scholarly journals Development and validation of the positive affect and well-being scale for the neurology quality of life (Neuro-QOL) measurement system

2013 ◽  
Vol 22 (9) ◽  
pp. 2569-2580 ◽  
Author(s):  
John M. Salsman ◽  
David Victorson ◽  
Seung W. Choi ◽  
Amy H. Peterman ◽  
Allen W. Heinemann ◽  
...  
2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S669-S669
Author(s):  
Kelly Shryock ◽  
Jacinta Dickens ◽  
Anisha Thomas ◽  
Suzanne Meeks

Abstract Research on end-of-life care in nursing homes comes largely from the viewpoint of staff or family members. We examined patient perspectives on end-of-life care, preferences for care, and quality of life in long-term care settings. We hypothesized that fulfillment of the Self Determination Theory (SDT) needs of autonomy, competence, and relatedness would be related to better well-being and that the degree to which end-of-life care preferences are seen as possible in the setting would be related to SDT need fulfillment and well-being. Preliminary data, collected from older individuals at the end of life (over 55, presence of significant chronic disease, in long term care setting) (n= 72), demonstrated that autonomy, competence, and relatedness measures were moderately and significantly correlated with well-being as measured by life satisfaction, higher positive affect, lower negative affect, and overall quality of life measures The degree to which residents believed that their end-of-life care preferences could be honored in the setting was also significantly correlated with autonomy, competence, relatedness, positive affect, and psychological quality of life. These results are consistent with SDT and suggest that if long term care settings can promote autonomy, connection, and competence in making end of life decisions, possibly by discovering and fulfilling preferences for end of life care, individuals who end their lives on those settings have potential for greater satisfaction and happiness. These results suggest that SDT is a useful framework for ongoing research on how to improve the end of life experiences of older adults in long term care.


10.2196/11290 ◽  
2018 ◽  
Vol 5 (4) ◽  
pp. e11290 ◽  
Author(s):  
Joshua M Smyth ◽  
Jillian A Johnson ◽  
Brandon J Auer ◽  
Erik Lehman ◽  
Giampaolo Talamo ◽  
...  

Background Positive affect journaling (PAJ), an emotion-focused self-regulation intervention, has been associated with positive outcomes among medical populations. It may be adapted for Web-based dissemination to address a need for scalable, evidence-based psychosocial interventions among distressed patients with medical conditions. Objective This study aimed to examine the impact of a 12-week Web-based PAJ intervention on psychological distress and quality of life in general medical patients. Methods A total of 70 adults with various medical conditions and elevated anxiety symptoms were recruited from local clinics and randomly assigned to a Web-based PAJ intervention (n=35) or usual care (n=35). The intervention group completed 15-min Web-based PAJ sessions on 3 days each week for 12 weeks. At baseline and the end of months 1 through 3, surveys of psychological, interpersonal, and physical well-being were completed. Results Patients evidenced moderate sustained adherence to Web-based intervention. PAJ was associated with decreased mental distress and increased well-being relative to baseline. PAJ was also associated with less depressive symptoms and anxiety after 1 month and greater resilience after the first and second month, relative to usual care. Conclusions Web-based PAJ may serve as an effective intervention for mitigating mental distress, increasing well-being, and enhancing physical functioning among medical populations. PAJ may be integrated into routine medical care to improve quality of life. Trial Registration ClinicalTrials.gov NCT01873599; https://clinicaltrials.gov/ct2/show/NCT01873599 (Archived by WebCite at http://www.webcitation.org/73ZGFzD2Z)


2013 ◽  
Author(s):  
John M. Salsman ◽  
David Victorson ◽  
Seung W. Choi ◽  
Amy H. Peterman ◽  
Allen W. Heinemann ◽  
...  

