Health care for people with dementia in 2030 – Results of a multidisciplinary scenario process

Health Policy ◽  
2014 ◽  
Vol 114 (2-3) ◽  
pp. 254-262 ◽  
Author(s):  
Horst Christian Vollmar ◽  
Kerstin Goluchowicz ◽  
Bernd Beckert ◽  
Ewa Dönitz ◽  
Sabine Bartholomeyczik ◽  
...  
Keyword(s):  
Health Care ◽  
People With Dementia ◽  
Scenario Process

scholarly journals Caring for One’s Wife With Dementia—at Home: Older Husbands’ Experiences With Managing Challenges of Everyday Life

SAGE Open ◽  
2019 ◽  
Vol 9 (1) ◽  
pp. 215824401983445
Author(s):  
Linda Rykkje ◽  
Oscar Tranvåg
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Qualitative Interviews ◽  
Care Services ◽  
People With Dementia ◽  
Memory Clinics ◽  
Male Caregivers ◽  
Caregiving Roles ◽  
Caregiver Role ◽  
At Home

More than 80,000 Norwegians live with dementia. Most caregivers for people with dementia are spouses, and women outnumber men. Due to an aging population, and women’s higher risk of dementia as well as men’s increased life expectancy, the number of male caregivers will rise. There are some differences in the caregiving roles of men and women. Research suggest that males report lower burden and depression than female caregivers, but some men struggle to adjust to the caregiver role, and men are less likely to access health care services. The aim of this study is to explore the experiences of husbands engaged in caregiving for their home-dwelling spouse with dementia. This knowledge will add to the growing body of research about men in the context of dementia care and may raise gender awareness. The method is qualitative interviews with hermeneutical interpretation. The participants are five husbands recruited from two Hospital Memory Clinics in Norway. The results portray how the husbands managed their everyday challenges, and how they adapted to changes, experiences of loss and bereavement, and how they redefined personal freedom and expanded their responsibilities. Acknowledging the rewards of caregiving, the husbands found their life meaningful and they were thriving in their caregiving role. Health care personnel should recognize and respect the challenging life situation caregiving husbands may experience, calling for personnel to learn from, care for, and collaborate with them, enabling the couple to live a meaningful life together at home as long as possible.

scholarly journals The effect of multimodal comprehensive care methodology training on oral health care professionals’ empathy for patients with dementia

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Masaki Kobayashi ◽  
Mio Ito ◽  
Yasuyuki Iwasa ◽  
Yoshiko Motohashi ◽  
Ayako Edahiro ◽  
...  
Keyword(s):  
Health Care ◽  
Oral Health ◽  
Health Professionals ◽  
Health Care Professionals ◽  
Dental Treatment ◽  
Oral Care ◽  
Training Programme ◽  
Comprehensive Care ◽  
Dental Hygienists ◽  
People With Dementia

Abstract Background The prevalence of oral diseases in people with dementia has increased, and patients with dementia have worse oral health than people without dementia. However, in the provision of oral care, these patients often exhibit care-resistant behaviours. Empathy is important for health care professionals who provide dental care for people with dementia. A study was conducted to assess whether a multimodal comprehensive care methodology training programme, Humanitude™, was associated with an improvement in empathy for people with dementia among oral health care professionals. Methods This research was a pre-post prospective study. A total of 45 dentists and dental hygienists participated in a 7-h multimodal comprehensive care methodology training programme. Participants’ empathy for their patients was evaluated with the Jefferson Scale of Physician Empathy-Health Professionals Version (JSPE-HP) before the training and 1 month after the training (primary outcome). Each participant listed 3 patients with poor oral health due to the refusal of usual oral care or dental treatment from his or her clinical practice. The oral health of the 3 care-resistant patients listed by each participant was evaluated by the Oral Health Assessment Tool (OHAT) before the training and 1 month after the training (secondary outcome). Results The post-training response rate was 87% (21 dentists and 18 dental hygienists). From pre-training to post-training, the multimodal comprehensive care methodology training significantly increased the mean empathy score (from 113.97 to 122.95, P < 0.05, effect size = 0.9). Regardless of gender, profession and years of clinical experience, all post-training subgroup scores were higher than the pre-training subgroup scores. The tongue, natural teeth, and oral hygiene scores of patients with dementia who resisted usual oral care or dental treatment, as assessed by the OHAT, were significantly improved compared with those before the training. Conclusions The multimodal comprehensive care methodology training was associated with an improvement in oral health professionals’ empathy for patients with dementia. These findings suggest that randomized controlled trials with large sample sizes will be needed. Trial registration UMIN Clinical Trials Registry (UMIN-CTR), UMIN000041687. Registered 4 September 2020 – Retrospectively registered, https://upload.umin.ac.jp/cgi-open-bin/ctr_e/ctr_view.cgi?recptno=R000047586

