Integrating lived experience into clinical practice: a case study of young peer providers in pediatric rehabilitation

This paper demonstrates how a range of linguistic methods can be harnessed in pursuit of a deeper understanding of the ‘lived experience’ of psychological disorders. It argues that such methods should be applied more in medical contexts, especially in medical humanities. Key extracts from The Unabridged Journals of Sylvia Plath are examined, as a case study of the experience of depression. Combinations of qualitative and quantitative linguistic methods, and inter- and intra-textual comparisons are used to consider distinctive patterns in the use of metaphor, personal pronouns and (the semantics of) verbs, as well as other relevant aspects of language. Qualitative techniques provide in-depth insights, while quantitative corpus methods make the analyses more robust and ensure the breadth necessary to gain insights into the individual experience. Depression emerges as a highly complex and sometimes potentially contradictory experience for Plath, involving both a sense of apathy and inner turmoil. It involves a sense of a split self, trapped in a state that one cannot overcome, and intense self-focus, a turning in on oneself and a view of the world that is both more negative and more polarized than the norm. It is argued that a linguistic approach is useful beyond this specific case.

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Role of Vaitarana Basti in the management of Gridhrasi w.s.r. to Sciatica

Journal of Ayurveda and Integrated Medical Sciences (JAIMS) ◽

10.21760/jaims.v3i5.13853 ◽

2018 ◽

Vol 3 (5) ◽

Author(s):

Dr. Suresh N. Hakkandi ◽

Dr. Manjunath Akki ◽

Dr. Bhavana KS

Keyword(s):

Low Back Pain ◽

Back Pain ◽

Clinical Practice ◽

Routine Activity ◽

Daily Routine ◽

Low Back ◽

Common Condition ◽

Locomotor System

Vata Vyadhi is one of the most prevailing health problems in our day today clinical practice, Gridhrasi is one among them. Gridhrasi is Shoola Pradhana Nanatmaja Vatavyadhi, affecting the locomotor system and disable from daily routine activity. Gridhrasi the name itself indicates the way of gait shown by the patient due to extreme pain i.e. like Gridhra or Vulture. Gridhrasi is a condition characterized by Ruk, Toda, Stambha, Spandana in Sphik Pradesha and radiates downwards to Kati, Prusta, