Correlation of Continence with Long-term Patient Centered Outcomes in Children with Sacrococcygeal Teratoma

The purpose of this multicenter randomized controlled trial was to compare the clinical, radiographic, and patient-centered outcomes of early loaded mandibular overdentures deliberately placed on two or three implants. The outcomes were: implant and prosthesis success and survival rates; biological and technical complications; marginal bone loss; patient satisfaction; and periodontal parameters. The results showed no differences between the groups in any of the outcomes analyzed. With the limitations of the present study, and looking at long-term follow-up, the gold standard of prosthetic rehabilitations with attachments, in agreement with the scientific community, should prefer two non-splinted implants.

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Catheter-Based Therapies and Other Management Strategies for Deep Vein Thrombosis and Post-Thrombotic Syndrome

Journal of Clinical Medicine ◽

10.3390/jcm9051439 ◽

2020 ◽

Vol 9 (5) ◽

pp. 1439 ◽

Cited By ~ 1

Author(s):

Siddhant Thukral ◽

Suresh Vedantham

Keyword(s):

Deep Vein Thrombosis ◽

Management Strategies ◽

Patient Centered ◽

Specific Patient ◽

Vein Thrombosis ◽

Post Thrombotic Syndrome ◽

Patient Morbidity ◽

Patient Groups ◽

Deep Vein

Acute deep vein thrombosis (DVT) causes substantial short-term and long-term patient morbidity. Medical, lifestyle, and compressive therapies have been investigated for the prevention of pulmonary embolism (PE) and recurrence of venous thromboembolism (VTE). However, patient-centered outcomes such as resolution of presenting DVT symptoms and late occurrence of post-thrombotic syndrome (PTS) have not been prioritized to the same degree. Imaging-guided, catheter-based endovascular therapy has been used in selected patients to alleviate these sequelae, but important questions remain about their optimal use. In this article, we review the available evidence and summarize the rationale for use of catheter-based therapy in specific patient groups.

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Routine Collection of Long-Term Patient-Centered Outcomes after Trauma: A Multi-Institutional Experience

Journal of the American College of Surgeons ◽

10.1016/j.jamcollsurg.2017.07.1033 ◽

2017 ◽

Vol 225 (4) ◽

pp. e186

Author(s):

Juan P. Herrera-Escobar ◽

Michel Apoj ◽

Syeda S. Al Rafai ◽

Alyssa Harlow ◽

Karen J. Brasel ◽

...

Keyword(s):

Patient Centered ◽

Institutional Experience

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Patient-Centered Reduction or Discontinuation of Long-term Opioid Analgesics

JAMA ◽

10.1001/jama.2019.16409 ◽

2019 ◽

Vol 322 (19) ◽

pp. 1855 ◽

Cited By ~ 11

Author(s):

Deborah Dowell ◽

Wilson M. Compton ◽

Brett P. Giroir

Keyword(s):

Opioid Analgesics ◽

Patient Centered

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Recommendations to improve physical activity prescription for the cystic fibrosis population: an Irish perspective

BMC Health Services Research ◽

10.1186/s12913-020-05910-2 ◽

2020 ◽

Vol 20 (1) ◽

Author(s):

Nicola Hurley ◽

Bróna Kehoe ◽

Noel McCaffrey ◽

Karen Redmond ◽

Lydia Cullen ◽

...

Keyword(s):

Physical Activity ◽

Cystic Fibrosis ◽

Online Survey ◽

Continuing Professional Development ◽

Therapeutic Modality ◽

Plain Language ◽

Patient Centered ◽

Cystic Fibrosis Population ◽

Almost All

Abstract Background Physical activity (PA) is a well-established therapeutic modality for the maintenance and improvement of long-term health in cystic fibrosis (CF). Healthcare professionals (HCP) are considered credible and well-placed messengers for the delivery of PA advice. Limited research exists investigating the extent of PA prescription within CF care. This study aimed to identify Irish HCP i) knowledge and practice of, and ii) motivators and barriers to PA prescription, and iii) proposed strategies to optimize PA promotion and prescription in CF populations. Methods HCP from six designated CF centres in Ireland and members of the national physiotherapy CF clinical interest group were invited to participate. Following an expression of interest, each HCP (n = 81) received an email containing the plain language statement and link to the online survey. 48 HCP (physiotherapists n = 24, other n = 24) completed the 30-item investigator-developed survey, which included multiple choice single answer, matrix style and open-ended questions. Results Most HCP (81%) acknowledged that discussing PA with CF patients was part of their professional role. Almost all physiotherapists (95%) reported having sufficient knowledge regarding PA prescription, compared to 17% of other HCP. All physiotherapists reported discussing PA at every patient interaction, with 81% employing the current consensus guidelines, compared to 33 and 5% of other HCP, respectively. Among the most common barriers reported by HCP to recommending PA to their CF patients were; lack of motivation and compliance among patients to adhere to PA advice, limited availability of PA programmes to refer their patients to, limited time with patients during clinic visits and a lack of knowledge regarding PA prescription for CF care. Three-quarters of HCP reported a need to improve PA services for CF patients in Ireland. Conclusion As people with CF are living longer, it is imperative that HCP are expanding their scope of practice to include discussions around PA at every patient visit. Formal educational opportunities in the form of continuing professional development programmes are warranted for CF HCP to optimize long-term patient management and outcomes. There is also a need to develop patient-centered and evidence-based PA programmes underpinned by theories of behaviour change to enhance motivation and compliance among CF patients.