Managing Your Loved One’s Health: Development of a New Care Management Measure for Dementia Family Caregivers

2016 ◽  
Vol 37 (5) ◽  
pp. 620-643 ◽  
Author(s):  
Tatiana Sadak ◽  
Jacob Wright ◽  
Soo Borson
Keyword(s):  
Health Care ◽  
Care Management ◽  
Health Care Management ◽  
Care Needs ◽  
Management Interventions ◽  
People With Dementia ◽  
Care Partners ◽  
Core Set ◽  
Measurement Tools ◽  
Improving Health Care

The National Alzheimer’s Plan calls for improving health care for people living with dementia and supporting their caregivers as capable health care partners. Clinically useful measurement tools are needed to monitor caregivers’ knowledge and skills for managing patients’ often complex health care needs as well as their own self-care. We created and validated a comprehensive, caregiver-centered measure, Managing Your Loved One’s Health (MYLOH), based on a core set of health care management domains endorsed by both providers and caregivers. In this article, we describe its development and preliminary cultural tailoring. MYLOH is a questionnaire containing 29 items, grouped into six domains, which requires <20 min to complete. MYLOH can be used to guide conversations between clinicians and caregivers around health care management of people with dementia, as the basis for targeted health care coaching, and as an outcome measure in comprehensive dementia care management interventions.

scholarly journals The Effect of Multimodal Comprehensive Care Methodology Training on Oral Health Care Professionals’ Empathy for Patients With Dementia

2020 ◽  
Author(s):  
Masaki Kobayashi ◽  
Mio Ito ◽  
Yasuyuki Iwasa ◽  
Yoshiko Motohashi ◽  
Ayako Edahiro ◽  
...  
Keyword(s):  
Health Care ◽  
Oral Health ◽  
Health Professionals ◽  
Health Care Professionals ◽  
Oral Care ◽  
Training Programme ◽  
Oral Health Care ◽  
Comprehensive Care ◽  
Dental Hygienists ◽  
People With Dementia

Abstract Background: The prevalence of oral diseases in people with dementia has increased, and patients with dementia have worse oral health than people without dementia. However, in the provision of oral care, these patients often exhibit care-resistant behaviours. Empathy is important for health care professionals who provide dental care for people with dementia. A study was conducted to assess whether a multimodal comprehensive care methodology training programme: HumanitudeTM is associated with an improvement in empathy for people with dementia among oral health care professionals.Methods: This research was a pre-post prospective study. A total of 45 dentists and dental hygienists participated in a 7-hour multimodal comprehensive care methodology training programme. Participants’ empathy for their patients was evaluated with the Jefferson Scale of Physician Empathy-Health Professionals Version (JSPE-HP) before the training and one month after the training (primary outcome). Each participant listed 3 patients from his or her clinical practice for whom he or she felt difficulty to provide oral care due to dementia. The oral health of the 3 care-resistant patients listed by each participant was evaluated by the Oral Health Assessment Tool (OHAT) before the training and one month after the training (secondary outcome).Results: The post-training response rate was 87% (21 dentists and 18 dental hygienists). From pre-training to post-training, the multimodal comprehensive care methodology training significantly increased the mean empathy score (from 113.97 to 122.95, P<0.05, effect size=0.9). Regardless of gender, profession and years of clinical experience, all post-training subgroup scores were higher than the pre-training subgroup scores. The tongue, natural teeth, and oral hygiene scores of patients, as assessed by the OHAT, were significantly improved compared with those before the training.Conclusions: Multimodal comprehensive care methodology training was associated with an improvement in oral health professionals’ empathy for patients with dementia and an improvement in the oral health of their patients. These findings suggest that randomized controlled trials with large sample sizes will be needed.Trial registration: UMIN Clinical Trials Registry (UMIN-CTR), UMIN000041687. Registered 4 September 2020 – Retrospectively registered, https://upload.umin.ac.jp/cgi-open-bin/ctr_e/ctr_view.cgi?recptno=R000047586

scholarly journals Developing a Plan for the Sustainable Implementation of an Electronic Health Intervention (Partner in Balance) to Support Caregivers of People With Dementia: Case Study

