Support ◽

Family Centered Care ◽

Single Family ◽

Centered Care ◽

Family Centered ◽

Open Ward

Abstract Background: The well-being of mothers of infants requiring Neonatal Intensive Care Unit (NICU) hospitalization may be affected by the architectural design of the unit. A few recent studies suggest there may be some drawbacks of single-family rooms (SFRs) for infants and their mothers, such as isolation of mothers and reduced exposure to auditory stimulation for infants. Purpose: To compare NICU-stress, symptoms of depression, perceptions of nurse-parent support and family-centered care, sleep disturbances, breastfeeding self-efficacy and readiness for discharge in mothers of infants cared for in an open ward (OW) to those cared for in a unit that includes both pods and SFRs. Methods: A pre-post quasi-experimental study was conducted in a Canadian level 3 unit before and after transitioning to a new unit of 6-bed pods and SFRs. OW data were collected in 2014 and pod/SFR data one year after the transition in 2017 to 2018. Mothers of infants hospitalized for at least 2 weeks completed questionnaires about stress, depressive symptoms, support, family-centered care, and sleep disturbances. In the week prior to discharge, they responded to breastfeeding self-efficacy and readiness for discharge questionnaires. They described their presence in the NICU at enrolment and again prior to discharge. Results: Pod/SFR mothers reported significantly less overall NICU-stress compared to OW mothers. OW mothers had greater sights and sounds stress and felt more restricted in their parental role. Pod/SFR mothers reported greater respect from staff. Controlling for maternal education, pod/SFR mothers perceived their infant’s readiness for discharge to be greater than OW mothers. There were no significant differences between groups in depressive symptoms, nurse-parent support, sleep disturbances, and breastfeeding self-efficacy. At enrolment and again in the weeks preceding discharge, pod/SFR mothers were present significantly more hours per week than OW mothers, controlling for maternal education. Conclusions: Further study of small pods is indicated as these units may be less stressful for parents, and enhance family-centered care, as well as maternal presence, compared to OWs.

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A qualitative cross-cultural analysis of NICU care culture and infant feeding in Finland and the U.S.

BMC Pregnancy and Childbirth ◽

10.1186/s12884-019-2505-2 ◽

2019 ◽

Vol 19 (1) ◽

Cited By ~ 4

Author(s):

Sarah Holdren ◽

Cynthia Fair ◽

Liisa Lehtonen

Keyword(s):

Infant Feeding ◽

Transition To Parenthood ◽

Well Being ◽

Cultural Analysis ◽

Family Centered Care ◽

Cross Sectional ◽

Centered Care ◽

Care Culture ◽

Family Centered ◽

The U.S

Abstract Background The benefits of family-centered care for the health and well-being of preterm infants and their families include increased parent-infant closeness, improved lactation, and positive mental health outcomes; however, it is known that the extent to which family-centered care is adopted varies by unit. This study aimed to understand how differences in neonatal care culture in two units in Finland and the U.S. were translated to parents’ infant feeding experiences in the hope of improving relationally focused feeding practices in both locations. Methods This qualitative, cross-sectional study utilized narrative methodologies to understand the lived experiences of 15 families hospitalized in a tertiary neonatal intensive care unit in Finland (n = 8) and the U. S (n = 7). Results A global theme of lactation as a means or an end showed that lactation and infant feeding were framed differently in each location. The three supporting themes that explain families’ perceptions of their transition to parenthood, support as a family unit, and experience with lactation include: universal early postnatal challenges; culture and space-dependent nursing support; and controlled or empowering breastfeeding experiences. Conclusions Care culture plays a large role in framing all infant caring activities, including lactation and infant feeding. This study found that in the unit in Finland, breastfeeding was one method to achieve closeness with an infant, while in the unit in the U.S., pumping was only an end to promote infant nutritional health. Therefore, breastfeeding coupled with closeness was found to be supportive of a salutogenic, or health-promoting, care approach for the whole family.

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“Care that matters”: Family-centered care, caregiving burden, and adaptation in parents of children with cancer.

Families Systems & Health ◽

10.1037/fsh0000166 ◽

2016 ◽

Vol 34 (1) ◽

pp. 31-40 ◽

Cited By ~ 8

Author(s):

Carla Crespo ◽

Susana Santos ◽

Ana Tavares ◽

Ágata Salvador

Keyword(s):

Family Centered Care ◽

Children With Cancer ◽

Caregiving Burden ◽

Centered Care ◽

Family Centered

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A comparative study of mothers of infants hospitalized in an open ward neonatal intensive care unit and a combined pod and single-family room design

10.21203/rs.2.13802/v3 ◽

2019 ◽

Author(s):

Nancy Feeley ◽

Stephanie Robins ◽

Christine Genest ◽

Robyn Stremler ◽

Phyllis Zelkowitz ◽

...

