Right people, right time? a qualitative study of service access experiences of adults with acquired brain injury following discharge from inpatient rehabilitation

2020 ◽  
pp. 1-16
Author(s):  
Michele Foster ◽  
Melissa Legg ◽  
Eloise Hummell ◽  
Letitia Burridge ◽  
Kirsty Laurie
Keyword(s):  
Brain Injury ◽  
Acquired Brain Injury ◽  
Inpatient Rehabilitation ◽  
Service Access ◽  
Personal Recovery ◽  
Structured Interviews ◽  
Perceived Needs ◽  
Specialist Services ◽  
Positive Experiences

Abstract Purpose: The intention of this paper is to develop the personal concept of appropriate access. We report on the service access experiences and opportunities of adults with an acquired brain injury after leaving inpatient rehabilitation. The benefits of appropriate access underpin standards in early and long-term recovery, though users’ access needs are highly personal. Methods: The study used a qualitative design involving 16 semi-structured interviews with Australian adults with an acquired brain injury after discharge from inpatient brain rehabilitation. Data were thematically analysed. Results: Three main themes were derived from the analysis. Theme 1 shows that participants valued being steered to services that providers thought appropriate for them early after discharge from inpatient rehabilitation. Theme 2 highlights the tensions between timing and personal recovery and perceived needs. Theme 3 captures participants’ insights into the challenges of gaining access vis-a-vis what the system offers and the enablers of actualising appropriate access. Conclusion: The positive experiences of being directed to specialist services early after discharge suggest that continuity of care constitutes appropriateness of access for participants in this study. However, it is also clear that continuity should not displace flexibility in the timing of services, to accord with individuals’ perceived needs. This, in addition to enablement of access opportunities, through funding and transport, are important in maintaining a personalised approach.

scholarly journals Strategies to Facilitate Successful Community Reintegration Following Acquired Brain Injury (ABI)

2011 ◽  
Vol 6 (1) ◽  
pp. 68-78 ◽  
Author(s):  
Charmaine Mahar ◽  
Kym Fraser
Keyword(s):  
Brain Injury ◽  
Management Strategies ◽  
Acquired Brain Injury ◽  
Executive Dysfunction ◽  
Community Reintegration ◽  
Service Access ◽  
Emotional Lability ◽  
Long Term Outcomes ◽  
Rehabilitation Process

Acquired brain injury (ABI) is considered to be the primary cause of disability in our society. People with ABI face an array of challenges, which include emotional lability, disinhibition, irritability, distractibility, executive dysfunction, memory difficulties, inattention and noticeable changes to personality. Effective rehabilitation and community reintegration is considered essential for those with ABI but impeding the process is society's lack of knowledge and understanding. This is due in some part to the invisible nature of the disability. The focus of this article is to introduce the key areas that influence reintegration, being the rehabilitation process, service access and interventions. It is clear the reintegration process is greatly restricted by the lack of services and programs available to improve the long-term outcomes for people with ABI. To help facilitate successful community reintegration the article developed and lists a significant number of management strategies to assist those who are involved in the lives of people with ABI.

Consumer perspectives of vocational rehabilitation and return to work following acquired brain injury

2021 ◽  
pp. 1-21
Author(s):  
Kerrin Watter ◽  
Areti Kennedy ◽  
Vanette McLennan ◽  
Jessica Vogler ◽  
Sarah Jeffery ◽  
...  
Keyword(s):  
Brain Injury ◽  
Return To Work ◽  
Vocational Rehabilitation ◽  
Acquired Brain Injury ◽  
System Level ◽  
Structured Interviews ◽  
Post Injury ◽  
Vocational Rehabilitation Services ◽  
Workplace Supports ◽  
Vocational Goals

Abstract Introduction: Following acquired brain injury, the goal of return to work is common. While return to work is supported through different rehabilitation models and services, access to vocational rehabilitation varies within and between countries, and global rates of employment post-injury remain low. The literature identifies outcomes from vocational programs and experiences with return to work, yet little is known about individuals’ perceptions and experiences regarding rehabilitation to support their vocational goals and experiences in attempting to return to work. Method: This qualitative study investigated the experiences of community-living adults with acquired brain injury (n = 8; mean age 45 years; mean time post-injury of 5.5 years) regarding their vocational rehabilitation and return to work. Focus groups and semi-structured interviews were conducted, with data analyzed via thematic analysis. Results: Participants identified negative and positive experiences with vocational rehabilitation and return to work. Five overarching themes were identified: addressing vocational rehabilitation in rehabilitation; facilitators of recovery and return to work; the importance and experience of working again; acquired brain injury and identity; and services, systems and policies. Participants also identified five key areas for early vocational rehabilitation services: education; service provision; employer liaison; workplace supports; and peer mentors. Study findings inform current and future practice and service delivery, at a clinical, service and system level.

