scholarly journals Barriers experienced in self-care practice by young people with sickle cell disease

2018 ◽  
Vol 40 (3) ◽  
pp. 207-212 ◽  
Author(s):  
Sumaya Giarola Cecilio ◽  
Sônia Aparecida dos Santos Pereira ◽  
Valquíria dos Santos Pinto ◽  
Heloísa de Carvalho Torres
Keyword(s):  
Sickle Cell Disease ◽  
Young People ◽  
Sickle Cell ◽  
Self Care ◽  
Care Practice ◽  
Cell Disease

Health-Related Stigma, Social Support, Self-Efficacy, and Self-Care Actions Among Adults With Sickle Cell Disease in Oman

2021 ◽  
pp. 105477382110467
Author(s):  
Huda Al Raqaishi ◽  
Mohammad Al Qadire ◽  
Omar Alzaabi ◽  
Omar Al Omari
Keyword(s):  
Social Support ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Self Efficacy ◽  
Self Care ◽  
Care Seeking ◽  
Cell Disease ◽  
Cross Sectional ◽  
Related Stigma ◽  
Health Related

Stigma contributes to the burden of individuals and families affected by Sickle cell disease (SCD) and causes delay in appropriate care seeking. The aim of this study is to examine the levels and associations between stigma, social support, self-efficacy, and self-care actions among adult patients with SCD in Oman using a cross-sectional, correlational design. Of the 264 participants, 56.1% ( n = 148) were males, with mean age of 30.1 years ( SD 7.7). Half of the participants were married, and 88.3% had no other associated diseases. The results demonstrate that patients in Oman suffer from health-related stigma. However, social support, self-efficacy, and self-care actions were reported to be high and correlated with several clinical and demographic variables. Based on the results, effective, low-cost interventions such as psycho-educational groups, individual counseling, or group therapies might be developed. They can promote belief in enhanced efficacy and improved SCD adaptation, thereby increasing patient, and provider satisfaction.

scholarly journals Self-care of men with priapism and sickle cell disease

2018 ◽  
Vol 71 (5) ◽  
pp. 2418-2424 ◽  
Author(s):  
Deise Oliveira Costa ◽  
Fabíola Azevedo Araújo ◽  
Aline Silva Gomes Xavier ◽  
Lorena dos Santos Araújo ◽  
Ueigla Batista da Silva ◽  
...  
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Self Care ◽  
Self Esteem ◽  
Cell Disease ◽  
Care Theory ◽  
Self Image ◽  
History Of ◽  
Orem's Theory ◽  
Care Demands

ABSTRACT Objective: To identify self-care demands of men with sickle cell disease and priapism and describe self-care measures in light of Orem's Self-Care Theory. Method: This is a descriptive exploratory study with qualitative approach conducted with nine men with a history of sickle cell disease and priapism. Data were analyzed using Orem's Self-Care Theory. Results: Some demands were identified: from universal self-care - difficulty in social interaction and solitude, changes in self-image, self-esteem and sexual activity; from development - the experience with priapism and little knowledge about the pathophysiology of the disease; regarding health deviations - pain crises. Conclusion: Orem's theory allowed to identify self-care demands, which are essential for the nursing care provided for men with priapism. Nursing has an essential role in the measures for the different demands presented.

Moving young people with sickle cell disease from paediatric to adult services

2010 ◽  
Vol 71 (6) ◽  
pp. 310-314 ◽  
Author(s):  
Jo Howard ◽  
Tanya Woodhead ◽  
Luhanga Musumadi ◽  
Alice Martell ◽  
Baba PD Inusa
Keyword(s):  
Sickle Cell Disease ◽  
Young People ◽  
Sickle Cell ◽  
Cell Disease ◽  
Adult Services

Self-Care in Adults with Sickle Cell Disease

2002 ◽  
Vol 24 (3) ◽  
pp. 228-245 ◽  
Author(s):  
Jennifer M. Lenoci ◽  
Joseph Telfair ◽  
Heather Cecil ◽  
Robert R. Edwards
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Self Care ◽  
Cell Disease

scholarly journals Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease

2011 ◽  
Vol 2011 ◽  
pp. 1-5 ◽  
Author(s):  
Coretta M. Jenerette ◽  
Cheryl Brewer ◽  
Ashley N. Leak
Keyword(s):  
Older Adults ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Care Management ◽  
Self Care ◽  
The Self ◽  
Cell Disease ◽  
Middle Aged ◽  
Younger Adults ◽  
Semistructured Interviews

Self-care management is an important part of living with a chronic illness. Sickle cell disease (SCD) is a chronic disease with acute, painful exacerbations that often results in a shortened life expectancy. Some middle-aged and older adults with SCD lived with the disease prior to having a diagnosis and without modern advances. The purpose of this study is to share the self-care recommendations of middle-aged and older adults with SCD. Using descriptive qualitative methods, data were gathered through semistructured interviews from 11 individuals living with SCD, including 6 women and 5 men. Self-care recommendations themes included physiological, psychological, and provider-related. The self-care recommendations may be seen as an additional resource or “words of wisdom” for younger adults with SCD who can use the recommendations to better manage their own disease. Additionally, providers may be able to use these recommendations to inform their practice.

Testing the theory of self‐care management for sickle cell disease

2008 ◽  
Vol 31 (4) ◽  
pp. 355-369 ◽  
Author(s):  
Coretta M. Jenerette ◽  
Carolyn Murdaugh
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Care Management ◽  
Self Care ◽  
Cell Disease

scholarly journals Role of Self-Care in Sickle Cell Disease

2015 ◽  
Vol 16 (3) ◽  
pp. 257-266 ◽  
Author(s):  
Nadine Matthie ◽  
Coretta Jenerette ◽  
Susan McMillan
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Self Care ◽  
Cell Disease
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