JMIR Aging ◽  
10.2196/18624 ◽  
2020 ◽  
Vol 3 (1) ◽  
pp. e18624
Author(s):  
Hannah Liane Christie ◽  
Lizzy Mitzy Maria Boots ◽  
Kirsten Peetoom ◽  
Huibert Johannes Tange ◽  
Frans Rochus Josef Verhey ◽  
...  
Keyword(s):  
Health Care ◽  
Business Model ◽  
Implementation Strategies ◽  
Evidence Based ◽  
Implementation Plan ◽  
Dementia Case ◽  
People With Dementia ◽  
Electronic Health ◽  
Ehealth Intervention

Background Given the increasing use of digital interventions in health care, understanding how best to implement them is crucial. However, evidence on how to implement new academically developed interventions in complex health care environments is lacking. This case study offers an example of how to develop a theory-based implementation plan for Partner in Balance, an electronic health (eHealth) intervention to support the caregivers of people with dementia. Objective The specific objectives of this study were to (1) formulate evidence-based implementation strategies, (2) develop a sustainable business model, and (3) integrate these elements into an implementation plan. Methods This case study concerns Partner in Balance, a blended care intervention to support the caregivers of people with dementia, which is effective in improving caregiver self-efficacy, quality of life, and experienced control. The large-scale implementation of Partner in Balance took place in local dementia case-management services, local care homes, dementia support groups, and municipalities. Experiences from real-life pilots (n=22) and qualitative interviews with national stakeholders (n=14) were used to establish an implementation plan consisting of implementation strategies and a business model. Results The main finding was the need for a business model to facilitate decision-making from potential client organizations, who need reliable pricing information before they can commit to training coaches and implementing the intervention. Additionally, knowledge of the organizational context and a wider health care system are essential to ensure that the intervention meets the needs of its target users. Based on these findings, the research team formulated implementation strategies targeted at the engagement of organizations and staff, dissemination of the intervention, and facilitation of long-term project management in the future. Conclusions This study offers a theory-based example of implementing an evidence-based eHealth intervention in dementia health care. The findings help fill the knowledge gap on the eHealth implementation context for evidence-based eHealth interventions after the trial phase, and they can be used to inform individuals working to develop and sustainably implement eHealth.

P4-367: HUMANOID SOCIAL ROBOTS IN HEALTH CARE: ATTITUDES, KNOWLEDGE AND PERCEIVED ACTIVITIES OF DAILY LIVING NEEDS OF PEOPLE WITH DEMENTIA, RELATIVES, NURSES AND DEMENTIA TRAINERS

2006 ◽  
Vol 14 (7S_Part_30) ◽  
pp. P1610-P1610
Author(s):  
Sandra Schüssler ◽  
Julia Zuschnegg ◽  
Lucas Paletta ◽  
Maria Fellner ◽  
Josef Steiner ◽  
...  
Keyword(s):  
Health Care ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Social Robots ◽  
People With Dementia

Tailored mental health care after nursing home admission: improving transfers of people with dementia with behavioral problems. An explorative study

2015 ◽  
Vol 19 (10) ◽  
pp. 902-911 ◽  
Author(s):  
L.D. Van Mierlo ◽  
A. Bootsma-Van der Wiel ◽  
F.J.M. Meiland ◽  
H.P.J. Van Hout ◽  
M.L. Stek ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Nursing Home ◽  
Mental Health Care ◽  
Behavioral Problems ◽  
Nursing Home Admission ◽  
Explorative Study ◽  
People With Dementia

Health care professionals’ perspectives of advance care planning for people with dementia living in long-term care settings: A narrative review of the literature

Dementia ◽  
2015 ◽  
Vol 16 (4) ◽  
pp. 486-512 ◽  
Author(s):  
Esther-Ruth Beck ◽  
Sonja McIlfatrick ◽  
Felicity Hasson ◽  
Gerry Leavey
Keyword(s):  
Health Care ◽  
Advance Care Planning ◽  
Health Care Professionals ◽  
Long Term Care ◽  
Care Planning ◽  
Term Care ◽  
Early Integration ◽  
People With Dementia ◽  
Advance Care

This paper provides an overview of the evidence on the perspective of health care professionals (HCPs) in relation to advance care planning (ACP) for people with dementia, residing in long-term care settings. A narrative approach was adopted to provide a comprehensive synthesis of previously published literature in the area. A systematic literature search identified 14 papers for inclusion. Following review of the studies four themes were identified for discussion; Early integration and planning for palliative care in dementia; HCPs ethical and moral concerns regarding ACP; Communication challenges when interacting with the person with dementia and their families and HCPs need for education and training. Despite evidence, that HCPs recognise the potential benefits of ACP, they struggle with its implementation in this setting. Greater understanding of dementia and the concept of ACP is required to improve consistency in practice. Synthesising the existing evidence will allow for further understanding of the key issues, potentially resulting in improved implementation in practice.

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