WITHDRAWN: Evaluating the Impact of Using a Generic versus a Disease-Specific Quality-of-Life Instrument in Cost-Utility Analyses: A Case Study in Severe Asthma

Effects of use of an eHealth platform e-Vita for COPD patients on disease specific quality of life domains

Tijdschrift voor Gerontologie en Geriatrie ◽

10.36613/tgg.1875-6832/2020.04.03 ◽

2020 ◽

Keyword(s):

Quality Of Life ◽

Functional State ◽

Mental State ◽

Self Management ◽

Copd Patients ◽

Before And After ◽

Ehealth Intervention ◽

The Impact ◽

Disease Specific

Background: Integrated disease management with self-management for Chronic Obstructive Pulmonary Disease (COPD) is effective to improve clinical outcomes. eHealth can improve patients’ involvement to be able to accept and maintain a healthier lifestyle. Eventhough there is mixed evidence of the impact of eHealth on quality of life (QoL) in different settings. Aim: The primary aim of the e-Vita-COPD-study was to investigate the effect of use of eHealth patient platforms on disease specific QoL of COPD patients. Methods: We evaluated the impact of an eHealth platform on disease specific QoL measured with the clinical COPD questionnaire (CCQ), including subscales of symptoms, functional state and mental state. Interrupted time series (ITS) design was used to collect CCQ data at multiple time points. Multilevel linear regression modelling was used to compare trends in CCQ before and after the eHealth intervention. Results: Of 742 invited COPD patients, 244 signed informed consent. For the analyses, we only included patients who actually used the eHealth platform (n = 123). The decrease of CCQ-symptoms was 0,20% before the intervention and 0,27% after the intervention; this difference was statistically significant (P=0.027). The decrease of CCQ-mental was 0,97% before the intervention and after the intervention there was an increase of 0,017%; this difference was statistically significant (P=0,01). No significant difference was found in the slopes of CCQ (P=0,12) and CCQ-function (P=0,11) before and after the intervention. Conclusion: The e-Vita eHealth platform had a potential beneficial impact on the CCQ-symptoms of COPD patients, but not on functional state. The CCQ-mental state remained stable after the intervention, but this was a deterioration compared to the improving situation before the start of the eHealth platform. In conclusion, this study shows that after the introduction of the COPD platform, patients experienced fewer symptoms, but their mental state deteriorated slightly at the same time. Therefore, health care providers should be aware that, although symptoms improve, there might be a slight increase in anxiety and depression after introducing an eHealth intervention to support self-management.

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Health-Related Quality of Life of Patients with Multiple Sclerosis in Oman – A CrossSectional Study

Oman Medical Journal ◽

10.5001/omj.2021.109 ◽

2021 ◽

Author(s):

Jansirani Natarajan ◽

Mickael Antoine Joseph ◽

Abdullah Al Asmi ◽

Gerald Amandu Matua ◽

Jaber Al Khabouri ◽

...

Keyword(s):

Quality Of Life ◽

Multiple Sclerosis ◽

Disease Process ◽

Well Being ◽

Health Related Quality ◽

Related Quality ◽

Health Related ◽

The Impact ◽

Disease Specific

Objectives: Multiple sclerosis is a disabling neurological disorder with significant negative effects on patients’ quality of life. Despite the increased prevalence of multiple sclerosis in Arabian Gulf countries in recent years, no study has assessed the impact of multiple sclerosis on the healthrelated quality of life of Omani patients. Therefore, the objectives of the current study was to assess the impact of multiple sclerosis on the health-related quality of life of Omani patients using the validated disease-specific self-administered MusiQoL instrument. Methods: A cross-sectional descriptive study was carried out between April and December 2019 on 177 Omani patients with multiple sclerosis attending two major hospitals in Oman. Patients’ health-related quality of life was assessed using the validated disease-specific self-administered MusiQoL instrument. Results: Majority (51.4%) of the patients had poor HRQOL and 48.6% had moderate HRQOL. We found that being older than 30 years, a female, married, separated, widowed, or divorced, and having visual and sleep problems had poorer health-related quality of life. Among the different health-related quality of life components, relationship with the healthcare system and relationship with family and friends were the most affected because of the disease process. Our results also showed that psychological well-being and coping domains of MusiQoL questionnaires are significantly reduced in females as compared to males. Conclusion: Understanding the health-related quality of life of Omanis with multiple sclerosis provides valuable knowledge that could help optimize the management of this disease.

