An analysis of quality of life in 130 families having small children with cleft lip/palate using the impact on family scale

Abstract OBJECTIVE To assesses the quality of life and the impact of oral health conditions in the pre- and post-surgical correction of dentofacial deformity of individuals with cleft lip and palate. METHOD Quantitative and prospective study in a referral hospital in the period from June 2011 to May 2013. A total of 50 participants responded the questionnaires World Health Organization Quality of Life - Bref (WHOQOL-Bref) and Oral Health Impact Profile - 14 (OHIP-14), approximately 3 days before and 3 to 12 months after surgery. The "t" test for paired samples and Wilcoxon test were used for statistical analysis with a significance level of 5%. RESULTS After surgery, differences were found in the domains: Physical, Psychological, Environmental and General Questions of the WHOQOL-Bref and domains: Psychological Discomfort, Psychological Disability, Social Disability, Handicap and Overall Score of OHIP-14. CONCLUSION Surgical correction of dentofacial deformity improved quality of life and had positive impact of oral health condition.

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Quality of Life Using General Population Validated Questionnaires in Children With Cleft Lip and/or Palate in New Zealand

The Cleft Palate-Craniofacial Journal ◽

10.1177/1055665620962371 ◽

2020 ◽

pp. 105566562096237 ◽

Cited By ~ 1

Author(s):

John M. D. Thompson ◽

S. Louise Ayrey ◽

Rebecca F. Slykerman ◽

Peter R. Stone ◽

Peter V. Fowler

Keyword(s):

Quality Of Life ◽

New Zealand ◽

Cleft Palate ◽

Cleft Lip ◽

Family Impact ◽

Primary Surgery ◽

Impact Scale ◽

Pedsql 4.0 ◽

The Impact

Objective: To determine the level of quality of life (QoL) in children with cleft lip and/or palate (CL/P) and whether this differs by cleft phenotype. Design: A cohort of children with CL/P born in New Zealand. Setting: A nationwide study of children born with CL/P and having primary surgery in New Zealand. Participants: Children with CL/P and their families (n = 397) who attended a cleft clinic between October 1, 2014, and September 30, 2017, and agreed to complete questionnaires on QoL. Main Outcomes: Primary outcomes were QoL from the PedsQL 4.0 core generic questionnaires and the PedsQL 2.0 Family impact scale. Results: Children with CL/P in New Zealand generally have a high QoL as assessed by the PedsQL. The impact of cleft phenotype had limited effects on the child, however there were significant impacts on parents and families. We found that the family impact scale differed by cleft phenotype with those with CL having the highest QoL and those with cleft palate the lowest, and this was consistent across QoL subscales. Quality of life improved as a whole by age, particularly in physical and cognitive functioning, as well as in the ability to undertake family activities. Conclusions: Children with CL/P have generally good levels of QoL in New Zealand, however cleft phenotype impacts on the level, with the lowest levels in those with cleft palate. Psychological support of children with cleft and their families should be an integral part of cleft care.

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The impact of nonsyndromic cleft lip with or without cleft palate on oral health-related quality of life

Journal of Applied Oral Science ◽

10.1590/1678-7757-2017-0145 ◽

2018 ◽

Vol 26 (0) ◽

Author(s):

Maria Augusta Ramires da Silva ◽

Isis de Fátima Balderrama ◽

Ana Paula Wobeto ◽

Renata Iani Werneck ◽

Luciana Reis Azevedo-Alanis

Keyword(s):

Quality Of Life ◽

Oral Health ◽

Cleft Palate ◽

Cleft Lip ◽

Health Related Quality ◽

Related Quality ◽

Health Related ◽

The Impact

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Psychological Variables in Children and Adolescents with Cleft Lip and/or Palate

Journal of Clinical Pediatric Dentistry ◽

10.17796/1053-4625-44.2.9 ◽

2020 ◽

Vol 44 (2) ◽

pp. 116-122 ◽

Cited By ~ 1

Author(s):

