Quality of life of caregivers of persons with neurological disorder sequels

Fahr’s Syndrome (FS) is a rare neurological disorder of abnormal calcium deposition. FS is most notably characterized by deterioration of motor function, neuropsychiatric impairment and seizures. These symptoms are primarily due to calcification of the basal ganglia and cerebral cortex. Although there are currently no curative therapies, treatments are available which can significantly improve quality of life, making early diagnosis and identification of etiology essential. Hypoparathyroidism with intracranial calcification is extremely rare clinically. Here we present a case of idiopathic hypoparathyroidism induced Fahr’s syndrome with classic symptomatology, imaging of examination findings and extensive cerebral calcifications. Keywords: Fahr’s Syndrome; idiopathic hypoparathyroidism.

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Epilepsy Nurse Specialist, 15 years’ experience, UK

Non-Epileptic Seizures in Our Experience ◽

10.1093/med/9780190927752.003.0056 ◽

2020 ◽

pp. 154-157

Author(s):

Markus Reuber ◽

Gregg H. Rawlings ◽

Steven C. Schachter

Keyword(s):

Quality Of Life ◽

Health Professionals ◽

Neurological Disorder ◽

Rare Case ◽

Daily Basis ◽

Duty Of Care ◽

Nurse Specialist ◽

Epileptic Attack ◽

Ongoing Support

This chapter describes the experience of an epilepsy nurse with patients with Non-Epileptic Attack Disorder (NEAD). It specifically details a rare case where the patient was undoubtedly diagnosed with NEAD and the diagnosis was met with complete acceptance. The patient was able to move forward with her life, putting this period of living with NEAD behind her, a period of time that possibly spanned several years. Ultimately, carers have a duty to provide ongoing support throughout the trajectory of the journey of patients with NEAD despite it being a psychiatric and not a neurological disorder. This condition if untreated or treated inappropriately can fundamentally affect quality of life on a daily basis, and health professionals all have a duty of care to address that.

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ASSESSMENT OF DEPRESSION AND ANXIETY IN NEUROLOGICAL DISORDER PATIENTS AND THEIR RELATIONSHIP WITH QUALITY OF LIFE

Malaysian Journal of Public Health Medicine ◽

10.37268/mjphm/vol.21/no.2/art.804 ◽

2021 ◽

Vol 21 (2) ◽

pp. 112-123

Author(s):

Priscilla Das ◽

Nyi Nyi Naing ◽

Nadiah Wan-Arfah ◽

KON Noorjan ◽

Yee Cheng Kueh ◽

...

Keyword(s):

Quality Of Life ◽

Major Depressive Disorder ◽

Panic Disorder ◽

Depressive Disorder ◽

Anxiety Disorders ◽

Neurological Disorder ◽

Life Questionnaire ◽

Major Depressive ◽

Compulsive Disorder

Objectives: To assess the association between major depressive disorder, anxiety disorders and the quality of life of neurological disorder (brain tumour/brain disorder) patients. Methods: This study was conducted at Kuala Lumpur Hospital, Malaysia, a tertiary referral centre hospital for neurological disorder patients. The cross-sectional study design was applied. The Mini-International Neuropsychiatric Interview and European Organization for Research and Treatment of Cancer Quality of Life Questionnaire were used in the study. Results: A total of 100 neurological disorder patients were included in the study. The study found that the Major depressive disorder correlated with almost all domains of the quality of life, except the nausea and vomiting scores. Logistic regression showed that emotional functioning and pain were related to major depressive disorder. Different anxiety disorders also correlated with quality of life in specific domains. The leading anxiety disorders that associated mostly with quality of life scales were post traumatic stress disorder, panic disorder lifetime and current, panic disorder with agoraphobia, obsessive compulsive disorder, anxiety disorder and with agoraphobia current and social phobia current (p < 0.05). Conclusions: There is a significant relationship between psychiatric disorders and quality of life neurological disorder patients. Therefore treatment along with psychiatric intervention should be implemented to improve the overall curability of the neurological disorder patients.

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Neurorehabilitation

Oxford Handbook of Neuroscience Nursing ◽

10.1093/med/9780198831570.003.0011 ◽

2020 ◽

pp. 397-432

Keyword(s):

Quality Of Life ◽

Brain Injury ◽

Medical Staff ◽

Neurological Disorder ◽

Interdisciplinary Team ◽

Personal Goals ◽

Team Working ◽

Working Together ◽

Goals And Objectives

Neurorehabilitation epitomizes patient-centred care. It relies on a large multidisciplinary and interdisciplinary team, working together to maximize quality of life for patients who have suffered a brain injury or who are trying to adapt to living with disability resulting from chronic neurological disorder. Therapists, psychologists, nurses, and medical staff work with the patients to enable them to achieve their own personal goals and objectives, be it physical, psychological, or cognitive issues that they are trying to improve.

