scholarly journals What influences the use of professional home care for individuals with spinal cord injury? A cross-sectional study on family caregivers

Spinal Cord ◽  
2019 ◽  
Vol 57 (11) ◽  
pp. 924-932
Author(s):  
Jianan Huang ◽  
Diana Pacheco Barzallo ◽  
Sara Rubinelli ◽  
Nadja Münzel ◽  
Mirjam Brach ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Home Care ◽  
Family Caregivers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Cord Injury ◽  
Professional Home ◽  
Professional Home Care

Who are the beneficiaries and what are the reasons for non-utilization of respite care? A cross-sectional study on family caregivers

2020 ◽  
Author(s):  
Jianan Huang ◽  
Nadja Münzel ◽  
Anke Scheel-Sailer ◽  
Armin Gemperli
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Home Care ◽  
Family Caregivers ◽  
Respite Care ◽  
Cross Sectional ◽  
Care Services ◽  
Cord Injury ◽  
Professional Home ◽  
Professional Home Care

Abstract BackgroundFamily caregivers assume substantial caregiving responsibilities for persons with chronic conditions, which leads to negative impact on their lives. Respite care is provided as a temporary relief for them. The design of appropriate respite care programs requires the identification of beneficiary subgroups for different types of services. The objectives of the study were to quantify the uptake of respite care services by family caregivers of persons with spinal cord injury, and to identify the main beneficiaries of the respective offers and the reasons for non-use.MethodsA cross-sectional survey of family caregivers of persons with spinal cord injury was conducted nationwide in Switzerland. The use of 11 different respite care services during the last 12 months was investigated, along with caregivers’ reasons for not using any respite service. Classification trees were used to characterize the beneficiaries and reasons for not using respite services.ResultsOne-third of family caregivers used at least one type of respite care service during the last 12 months. Utilization of respite care was found to be greater among those who employed professional home care (57% vs 24% among those without professional home care). There were marked cantonal differences in the utilization of respite care. The primary reason for not using respite services was “no demand” (80% among non-users of respite services), mainly among caregivers who were less emotionally affected by their caregiving tasks. Conclusions Utilization of respite care services primarily depends on living arrangements and place of residency and less on the functional status of the care recipient. Programs should thus be tailored to the cultural context of their potential users. This is best achieved through coordination with local health care professionals who can identify the needs, provide information, initiate referrals, and integrate the care into a larger support plan.

scholarly journals Who are the beneficiaries and what are the reasons for non-utilization of care respite and support services? A cross-sectional study on family caregivers

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Jianan Huang ◽  
Nadja Münzel ◽  
Anke Scheel-Sailer ◽  
Armin Gemperli
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Home Care ◽  
Family Caregivers ◽  
Support Services ◽  
Respite Care ◽  
Cross Sectional ◽  
Cord Injury ◽  
Professional Home ◽  
Professional Home Care

Abstract Background Family caregivers assume substantial caregiving responsibilities for persons with chronic conditions, such as individuals with spinal cord injury, which leads to negative impacts on their lives. Respite care and other services are provided as a temporary relief and support for them. Design of appropriate respite care programs depends on identification of beneficiary subgroups for the different types of service. This study aimed to quantify the uptake of different respite and support services for family caregivers, the reasons for non-use, and to explore the respective predictors. Methods A cross-sectional survey of family caregivers of persons with spinal cord injury was conducted nationwide in Switzerland. The use of 11 different respite and support services during the previous 12 months was investigated, along with caregivers’ reasons for not using any respite. Classification trees were used to characterize the beneficiaries and reasons for not using respite. Results About a third of family caregivers used at least one type of respite or support service during the previous 12 months. Utilization of respite care was greater among those who employed professional home care (57% vs 24% of those without professional home care). Marked cantonal differences were also observed in utilization of respite care. The primary reason for not using respite services was “no demand” (80% of non-users of respite services), mainly among caregivers who were less emotionally affected by their caregiving tasks. Conclusions Utilization of respite and support services depends more on place of residence and use of home care services than on functional status of the care recipient. Accordingly, programs should be tailored to the cultural context of their potential users. This is best achieved through coordination with local health care professionals who can identify needs, provide information, initiate referrals, and integrate the care into a larger support plan.