Ana Ruiz Guillén ◽

Cecilia Peñacoba ◽

Martín Romero

Keyword(s):

Quality Of Life ◽

Children And Adolescents ◽

Social Functioning ◽

Psychosocial Adjustment ◽

Cleft Lip ◽

Psychological Variables ◽

Search Terms ◽

Cleft Lip Palate ◽

Individual Variables

Objective: This review analyzes the psychological variables most frequently studied over the last 10 years in children and adolescents with cleft lip/palate (CL/P). Such variables are assumed to be the keys to these patients' psychosocial adjustment. Study design: Articles published from January 2007 to February 2017 were retrieved from PubMed to identify the psychological variables most commonly studied in children and adolescents with CL/P, irrespective of gender or type of cleft. The search terms were “cleft palate” and “psychology”, with the operator AND. Results: Of the 324 articles retrieved, 26 met the criteria for inclusion in the review. The psychological variables most extensively studied over the years were children's social functioning, quality of life and ability to cope. Conclusion: While CL/P patients' quality of life was unanimously agreed to be affected, no consensus was found in the literature on social functioning or coping. In addition to the cleft, patient adjustment was reported to be governed by individual variables and mediators. The range of ages most frequently studied was 7 to 16.

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Perception of quality of life by children and adolescents with cleft lip/palate after orthodontic and surgical treatment: gender and age analysis

Progress in Orthodontics ◽

10.1186/s40510-021-00354-8 ◽

2021 ◽

Vol 22 (1) ◽

Author(s):

Ana Ruiz-Guillén ◽

Carlos Suso-Ribera ◽

Martín Romero-Maroto ◽

Carmen Gallardo ◽

Cecilia Peñacoba

Keyword(s):

Quality Of Life ◽

Surgical Treatment ◽

Children And Adolescents ◽

Psychosocial Functioning ◽

Cleft Lip ◽

Social Function ◽

Self Perception ◽

Gender And Age ◽

Cleft Lip Palate

Abstract Background The quality of life (QoL) of children and adolescents with cleft lip/palate (CL/P) has been shown to be a predictor of good psychosocial functioning in this population group. This study aimed to measure QoL, from the patient´s perception of change produced by the different surgical and orthodontic treatments carried out since early childhood, and if gender and age are modulating the outcome variables results. Materials and methods A cross-sectional research study was carried out. The study included 60 patients with cleft lip, cleft palate, or cleft lip/palate, aged between 8 and 18, who were in orthodontic treatment and had undergone at least one surgery. They were asked to complete the Quality-of-Life Adolescent Cleft Questionnaire (QoLAdoCleft), which allows the assessment of the QoL through self-perception of improvement after surgical and orthodontic interventions. In particular, this questionnaire (administered only once), allows the evaluation of self-perception of QoL at the present time and before orthodontic and surgical treatment. This double assessment was carried out for the domains of physical, psychological, and social health. The results were analysed by looking at the interaction of gender and age. Results Statistically significant differences were found in the perception of the current QoL in comparison to the retrospective perception in all the dimensions considered. The perception of QoL improved in all cases. The results also showed a moderation of gender in the relation between perception of previous behaviour and social function and actual behaviour and social function. Conclusion The results indicated that patients perceived their quality of life had improved as a result of the treatments received, with the highest effect sizes found in the physical health domain. Specifically, the improvement in QoL in behaviour and social function tended to be influenced to a greater extent by perception of previous QoL. In this sense, personalized preventative measures from holistic and biopsychosocial approaches are necessary.

