Quality of life heart-disease children who have suffered from an arterial ischaemic stroke

ObjectiveHealth-related quality of life (HRQL) instruments are patient or proxy-reported outcome measures that provide a comprehensive and subjective assessment of patient’s well-being and hence vital for health outcomes evaluation. A clear and thorough understanding of HRQL and its determinants is especially important to appropriately guide health-improving interventions. In this study, HRQL of paediatric arterial ischaemic stroke survivors was assessed using guidelines recommended for interpretation and reporting of the patient-reported outcome data. Determinants of HRQL were also explored.MethodsChildren diagnosed with arterial ischaemic stroke between 2003 and 2012 were assessed at least 1 year poststroke using the parent–proxy report versions of the Pediatric Quality of Life Inventory 4.0 and Pediatric Stroke Recurrence and Recovery Questionnaire. HRQL data were compared with population norms and used as outcome in multiple linear regression analysis.Results59 children were evaluated. Mean age at diagnosis of stroke was 2.2 years. Mean age at assessment and time elapsed since stroke was 7 years and 5 years, respectively. A total of 41% children had normal global outcome, whereas 51% had moderate to severe deficits. A lower overall HRQL was observed in both self and proxy reports. Parents reported the maximum impairment in emotional domain, whereas children indicated physical functioning to be the most affected. Neurological outcome, site of stroke and socioeconomic status were independently associated with overall HRQL.ConclusionsLower HRQL was demonstrated in children who survived arterial ischaemic stroke. Socioeconomic status of families was an important determinant of HRQL, over and above clinical parameters.

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129 Severity of congenital heart disease shows a weak association with patients quality of life

European Heart Journal ◽

10.1016/s0195-668x(03)93675-x ◽

2003 ◽

Vol 24 (5) ◽

pp. 8

Author(s):

K VANDEYK

Keyword(s):

Quality Of Life ◽

Congenital Heart Disease ◽

Heart Disease ◽

Congenital Heart ◽

Weak Association

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Quality of life and specific problems after cardiac surgery in adolescents and adults with congenital heart disease

The Thoracic and Cardiovascular Surgeon ◽

10.1055/s-2004-816790 ◽

2004 ◽

Vol 52 (S 1) ◽

Author(s):

FF Immer ◽

S Althaus ◽

PA Berdat ◽

JP Pfammatter ◽

H Saner ◽

...

Keyword(s):

Quality Of Life ◽

Congenital Heart Disease ◽

Cardiac Surgery ◽

Heart Disease ◽

Congenital Heart ◽

Adolescents And Adults

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How to improve quality of life in patients with acute leukemia and comorbid ischemic heart disease treated with anthracycline-based induction chemotherapy

Experimental Oncology ◽

10.32471/exp-oncology.2312-8852.vol-41-no-4.13906 ◽

2019 ◽

Vol 41 (4) ◽

Author(s):

I. Skrypnyk ◽

◽

G. Maslova ◽

T.* Lymanets ◽

I. Gusachenko ◽

...

Keyword(s):

Quality Of Life ◽

Heart Disease ◽

Acute Leukemia ◽

Ischemic Heart Disease ◽

Induction Chemotherapy ◽

Ischemic Heart ◽

Improve Quality

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Kualitas Hidup Pasien Pascaintervensi Koroner Perkutan

Jurnal Keperawatan Padjadjaran ◽

10.24198/jkp.v2i1.77 ◽

1970 ◽

Vol 2 (1) ◽

Author(s):

Remita Ully Hutagalung ◽

F Sri Susilaningsih ◽

Ai Mardiyah

Keyword(s):

Quality Of Life ◽

Percutaneous Coronary Intervention ◽

Heart Disease ◽

College Education ◽

Coronary Intervention ◽

Health Condition ◽

Cross Sectional ◽

Percutaneous Coronary ◽

Environment Domain

Penyakit jantung koroner adalah penyakit yang dapat mengancam kehidupan seseorang. Pelaksanaan tindakan non bedah intervensi koroner perkutan pasien masih memiliki risiko terjadinya serangan berulang, stenosis dan ancaman kematian. Tujuan penelitian ini adalah mengidentifikasi kualitas hidup pasien pascatindakan intervensi koroner perkutan. Desain penelitian ini adalah potong lintang. Pengambilan sampel secara consecutive samplingdidapatkan 50 responden yaitu pasien yang sedang kontrol pascaintervensi coroner per kutan di Poliklinik Spesialis Jantung RSUP Dr. Hasan Sadikin Bandung, penelitian ini dilakukan pada 1-14 November 2013. Kualitas hidup diukur dengan instrumen WHOQOL-BREFdengan empat domain kualitas hidup yaitu domain fisik, psikologis, sosial, dan lingkungan. Analisis menggunakan statistik deskripsi. Hasil penelitian menunjukkan bahwa responden memiliki kualitas hidup baik sebesar 50%. Perawat memiliki peran dalam membantu pasien mencapai kualitas hidup yang optimal, diantaranya melalui peningkatan efikasi diri pasien melalui pendampingan dan pemberian informasi dalam usaha mencapai kualitas hidup.Kata kunci:Intervensi koroner perkutan, kualitas hidup, WHOQOL-BREF AbstractCoronary heart disease is a disease that can threaten person’s life, and can lead to the change of the quality of life. This coronary heart disease can be solved with non-surgical called percutaneous coronary intervention. This action will be normalized the quality of perfusion in the coronary arteries, which would certainly have an impact on the quality of life of patients. The research objective was to observe the patient of quality of life after treatment on intervention percutaneous coronary. The research design was cross sectional. There were 50 respondents taken by consecutive sampling. Data were collected in outpatient room in RSUP Dr. Hasan Sadikin Bandung, who have came with treatment routine schedule after percutaneous coronary intervention during November 1st–14th 2013. The questionnaire use WHOQOL-BREF format with 26 questions that consisting of 4 domains of quality of life: physical domain, psychological domain, social domain, and environment domain. Majority of patients were male (74 %), with the range of age mostly 56-66 years ( 34 % ), married ( 96 % ), college education was the highest ( 66 % ), the majority had not a primary job like as housewife , retired, student, etc. ( 26 % ). Data were collected using the questionnaire WHOQOL – BREF. The result have shown that rates of quality of life was good ( 50 % ) and health condition after percutaneous coronary intervention neither satisfied nor dissatisfied ( 44 % ). Nurses have a role in helping patients achieve optimal quality of life like giving information to patient correctlyKey words: Percutaneous coronary intervention, quality of life, WHOQOL – BREF

