scholarly journals Experiences of stigma by association among family members of people with mental illness.

2013 ◽  
Vol 58 (1) ◽  
pp. 73-80 ◽  
Author(s):  
Remko L. M. van der Sanden ◽  
Arjan E. R. Bos ◽  
Sarah E. Stutterheim ◽  
John B. Pryor ◽  
Gerjo Kok
2014 ◽  
Vol 202 (10) ◽  
pp. 710-717 ◽  
Author(s):  
Remko L.M. van der Sanden ◽  
Sarah E. Stutterheim ◽  
John B. Pryor ◽  
Gerjo Kok ◽  
Arjan E.R. Bos

2016 ◽  
Vol 51 (9) ◽  
pp. 1233-1245 ◽  
Author(s):  
Remko L. M. van der Sanden ◽  
John B. Pryor ◽  
Sarah E. Stutterheim ◽  
Gerjo Kok ◽  
Arjan E. R. Bos

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Mayssa Rekhis ◽  
Sami Ouanes ◽  
Abir Ben Hamouda ◽  
Rym Rafrafi

Purpose This study aims to assess the awareness about the rights of people with mental illness in the main psychiatric hospital in Tunisia among the service users, the family members and the staff. Design/methodology/approach The Convention of Rights of People with Disabilities mandates that State Parties initiate and maintain campaigns and human rights training to promote understanding of the rights of people with mental illnesses, considered as a main factor for their fulfillment. Service users, family members and staff evaluated, through a survey, the importance of ten rights for persons with mental illness, stated in the convention. Findings Disparities were found in the perception of the different rights by and between the three groups. The highest levels of awareness were associated with the freedom from torture or degrading treatment and the right to live with dignity and respect, whereas the lower importance were assigned to the right to participation in recovery plans, to give consent and to exercise legal capacity. Originality/value The lack of awareness and the poor perception of rights of people with mental illness is one of the barriers to their achievement. More training and awareness raising is necessary.


2021 ◽  
pp. 136346152110150
Author(s):  
Laura Asher ◽  
Ribka Birhanu ◽  
Yonas Baheretibeb ◽  
Abebaw Fekadu

In Ethiopia, traditional and spiritual treatments, such as holy water, are used by people with mental disorders instead of, or alongside, psychiatric services. Collaborations between traditional and psychiatric providers may increase access to evidence-based treatments and address human rights abuses. This study aimed to explore the perspectives of holy water attendants on a novel collaboration between holy water and psychiatric care, at St Mary’s Clinic, Entoto, Ethiopia, and to characterize the users of this service. Semi-structured interviews were conducted with 14 holy water attendants, who run group houses for holy water residents and are paid by family members. A thematic analysis was conducted. Socio-demographic and clinical data were extracted from the records of all service users who had attended the clinic. A total of 174 individuals have attended the clinic in the three years since it opened. The majority were diagnosed with schizophrenia. Holy water attendants provide a partial gatekeeping role to psychiatric care, selecting which of their clients they think will benefit and, for these individuals, facilitating attendance to the clinic and antipsychotic medication adherence. Psychiatric care was felt to be compatible with holy water by some, but not all, attendants. However, family members often had the “final say” in individuals attending the clinic, in some cases putting up strong resistance to using psychiatric care. A novel collaboration is acceptable to some holy water attendants and may increase access to psychiatric care amongst people with mental illness living at a holy water site in Ethiopia.


Author(s):  
Muhammad Arsyad Subu ◽  
Del Fatma Wati ◽  
Nabeel Al-Yateem ◽  
Netrida Netrida ◽  
Vetty Priscilla ◽  
...  

2017 ◽  
Vol 4 (1) ◽  
pp. 36-42 ◽  
Author(s):  
A.R. Bhandari ◽  
K. Marahatta ◽  
M. Rana ◽  
S.P. Ojha ◽  
M.P. Regmi

Background: Presence of a person with mental disorder in family is often associated with some objective and subjective burden on family members, especially those who have a caregiving role. The present study aimed to assess the levels of caregiving burden among family members of people with mental illness.Method: This is a descriptive cross-sectional study in a sample of 56 family caregivers of people with mental illness. Sample was selected using purposive sampling method and their caregiving experience was assessed by using Burden Assessment Schedule.Result: Among the 56 caregivers, 48.2 % had moderate level of burden and 32.1% had severe level of burden. Highly significant difference was observed in the distribution of burden according to level of burden but no significant gender difference was found in the distribution of burden in total and in different domains of BAS. Highly significant burden was found among married and spouse caregivers.Conclusion: As moderate to severe level of caregiving burden was reported by the family caregivers, it is recommended that family intervention should focus on strengthening coping behaviors and social support system to manage caregiving stress.


2019 ◽  
Vol 35 (3) ◽  
pp. 371-377 ◽  
Author(s):  
Rubén Trigueros ◽  
José Manuel Aguilar-Parra ◽  
Adolfo Javier Cangas ◽  
Luis Ortiz ◽  
Noelia Navarro

El estigma, y en particular el autoestigma en personas con trastorno mental grave (TMG), constituyen uno de los principales problemas que a los que se enfrentan los profesionales de la salud mental. Sin embargo, este problema no se encuentra únicamente en las personas que padecen esta enfermedad mental, sino que sus consecuencias afectan de igual manera a familiares allegados. Por ello, resulta necesario adaptar y validar al contexto español la Escala de Autoestigma en Familiares de Personas con Enfermedad Mental (AFPEM). En el estudio han participado 304 adultos (M=44.57; DT=15.29). Para analizar las propiedades psicométricas de la escala se han realizado diversos análisis. Los resultados del análisis factorial confirmatorio han ofrecido apoyo a la estructura del cuestionario tanto del 30 ítems, el de 10 ítems como el modelo de orden superior. La estructura de los modelos se mostró invariante respecto al género. Los valores de alpha de Cronbach fueron superiores a .70 en las diferentes subescalas. Los resultados de este estudio han proporcionado evidencias de validez y fiabilidad de la AFPEM, por lo que diversos profesionales de la salud mental dispondrán de un instrumento con el que evaluar el grado de autoestigma que tienen los familiares de personas con TMG. Stigma, and in particular self-stigma in people with severe mental disorder (GIST), is one of the main problems faced by mental health professionals. However, this problem is not only found in people who suffer from this mental illness, but its consequences affect family members in the same way. For this reason, it is necessary to adapt and validate in the Spanish context the Scale of Self-Stigma in Relatives of People with Mental Illness (AFPEM). The study involved 304 adults (M = 44.57, SD = 15.29). To analyze the psychometric properties of the scale, several analyzes have been carried out. The results of the confirmatory factorial analysis (CFA) have offered support to the questionnaire structure of 30 items, 10 items and the higher order model. The structure of the models was invariant respect to gender. Cronbach's alpha values ​​were greater than .70 in the different subscales. The results of this study have provided evidence of validity and reliability of the AFPEM, so that various mental health professionals will have an instrument with which assesses the degree of self-stigma that family members of people with SMI have.


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