PSYCHOLOGY SELECTION Journal of Autism and Developmental Disorders (1999) C. Kasari, S. F. N. Freeman, N. Bauminger & M. C. Alkin. Parental perspectives on inclusion: Effects of autism and Down syndrome. Vol. 29, No. 4, pp. 297–305.

2001 ◽  
Vol 6 (1) ◽  
pp. 37-43
Author(s):  
Sophia Mavropoulou
Keyword(s):  
Down Syndrome ◽  
Developmental Disorders ◽  
Parental Perspectives

scholarly journals Covid-19 et handicap mental/Autisme et autres maladies rares

2020 ◽  
Author(s):  
Aimé LUMAKA ◽  
DDD-Africa project
Keyword(s):  
Down Syndrome ◽  
Nous Avons ◽  
Developmental Disorders ◽  
Video Recording ◽  
Social Distancing ◽  
Life Styles ◽  
The World ◽  
French Speaking ◽  
Sub Saharan ◽  
Soit Encore

The Covid-19 is challenging our health systems and showing our limits. Clearly, the world was not prepared to this. Our society and life style need to be adjusted to protect ourselves from this pandemic. The new concept of social distancing has been introduced into our vocabulary and life styles. Considering that implementing social distancing into the Sub-Saharan setting proves to be difficult to educated people, it is understandable that this will be even more challenging for people with developmental disorders, mental retardation, autism or other rare disease. Based on the "Q&A on COVID-19 and Down Syndrome" (https://www.ndss.org/wp-content/uploads/2020/03/2020-COVID19-DS-QA-Abbreviated-03-27-FINAL.pdf), we have hold a discussion session with parents/association leaders from the sector of Autism/mental handicap in DRC and other experts from other French speaking parts of the world. Here we have made available the slides of this meeting. Video recording is available in the supplemental material. Le Covid-19 défie nos systèmes de santé et montre nos limites. De toute évidence, le monde n'était pas préparé à cela. Notre société et notre style de vie doivent être ajustés pour nous protéger de cette pandémie. Le nouveau concept de distanciation sociale a été introduit dans notre vocabulaire et nos styles de vie. Étant donné que la mise en œuvre de la distanciation sociale dans le contexte subsaharien s'avère difficile pour les personnes éduquées, il est compréhensible que cela soit encore plus difficile pour les personnes souffrant de troubles du développement, de retard mental, d'autisme ou d'autres maladies rares. Basé sur le "Q&A on COVID-19 and Down Syndrome" (https://www.ndss.org/wp-content/uploads/2020/03/2020-COVID19-DS-QA-Abbreviated-03-27-FINAL. pdf), nous avons organisé une session de discussion avec des parents / responsables d'associations du secteur de l'autisme / handicap mental en RDC et d'autres experts d'autres régions francophones du monde. Ici, nous avons mis à disposition les diapositives de cette réunion. L'enregistrement vidéo est disponible dans les materiels supplémentaires.

scholarly journals REM sleep in naps differentially relates to memory consolidation in typical preschoolers and children with Down syndrome

2018 ◽  
Vol 115 (46) ◽  
pp. 11844-11849 ◽  
Author(s):  
Goffredina Spanò ◽  
Rebecca L. Gómez ◽  
Bianca I. Demara ◽  
Mary Alt ◽  
Stephen L. Cowen ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Rem Sleep ◽  
Developmental Disorders ◽  
Memory Performance ◽  
Physiological State ◽  
Memory Loss ◽  
Memory Retention ◽  
Immediate Memory ◽  
Children With Down Syndrome ◽  
Dependent Learning