Author(s):  
Ahmed M. Megreya ◽  
Robert D. Latzman ◽  
Aisha M. Al-Ahmadi ◽  
Nasser F. Al-Dosari

AbstractThe worldwide spread of the coronavirus disease (COVID-19), the absence of medical treatment and vaccination, the delayed onset of symptoms, and the rapid human-to-human transmission have led the vast majority of countries to impose strict social distancing procedures. Whereas it appears that social distancing is an effective strategy for mitigating spread, it may also result in a variety of unintended negative consequences to individuals’ psychological well-being and mental health. During the peak of the COVID-19 pandemic, the present study examined associations among some demographic variables (gender, age, marital and working statuses, and having a family member or a friend infected with COVID-19), acceptance of social distancing, mood changes, and quality of life (QoL) in Qatar, a high-income Middle Eastern Arabic-speaking country. Older, married, and working participants were more accepting of social distancing than younger, unmarried, and non-working participants, respectively. Participants indicated that, during this time, they became more distressed, upset, scared, irritable, nervous, and afraid, and less inspired and determined. In a stark contrast, more individuals indicated that they became more interested, alert, and attentive, whereas higher percentages of participants reported feeling less guilty, hostile, and ashamed. Social distancing correlated positively with negative affect, whereas social avoidances correlated positively with positive affect and with physical, psychological, social, and environmental QoL. Finally, positive affect correlated positively, and negative affect correlated negatively, with these four domains of QoL. These results highlight the need for public health and clinical providers to consider peoples’ psychological well-being and mental health during the COVID-19 pandemic.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S967-S968
Author(s):  
Kerri Rawson ◽  
Ryan Duncan ◽  
Tamara DeAngelis ◽  
Timothy Nordahl ◽  
Jim Cavanaugh ◽  
...  

Abstract Parkinson disease (PD) is the second most common neurodegenerative disease and approximately half of those diagnosed with PD will experience freezing of gait (FOG). FOG is a severe motor disturbance that prevents stepping despite the intention to do so and may be associated with anxiety, decreased cognitive functioning, depression, and poorer quality of life. In this study, we administered the short-form Quality of Life in Neurological Disorders (Neuro-QOL) measurement system to 43 people with PD (28 non-freezers and 15 freezers) and determined freezing status using the New Freezing of Gait-Questionnaire. Freezers had greater motor severity as measured with the MDS-UPDRS-III (p =.003) and poorer balance using the Mini-BESTest (p = .017). Data from the Neuro-QOL battery indicated freezers had greater difficulty with Lower Extremity Function (p = .019) and Upper Extremity Function (p = .027). Freezers also had poorer scores on the Positive Affect and Well-Being (p = .005), Satisfaction with Social Roles and Activities (p = .005), and Stigma (p = .026) scales, but less difficulty on the Communication scale (p = .005) than non-freezers. There were no differences between freezers and non-freezers on the Ability to Participate in Social Roles and Activities, Anxiety, Cognitive Function, Depression, Emotional and Behavioral Dyscontrol, Fatigue, or Sleep Disturbance scales. These findings suggest freezers are less likely to have a positive outlook and satisfaction with their daily lives in combination with poorer functioning. Interventions that target freezing with the potential to improve functioning may result in better quality of life among freezers.


Author(s):  
JungAh Lee ◽  
YoungWon Suh

Recently, organization is facing globalization, change, complexity, uncertainty. Also, new social-economic values such as conscious capitalism, sustainable management, stakeholder theory come into the spotlight. These changes in management include a shift from an economic focus to a balance of profits, quality of life, spirituality, and social responsibility concerns. And one of the greatest challenges facing organization is the need to develop new business models that accentuate ethical leadership, employee well-being, substantiality, and social responsibility without sacrificing profitability, revenue growth. This research suggest ‘spiritual management’ to deal with these changes. Spiritual management will enhances employee well-being, quality of life and provides employees a sense of purpose and meaning at work, a sense of interconnectedness and community. Nevertheless researches in this area are not enough and still inadequate level. In addition, there is no framework, well-defined concept and scientific diagnosis tool of spiritual management. Therefore we developed the Spiritual Management Iindex(SMI). To develop the scale we conducted researched on documentations and attended at spiritual management forum. Based on these research we developed 7 initial factors with 50items. Using these items we conducted survey, with the 261 people's survey results, we implemented the factor analysis. After validating we generated final 7 factor with 40 items. Also we conducted criterion-related validation. Spiritual management influence on happiness, organizational commitment, job engagement of employees.


Author(s):  
Richard Lucas

Within psychology, subjective well-being refers to a person’s overall evaluation of the quality of life from his or her own perspective. Traditionally, psychologists have focused on three specific components of subjective well-being: life satisfaction, positive affect, and negative affect, though disagreements exist about precisely how these components should be best measured. Psychological research shows that intuitively appealing predictors of SWB, such as income and health, are typically only weakly correlated with SWB, whereas personality predictors tend to be stronger. This chapter reviews basic psychological research on SWB, addresses questions about the conceptualization and measurement of the construct, and discusses recent attempts to clarify the associations among the various components that are typically studied.


