scholarly journals Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity

2020 ◽  
Vol 34 (4) ◽  
pp. 304-314 ◽  
Author(s):  
Lilian Bravo ◽  
Mary K. Killela ◽  
Beck L. Reyes ◽  
Karla Marie Bathan Santos ◽  
Vanessa Torres ◽  
...  
Author(s):  
Eva Smit ◽  
Karlijn Leenaars ◽  
Annemarie Wagemakers ◽  
Koos van der Velden ◽  
Gerard Molleman

Summary Care Sport Connectors (CSCs) have been appointed to create a connection between primary care and physical activity (PA) sectors to stimulate inactive residents into becoming physically active. Adequate recruitment strategies are necessary to reach the intended target group in order to foster the sustainability of lifestyle interventions. The objective of this study is to explore PA behavior and health characteristics of the target group reached by CSCs and if these characteristics differ between participants when grouped based on how they were recruited. Participants from lifestyle interventions were included between September 2014 and April 2016 using a purposive sampling method. Participants were recruited through CSCs via public relations (n = 135), a personal letter (n = 136), or a referral (n = 98) and compared based on their PA level, health-related quality of life, motivation, self-efficacy, morbidity and health-related fitness. Scores were analyzed with a multi-level (mixed model) analysis measured before the intervention. The three groups were different in PA level (p = 0.002). The outcomes regarding health-related quality of life, motivation, and number of somatic disorders were also significantly different for the three groups, except for the categories of mental health (p = 0.145) and self-efficacy (p = 0.464). For all dimensions, the referral group scored the least favorable. The investment in time and money for an active recruitment strategy like referrals is worthwhile because it provides CSCs the opportunity to reach people who are inactive and at risk of chronic disease. Future studies are necessary to reveal the effect on PA levels and health in the long-term.


2018 ◽  
Vol 31 (7) ◽  
pp. 1134-1154 ◽  
Author(s):  
Shannon Ang

Objective: Few studies have tested the purported causal mechanisms between social participation and health, especially among those in poor health. This study aimed to determine whether self-management of chronic disease operates as a pathway through which social participation affects health-related quality of life. Method: I utilized causal mediation analysis among 600 low-income older Singaporeans living with chronic conditions, to test whether self-management mediates the association between social participation and health-related quality of life. Results: Results show that self-management fully mediated the positive effect of informal social participation on health-related quality of life. Formal social participation was found to have a negative direct effect on health-related quality of life. Discussion: These findings reiterate the primacy of family and friends for older adults, but highlight that a better understanding of formal engagement with the low-income population is still needed.


2019 ◽  
Vol 4 (2) ◽  
Author(s):  
Harni Harniati ◽  
Syahrul Syahrul ◽  
Takdir Tahir

ABSTRACTBackground: Self-management programs are very important in the care of patients with COPD as an independent intervention in an effort to improve health status. Aim: Of this systematic review is to find out the form of self-management intervention in COPD patients, an instrument to measure the outcomes of self-management and the effects of self-management programs in COPD patients. Methods: Used are electronic data bases from journals published through ProQuest, PubMed., And ScienceDirect. Results: Of a review of 9 selected journals stated that self-management programs had an influence on increasing lung capacity, exercise capacity and health-related quality of life compared to patients who experienced standard care. The research instrument was used to measure lung capacity using spirometry, Exercise capacity used a six-minute walking distance (6MWD), Incremental Shuttle Walk Test (ISWT) and the Endurance Shuttle Walk Test (ESWT), and health-related quality of life measured by St George Respiratory Questionnaire (SGRQ). The results showed that the effects of self-management programs benefited in the quality of care, reduced the number of days of hospital care and did not increase the number of deaths. Conclusion: Self-management programs in COPD patients provide the ability to manage disease so that it can increase lung capacity, exercise capacity and quality of life related to health. Keywords: Chronic obstructive pulmonary disease, exercise capasity, lung   capacity self management program, quality of life


