scholarly journals Fitting Health Care to People: Understanding and Adapting to the Epidemiology and Health Literacy of People Affected by Viral Hepatitis from Culturally and Linguistically Diverse Migrant Backgrounds

2021 ◽  
Author(s):  
Belaynew W. Taye ◽  
Patricia C. Valery ◽  
Burglind Liddle ◽  
Aidan J. Woodward ◽  
Donata Sackey ◽  
...  
Keyword(s):  
Health Care ◽  
Health Literacy ◽  
Viral Hepatitis ◽  
Linguistically Diverse ◽  
Culturally And Linguistically Diverse

Conducting Health Literacy Research on Hard-to-Reach Regional Culturally and Linguistically Diverse Populations: An Evaluation of Recruitment and Retention Methods Before and During COVID-19 (Preprint)

2020 ◽  
Author(s):  
Genevieve Perrins ◽  
Tabassum Ferdous ◽  
Dawn Hay ◽  
Bobby Harreveld ◽  
Kerry Reid-Searl
Keyword(s):  
Health Care ◽  
Health Literacy ◽  
Data Collection ◽  
Initial Data ◽  
Linguistic Diversity ◽  
Linguistically Diverse ◽  
Culturally And Linguistically Diverse ◽  
Post Intervention ◽  
Recruitment And Retention ◽  
Collection Phase

BACKGROUND Culturally and linguistically diverse (CALD) health care consumers residing within Australia are recognized as having low health literacy, leading to increased hospitalizations and poorer health outcomes. CALD populations living within regional Australia have been identified as a disadvantaged group. To understand and address this disadvantage, region-specific studies are required to map healthcare barriers related to geographic location, specific health services, and societal makeup. Despite the need to research the relationship between cultural and linguistic diversity and health literacy, CALD participants are often cited as hard-to-reach or hidden. This paper evaluates the approach used by researchers to attract and retain hard-to-reach CALD research participants for a study investigating health communication barriers between CALD health care users and health care professionals. As this study was taking place in 2020, the COVID-19 pandemic and subsequent restrictions emerged. Thus, recruitment and retention methods were adapted. This evaluation considers the effectiveness of recruitment and data collection methods used throughout pre-COVID and during-COVID periods. OBJECTIVE This evaluation sought to determine the effectiveness of recruitment and retention efforts of researchers, during a study which targeted regional-dwelling, hard-to-reach CALD participants. METHODS In this paper, recruitment and retention methods have been categorized into five phases: recruitment, pre-intervention data collection, intervention, post-intervention data collection and interviews. To compare the methods used by researchers, recruitment and retention rates have been dissected into pre-COVID and during-COVID periods. Researchers thereafter provide an in-depth reflection of the methods employed within this study. RESULTS This paper provides results relating to participant recruitment and retainment over the course of five research phases which occurred pre- and during-COVID. During the pre-COVID recruitment phase 22 participants were recruited. Of those, 68.2% of participants transitioned to the next phase and completed the initial data collection phase. By contrast, 18 participants completed the during-COVID recruitment phase, with a 72.2% continuance rate. The success rate of the intervention phase in the pre-COVID period was 93.3% versus 84.6% during-COVID. Lastly, 92.9% of participants completed the post-intervention data collection phase pre-COVID, compared with 90.9% during-COVID. Against the intended 30 participants, 40 participants took part in the initial data collection phase, with 23 going on to complete the project in its entirety. CONCLUSIONS The success of this program in recruiting and maintaining hard-to-reach CALD populations was preserved over pre and during-COVID periods. The emergence of COVID during the study period forced researchers to adjust study methods, thereby inadvertently contributing to the recruitment and retention success of the project. The maintenance of participants during this period is also due to flexibility offered by the research program through adoptive methods, such as the use of cultural gatekeepers, increased visibility of CALD researchers, limitation of intervention group size, use of digital platforms and more.

scholarly journals Fitting health care to people: understanding and adapting to the epidemiology and health literacy of people affected by viral hepatitis from culturally and linguistically diverse migrant backgrounds

2021 ◽  
Author(s):  
Belaynew W Taye ◽  
Patricia C Valery ◽  
Burglind Liddle ◽  
Aidan J Woodward ◽  
Donata Sackey ◽  
...  
Keyword(s):  
Health Literacy ◽  
Viral Hepatitis ◽  
Tertiary Education ◽  
Clinical Information ◽  
Knowledge Score ◽  
Linguistically Diverse ◽  
Transmission Risk ◽  
Culturally And Linguistically Diverse ◽  
Refugee Status ◽  
Migrant Communities

