Views of family carers to the future accommodation and support needs of their relatives with intellectual disabilities

2006 ◽  
Vol 23 (4) ◽  
pp. 140-144 ◽  
Author(s):  
Roy McConkey ◽  
Jayne McConaghie ◽  
Owen Barr ◽  
Paul Roberts
Keyword(s):  
Intellectual Disabilities ◽  
Living Arrangements ◽  
Service Planning ◽  
Support Needs ◽  
Family Carers ◽  
Individual Interviews ◽  
Supported Accommodation ◽  
The Family ◽  
People With Intellectual Disabilities

AbstractObjectives: The demand for places in supported accommodation is likely to rise due to the increasing longevity of people with intellectual disabilities and as their parents become unavailable or unable to care for them. However few attempts have been made to ascertain carer's views on alternative accommodation.Method: Four studies were undertaken in Northern Ireland to ascertain carer's views using three different methods. In all, 387 carers participated with the response being greatest for individual interviews conducted in the family home and least for self-completed questionnaires and attendance at group meetings.Results: The majority of carers envisaged the person continuing to be cared for within the family. The most commonly chosen out-of-home provision was in residential or nursing homes, living with support in a house of their own and in homes for small groups of people. Few carers chose living with another family. However only small numbers of carers envisaged alternative provision being needed in the next two years and few had made any plans for alternative living arrangements.Conclusions: The implications for service planning are noted, primarily the need for individual reviews of future needs through person-centred planning; improved information to carers about various residential options and their differential benefits, along with more services aimed at improving the quality of life of people living with family carers. These need to be underpinned by a commitment of statutory agencies to partnership working with family carers. The implications for mental health services are noted.

Moving From Family Care to Residential and Supported Accommodation: National, Longitudinal Study of People With Intellectual Disabilities

2011 ◽  
Vol 116 (4) ◽  
pp. 305-314 ◽  
Author(s):  
Roy McConkey ◽  
Fionnola Kelly ◽  
Hasheem Mannan ◽  
Sarah Craig
Keyword(s):  
Longitudinal Study ◽  
Intellectual Disabilities ◽  
Family Care ◽  
Supported Accommodation ◽  
National Longitudinal Study ◽  
The Family ◽  
People With Intellectual Disabilities

Abstract A cohort of nearly 11,000 persons was traced over 8 years to determine those who had moved from family care and those who had remained. The majority (85%) continued to live with families, and, for two thirds (67%), no future move was deemed necessary. The 2 main predictors of moving were as follows: A need had been previously recorded and the family had used out-of-home respite services during the 8 years. However, just one quarter of those identified as needing to move had done so in the 8 years. Conversely, no prior indication of need had been recorded for two thirds of people who had moved in this period. The complexities of assessing need and equitably meeting demands are discussed.

Reducing the barriers to relationships and sexuality education for persons with intellectual disabilities

2012 ◽  
Vol 16 (1) ◽  
pp. 29-43 ◽  
Author(s):  
Attracta Lafferty ◽  
Roy McConkey ◽  
Audrey Simpson
Keyword(s):  
Intellectual Disabilities ◽  
Sexuality Education ◽  
Professional Staff ◽  
Family Carers ◽  
Individual Interviews ◽  
Stakeholder Groups ◽  
Management Procedures ◽  
People With Intellectual Disabilities ◽  
The Impact ◽  
Vulnerable Persons

Opportunities for persons with intellectual disabilities to participate in relationships and sexuality education (RSE) are often constrained by the attitudes and perceptions of family carers, frontline support workers and professional staff. In order to understand how the barriers might be reduced, a study was undertaken in Northern Ireland with samples drawn from these three stakeholder groups, involving nearly 100 persons and using group and individual interviews. Although there was agreement on the need for RSE, four barriers were commonly reported: the need to protect vulnerable persons; the lack of training; the scarcity of educational resources; and cultural prohibitions. The impact of these barriers could be lessened through partnership working across these groups involving the provision of training and information about RSE, the development of risk management procedures and the empowerment of people with intellectual disabilities.

Supported Accommodation for People With Intellectual Disabilities and Quality of Life: An Overview

2010 ◽  
Vol 7 (2) ◽  
pp. 137-142 ◽  
Author(s):  
Patricia Noonan Walsh ◽  
Eric Emerson ◽  
Carolyne Lobb ◽  
Chris Hatton ◽  
Valerie Bradley ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intellectual Disabilities ◽  
Supported Accommodation ◽  
People With Intellectual Disabilities

scholarly journals Personality and Dementia: an Approach to Differential Profile of the Caregiver

2011 ◽  
Vol 1 (3) ◽  
pp. 85-94
Author(s):  
Elena de Andrés-Jiménez ◽  
Rosa Mª Limiñana-Gras ◽  
Encarna Fernández-Ros
Keyword(s):  
Relevant Information ◽  
Personality Profile ◽  
Family Carers ◽  
Psychological Variables ◽  
People With Dementia ◽  
The Family ◽  
Study Population ◽  
The One ◽  
The Impact

The aim of this study is to determine the existence of a characteristic personality profile of family carers of people with dementia. The correct knowledge and use of psychological variables which affect the carer, helps to promote appropriate actions to mitigate the impact of care and improve the carer’s quality of life and likewise the one of the person cared for. The study population consists of 69 family carers of people with dementia, members of various associations and care centers. The results allow us to identify a characteristic personality profile for these carers and it reveals a specific psychological working in this sample, although we cannot directly relate it with the tasks of caring for people with this disease, this profile gives us very relevant information to pay more attention to the needs of this group. Moreover, the analysis of personality styles depends on the sex of the family carer, showing, once again, that the woman is in a situation of most vulnerability.

Counselling Support for People with Intellectual Disabilities: The Use of Narrative Therapy

2012 ◽  
Vol 18 (1) ◽  
pp. 37-49 ◽  
Author(s):  
Stuart Wark
Keyword(s):  
Intellectual Disabilities ◽  
Narrative Therapy ◽  
Goal Attainment ◽  
Social Constructionist ◽  
Grief And Loss ◽  
Descriptive Case Study ◽  
Severe Intellectual Disability ◽  
People With Intellectual Disabilities

This article uses a descriptive case study design to examine the potential of narrative therapy as a direct intervention for adults with moderate-to-severe intellectual disabilities, autism and/or severe communication limitations. Archival clinical data on four individuals who received a form of social constructionist narrative therapy are examined for goal attainment. The data were analysed qualitatively with specific input from individuals, their families and carers. Findings indicate improvements in quality of life through reductions in situational and environmental anxieties, and in coping with grief and loss. The results suggest that narrative therapy techniques can be beneficial in assisting individuals with severe intellectual disability to achieve meaningful and persistent improvements in their life.

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