2020 ◽  
Vol 54 (3) ◽  
pp. 164-172
Author(s):  
Joel Faronbi ◽  
Aishat Ajadi ◽  
Robbert Gobbens

Background: The increase in life expectancy has brought about a higher prevalence of chronic illnesses among older people.Objectives: To identify common chronic illnesses among older adults, to examine the influence of such conditions on their Health-Related Quality of Life (HRQoL), and to determine factors predicting their HRQoL.Method: A population-based cross-sectional study was conducted involving 377 individuals aged 60 years and above who were selected using multi-stage sampling techniques in Olorunda Local Government, Osun State, Nigeria. Data were collected using an interviewer-administered questionnaire comprising socio-demographic characteristics, chronic illnesses, and the World Health Organization quality of life instrument (WHOQOL-BREF) containing physical health, psychological, social relationships, and environmental domains.Results: About half (51.5%) of the respondents reported at least one chronic illness which has lasted for 1–5 years (43.3%). The prevalence of hypertension was 36.1%, diabetes 13.9% and arthritis 13.4%. Respondents with chronic illness had significantly lower HRQoL overall and in the physical health, social relationships and the environmental domains (all p<0.05) compared to those without a chronic illness. Factors that predicted HRQoL include age, marital status, level of education, the presence of chronic illness and prognosis of the condition.Conclusion: This study concluded that chronic illness is prevalent in Nigerian older people and significantly influence their HRQoL. Age, marital status, and level of education were associated with HRQoL in this group.Keywords: Chronic illness, Health-Related Quality of Life, Older adults, Socio-demographic factorsFunding: Postdoctoral fellowship from Consortium for Advanced Research Training in Afric


2020 ◽  
Author(s):  
Yanbing Zeng ◽  
Chenxi Lin ◽  
Fan Chen ◽  
Ya Fang

Abstract Background: A low HRQOL can be a risk factor for future cardiovascular events in patients with hypertension. Therefore, HRQOL should receive attention and be improved in the treatment of hypertension. The purpose of this study was to investigate if the association between treatment groups and Health-Related Quality of Life (HRQOL) of hypertension mediated by self-management, and to determine which factors of hypertension self-management influenced HRQOL. Methods: Hypertensive patients were selected by multi-stage stratified samping from “1+1+N” Physicians intervention (PI) group and the conventional management (CM) group in 5 communities of Xiamen, China. Patients were cross-sectionally assessed by validated self-reports using self-management Behavior Rating Scale and Quality of Life Instruments for Hypertension. A structural equation modeling (SEM) and a path analytic model were used to assess if the association between treatment groups and HRQOL was mediated by self-management. Results: A total of 1207 patients were included, of whom 48.55% were in the PI group. The average score of the HRQOL scale was 86.68, and the average score of the PI group was higher than the CM group (87.35 vs 86.04, respectively). Similar findings were observed for the self-management scale, in which the average score of the PI group was higher than the CM group (76.32 vs 72.00, respectively). Patients in the PI group had higher levels of self-management compared to the CM group except for management of emotion. SEM showed that the association between treatment groups and HRQOL was significantly mediated by self-management (a*b, 95% confidence intervals CI: 0.02,0.07) and that the single mediator (self-management) model explained 76.67% of the intervention effect. In the multivariable mediation model, the association between treatment groups and HRQOL was significantly mediated by management of medication adherence, sport and diet.Conclusions: The findings presented good evidence supporting that treatment groups are linked to HRQOL of hypertension via self-management. Specifically, management of medication adherence, sport, diet, and emotion are important for improving HRQOL.


2019 ◽  
Vol 42 (25) ◽  
pp. 3687-3695 ◽  
Author(s):  
Laura Lopez-Lopez ◽  
Marie Carmen Valenza ◽  
Janet Rodriguez-Torres ◽  
Irene Torres-Sanchez ◽  
Maria Granados-Santiago ◽  
...  

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