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Faktor yang Memengaruhi Kualitas Hidup Pasien dengan Penyakit Jantung Koroner

Jurnal Keperawatan Padjadjaran ◽

10.24198/jkp.v4i2.231 ◽

1970 ◽

Vol 4 (2) ◽

Author(s):

Aan Nuraeni ◽

Ristina Mirwanti ◽

Anastasia Anna ◽

Ayu Prawesti ◽

Etika Emaliyawati

Keyword(s):

Quality Of Life ◽

Heart Disease ◽

Cardiac Rehabilitation ◽

Beck Depression Inventory ◽

Well Being ◽

Anxiety Scale ◽

Seattle Angina Questionnaire ◽

Spiritual Well Being ◽

Anxiety Depression

Prevalensi Penyakit Jantung Koroner (PJK) terus mengalami peningkatan setiap tahunnya dan menjadi masalah kesehatan utama di masyarakat saat ini. PJK berdampak terhadap berbagai aspek kehidupan penderitanya baik fisik, psikososial maupun spiritual yang berpengaruh terhadap kualitas hidup pasien. Isu kualitas hidup dan faktor-faktor yang berhubungan didalamnya belum tergambar jelas di Indonesia. Tujuan dari penelitian ini adalah mengidentifikasi faktor yang memengaruhi kualitas hidup pada pasien PJK yang sedang menjalani rawat jalan. Faktor-faktor yang diteliti dalam penelitian ini meliputi jenis kelamin, tingkat penghasilan, revaskularisasi jantung, rehabilitasi jantung, kecemasan, depresi dan kesejahteraan spiritual. Kecemasan diukur dengan Zung Self-rating Anxiety Scale, depresi diukur dengan Beck Depression Inventory II, kesejahteraan spiritual diukur dengan kuesioner Spirituality Index of Well-Beingdan kualitas hidup diukur menggunakan Seattle Angina Questionnaire. Penelitian ini menggunakan rancangan kuantitatif deskriptif dan analitik multivariatedengan regresi logistic. Diteliti pada 100 responden yang diambil secara randomdalam kurun waktu 1 bulan di Poli Jantung. Hasil penelitian menunjukkan faktor yang memengaruhi kualitas hidup pada pasien PJK adalah cemas (p) 0,002; Odd Ratio(OR) 4,736 (95% confidence interval(CI), 1,749 – 12,827); depresi (p) 0,003; OR 5,450 ( 95% CI, 1,794 – 16,562); dan revaskularisasi (p) 0,033; OR 3,232 (95% CI, 1,096 – 9,528). Depresi menjadi faktor yang paling berpengaruh terhadap kualitas hidup pasien PJK. Faktor yang memengaruhi kualitas hidup pada pasien PJK meliputi depresi, cemas dan revaskularisasi. Dari ketiga variabel tersebut depresi merupakan variabel yang paling signifikan berpengaruh, sehingga manajemen untuk mencegah depresi perlu mendapatkan perhatian lebih baik lagi dalam discharge planningataupun rehabilitasi jantung.Kata kunci: Cemas, depresi, faktor yang memengaruhi, kualitas hidup, spiritual.Factors Influenced the Quality of Life among Patients Diagnosed with Coronary Heart Disease AbstractCoronary Heart Disease (CHD) has affected multidimensional aspects of human live nowadays. Yet, quality of life and factors associated with quality of life among people who live with heart disease has not been explored in Indonesia. This study aimed to identify factors influenced the quality of life among people with CHD received outpatient services. Those factors are gender, income, revascularization, cardiac rehabilitation, anxiety, depression and spiritual well-being. Zung Self-rating Anxiety Scale was used to measure anxiety where depression level measured using Beck Depression Inventory II. Spirituality index was used to measure spiritual well-being. The quality of life level was measured using the Seattle Angina Questionnaire. This study used quantitative descriptive with multivariate analysis using logistic regression. 100 respondents were randomly selected from the Cardiac Outpatient Unit. Findings indicated factors influenced the quality of life of CHD patients using a significance of ƿ-value < 0.005 were: anxiety (ƿ=0,002, OR = 4,736, 95% CI, 1,749 – 12,827); depression (ƿ=0,003; OR=5,450, 95% CI, 1,794 – 16,562); and revascularizations (ƿ=0,033; OR=3,232, 95% CI, 1,096 – 9,528). Depression was considered as the most significant factor; therefore, managing depression is a priority in the discharge planning or cardiac rehabilitation programme. Keywords: Anxiety, depression, quality of life, spiritual, well-being.

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