Patient inclusion in goal setting during early inpatient rehabilitation after acquired brain injury

2011 ◽  
Vol 26 (2) ◽  
pp. 165-173 ◽  
Author(s):  
Catherine Dalton ◽  
Rachel Farrell ◽  
Annette De Souza ◽  
Evelyn Wujanto ◽  
Ann McKenna-Slade ◽  
...  
Keyword(s):  
Brain Injury ◽  
Goal Setting ◽  
Acquired Brain Injury ◽  
Inpatient Rehabilitation

Serving Students With Acquired Brain Injury: Understanding Long-Term Need and Outcomes After the BrainSTEPS Program

2021 ◽  
pp. 1-14
Author(s):  
Jessica Salley Riccardi ◽  
Libby Crook ◽  
Brenda Eagan-Johnson ◽  
Monica Vaccaro ◽  
Angela H. Ciccia
Keyword(s):  
Brain Injury ◽  
Regular Education ◽  
Acquired Brain Injury ◽  
Transition Services ◽  
Student Outcome ◽  
Severe Injuries ◽  
School Based ◽  
Wide Range

Purpose: The purpose of this study was to inform school-based services for children with acquired brain injury (ABI) by describing and analyzing functional student-outcome data from a state-wide, school-based, school re-entry consultation program, BrainSTEPS (Strategies Teaching Educators, Parents, and Students), in Pennsylvania. Method: A nonexperimental, retrospective analysis was conducted with data collected during a pilot follow-up survey for BrainSTEPS. Caregivers reported on 337 students with ABI participating in BrainSTEPS. Results: Most students post-ABI who were participating in BrainSTEPS were enrolled in regular education and reported no ongoing symptoms, as well as no parent perception of need for additional BrainSTEPS consultation during the time period of the follow-up survey. Current receipt of therapy was significantly associated with injury type, χ 2 (1, n = 329) = 16.72, p < .001. A multiple logistic regression was significant ( p < .001) in predicting the need for additional BrainSTEPS consultation. More severe injuries, educational placement postinjury of regular education with a 504 plan (compared to regular education), and current receipt of therapy significantly increased the odds of need for consultation. Conclusions: Due to the wide range of experiences of students in this sample, hospital-to-school transition services, educational supports and services, and long-term follow-up must be individualized for children with ABI. Speech-language pathologists are critical members of the school-based academic team for students with ABI to decrease long-term unmet needs.

The Things that Help, the Things that Get in the Way: Working Together to Improve Outcome Following Acquired Brain Injury

2018 ◽  
Vol 19 (3) ◽  
pp. 258-269 ◽  
Author(s):  
Jacinta M. Douglas
Keyword(s):  
Brain Injury ◽  
Acquired Brain Injury ◽  
Life Changes ◽  
Major Life ◽  
The Family ◽  
Working Together ◽  
The Impact ◽  
The Way

Working in neurological rehabilitation brings with it numerous opportunities to gain an understanding of the factors that contribute to shaping meaningful living and wellbeing for those tackling the major life changes encountered following acquired brain injury (ABI). These opportunities come in many forms: challenging and brave clients, wise and worrying families, questioning and inspiring colleagues, empowering and limiting work environments and rigid and advancing policy and legislative contexts.Our personal and collective understanding ofthe things that helpandthe things that get in the wayof effective rehabilitation continuously emerges from the convergence of the experience and knowledge afforded by these opportunities. The aim of this paper is to considerthe things that helpandthe things that get in the wayas they have been identified by people with ABI, their families and those who work with them and have been further evidenced through research targeted towards improving short, medium and long-term outcomes for those living with the consequences of ABI. Thesethingsas discussed in this paper capture the essential role of the self, the importance of rights and access to rehabilitation, the impact of the family and the contribution of social connection.

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