scholarly journals DESIGN STUDENTS’ TAKE ON CO-DESIGN IN HEALTH: REFLECTIONS FROM LEARNING AND EDUCATION PERSPECTIVES

2021 ◽  
Vol 1 ◽  
pp. 1083-1092
Author(s):  
Marikken Høiseth ◽  
Ann Kristin Forshaug
Keyword(s):  
Cystic Fibrosis ◽  
Chronic Illness ◽  
Everyday Life ◽  
Research Council ◽  
Healthcare Services ◽  
Project Work ◽  
Academic Environment ◽  
Design Students ◽  
Norwegian Research Council ◽  
Initial Research

AbstractUsing three projects as a showcase, the aim of this article is to report on design students’ take on co-design in health, in terms of both outcomes and processes. It builds on project work conducted in a master’s course called ‘Design for Society’, reserved for 4th-year industrial design students in the Department of Design at the Norwegian University of Science and Technology. The students were encouraged to explore how healthcare services could facilitate active, informed and involved patients. The overall theme was provided by a cluster funded by the Norwegian Research Council addressing co-creative service design and innovation in health. Based on initial research, the students, organised in groups, identified a chronic illness that has a lifelong impact on everyday life, such as cystic fibrosis, fibromyalgia, and Alzheimer’s disease. We give an account of three selected projects by showcasing developed concepts, central methods and tools, and we share key reflections from the students and the course educators on their experiences of working with co-design in health in an academic environment.

scholarly journals ENGINEERING STUDENT ATTAINMENT AND ENGAGEMENT THROUGHOUT THE DESIGN PROCESS

2021 ◽  
Vol 1 ◽  
pp. 1373-1382
Author(s):  
Avril Thomson ◽  
Hilary Grierson
Keyword(s):  
Design Process ◽  
Engineering Students ◽  
Project Work ◽  
Design Engineering ◽  
Engineering Student ◽  
Online Questionnaire ◽  
Main Research ◽  
Research Questions ◽  
Design Students ◽  
Major Project

AbstractThe paper reports on a study that aims to gain an understanding of how senior engineering design students engage and attain throughout the various stages of the design process during a major design project. Following a literature review it sets out to answer 3 main research questionsQ1. Do students engage more with certain stages of the design process during major project work?;Q2. Do students attain better during certain phases of the design process during major project ?Q3. Is there a difference in this attainment between year groups of the same degree programme ?The methodology adopted employs an analysis of marks and an online questionnaire to collect data. Patterns and trends in how senior BEng and MEng Product Design Engineering students engage and attain within the design process are presented, identified and discussed and in turn used to inform reflection on the research questions set.

THE PEDIATRICIAN AND THE HANDLING OF TERMINAL ILLNESS

PEDIATRICS ◽  
1963 ◽  
Vol 32 (4) ◽  
pp. 477-479
Author(s):  
Reginald S. Lourie
Keyword(s):  
Cystic Fibrosis ◽  
Chronic Illness ◽  
Patient Population ◽  
Terminal Illness ◽  
Medical Training ◽  
Interpersonal Problems

There is little in our medical training which prepares us as pediatricians to deal with the problems attending the death of our patients. Our emphasis has rightly been on the maintenance of life and growth. While over-all pediatric mortality decreases, there is an increasing segment of the patient population with chronic illness such as leukemia, cancer, and cystic fibrosis that can be expected to be terminal. Inevitably, the handling of the terminal phases becomes the responsibility of the physician who is most knowledgeable about the disease, usually the pediatrician, who has had no preparation for dealing with the delicate interpersonal problems and processes involved.

scholarly journals Managing Cystic Fibrosis in Polish Healthcare

2020 ◽  
Vol 17 (20) ◽  
pp. 7630
Author(s):  
Marta Rachel ◽  
Stanisław Topolewicz ◽  
Andrzej Śliwczyński ◽  
Sabina Galiniak
Keyword(s):  
Cystic Fibrosis ◽  
Life Expectancy ◽  
Health Resources ◽  
Quality Of Healthcare ◽  
Healthcare Services ◽  
Public Healthcare ◽  
Average Life ◽  
Average Life Expectancy ◽  
Frequency Of Use ◽  
Paediatric Age