Abstract Background This study explored the epidemiology and health literacy of people affected by viral hepatitis (VH) from migrant culturally and linguistically diverse (CALD) backgrounds attending a community-based general practitioner and specialty hepatology shared-care (HEPREACH) clinic in Brisbane, Australia.Methods Self-reported data on health literacy and clinical information from adult patients (n=66) of CALD background recruited from the liver clinic were analyzed. Health literacy was assessed using a 5-question, 12-point scale. Variance weighted multiple linear regression was used to identify factors associated with knowledge about VH.Results About three-quarters of patients (74.2%) were diagnosed with hepatitis B. The median knowledge score was 7.8 (interquartile range(IQR) 6‒9). One in five patients did not understand the infective nature of VH, 30.3% did not understand mother-to-child transmission risk, and 30%‒40% of patients thought activities such as kissing, sharing food or mosquito bites could spread VH. Only 6% of patients understood the risk of liver cancer and the need for regular screening. Higher educational level (secondary, β=4.8, p<0.0001 or tertiary, β=8.1, p<0.0001 vs. primary) was associated with better knowledge, and transition through a refugee camp (vs. not, β= -1.2, p=0.028) and country of diagnosis (overseas vs. Australia, β=-1.9, p=0.016) were associated with poorer knowledge. Discussion Country of origin, refugee status and opportunities for tertiary education impact patients’ understanding of VH. Ensuring delivery of culturally appropriate care and education is critical to improve knowledge, reduce misconceptions to improve care and outcomes for viral hepatitis in CALD migrant communities.

scholarly journals Serving Culturally and Linguistically Diverse Patients in Audiology-Part 2: Promoting Health Literacy

2021 ◽  
Vol 74 (5) ◽  
pp. 42,43,44
Author(s):  
Laura Gaeta ◽  
KatieM. Colella ◽  
Erica Friedland ◽  
Mary A. Hudson
Keyword(s):  
Health Literacy ◽  
Linguistically Diverse ◽  
Culturally And Linguistically Diverse

scholarly journals The Rise of Pregnancy Apps and the Implications for Culturally and Linguistically Diverse Women: Narrative Review (Preprint)

2017 ◽  
Author(s):  
Jo-Anne Patricia Hughson ◽  
J Oliver Daly ◽  
Robyn Woodward-Kron ◽  
John Hajek ◽  
David Story
Keyword(s):  
Health Care ◽  
Pregnant Women ◽  
Health Information ◽  
Data Storage ◽  
Linguistically Diverse ◽  
Information Provision ◽  
Narrative Review ◽  
Culturally And Linguistically Diverse ◽  
Accurate Information ◽  
Local Health

BACKGROUND Pregnancy apps are a booming global industry, with most pregnant women in high-income countries now using them. From the perspective of health care and health information provision, this is both encouraging and unsettling; the demand indicates a clear direction for the development of future resources, but it also underscores the importance of processes ensuring access, reliability, and quality control. OBJECTIVE This review provides an overview of current literature on pregnancy apps and aims at describing (1) the ways in which apps are used by women, in general, and by those of a culturally and linguistically diverse (CALD) background; (2) the utility and quality of information provided; and (3) areas where more research, development, and oversight are needed. METHODS We chose a narrative review methodology for the study and performed a structured literature search including studies published between 2012 and 2017. Searches were performed using MEDLINE, EMBASE, and CINAHL databases. Studies were identified for inclusion using two separate search criteria and strategies: (1) studies on pregnancy apps and pregnant women’s use of these apps and (2) studies on CALD pregnant women and their use of technology for accessing information on and services for pregnancy. Overall, we selected 38 studies. RESULTS We found that pregnancy apps were principally used to access pregnancy health and fetal development information. Data storage capability, Web-based features or personalized tools, and social media features were also popular app features sought by women. Lower rates of the pregnancy app uptake were indicated among lower-income and non-English-speaking women. Preliminary evidence indicates that a combination of technological, health literacy, and language issues may result in lower uptake of pregnancy apps by these groups; however, further investigation is required. A marked limitation of the health app industry is lack of regulation in a commercially dominated field, making it difficult for users to assess the reliability of the information being presented. Health professionals and users alike indicate that given the choice, they would prefer using pregnancy apps that are relevant to their local health care context and come from a trusted source. Evidence indicates a need for greater health professional and institutional engagement in the app development, as well as awareness of and guidance for women’s use of these resources. CONCLUSIONS This is the first review of pregnancy app use, types of information provided, and features preferred by pregnant women in general and by those of a CALD background in particular. It indicates the demand for access to accurate information that is relevant to users, their community, and their associated health services. Given the popularity of pregnancy apps, such apps have enormous potential to be used for the provision of accurate, evidence-based health information.

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