Burden of responsibility experienced by family caregivers of elderly dementia sufferers. Analyses of strain, feelings and coping strategies

Family caregivers of people with mental disorders face a number of burdens and stressors, such as associative stigma and burnout. These burdens are often a result of their caring role coupled with insufficient support or ineffective coping strategies, which can affect their quality of life and biopsychosocial integrity that, in turn, may affect the care they provide. This study aimed to explore the experiences of family caregivers of people with mental disorders, through examining the burdens that they face and the coping strategies that they use. Using a descriptive qualitative approach, 13 semi-structured interviews were conducted with members of the Saudi public, recruited through popular social media platforms and analyzed using thematic analysis. Five main themes were constructed from the data: Type of care, Challenges, Coping and support, Perceptions of public awareness, and Messages to others. The findings emphasize the different types of burdens that caregivers experience, and their needs that require a range of responses such as educational training on effective coping strategies, and psychological support in the form of counseling or group therapy. This study highlights the voice of caregivers and their message to the public, in order to correct the misconceptions surrounding mental disorders and those associated with them.

Download Full-text

The Relationship between Anxiety and Coping Strategies in Family Caregivers of Patients with Trauma

JOURNAL FOR CLINICAL AND DIAGNOSTIC RESEARCH ◽

10.7860/jcdr/2017/25951.9673 ◽

2017 ◽

Cited By ~ 3

Author(s):

Mozhgan Rahnama

Keyword(s):

Coping Strategies ◽

Family Caregivers ◽

And Coping ◽

The Relationship

Download Full-text

Family Caregivers’ Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph19020942 ◽

2022 ◽

Vol 19 (2) ◽

pp. 942

Author(s):

Muhammad Iqbal Haji Mukhti ◽

Mohd Ismail Ibrahim ◽

Tengku Alina Tengku Ismail ◽

Iliatha Papachristou Nadal ◽

Sureshkumar Kamalakannan ◽

...

Keyword(s):

Coping Strategies ◽

Family Caregivers ◽

Virus Disease ◽

Stroke Survivors ◽

Rehabilitation Centers ◽

And Coping ◽

Qualitative Exploration ◽

Public Rehabilitation ◽

Depth Interviews

Background: Stroke is a chronic disease that requires stroke survivors to be supported long-term by their families. This is especially because of the inaccessibility to post-stroke rehabilitation outside hospitals. The Corona Virus Disease 2019 (COVID-19) crisis and the pandemic restrictions in Malaysia are expected to exponentially increase the demand from family caregivers in supporting stroke survivors. Thus, this study aims to explore the burden, experience, and coping mechanism of the family caregivers supporting stroke survivors during the COVID-19 pandemic. Methodology: A phenomenological qualitative study was conducted from November 2020 to June 2021 in Malaysia. A total of 13 respondents were recruited from two public rehabilitation centers in Kota Bharu, Kelantan. In-depth interviews were conducted with the participants. Comprehensive representation of perspectives from the respondents was achieved through purposive sampling. The interviews were conducted in the Kelantanese dialect, recorded, transcribed, and analyzed using thematic analysis. Results: Three themes on burdens and experiences were identified. They were worsening pre-existing issues, emerging new issues, and fewer burdens and challenges. Two themes on coping strategies were also identified. They were problem-focused engagement and emotion-focused engagement. Conclusions: The COVID-19 pandemic has changed the entire system of stroke management. While family caregivers mostly faced the extra burden through different experiences, they also encountered some positive impacts from the pandemic. The integrated healthcare system, especially in the era of digitalization, is an important element to establish the collaborative commitment of multiple stakeholders to compensate burden and sustain the healthcare of stroke survivors during the pandemic.

Download Full-text

Levels of stress and coping strategies in family caregivers who treat schizophrenic patients with risk of violent behavior

Journal of Public Health Research ◽

10.4081/jphr.2021.2404 ◽

2021 ◽

Vol 10 (s1) ◽

Author(s):

Miftahul Janah ◽

Giur Hargiana

Keyword(s):

Coping Strategies ◽

Family Caregivers ◽

Violent Behavior ◽

Family Members ◽

Sampling Technique ◽

Cross Sectional ◽

Stress Levels ◽

Schizophrenic Patients ◽

And Coping ◽

The Relationship

Background: Violent behavior is one of the most common symptoms of people who have schizophrenia. Caring for family members who have schizophrenia can be a stressor for other family members. The stressors can be stressful for the caregiver. Family caregivers require coping strategies to overcome the stressors. This study aims to determine the relationship between stress levels and coping strategies of family caregivers who treat schizophrenic patients with a risk of violent behavior.Design and Methods: The research design engaged cross-sectional with the purposive sampling technique by involving 87 caregiver families who who treat schizophrenic patients. The data was collected by using the Perceived Stress Scale (PSS) and Ways of Coping (WOC) questionnaires. This study was analyzed by employing the Chi-Square test to determine the relationship between stress levels and coping strategies in the caregiver family.Results: This study shows that stress levels are not significantly associated with coping strategies in family caregivers.Conclusion: Good supports from health and social service professionals are required to help family caregivers cope with their stressors well.

Download Full-text

Burden, Coping, Physical Symptoms and Psychological Morbidity in Caregivers of Functionally Dependent Family Members

Revista Latino-Americana de Enfermagem ◽

10.1590/s0104-11692013000400015 ◽

2013 ◽

Vol 21 (4) ◽

pp. 935-940 ◽

Cited By ~ 12

Author(s):

Ana Catarina Guedes ◽

Maria da Graça Pereira

Keyword(s):

Cognitive Impairment ◽

Coping Strategies ◽

Family Caregivers ◽

Family Members ◽

Significant Negative Correlation ◽

Physical Symptoms ◽

Psychological Morbidity ◽

Adaptive Coping ◽

And Coping ◽

The Relationship

OBJECTIVES: this study assessed burden, coping, physical symptoms and psychological morbidity in caregivers of functionally dependent family members. METHODS: fifty family caregivers completed self-reported measures of burden, physical symptoms, psychological morbidity and coping strategies. RESULTS: there was a significant negative correlation between coping strategies and the different clinical variables, as well as a significant positive correlation between coping strategies and duration of care. It appears that the stronger bond between caregiver and family member leads to a poorer use of adaptive coping strategies. It also appears that the deterioration of the relationship between them and the lower perceived self-efficacy are more prominent in caregivers of family members with cognitive impairment, indicating that caregivers with family members without cognitive impairment face fewer difficulties. CONCLUSION: these results emphasize the need for interventions to include coping strategies, since they are important in reducing caregivers' burden, psychological morbidity and physical symptoms.

Download Full-text