scholarly journals EMPATHY AND BOUNDARY TURBULENCE IN CANCER COMMUNICATION

2021 ◽  
Author(s):  
Susan H. McDaniel ◽  
Diane S. Morse ◽  
Elizabeth A. Edwardsen ◽  
Adam Taupin ◽  
Mary Gale Gurnsey ◽  
...  
Keyword(s):  
Cancer Communication ◽  
Boundary Turbulence

scholarly journals The evolution of parents’ beliefs about childhood cancer during diagnostic communication: a qualitative study in Guatemala

2021 ◽  
Vol 6 (5) ◽  
pp. e004653
Author(s):  
Dylan Graetz ◽  
Silvia Rivas ◽  
Lucia Fuentes ◽  
Ana Cáceres-Serrano ◽  
Gia Ferrara ◽  
...  
Keyword(s):  
Cancer Education ◽  
Medical Model ◽  
Communication Process ◽  
Sources Of Information ◽  
Cancer Communication ◽  
Structured Interviews ◽  
Children With Cancer ◽  
Cancer Centre ◽  
Treatment Abandonment ◽  
Cancer Beliefs

IntroductionFatalistic cancer beliefs may contribute to delayed diagnosis and poor outcomes, including treatment abandonment, for children with cancer. This study explored Guatemalan parents’ cancer beliefs during initial paediatric cancer communication, and the sociocultural and contextual factors that influence these beliefs.MethodsTwenty families of children with cancer were included in this study. We audio-recorded psychosocial conversations with psychologists and diagnostic conversations with oncologists, then conducted semi-structured interviews with parents to explore the evolution of their cancer beliefs. Audio-recordings were transcribed and translated from Spanish into English, with additional review in both languages by bilingual team members. All 60 transcripts were thematically analysed using a priori and novel codes.ResultsGuatemalan parents’ beliefs evolve as they learn about cancer through various sources. Sources of information external to the cancer centre, including prior experiences with cancer, media exposure, community discussion and clinical encounters, contribute to pre-existing beliefs. Many parents’ pre-existing cancer beliefs are fatalistic; some are influenced by Mayan spirituality. Sources internal to the cancer centre include psychologists and oncologists, other providers, other patients and families. Psychologists acknowledge pre-existing beliefs and deliver cancer education using verbal explanations and hand-drawings. Oncologists provide diagnostic information and outline treatment plans. Both support hope by providing a path toward cure. Parents’ lived experience is a culmination of sources and simultaneously independent. Ultimately most parents arrive at an understanding of cancer that is consistent with an allopathic medical model and offers optimism about outcomes.ConclusionAn interdisciplinary communication process that includes cancer education, is attentive to pre-existing beliefs, and supports hope may encourage acceptance of the allopathic medical model and need for treatment. Providers in settings of all resource levels may be able to use these techniques to support cross-cultural cancer communication, reduce treatment abandonment and improve therapy adherence.

A qualitative study of mechanisms influencing social inequality in cancer communication

2021 ◽  
Author(s):  
Annemarie Dencker ◽  
Tine Tjørnhøj‐Thomsen ◽  
Pia Vivian Pedersen
Keyword(s):  
Qualitative Study ◽  
Social Inequality ◽  
Cancer Communication

scholarly journals The Nine Cancer Frames: A Tool to Facilitate Critical Reading of Cancer-Related Information

2021 ◽  
Author(s):  
Craig Murray ◽  
Nina von Possel ◽  
Hanne C. Lie ◽  
Jarle Breivik
Keyword(s):  
Health Communication ◽  
Public Discourse ◽  
Analytical Tool ◽  
Public Understanding ◽  
Factual Knowledge ◽  
Critical Reading ◽  
Framing Analysis ◽  
Cancer Communication ◽  
Related Information ◽  
Cancer Literacy