2015 ◽  
Vol 31 (2) ◽  
pp. 404 ◽  
Author(s):  
André Cardoso Louro ◽  
Jordi Fernández-Castro ◽  
Tomás Blasco

<span style="color: #000000;"><span style="line-height: 115%; font-family: 'Times New Roman','serif'; font-size: 12pt; mso-ansi-language: EN-US;" lang="EN-US">It can be stated from the previous research that positive emotions should allow to better health outcomes in sick populations. The aim of the present work is to know the state-of-the-art of how positive affect relates with quality of life in colorectal cancer (CRC) patients, as well as to give some guidelines to develop more efficacious psychological interventions in CRC patients. This review describes a search of published literature through January 2001 to December of 2011 on the Medline, ISI Web of Knowledge, Psycho Inf and Cochrane databases using publications that contain positive emotions, positive affect, psychological interventions, health outcomes, quality of life and cancer. These articles</span><span style="line-height: 115%; font-family: 'Times New Roman','serif'; font-size: 12pt; mso-ansi-language: EN-GB;" lang="EN-GB">were classified into two groups: a) “descriptive papers” b) “interventional studies”. Results from </span><span style="line-height: 115%; font-family: 'Times New Roman','serif'; font-size: 12pt; mso-ansi-language: EN-GB; mso-fareast-language: PT;" lang="EN-GB">“descriptive papers” suggest that positive affect (PA) </span><span style="line-height: 115%; font-family: 'Times New Roman','serif'; font-size: 12pt; mso-ansi-language: EN-US; mso-fareast-language: PT;" lang="EN-US">was significantly associated with greater levels of general health, better social functioning, benefit finding, positive changes, low depression, less anxiety and greater psychological well-being. PA also increases when different activities are developed. </span></span><span style="line-height: 115%; font-family: 'Times New Roman','serif'; font-size: 12pt; mso-ansi-language: EN-US;" lang="EN-US"><span style="color: #000000;">The overall results from interventional studies suggest that the interventions</span><span style="color: #000000;">described can be recommended for improving patient´s levels of positive affect. The present review offers some suggestions which could be useful for CRC patients.</span></span>


2018 ◽  
Author(s):  
Joshua M Smyth ◽  
Jillian A Johnson ◽  
Brandon J Auer ◽  
Erik Lehman ◽  
Giampaolo Talamo ◽  
...  

BACKGROUND Positive affect journaling (PAJ), an emotion-focused self-regulation intervention, has been associated with positive outcomes among medical populations. It may be adapted for Web-based dissemination to address a need for scalable, evidence-based psychosocial interventions among distressed patients with medical conditions. OBJECTIVE This study aimed to examine the impact of a 12-week Web-based PAJ intervention on psychological distress and quality of life in general medical patients. METHODS A total of 70 adults with various medical conditions and elevated anxiety symptoms were recruited from local clinics and randomly assigned to a Web-based PAJ intervention (n=35) or usual care (n=35). The intervention group completed 15-min Web-based PAJ sessions on 3 days each week for 12 weeks. At baseline and the end of months 1 through 3, surveys of psychological, interpersonal, and physical well-being were completed. RESULTS Patients evidenced moderate sustained adherence to Web-based intervention. PAJ was associated with decreased mental distress and increased well-being relative to baseline. PAJ was also associated with less depressive symptoms and anxiety after 1 month and greater resilience after the first and second month, relative to usual care. CONCLUSIONS Web-based PAJ may serve as an effective intervention for mitigating mental distress, increasing well-being, and enhancing physical functioning among medical populations. PAJ may be integrated into routine medical care to improve quality of life. CLINICALTRIAL ClinicalTrials.gov NCT01873599; https://clinicaltrials.gov/ct2/show/NCT01873599 (Archived by WebCite at http://www.webcitation.org/73ZGFzD2Z)


2007 ◽  
Vol 177 (4S) ◽  
pp. 7-7
Author(s):  
Brent K. Hollenbeck ◽  
J. Stuart Wolf ◽  
Rodney L. Dunn ◽  
Martin G. Sanda ◽  
David P. Wood ◽  
...  

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