Sleep is recognized as a physiological state associated with learning, with studies showing that knowledge acquisition improves with naps. Little work has examined sleep-dependent learning in people with developmental disorders, for whom sleep quality is often impaired. We examined the effect of natural, in-home naps on word learning in typical young children and children with Down syndrome (DS). Despite similar immediate memory retention, naps benefitted memory performance in typical children but hindered performance in children with DS, who retained less when tested after a nap, but were more accurate after a wake interval. These effects of napping persisted 24 h later in both groups, even after an intervening overnight period of sleep. During naps in typical children, memory retention for object-label associations correlated positively with percent of time in rapid eye movement (REM) sleep. However, in children with DS, a population with reduced REM, learning was impaired, but only after the nap. This finding shows that a nap can increase memory loss in a subpopulation, highlighting that naps are not universally beneficial. Further, in healthy preschooler’s naps, processes in REM sleep may benefit learning.

scholarly journals Parental Perspectives on Pharmacological Clinical Trials: a Qualitative Study in Down Syndrome and Fragile X Syndrome

2017 ◽  
Vol 26 (6) ◽  
pp. 1333-1340 ◽  
Author(s):  
Victoria Reines ◽  
Krista Charen ◽  
Tracie Rosser ◽  
Arri Eisen ◽  
Stephanie L. Sherman ◽  
...  
Keyword(s):  
Clinical Trials ◽  
Down Syndrome ◽  
Qualitative Study ◽  
Fragile X Syndrome ◽  
Fragile X ◽  
Parental Perspectives

Interactions of fathers and their children with autism1

2008 ◽  
Vol 39 (1) ◽  
pp. 35-41 ◽  
Author(s):  
Ewa Pisula
Keyword(s):  
Down Syndrome ◽  
Developmental Disorders ◽  
Close Contact ◽  
Children With Autism ◽  
Free Play ◽  
The Other ◽  
Physical Contact ◽  
Children With Down Syndrome ◽  
Child Interaction ◽  
Play Session

Interactions of fathers and their children with autism1 The aim of the present study was to compare the activity of fathers and their children with autism with those of children with Down syndrome, and normally developing children during the father-child interaction. Participants were 14 children with autism and their fathers, 15 children with Down syndrome and their fathers, and 16 normally developing children and their fathers. The age of subjects was between 3.0 and 6.0 years old. The study consisted of one 15-minute free-play session in the father-child diad, taking place in the experiment room. Differences between the groups of fathers were found in terms of three variables under analysis: frequency of looking at the child, physical contact with the child and suggesting play. Children with autism brought objects to their fathers or pointed out objects and directed their fathers' attention by vocalising less frequently than children with Down syndrome and normally developing children. Moreover, children with autism exhibited the fewest vocalisations combined with looking at the father and exhibited many more behaviours involving running and moving about the room than normally developing children. Self-stimulating behaviours were the most frequent in children with autism, with no differences in that respect found between children with Down syndrome and normally developing children. The analysis of fathers' behaviour demonstrates that fathers of children with developmental disorders focus on observing their children and attempt to keep close contact with them to a larger extent than fathers of normally developing children. The pattern of differences in the activity of fathers of children with autism and children with Down syndrome does not paint a clear picture. In general, fathers from both groups actively sought to maintain contact with their children. Differences in the activity during play between children with autism and the other subjects in the study are consistent with the clinical features of autism.

scholarly journals Foot Structure in Boys with Down Syndrome

2017 ◽  
Vol 2017 ◽  
pp. 1-6 ◽  
Author(s):  
Ewa Puszczałowska-Lizis ◽  
Krzysztof Nowak ◽  
Jarosław Omorczyk ◽  
Tadeusz Ambroży ◽  
Przemysław Bujas ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Developmental Disorders ◽  
Control Group ◽  
Hallux Valgus Angle ◽  
Age And Gender ◽  
Locomotor System ◽  
Developmental Abnormalities ◽  
Foot Structure ◽  
Valgus Angle ◽  
And Gender

