Simon: brain injury and the family – the inclusion of children, family members and wider systems in the rehabilitation process

2011 ◽  
pp. 272-291
Author(s):  
Siobhan Palmer ◽  
Kate Psaila ◽  
Giles Yeates ◽  
Barbara A. Wilson ◽  
Fergus Gracey ◽  
...  
Keyword(s):  
Brain Injury ◽  
Family Members ◽  
Rehabilitation Process ◽  
The Family

A Family Training Program for Adventitiously Blinded and Low Vision Veterans

1984 ◽  
Vol 78 (10) ◽  
pp. 473-478 ◽  
Author(s):  
Arlene Dumas ◽  
Alan D. Sadowsky
Keyword(s):  
Training Program ◽  
Exploratory Study ◽  
Marked Reduction ◽  
Interpersonal Relations ◽  
Low Vision ◽  
Family Members ◽  
Rehabilitation Center ◽  
Rehabilitation Process ◽  
The Family ◽  
Sight Loss

The family training program at the Western Blind Rehabilitation Center is an integral part of the rehabilitation process for adventitiously blinded and low vision adults. An exploratory study was conducted to assess which aspects of the training were most outstanding and to inquire how the program affected interpersonal relations and attitudes towards sight loss. Results showed a marked reduction in stated problems immediately after the training and over a three-and-a-half-year period of time. The study demonstrates similar benefits for older family members, those receiving shortened programs, and those who have been living with sight loss for many years.

Traumatic Brain Injury and My Grandparents

2012 ◽  
Vol 2 (2) ◽  
pp. 74-76 ◽  
Author(s):  
Jazmin Price ◽  
Amy Price
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Family Members ◽  
The Family

This article explores some of the trials and tribulations the family members of patients with traumatic brain injury go through. In the first part, Jazmin Price recounts her recollections of the accident which changed her grandparents’ lives and the effect which it had on her interactions with them. In the second part of the article, Dr. Amy Price, Jazmin’s grandmother shares her side of the story and shares how despite the challenges a TBI patient faces, “where there is life, there is hope”

scholarly journals Mental Health and Family Functioning in Patients and Their Family Members after Traumatic Brain Injury: A Cross-Sectional Study

2020 ◽  
Vol 10 (10) ◽  
pp. 670
Author(s):  
Mari S. Rasmussen ◽  
Juan Carlos Arango-Lasprilla ◽  
Nada Andelic ◽  
Tonje H. Nordenmark ◽  
Helene L. Soberg
Keyword(s):  
Mental Health ◽  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Family Functioning ◽  
Self Efficacy ◽  
General Health ◽  
Family Members ◽  
Related Factors ◽  
Targeted Interventions ◽  
The Family

Traumatic brain injury (TBI) affects the family as a whole. This study aimed to describe and compare mental health and family functioning in TBI patients and their family members, and to identify individual and family-related factors that were associated with mental health. It was conducted at an urban, specialized, TBI outpatient clinic and included 61 patients with mild to severe TBI and 63 family members. Baseline demographics and injury-related data were collected, and the participants answered standardized, self-reported questionnaires 6–18 months post-injury that assessed mental health; general health; family functioning, communication, and satisfaction; depression and anxiety; self-efficacy; resilience; and condition-specific quality of life. The patients reported significantly worse mental health, depression, resilience, self-efficacy, and general health compared with the family members. Patients and family members had similar perceptions, showing balanced family functioning, high family communication levels, and moderate family satisfaction. Factors significantly associated with mental health in patients and family members were depression, anxiety, and resilience, explaining 56% of the variance (p < 0.001). Family-related factors were not associated with mental health. The disease burden was mainly on the patients; however, the family members also reported emotional distress. Family-targeted interventions across the TBI continuum should be considered.

scholarly journals Family roles, challenges and needs in caring for traumatic brain injury (TBI) family members: a systematic review

2020 ◽  
Vol 34 (6) ◽  
pp. 495-504
Author(s):  
Azlinda Azman ◽  
Nor Amalina Jali ◽  
Paramjit Singh Jamir Singh ◽  
Jafri Malin Abdullah ◽  
Haidi Ibrahim
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Support Groups ◽  
Family Members ◽  
Family Roles ◽  
Family Needs ◽  
Content Type ◽  
Advanced Medical Technology ◽  
The Family ◽  
Role Of Nursing

PurposeAdvanced medical technology has reduced the mortality rate among traumatic brain injury (TBI) patients. This, however, has led to an increasing number of surviving patients with a major disability. As a consequence, these patients need attentive care which becomes an important issue for the society, particularly family members. Thus, this paper aims to review some of the salient roles, challenges and needs of the family caregivers in caring or nursing for their family members diagnosed with TBI.Design/methodology/approachAn inclusive search of the literature was undertaken to identify the family roles, challenges and needs in supporting and nursing TBI patients.FindingsPrevious studies have shown that the family needs to address two important aspects of taking care of TBI patients, which involve emotional and physical affairs. Hence, it is essential for the family members to have adequate information on healing treatment, nursing and care methods, financial support, support groups, managing self-care and, more importantly, emotional and social support.Originality/valueThis paper is not currently under consideration, in press or published elsewhere. In Malaysian culture, nursing disabled patients have always been a family responsibility. The role of nursing the patients has been done domestically and is considered a private affair. In order to execute the role, some put the patient needs as their priority and leave aside their needs and matters.