Excretory dysfunction and quality of life after a spinal cord injury: A cross‐sectional study

2021 ◽  
Vol 30 (9-10) ◽  
pp. 1394-1402
Author(s):  
De Gong ◽  
Yingmin Wang ◽  
Lirong Zhong ◽  
Mengmeng Jia ◽  
Ting Liu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Cord Injury

scholarly journals Age-related variation in mobility independence among wheelchair users with spinal cord injury: A cross-sectional study

2016 ◽  
Vol 39 (2) ◽  
pp. 180-189 ◽  
Author(s):  
Timo Hinrichs ◽  
Veronika Lay ◽  
Ursina Arnet ◽  
Inge Eriks-Hoogland ◽  
Hans Georg Koch ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Wheelchair Users ◽  
Related Variation ◽  
Age Related ◽  
Cord Injury

scholarly journals Assessment of Daily Living of Patients with Spinal Cord Injury: A Cross-Sectional Study in Kermanshah

2021 ◽  
Vol 8 (3) ◽  
Author(s):  
Masoud Hatefi ◽  
AmirHosein Meisami ◽  
Alalleh Dalvand ◽  
Milad Borji
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Daily Living ◽  
Cross Sectional Study ◽  
Demographic Characteristics ◽  
Daily Activities ◽  
Sectional Study ◽  
Cross Sectional ◽  
Cord Injury ◽  
The Impact

Background: Spinal cord injuries (SCI) are a variety of chronic diseases that various causes such as trauma may contribute to its onset. One of the problems in these patients is the problem of physical activity and, consequently, daily activities. Objectives: This study aimed to assess daily living of patients with SCI. Methods: In this descriptive cross-sectional study in 2019, 120 patients with SCI in Kermanshah were included in the study using purposive sampling. The instruments used in this study fell into two parts. One part included the demographic characteristics of the SCI patients, and the other part was a questionnaire of the rate of the Impact on Participation and Autonomy questionnaire (IPA-P). Data were analyzed by SPSS software version 16 using descriptive tests such as mean and standard deviation. Results: The result showed there was a significant relationship between demographic characteristics such as education (P < 0.007), time of spinal cord injury (P < 0.01), and income (P = 0.000). Also, the results showed there was a relationship between Autonomy and Participation, and the age of patients and their autonomy and participation decreased with age (P = 0.000, R = 0.72). Most of the patients had severe problems with daily activities. Also, most patients had very poor scores in relation to daily living activities. Conclusions: Considering the low rate of participation and autonomy in patients with SCI, it is suggested to conduct studies aimed at improving their self-care and social participation.

Differential Odds of Employment and Estimation of Earnings Among Those With Spinal Cord Injury

2019 ◽  
Vol 63 (2) ◽  
pp. 67-78 ◽  
Author(s):  
James S. Krause ◽  
Clara E. Dismuke-Greer ◽  
Melinda Jarnecke ◽  
Karla S. Reed
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cross Sectional Study ◽  
Self Report ◽  
Sectional Study ◽  
Cross Sectional ◽  
Lower Odds ◽  
High School Certificate ◽  
Cord Injury ◽  
Optimal Quality

Our purpose was to identify demographic, educational, and injury-related characteristics associated with odds of employment and estimates of differential earnings among participants with spinal cord injury (SCI). Self-report assessments were obtained from 1,983 participants who had traumatic SCI, were 18+ years old, and less than 65 years of age. All were recruited into the current cross-sectional study from previous studies of health and aging from the Midwestern and Southeastern United States. Midwestern participants had 2.41 higher odds of employment. Older age at injury was associated with lower odds of employment. There were no sex differences in the odds of employment, but women had an estimated US$19,431 lower conditional earnings. Non-Hispanic Blacks had 69% lower odds of employment, and those working had an estimated US$12,058 lower earnings. Ambulatory participants had higher odds of employment (odds ratio [OR] = 4.66) and higher conditional earnings (US$17,277) than those with the most severe SCI. Those with 4-year or postgraduate degrees had substantially higher odds of employment (OR = 4.15, OR = 5.72, respectively) and higher conditional earnings (US$29,990, US$44,580, respectively) compared with those with a high school certificate or less. These findings underscore the importance of policies to promote the optimal quality employment outcomes for people with SCI.

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