Introduction and Aim. Down syndrome (DS) is associated with numerous developmental abnormalities, some of which cause dysfunctions of the posture and the locomotor system. The analysis of selected features of the foot structure in boys with DS versus their peers without developmental disorders is done.Materials and Methods. The podoscopic examination was performed on 30 boys with DS aged 14-15 years. A control group consisted of 30 age- and gender-matched peers without DS.Results. The feet of boys with DS are flatter compared to their healthy peers. The hallux valgus angle is not the most important feature differentiating the shape of the foot in the boys with DS and their healthy peers. In terms of the V toe setting, healthy boys had poorer results.Conclusions. Specialized therapeutic treatment in individuals with DS should involve exercises to increase the muscle strength around the foot joints, enhancing the stabilization in the joints and proprioception. Introducing orthotics and proper footwear is also important. It is also necessary to monitor the state of the foot in order to modify undertaken therapies.

scholarly journals BURNOUT OF PARENTS OF CHILDREN WITH DISABILITIES

Probacja ◽  
2019 ◽  
Vol 2 ◽  
pp. 15-36
Author(s):  
Mieczysław Dudek
Keyword(s):  
Down Syndrome ◽  
Cerebral Palsy ◽  
Mental Retardation ◽  
Asperger Syndrome ◽  
Developmental Disorders ◽  
Developmental Disorder ◽  
Children With Disabilities ◽  
Maslach Burnout Inventory ◽  
Burnout Syndrome ◽  
The Subject

This study is the second in a series of articles dealing with the situation of parents of children with disabilities or developmental disorders. The subject of the research are the symptoms of the burnout syndrome in the parents of children with disabilities as examined using the Maslach Burnout Inventory (MBI) questionnaire. With respect to the factors diff erentiating the study’s results, gender, place of residence and the type of disability were taken into account. A total of 315 people participated in the study, 246 mothers and 69 fathers. Six groups of parents were distinguished, based on the type of disability or developmental disorder of their children, i.e.: autism, Asperger syndrome, cerebral palsy, Down syndrome, ADHD and mental retardation.

Adolescents' Perception of Epilepsy Compared With Other Chronic Diseases: “Through a Teenager's Eyes”

2006 ◽  
Vol 21 (3) ◽  
pp. 214-222 ◽  
Author(s):  
Christina Cheung ◽  
Elaine Wirrell
Keyword(s):  
Down Syndrome ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Social Impact ◽  
Tertiary Care ◽  
Chronic Illnesses ◽  
Cognitively Normal ◽  
Immunodeficiency Virus ◽  
Parental Perspectives ◽  
Physical Impact

Adolescent perception of physical and social impact of chronic illness was assessed to determine (1) if there is greater prejudice toward epilepsy than other chronic disease and (2) if adolescents with chronic disease have less prejudice toward similarly affected peers with all types of chronic disease or just their specific chronic disease. Cognitively normal teens aged 13 to 18 years without chronic disease ( n = 41) and with epilepsy ( n = 32), asthma ( n = 38), diabetes ( n = 21), and migraine ( n = 17) were interviewed in the outpatient clinics of a tertiary care pediatric center regarding their perceptions of the physical and social impact of eight chronic diseases (epilepsy, asthma, diabetes, Down syndrome, arthritis, migraine, leukemia, human immunodeficiency virus [HIV] infection). Epilepsy was perceived to have a more adverse physical impact than all chronic illnesses except Down syndrome. The perception was that it more frequently caused mental handicap, injured the afflicted individual and bystanders, and led to death. Epilepsy was also perceived to have a more negative social impact, particularly on behavior, honesty, popularity, adeptness at sports, and fun. Significantly more adolescents expressed reluctance to befriend peers with epilepsy, both from their own and their perceived parental perspectives. Having a chronic disease did not generally alter the adolescents' perceptions of peers with chronic disease. However, cases with epilepsy ranked this disease to have less social impact than teens with other chronic diseases. In conclusion, adolescents consider epilepsy to have a greater physical and social impact than most chronic diseases. Educational efforts should focus on the “normality” of most persons with epilepsy and emphasize the low risk of injury when proper first aid is followed. ( J Child Neurol 2006;21:214—222; DOI 10.2310/7010.2006.00053).

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