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OP16 A Patient-centered Value Framework For Healthcare In Hemophilia

International Journal of Technology Assessment in Health Care ◽

10.1017/s0266462317001210 ◽

2017 ◽

Vol 33 (S1) ◽

pp. 8-9 ◽

Cited By ~ 1

Author(s):

Brian O'Mahony ◽

Gerard Dolan ◽

Diane Nugent ◽

Clifford Goodman

Keyword(s):

Quality Of Life ◽

Healthcare Delivery ◽

Joint Damage ◽

Developed Countries ◽

Pathogen Transmission ◽

Patient Centered ◽

Access To Treatment ◽

Age Related

INTRODUCTION:Hemophilia is a rare, inherited bleeding disorder affecting an estimated 400,000 people worldwide (1). Characterized by spontaneous bleeding and long-term, irreversible joint damage, persons with hemophilia are often limited in normal day-to-day activities, including work/school, and require comprehensive care at specialized treatment centers. With replacement therapies extending survival by decades and vastly improving quality of life (QoL), routine prophylaxis is considered the standard-of-care in developed countries. However, due to the cost of replacement factor, access to treatment remains a challenge, and increased scrutiny over funding has been augmented by growing demands on healthcare budgets (2). Thus, the hemophilia community shares a unified goal of objectively defining patient-centered value in hemophilia care.METHODS:Using a three-tiered outcomes hierarchy model initially described by Porter (3), an international, multidisciplinary panel of health economics outcomes researchers and hemophilia experts developed a value framework for decision makers to assess value of various healthcare interventions in hemophilia.RESULTS:The three tiers for assessing value are: (i) Health status achieved/retained; (ii) Process of recovery; and (iii) Sustainability of health. Tier one measures survival, quality of life (QoL), and hemophilia-specific outcomes of bleeding frequency, musculoskeletal complications, and severe bleeds, as well as function/activity (that is, lifestyle impairment). Tier two measures time to initial treatment or recovery and time missed at education/work, as well as disutility of care (that is, inhibitor development, pathogen transmission/infections, orthopedic intervention, and venous access). Tier three measures avoidance of bleeds, maintenance of productive lives, and long-term health, while capturing long-term consequences of insufficient therapy or age-related complications. Applicability of the framework can be demonstrated in areas of healthcare delivery, treatment regimen, and innovation for new therapies.CONCLUSIONS:This value framework represents an initial collaboration with stakeholders to define and organize an array of patient-centric outcomes of importance in hemophilia into a practical tool that can influence treatment and funding decisions in hemophilia care.

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Patient-centered rehabilitation of single, partial, and complete edentulism with cemented- or screw-retained fixed dental prosthesis: The First Osstem Advanced Dental Implant Research and Education Center Consensus Conference 2017

European Journal of Dentistry ◽

10.4103/ejd.ejd_243_18 ◽

2018 ◽

Vol 12 (04) ◽

pp. 617-626 ◽

Cited By ~ 8

Author(s):

Marco Tallarico ◽

Marco Caneva ◽

Nicola Baldini ◽

Fulvio Gatti ◽

Marco Duvina ◽

...

Keyword(s):

Daily Practice ◽

Consensus Conference ◽

Marginal Bone Loss ◽

Patient Centered ◽

Framework Materials ◽

Fixed Dental Prosthesis ◽

Dental Practitioners ◽

Research And Education ◽

Meta Analyses

ABSTRACTThe aim of this consensus conference was to provide clinical guidelines, based on the available evidence and on the author's daily practice and experience, for general dentistry and dental practitioners to allow them to delivery long-term successful restorations. Three groups of expert clinicians and dental technicians were invited to evaluate all of the scientific literature from 1967 up to March 2017 to identify relevant studies on assigned topics and to prepare in advance narrative/systematic review, written according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines, to fulfill the consensus statement criteria. The three topics assigned to the three groups were abutment/framework materials and customization (metal vs. metal-free restorations), abutment/framework protocols and designs, and abutment/framework retentions (cemented- vs. screw-retained implant-supported prostheses). All the expert clinicians presented their results, and the lectures were followed by discussions. No significant differences in clinical parameters (marginal bone loss, bleeding on probing, and pocket probing depth) between screw- or cemented-retained were found for single and multiple implant-supported restorations. There is moderate evidence that nonoriginal abutments provide worse mechanical behavior than originals and high evidence that different implant neck designs do not offer any clinical or radiographic advantage. All the participants agreed that it is desirable to connect and remove abutments as few times as possible. There is medium evidence that an adequate platform switching tends to enhance tissue volume and stability in the medium- and long-term follow-up. No statistically significant differences exist between metal and zirconia as a framework material. The authors discussed and all agreed that retrievability and patient's expectation (function and esthetics) should guide the choice of the most adequate technique, component, and material.

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