AbstractPeople’s ability to critically assess cancer-related information is essential from a preventional and therapeutic, as well as a general democratic perspective. Such cancer literacy is not just about acquiring factual knowledge. It also involves the ability to analyze how the information is contextualized—how cancer is framed. Previous research concerning the framing of cancer in public discourse is voluminous and penetrating but also fragmented and inaccessible to non-experts. In this study, we have developed an integrated and applicable tool for analyzing cancer discourse by systematically classifying distinctive ways of framing of the concept of cancer. Building on previous research and an inductive framing analysis of a broad range of public cancer discourse, systematically selected from British and Norwegian newspapers, we have characterized nine cancer frames: the biomedical, the environmental, the epidemiological, the personal, the sociopolitical, the economic, the antagonistic, the alternative, and the symbolic frame. This framing scheme may be applied to analyze cancer-related discourse across a plurality of themes and contexts. We also show how different frames combine to produce more complex messages, thereby revealing underlying patterns, strategies, and conflicts in cancer communication. In conclusion, this analytical tool enables critical reading of cancer-related information and may be especially useful in educational initiatives to advance health communication and public understanding of cancer.

scholarly journals Managing boundary turbulence through the use of information manipulation strategies: A report on two studies

2016 ◽  
Vol 2 (1) ◽  
pp. 1195937 ◽  
Author(s):  
Richard S. Bello ◽  
Frances E. Brandau-Brown ◽  
J. Donald Ragsdale ◽  
Claudia Alvares
Keyword(s):  
Information Manipulation ◽  
Boundary Turbulence

scholarly journals “You told me it was too late”: An autoethnographic reflection on (not) knowing and bereavement

2021 ◽  
Author(s):  
Nicole Dulysh
Keyword(s):  
Lung Cancer ◽  
Palliative Care ◽  
Mental Capacity ◽  
Terminal Cancer ◽  
Parental Cancer ◽  
Cancer Communication ◽  
Best Interest ◽  
Vocal Cords ◽  
Life And Death ◽  
Grieving Process

A parent diagnosed with terminal cancer is focused on their own struggle with life and death. They often do not have the mental capacity to think rationally about what is in the best interest of their child at this time. Without a doubt, the grieving process of a child 1who is informed about their parent’s diagnosis will have a different experience than a child who is not informed. Following on an autoethnographic approach I will revisit my past experience of my mom’s diagnosis with lung cancer and my father’s diagnosis of a cancerous tumor on his vocal cords as I share, explore, and reflect upon my involvement in both matters. These experiences will be shared along with the six stages of grief by Elisabeth Kübler-Ross and David Kessler as I provide a deeper understanding of how a child being informed or uninformed throughout the diagnosis can impact their feelings of guilt and sorrows leading up to death. Keywords: Palliative care, Cancer, Children, Parental Cancer, Communication, Relationship, Behaviour

scholarly journals When Facebook Becomes a Part of the Self: How Do Motives for Using Facebook Influence Privacy Management?

2021 ◽  
Vol 12 ◽  
Author(s):  
Hyunjin Kang ◽  
Wonsun Shin
Keyword(s):  
Information Management ◽  
Online Survey ◽  
Management Strategies ◽  
Psychological Factor ◽  
The Self ◽  
Boundary Management ◽  
Privacy Management ◽  
Highly Sensitive ◽  
Boundary Turbulence ◽  
Self System

This study examines how three different motivations for using an SNS (i.e., self-expression, belonging, and memory archiving) influence multi-facets of privacy boundary management on the platform mediated by self-extension to it. In recognition of the fact that information management on SNSs often goes beyond the “disclosure-withdrawal” dichotomy, the study investigates the relationships between the three SNS motives and privacy boundary management strategies (i.e., collective boundary and boundary turbulence management). An online survey with Facebook users (N = 305) finds that the three Facebook motivations are positively correlated to users’ self-extension to Facebook. The motivations for using Facebook are positively associated with the management of different layers of privacy boundaries (i.e., basic, sensitive, and highly sensitive), when Facebook self-extension is mediated. In addition, the three motives have indirect associations with potential boundary turbulence management mediated by Facebook self-extension. Extending the classic idea that privacy is deeply rooted in the self, the study demonstrates that perceiving an SNS as part of the self-system constitutes a significant underlying psychological factor that explains the linkage between motives for using SNSs and privacy management.

Sign in / Sign up

Export Citation Format

Share Document