Realising the Value of Linked Data to Health Economic Analyses of Cancer Care: A Case Study of Cancer 2015

2015 ◽  
Vol 34 (2) ◽  
pp. 139-154 ◽  
Author(s):  
Paula K. Lorgelly ◽  
◽  
Brett Doble ◽  
Rachel J. Knott
2021 ◽  
Author(s):  
Svenja Petersohn ◽  
Sabine E. Grimm ◽  
Bram L.T. Ramaekers ◽  
Arina J. ten Cate-Hoek ◽  
Manuela A. Joore

Author(s):  
Stefan Walzer ◽  
Daniel Droeschel ◽  
Mark Nuijten ◽  
Hélène Chevrou-Séverac

2020 ◽  
Vol 5 (1) ◽  
pp. 3-17
Author(s):  
Jian Qin

AbstractPurposeThis paper compares the paradigmatic differences between knowledge organization (KO) in library and information science and knowledge representation (KR) in AI to show the convergence in KO and KR methods and applications.MethodologyThe literature review and comparative analysis of KO and KR paradigms is the primary method used in this paper.FindingsA key difference between KO and KR lays in the purpose of KO is to organize knowledge into certain structure for standardizing and/or normalizing the vocabulary of concepts and relations, while KR is problem-solving oriented. Differences between KO and KR are discussed based on the goal, methods, and functions.Research limitationsThis is only a preliminary research with a case study as proof of concept.Practical implicationsThe paper articulates on the opportunities in applying KR and other AI methods and techniques to enhance the functions of KO.Originality/value:Ontologies and linked data as the evidence of the convergence of KO and KR paradigms provide theoretical and methodological support to innovate KO in the AI era.


2018 ◽  
Vol 12 (4) ◽  
pp. 938
Author(s):  
Joely Maria de Oliveira ◽  
Juliana Benevenuto Reis ◽  
Rondinele Amaral Da Silva

RESUMOObjetivo: compreender a busca por cuidado do câncer a partir da percepção de pacientes e familiares/cuidadores. Método: estudo qualitativo, exploratório-descritivo e por método de estudo de caso. Participaram pacientes que realizam ou realizaram tratamento de câncer e familiares/cuidadores que os acompanham, na busca por cuidado do câncer, a partir da aplicação de questionários e entrevista aberta. Os dados da entrevista foram transcritos e analisados pela técnica de Análise de Conteúdo, na modalidade Análise Temática, emergindo categorias. Resultados: apresentam-se em duas categorias - 1) A trajetória de busca por cuidado do câncer, subdividida em “A trajetória entre sintomatologia”, “Recebimento do diagnóstico” e “A trajetória do diagnóstico ao tratamento”; 2) Enfrentamento da doença, subdivida em “Alterações na rotina”, “Gastos financeiros”, “Alterações emocionais”, “Estigma e espiritualidade” e “Apoio dos profissionais da saúde”. Conclusão: pacientes e familiares enfrentam diversas dificuldades para realizar a busca por cuidado do câncer desde a etapa inicial, para a obtenção do diagnóstico de câncer, até o final do tratamento. O estudo provê informações embasadas cientificamente e visa a contribuir para o avanço científico nas áreas da Oncologia e Enfermagem. Além de tudo, possui o intuito de transmitir conhecimento e levantar processo reflexivo para possíveis soluções sobre a problemática abordada. Descritores: Neoplasia; Paciente; Família; Percepção; Terapêutica; Trajetória Clinica.ABSTRACT Objective: to understand the search for cancer care from the perception of patients and family / caregivers. Method: qualitative, exploratory-descriptive study and case study method. Patients who go through or went through cancer treatment and accompanying family / caregivers participated in the search for cancer care, in the application of questionnaires and an open interview. The interview data was transcribed and analyzed by the Content Analysis technique, in the Thematic Analysis modality, emerging categories. Results: they are presented in two categories - 1) The search path for cancer care, subdivided in "The trajectory between symptomatology", "Receipt of diagnosis" and "The trajectory of diagnosis to treatment"; 2) Coping with the disease, subdivided in "Routine changes", "Financial expenses", "Emotional changes", "Stigma and spirituality" and "Support of health professionals". Conclusion: patients and family members face several difficulties to perform the search for cancer care from the initial stage, to obtain the diagnosis of cancer, until the end of treatment. The study provides scientifically based information and aims to contribute to scientific advancement in the areas of Oncology and Nursing. In addition, it aims to transmit knowledge and raise a reflexive process for possible solutions on the issues addressed. Descriptors: Neoplasia; Patient; Family; Perception; Therapy; Clinical trajectory.RESUMEN Objetivo: comprender la búsqueda por cuidado del cáncer a partir de la percepción depacientes y familiares / cuidadores. Método: estudio cualitativo, exploratorio-descriptivo y por método de estudio de caso. Participaron pacientes que realizan o realizaron tratamiento de cáncer, y familiares / cuidadores que los acompañan, en la búsqueda por cuidado del cáncer, a partir de la aplicación de cuestionarios y entrevista abierta. Los datos de la entrevista fueron transcritos y analizados por la técnica de Análisis de Contenido, en la modalidad Análisis Temática, emergiendo las categorías.  Resultados: se presentan en dos categorías - 1) La trayectoria de búsqueda por cuidado del cáncer, siendo esta subdividida en “La trayectoria entre sintomatología”, “Recepción del diagnóstico”, “La trayectoria del diagnóstico al tratamiento”; 2) Enfrentamiento de la enfermedad, subdivida en “Alteraciones en la rutina”, “Gastos financieros”, “Cambios emocionales”, “Estigma y espiritualidad” y “Apoyo de los profesionales de la salud”. Conclusión: pacientes y familiares enfrentan diversas dificultades para realizar la búsqueda por cuidado del cáncer, desde la etapa inicial, para la obtención del diagnóstico de cáncer, hasta el final del tratamiento. El estudio provee informaciones fundamentadas científicamente y pretende contribuir para el avance científico en las áreas de la Oncología y Enfermería. Además de todo, tiene el propósito de transmitir conocimiento y levantar un proceso reflexivo para posibles soluciones sobre la problemática abordada. Descriptores: Neoplasia; Paciente; Familia; La percepción; Terapia; Trayectoria Clínica.