Keyword(s):

Self Efficacy ◽

Neonatal Intensive Care ◽

Sleep Disturbances ◽

Maternal Education ◽

Parent Support ◽

Family Centered Care ◽

Single Family ◽

Centered Care ◽

Family Centered ◽

Open Ward

Abstract Background: The well-being of mothers of infants requiring Neonatal Intensive Care Unit (NICU) hospitalization may be affected by the architectural design of the unit. A few recent studies suggest there may be some drawbacks of single-family rooms (SFRs) for infants and their mothers, such as isolation of mothers and reduced exposure to auditory stimulation for infants. Purpose: To compare NICU-stress, symptoms of depression, perceptions of nurse-parent support and family-centered care, sleep disturbances, breastfeeding self-efficacy and readiness for discharge in mothers of infants cared for in an open ward (OW) to those cared for in a unit that includes both pods and SFRs. Methods: A pre-post quasi-experimental study was conducted in a Canadian level 3 unit before and after transitioning to a new unit of 6-bed pods and SFRs. OW data were collected in 2014 and pod/SFR data one year after the transition in 2017 to 2018. Mothers of infants hospitalized for at least 2 weeks completed questionnaires about stress, depressive symptoms, support, family-centered care, and sleep disturbances. In the week prior to discharge, they responded to breastfeeding self-efficacy and readiness for discharge questionnaires. They described their presence in the NICU at enrollment and again prior to discharge. Results: Pod/SFR mothers reported significantly less NICU-stress compared to OW mothers. OW mothers had greater sights and sounds stress and felt more restricted in their parental role. Pod/SFR mothers reported greater respect from staff. Controlling for maternal education, pod/SFR mothers perceived their infant’s readiness for discharge to be greater than OW mothers. There were no significant differences between groups in depressive symptoms, nurse-parent support, sleep disturbances, and breastfeeding self-efficacy. At enrollment and again in the weeks preceding discharge, pod/SFR mothers were present significantly more hours per week than OW mothers, controlling for maternal education. Conclusions: Further study of small pods is indicated as these units may be less stressful for parents, and enhance family-centered care, as well as maternal presence, compared to OWs.

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Family-Centered Positive Psychology

The Oxford Handbook of Positive Psychology ◽

10.1093/oxfordhb/9780195187243.013.0052 ◽

2009 ◽

pp. 550-560 ◽

Cited By ~ 13

Author(s):

Susan M. Sheridan ◽

Jennifer D. Burt

Keyword(s):

Positive Psychology ◽

Family Functioning ◽

Protective Factor ◽

Service Providers ◽

Well Being ◽

Healthy Children ◽

Family Centered Care ◽

The Family ◽

Centered Care ◽

Family Centered

Throughout the past several decades the economic and cultural conditions of the American family have changed dramatically. These changing family dynamics create challenges for service providers to work with families in a way that supports their healthy functioning and respects their values. The presence of multiple risk factors is generally understood to create discontinuities in interaction rules between home and community environments and contribute to challenges in assuring positive family functioning. Within this chapter, we discuss the characteristics of healthy children and families and how the parent—child relationship can serve as a protective factor for young children at risk. Family-centered positive psychology (FCPP) recognizes the family as a constant in the child's life and strives to support both child well-being and healthy family functioning. Throughout this chapter, families and children are discussed from a strengths-based approach that recognizes the assets and strengths present within the family rather than the deficits or limitations. Family-centered services (FCSs) are a framework for service delivery that is based on the principles of FCPP. In FCSs, service providers strive to create a context within which families may become empowered; assist family members to identify their unique needs and acquire skills and competencies; and identify social networks to promote positive outcomes for the child and family. In this chapter, we describe the primary principles of family-centered care, discuss implications for practice, describe one model of family-centered care that illustrates FCS in practice, and discuss future research directions for FCPP.

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The Implementation of Family Centered Care in Postpartum Mothers

Indonesian Journal of Global Health Research ◽

10.37287/ijghr.v3i1.295 ◽

2021 ◽

Vol 3 (1) ◽

pp. 51-56

Author(s):

Guriti Guriti ◽

Elsye Maria Rosa ◽

Herlin Fitriana Kurniawati

Keyword(s):

Health Services ◽

Health Workers ◽

Well Being ◽

The Elderly ◽

Family Centered Care ◽

Family Approach ◽

The Family ◽

Centered Care ◽

Postpartum Mothers ◽

Family Centered

Health service is a complex social implementation because it engages in services that involve various professional groups. In realizing a healthy paradigm, health services with a family approach are developed. The family approach is an approach that empowers the potential of the family in dealing with family health problems independently by paying attention to physical, biological, social, economic and cultural aspects, especially on the health and well-being of mothers, infants, toddlers, adolescents, PUS, and the elderly. The purpose of this study was to explore the implementation of family centered care by health workers in postpartum mothers. Method: This research was a qualitative research with a case study approach. Semi-structure interview was used to interview 12 informants. Results: Based on the thematic analysis of the results of in-depth interviews and processed with NVIVO 12 Plus, 3 (three) main themes were obtained which were supported by the categories explaining the implementation of family centered care by health workers in postpartum mothers. The first theme is the responses from health workers regarding the implementation and benefits of family centered care in health services for postpartum mothers which are supported by two sub-themes, namely; (a) the form and principles of implementing family centered care by hospitals according to health workers and (b) the benefits of family centered care according to the opinion of health workers. The second theme is the opinions of patients and families about the implementation of family centered care by health workers in postpartum mothers supported by two sub-themes, namely: (a) responses and (b) the benefits of family centered care. The third theme is the obstacles to the implementation of family centered care supported by two sub-themes, namely: (a) internal barriers and (b) external impacts. Conclusions: Overall, the implementation of family centered care by health workers in postpartum mothers had a good response from health workers, the patient and the patient's family.

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