Long Term Changes in Family Needs After Brain Injury: A Preliminary Review

1997 ◽  
Vol 3 (1) ◽  
pp. 30-39 ◽  
Author(s):  
Peter Stebbins
Keyword(s):  
Brain Injury ◽  
Family Member ◽  
Family Members ◽  
Preliminary Review ◽  
Family Needs ◽  
Rehabilitation Professionals ◽  
Brain Injured ◽  
The Family ◽  
The Brain

When a family member acquires a brain injury the family as a whole is likely to experience severe emotional stress and strain in coping with and adjusting to the injured family member. Longitudinal studies of family adjustment have shown that families find it increasingly difficult to cope with the brain injured family member as the time (years) since injury increases. The increasing difficulty family members experience in coping with their brain injured relative led several researchers to investigate the needs of family members. Research investigating family needs after brain injury is limited to the first couple of years post trauma despite the finding that stress and burden continue to increase as the years progress. This paper reviews family needs research over the last three decades and provides a discussion of family needs and surrounding issues relevant to rehabilitation professionals.

scholarly journals Traumatic brain injury and coping processes – improving outcomes by involving family in the rehabilitation process

2021 ◽  
Vol 27 (03) ◽  
pp. 185-191
Author(s):  
M. Lange-von Szczutowski
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Brain Damage ◽  
Social Research ◽  
Family Members ◽  
Psychosocial Problems ◽  
Rehabilitation Process ◽  
Qualitative Social Research ◽  
Coping Process ◽  
Rehabilitation Potential

Following a traumatic brain injury, many patients struggle to cope with daily activities and experiences, both at the physical and psychological level. In addition to the patient's own coping process, the family's involvement in the heal-ing process is extremely important. Acute care is usually provided by family members and has the potential to either support or hinder rehabilitation and adaptation processes. In addition to new limits of self-care and complaints caused by brain damage, patients face far-reaching psychosocial problems. Despite increasing interest in the management of brain damage and processing of the disease, there is a lack of health-promoting concepts designed to address the impairments and psychosocial relationship difficul-ties suffered by people after traumatic brain injury. In this study, rehabilitation potential was identified by analyzing the results of biographical narrative interviews with men who had suffered a traumatic brain injury in an industrial accident, and their relatives. The selection and qualitative analysis of the rehabilitation process of traumatic brain injury patients reveals the potential for intervention and the need for a holistic integration process between the patient, relatives and physicians, which can be further supported by integrating family members into the treatment process. Keywords: rehabilitation of traumatic brain injury, qualitative social research, reintegration, relatives

scholarly journals Mental Health and Quality of Life Differences Between the Family Members and Paid Caregivers in Brain Injury

2019 ◽  
Vol 22 (3) ◽  
pp. 85-91
Author(s):  
Emre ATA ◽  
Emre ADIGÜZEL ◽  
Sezer KİRAZ ◽  
Murat KÖSEM ◽  
Evren YAŞAR
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Brain Injury ◽  
Family Members ◽  
The Family ◽  
Paid Caregivers

Sibling Behaviours and Relationships Following Mild to Moderate Childhood Traumatic Brain Injury: Preliminary Findings

2003 ◽  
Vol 4 (2) ◽  
pp. 91-105 ◽  
Author(s):  
Taryn Fay ◽  
Suzanne Barker-Collo
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Sibling Relationship ◽  
Rehabilitation Process ◽  
Orthopaedic Injury ◽  
The Family ◽  
Parental Ratings ◽  
Well Siblings ◽  
The Impact ◽  
Recent Attention

AbstractRecent attention has begun to focus on the impact of childhood traumatic brain injury (TBI) on the family. This study examined the impact of mild to moderate childhood TBI on parental ratings of well and injured siblings' behaviours in relation to well siblings' ratings of the impact of injury and the sibling relationship. Parents of 10 children with TBI and 10 children with orthopaedic injury rated both injured and well siblings' behaviours using the Child Behaviour Checklist (CBCL). Well siblings completed the Sibling Impact Questionnaire (SIQ) and Sibling Relationship Questionnaire (SRQ). Results indicated that children with TBI exhibited significantly more externalising and total behaviours than children with orthopaedic injury, while well siblings of children with TBI exhibited more internalising behaviours than siblings of children with orthopaedic injury. Well siblings' ratings of the impact of the injury and sibling relationship did not differ significantly across groups. The behaviours of well siblings and their ratings of injury impact and sibling relationship are examined in relation to the behaviours of the injured siblings for the two groups. The implications of the findings are examined in terms of the need to involve siblings in the rehabilitation process.

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