Author(s):  
Monique F Kilkenny ◽  
Joosup Kim ◽  
Lachlan Dalli ◽  
Amminadab Eliakundu ◽  
Muideen Olaiya

IntroductionStroke is a leading cause of death and disability. Since 2012, our innovative national data linkage program, has enabled the successful linkage of data from the Australian Stroke Clinical Registry (AuSCR) with national and state-based datasets to investigate the continuum of stroke care and associated outcomes. Objectives and ApproachUsing stroke as a case study, in this symposium we will describe the use of linked data to undertake clinical and economic evaluations and contribute new knowledge for policy and practice. We have undertaken a range of iterative and innovative projects linking the AuSCR (used now in >80 public hospitals across Australia with follow-up survey of patients between 90-180 days) with various administrative datasets. Linkages with the National Death Index, inpatient admissions and emergency presentations, Pharmaceutical Benefits Scheme (PBS), Medicare Benefits Schedule (MBS), Aged Care services; Ambulance Victoria, Australian Rehabilitation Outcomes Centre and general practice network datasets (POLAR) have been achieved. ResultsThe symposium will provide case studies and results from four data linkage projects involving the AuSCR: 1) Stroke123 (NHMRC: #1034415), a study to investigate the impact of quality of acute care on admission/emergency presentations and survival; 2) PRECISE (NHMRC:#1141848), a study to evaluate models of primary care involving linkages with PBS/MBS, aged care services and admissions/emergency data; 3) AMBULANCE: a study to investigate how pre-hospital care affects acute stroke care involving linkages with the ambulance and admissions/emergency datasets; and 4) POLAR: a study to understand the long-term management of stroke involving linkages with primary health data. Conclusion / ImplicationsThe National Stroke Data Linkage Program has been visionary and remains highly contemporary in the field of linked data. A unique feature of this program is the active participation of clinicians and policy-makers to ensure the evidence generated have direct benefits for accelerating change in practice and informing policy.


Author(s):  
Jose María Alvarez Rodríguez ◽  
Jules Clement ◽  
José Emilio Labra Gayo ◽  
Hania Farhan ◽  
Patricia Ordoñez de Pablos

This chapter introduces the promotion of statistical data to the Linked Open Data initiative in the context of the Web Index project. A framework for the publication of raw statistics and a method to convert them to Linked Data are also presented following the W3C standards RDF, SKOS, and OWL. This case study is focused on the Web Index project; launched by the Web Foundation, the Index is the first multi-dimensional measure of the growth, utility, and impact of the Web on people and nations. Finally, an evaluation of the advantages of using Linked Data to publish statistics is also presented in conjunction with a discussion and future steps sections.


2016 ◽  
pp. 236-242
Author(s):  
Jeffrey Peppercorn

Our ability to deliver high-quality cancer care is increasingly influenced by our ability to understand and manage the costs of care. Though there are considerable differences in the ways healthcare is financed and administered in different nations, there is a common need to deliver high-quality care at sustainable costs. This chapter reviews recent estimates of the aggregate costs of cancer care, discusses methods for determining cost-effectiveness or value in cancer care, provides a framework for understanding the components of cost at the societal and individual levels, and discusses efforts to control cost while preserving or improving both quality and outcomes.


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