The quality and length of life of patients with cystic fibrosis (CF) are determined by a number of factors including the quality of healthcare received by patients, as well as access to drug programs dedicated to this particular disease. The purpose of this paper is to present an overview of changes in the average life expectancy and mortality rate of the CF population in Poland between 2000 and 2018. Furthermore, we would like to evaluate access to healthcare services, including the drug program, guaranteed by public healthcare system, and funded by National Health Fund (NHF). The average life expectancy of patients with CF increased in the period in question from ca. 14.5 ± 7.6–24.5 ± 8.9 years (mean ± SD, p = 0.0001). We have observed a drop in the number of deaths in paediatric age during that period. Despite the increase in life expectancy, the use of health resources in patients with CF, especially the drug program, is dramatically low. Considering the fact that in Poland there was no active countrywide CF registry, now it is possible to estimate the frequency of use of CF healthcare services in various provinces exclusively on the basis of database maintained by the Polish NHF.

scholarly journals Creating Space for Youth Voice: Implications of Youth Disclosure Experiences for Youth-Centered Research

2020 ◽  
Vol 19 ◽  
pp. 160940692095897
Author(s):  
Roberta Lynn Woodgate ◽  
Pauline Tennent ◽  
Sarah Barriage
Keyword(s):  
Chronic Illness ◽  
Everyday Life ◽  
Research Program ◽  
Research Process ◽  
Youth Voice ◽  
Research Context ◽  
Funding Agencies

This paper examines youth’s disclosure experiences within the context of chronic illness, drawing on examples from IN•GAUGE, an on-going research program led by Dr. Roberta L. Woodgate. Youth’s descriptions of their disclosure experiences provide valuable insights into the ways in which they use their voice in everyday life. This examination of the disclosure experiences of youth offers a lens through which the concept of youth voice in the research process can be understood and youth’s agency foregrounded. We present implications for researchers, ethics boards, funding agencies, and others who engage in youth-centered research, and offer alternative terminology to use in characterizing the elicitation and dissemination of youth voice in the research process. We contend that conceptualizing such efforts as giving youth voice has the potential to discredit the significant agency and autonomy that youth demonstrate in sharing their stories, perspectives, and opinions within the research context. We advocate for the adoption of the phrase of providing or creating space for youth voice, as one alternative to the phrase giving youth voice

Rehabilitation From Addiction and Chronic Illnesses: A Comparative Analysis of the Narratives of Hungarian Patients

2020 ◽  
Vol 34 (1) ◽  
pp. 65-80
Author(s):  
Asztrik Kovács ◽  
Virág Mezőfi ◽  
V. Anna Gyarmathy ◽  
József Rácz
Keyword(s):  
Chronic Illness ◽  
Recovery Process ◽  
Active Role ◽  
Healthcare Services ◽  
Chronic Illnesses ◽  
Psychological Services ◽  
Structured Interviews ◽  
Rehabilitation Process ◽  
Psychological Phenomena ◽  
Patient Groups

BackgroundIn Hungary the psychological care provided during the rehabilitation of patients with chronic illnesses is insufficient. Patients with addiction, on the other hand, appear to make more use of psychological services. Narratives of patients recovering from addiction and patients with various chronic illnesses were examined in order to gain a better understanding of psychological phenomena during rehabilitation.MethodsSemi-structured interviews were carried out. Narrative and thematic analysis was used in order to determine the structure and characteristics of patients' narratives.ResultsThe narratives of patients recovering from addiction were found to be more structured and uniform; they identified with their illness and played an active role in their recovery. Patients with a chronic illness mainly recounted passive events and physical difficulties. Stigmatization was mentioned by both groups.Implications for practiceThe level of stigmatization experienced by patients with a chronic illness may be one of the reasons why they use healthcare services more frequently than patients with an addiction. The authors believe that teaching patients to provide good narratives about suffering from and recovering from chronic illnesses may aid them in the rehabilitation process. An adaptive mixture of different illnesses and addiction narratives might be beneficial in the recovery process of various patient groups.

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