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Anxiety, Depression, and Quality of Life in Mothers of Children with Cleft Lip/Palate

Folia Phoniatrica et Logopaedica ◽

10.1159/000081958 ◽

2005 ◽

Vol 57 (1) ◽

pp. 20-27 ◽

Cited By ~ 17

Author(s):

Veronika Weigl ◽

Michael Rudolph ◽

Ulrich Eysholdt ◽

Frank Rosanowski

Keyword(s):

Quality Of Life ◽

Cleft Lip ◽

Cleft Lip Palate ◽

Anxiety Depression

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A comparative assessment of oral health-related quality of life of children born with orofacial clefts in Sudan and their caregivers'

BMC Oral Health ◽

10.1186/s12903-021-01514-2 ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Mecheala Abbas Ali ◽

Shaza K. Abass ◽

Elwalid Fadul Nasir

Keyword(s):

Quality Of Life ◽

Cleft Lip ◽

Cleft Lip And Palate ◽

Arabic Version ◽

Health Related Quality ◽

Related Quality ◽

Health Related ◽

Oral Symptoms ◽

The Impact

Abstract Background Cleft lip and palate(CL/P)is the most common orofacial malformation affecting one in every 700–1000 newborns worldwide. The aim of the study wasto evaluate the impact of CL/P on health- related quality of life (OHRQoL) in Sudanese children and the level of concordance between caregivers' and children and to investigate correlates of the caregivers' perceptions of OHRQoL with that of their children. Methods The sample consisted of 75 children with clefts (age range 8–16 years), (46 male, 29 female) and their caregivers' attending University of Science and Technology Dental Teaching Hospital. The children and their caregivers' were interviewed separately. The interview consisted of 38 questions adopted from the COHIP (Arabic version).The level of concordance between caregivers' and children was compared using paired t-tests and intraclass correlations. Predictive validity was assessed using Pearson correlations and linear regression analyses. Results The translated COHIP and its subscales, had Cronbach' alphas score ranged between (0.65 and 0.75) for caregivers' and children with cleft. COHIP scores for children and caregivers' were (89.41 ± 19.97) and (94.34 ± 19.52) respectively. Caregivers' and children differed significantly in the overall COHIP and oral symptoms subscale. There were high correlations between caregivers' and children ranged from (0.63 to 0.87). The correlation between all subscales was statistically significant (p = 0.05). Conclusions Caregivers' had higher perceptions of oral symptoms and overall COHIP compared to their children using the Arabic version of the COHIP. Caregiver's reports have to be considered complementary to the reports of their children themselves.

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Impact of malocclusion on oral health-related quality of life in Brazilian children with cleft lip and palate.

Brazilian Dental Science ◽

10.14295/bds.2016.v19i2.1248 ◽

2016 ◽

Vol 19 (2) ◽

pp. 25

Author(s):

Maiara Miyuki Matsui Falzoni ◽

Paula Karine Jorge ◽

Luciana Lourenço Ribeiro Vitor ◽

Cleide Felicio Carvalho Carrara ◽

Simone Soares ◽

...

Keyword(s):

Quality Of Life ◽

Cleft Lip ◽

Cleft Lip And Palate ◽

Health Related Quality ◽

Oral Clefts ◽

Related Quality ◽

Health Related ◽

The Impact ◽

Brazilian Children

Objective: This cross-sectional study aimed to evaluate the impact of malocclusion on the oral health-related quality of life (OHRQoL) in Brazilian children with non-syndromic oral clefts at tertiary craniofacial center. Material and methods: Sixty-nine children with non-syndromic oral clefts, aged between 8 and 10 years, were selected and divided into groups according to the cleft type: Group 1 – Children with complete unilateral cleft lip and alveolus; Group 2 – Children with unilateral cleft lip and palate; Group 3 – Children with cleft palate. Each child answered the Child Perceptions Questionnaire8-10 (CPQ 8-10) which is a multiple-choice questionnaire, with 29 questions on the impact of oral diseases on the OHRQoL. Then, a visual examination of dental occlusion was carried out. Kruskal-Wallis and Mann-Whitney tests were used to determine statistical significant differences among groups (p<0.05). Results: No statistically significant differences were verified for the impact of cleft type (p=0.895) and malocclusion (p=0.528) on OHRQoL of Brazilian children with oral clefts. Conclusion: The malocclusion did not impact on the OHRQoL of 8-10 year-old children with non-syndromic clefts.

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