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Validation of the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) scale in the portuguese language

Arquivos de Neuro-Psiquiatria ◽

10.1590/s0004-282x2010000100011 ◽

2010 ◽

Vol 68 (1) ◽

pp. 48-51 ◽

Cited By ~ 6

Author(s):

Karina Pavan ◽

Bruna E.M. Marangoni ◽

Marcela O. Zinezzi ◽

Kizi B. Schmidt ◽

Berenice Cataldo Oliveira ◽

...

Keyword(s):

Quality Of Life ◽

Amyotrophic Lateral Sclerosis ◽

Neurological Disorder ◽

Assessment Questionnaire ◽

Lateral Sclerosis

The amyotrophic lateral sclerosis (ALS) is a degenerative neurological disorder that has a great impact in the quality of life of the patients. This study had the objective of validating the ALS Assessment Questionnaire in the Portuguese Language (ALSAQ-40/BR). The version of ALSAQ-40/BR, was adapted into the Portuguese language after the evaluation and re-evaluation of 20 patients with a defined ALS diagnosis. The demonstration of its reproducibility and reliability makes this instrument an additional and useful parameter which can be used in the evaluation of ALS for research or assistance.

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Depression and Quality of Life in Patients with Neurological Disorder in a Malaysian Hospital

10.12809/eaap1777 ◽

2019 ◽

Vol 29 (2) ◽

pp. 66-70 ◽

Cited By ~ 1

Author(s):

Priscilla Das ◽

Nyi Nyi Naing ◽

Nadiah Wan-Arfah ◽

KO Naing Noor Jan ◽

Yee Cheng Kueh ◽

...

Keyword(s):

Quality Of Life ◽

Neurological Disorder

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Self-Compassion and Quality of Life in Adults Who Stutter

American Journal of Speech-Language Pathology ◽

10.1044/2020_ajslp-20-00055 ◽

2020 ◽

Vol 29 (4) ◽

pp. 2097-2108

Author(s):

Robyn L. Croft ◽

Courtney T. Byrd

Keyword(s):

Quality Of Life ◽

Social Connectedness ◽

The Self ◽

Future Research ◽

Self Compassion ◽

Adults Who Stutter ◽

And Gender ◽

Relationship Of ◽

The Impact

Purpose The purpose of this study was to identify levels of self-compassion in adults who do and do not stutter and to determine whether self-compassion predicts the impact of stuttering on quality of life in adults who stutter. Method Participants included 140 adults who do and do not stutter matched for age and gender. All participants completed the Self-Compassion Scale. Adults who stutter also completed the Overall Assessment of the Speaker's Experience of Stuttering. Data were analyzed for self-compassion differences between and within adults who do and do not stutter and to predict self-compassion on quality of life in adults who stutter. Results Adults who do and do not stutter exhibited no significant differences in total self-compassion, regardless of participant gender. A simple linear regression of the total self-compassion score and total Overall Assessment of the Speaker's Experience of Stuttering score showed a significant, negative linear relationship of self-compassion predicting the impact of stuttering on quality of life. Conclusions Data suggest that higher levels of self-kindness, mindfulness, and social connectedness (i.e., self-compassion) are related to reduced negative reactions to stuttering, an increased participation in daily communication situations, and an improved overall quality of life. Future research should replicate current findings and identify moderators of the self-compassion–quality of life relationship.

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Misophonia: An Evidence-Based Case Report

American Journal of Audiology ◽

10.1044/2020_aja-19-00111 ◽

2020 ◽

Vol 29 (4) ◽

pp. 685-690

Author(s):

C. S. Vanaja ◽

Miriam Soni Abigail

Keyword(s):

Quality Of Life ◽

Case Report ◽

Case History ◽

Pure Tone ◽

Physiological Responses ◽

Evidence Based ◽

Management Option ◽

Pure Tone Audiogram

Purpose Misophonia is a sound tolerance disorder condition in certain sounds that trigger intense emotional or physiological responses. While some persons may experience misophonia, a few patients suffer from misophonia. However, there is a dearth of literature on audiological assessment and management of persons with misophonia. The purpose of this report is to discuss the assessment of misophonia and highlight the management option that helped a patient with misophonia. Method A case study of a 26-year-old woman with the complaint of decreased tolerance to specific sounds affecting quality of life is reported. Audiological assessment differentiated misophonia from hyperacusis. Management included retraining counseling as well as desensitization and habituation therapy based on the principles described by P. J. Jastreboff and Jastreboff (2014). A misophonia questionnaire was administered at regular intervals to monitor the effectiveness of therapy. Results A detailed case history and audiological evaluations including pure-tone audiogram and Johnson Hyperacusis Index revealed the presence of misophonia. The patient benefitted from intervention, and the scores of the misophonia questionnaire indicated a decrease in the severity of the problem. Conclusions It is important to differentially diagnose misophonia and hyperacusis in persons with sound tolerance disorders. Retraining counseling as well as desensitization and habituation therapy can help patients who suffer from misophonia.

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