Proposing a model for auditing data quality of long-term periodontal outcome studies

Purpose Rare cancers represent 22% of all tumors in Europe; however, the quality of the data of rare cancers may not be as good as the quality of data for common cancer. The project surveillance of rare cancers in Europe (RARECARE) had, among others, the objective of assessing rare cancer data quality in population-based cancer registries (CRs). Eight rare cancers were considered: mesothelioma, liver angiosarcoma, sarcomas, tumors of oral cavity, CNS tumors, germ cell tumors, leukemia, and malignant digestive endocrine tumors. Methods We selected data on 18,000 diagnoses and revised, on the basis of the pathologic and clinical reports (but not on pathologic specimens), unspecified morphology and topography codes originally attributed by CR officers and checked the quality of follow-up of long-term survivors of poor prognosis cancers. Results A total of 38 CRs contributed from 13 European countries. The majority of unspecified morphology and topography cases were confirmed as unspecified. The few unspecified cases that, after the review, changed to a more specific diagnosis increased the incidence of the common cancer histotypes. For example, 11% of the oral cavity epithelial cancers were reclassified from unspecified to more specific diagnoses: 8% were reclassified as squamous cell carcinoma (commoner) and only 1% as adenocarcinoma (rarer). The revision confirmed the majority of long-term survivors revealing a relative high proportion of mesothelioma long-term survivors. The majority of appendix carcinoids changed behavior from malignant to borderline lesions. Conclusions Our study suggests that the problem of poorly specified morphology and topography cases is mainly one of difficulty in reaching a precise diagnosis. The awareness of the importance of data quality for rare cancers should increase among registrars, pathologists, and clinicians.

Download Full-text

Schizophrenia outcome measures in the wider international community

The British Journal of Psychiatry ◽

10.1192/bjp.191.50.s71 ◽

2007 ◽

Vol 191 (S50) ◽

pp. s71-s77 ◽

Cited By ~ 62

Author(s):

Mohan Isaac ◽

Prabhat Chand ◽

Pratima Murthy

Keyword(s):

Outcome Measures ◽

Clinical Symptoms ◽

Outcome Studies ◽

Future Research ◽

Sociocultural Factors ◽

Middle Income ◽

Middle Income Countries ◽

Low And Middle Income

BackgroundOutcome of schizophrenia has been described as favourable in low-and middle-income countries. Recently, researchers have questioned these findingsAimsTo examine the outcome studies carried out in different countries specifically looking atthose from low-and middle-income countriesMethodsLong-term course and outcome studies in schizophrenia were reviewedResultsA wide variety of outcome measures are used. The most frequent are clinical symptoms, hospitalisation and mortality (direct indicators), and social/ occupational functioning, marriage, social support and burden of care (indirect indicators). Areas such as cognitive function, duration of untreated psychosis, quality of life and effect of medication have not been widely studied in low-and middle-income countriesConclusionsThe outcome of schizophrenia appears to be better in low-and middle-income countries. A host of sociocultural factors have been cited as contributing to this but future research should aim to understand this better outcome. There is a need for more culture-specific instruments to measure outcomes

Download Full-text

Data Quality Assessment and the Long-Term Trend of Ground Solar Radiation in China

Journal of Applied Meteorology and Climatology ◽

10.1175/2007jamc1493.1 ◽

2008 ◽

Vol 47 (4) ◽

pp. 1006-1016 ◽

Cited By ~ 150

Author(s):

Guang-Yu Shi ◽

Tadahiro Hayasaka ◽

Atsumu Ohmura ◽

Zhi-Hua Chen ◽

Biao Wang ◽

...

Keyword(s):

Time Series ◽

Solar Radiation ◽

Data Quality ◽

Quality Assessment ◽

Global Radiation ◽

Assessment Process ◽

Radiation Data ◽

Data Quality Assessment

Abstract Solar radiation is one of the most important factors affecting climate and the environment. Routine measurements of irradiance are valuable for climate change research because of long time series and areal coverage. In this study, a set of quality assessment (QA) algorithms is used to test the quality of daily solar global, direct, and diffuse radiation measurements taken at 122 observatories in China during 1957–2000. The QA algorithms include a physical threshold test (QA1), a global radiation sunshine duration test (QA2), and a standard deviation test applied to time series of annually averaged solar global radiation (QA3). The results show that the percentages of global, direct, and diffuse solar radiation data that fail to pass QA1 are 3.07%, 0.01%, and 2.52%, respectively; the percentages of global solar radiation data that fail to pass the QA2 and QA3 are 0.77% and 0.49%, respectively. The method implemented by the Global Energy Balance Archive is also applied to check the data quality of solar radiation in China. Of the 84 stations with a time series longer that 20 yr, suspect data at 35 of the sites were found. Based on data that passed the QA tests, trends in ground solar radiation and the effect of the data quality assessment on the trends are analyzed. There is a decrease in ground solar global and direct radiation in China over the years under study. Although the quality assessment process has significant effects on the data from individual stations and/or time periods, it does not affect the long-term trends in the data.

Download Full-text

Thinking Beyond Language: Intervention for Severe Aphasia

Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders ◽

10.1044/nnsld19.1.15 ◽

2009 ◽

Vol 19 (1) ◽

pp. 15-22 ◽

Cited By ~ 3

Author(s):

Nina Simmons-Mackie

Keyword(s):

Quality Of Life ◽

Communication Training ◽

Language Intervention ◽

Specific Training ◽

Environmental Support ◽

Total Communication ◽

Communication Partners

Abstract Purpose: This article addresses several intervention approaches that aim to improve life for individuals with severe aphasia. Because severe aphasia significantly compromises language, often for the long term, recommended approaches focus on additional domains that affect quality of life. Treatments are discussed that involve increasing participation in personally relevant life situations, enhancing environmental support for communication and participation, and improving communicative confidence. Methods: Interventions that have been suggested in the aphasia literature as particularly appropriate for people with severe aphasia include training in total communication, training of communication partners, and activity specific training. Conclusion: Several intervention approaches can be implemented to enhance life with severe aphasia.

Download Full-text

Communication Disordered: Program Implementation in Long-Term Care

Perspectives of the ASHA Special Interest Groups ◽

10.1044/persp1.sig15.64 ◽

2016 ◽

Vol 1 (15) ◽

pp. 64-67

Author(s):

George Barnes ◽

Joseph Salemi

Keyword(s):

Program Implementation ◽

Long Term Care ◽

Family Satisfaction ◽

Regulatory Compliance ◽

Care Staff ◽

Term Care ◽

Staff Members ◽

Change Policy

The organizational structure of long-term care (LTC) facilities often removes the rehab department from the interdisciplinary work culture, inhibiting the speech-language pathologist's (SLP's) communication with the facility administration and limiting the SLP's influence when implementing clinical programs. The SLP then is unable to change policy or monitor the actions of the care staff. When the SLP asks staff members to follow protocols not yet accepted by facility policy, staff may be unable to respond due to confusing or conflicting protocol. The SLP needs to involve members of the facility administration in the policy-making process in order to create successful clinical programs. The SLP must overcome communication barriers by understanding the needs of the administration to explain how staff compliance with clinical goals improves quality of care, regulatory compliance, and patient-family satisfaction, and has the potential to enhance revenue for the facility. By taking this approach, the SLP has a greater opportunity to increase safety, independence, and quality of life for patients who otherwise may not receive access to the appropriate services.

Download Full-text