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Impactul managementului disfagiei asupra calității vieții persoanelor cu accident vascular cerebral

Revista Română de Terapia Tulburărilor de Limbaj şi Comunicare ◽

10.26744/rrttlc.2021.7.1.03 ◽

2021 ◽

Vol 7 (1) ◽

pp. 17-28

Author(s):

Raluca-Mariana Popa

Keyword(s):

Quality Of Life ◽

Experimental Design ◽

Clinical Evaluation ◽

Management Of Dysphagia ◽

The Impact ◽

Neurological Pathology ◽

Attack Type

The objective of the following research is the investigation of the impact that management of dysphagia has upon quality of life in persons with neurological pathology of vascular cerebreal attack type. The group of participants in this study has 6 members with ages between 34 and 69, all suffering from a neurological pathology of VCA type or cranio-cerebreal trauma with direct implications on the swallowing process. This paper used case study methode as experimental design, the goal being to detect the impact that speach therapy has on the dysphagia, in the context of safety and quality of life. A series of instruments regarding clinical evaluation of dysphagia and quality of life in the context of VCA and dysphagia where been translated and adapted in the fallowing research.

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Development of a Disease-Specific Health-Related Quality of Life Instrument for Children in the United States With Celiac Disease

Gastroenterology ◽

10.1016/s0016-5085(11)62849-7 ◽

2011 ◽

Vol 140 (5) ◽

pp. S-686

Author(s):

Nicole Jordan ◽

Yuelin Li ◽

Danielle Magrini ◽

Norelle Rizkalla Reilly ◽

Robbyn E. Sockolow ◽

...

Keyword(s):

Quality Of Life ◽

United States ◽

The United States ◽

Health Related Quality ◽

Life Instrument ◽

Related Quality ◽

Health Related ◽

Disease Specific ◽

Specific Health

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Exploring mass customization and textile application in medical products: re-designing scoliosis brace for shorter production lead time and better quality of life

Textile Research Journal ◽

10.1177/0040517520916922 ◽

2020 ◽

Vol 90 (19-20) ◽

pp. 2304-2321

Author(s):

Olivia Ho-Yi Fung ◽

Joanne Yip ◽

Mei-Chun Cheung ◽

Kit-Lun Yick ◽

Kenny Yat-Hong Kwan ◽

...

Keyword(s):

Quality Of Life ◽

Patient Compliance ◽

Mass Customization ◽

Lead Time ◽

Interface Pressure ◽

Negative Impacts ◽

Exerted Pressure ◽

The Impact

Bracing is the most common non-operative treatment option for patients with adolescent idiopathic scoliosis (AIS). However, existing brace designs have deficiencies, including a long production lead time and low patient compliance caused by the negative impacts of bracing on quality of life (QoL). The aim of this study was to address these problems by developing a new textile-based scoliosis brace in accordance with the biomechanics used in the existing braces for spinal correction. A case study of interface pressure had been carried out to determine the optimum combination of pads to be used in the proposed brace to correct a scoliotic spine. AIS patients who were undergoing hard brace treatment were recruited to complete a questionnaire (BrQ) on hard braces and on the proposed brace. The BrQ scores of the two types of braces were compared to assess their respective impacts on the QoL. The findings show that the proposed brace can address the issue of patient compliance by reducing the impact of bracing on QoL, and shorten the production lead time through incorporation of the mass customization concept into the design. Similar to most of the commonly-used scoliosis braces, the selected combination of pads used in the proposed brace for spinal correction shows a sufficient amount of exerted pressure and a similar function of active spinal correction.

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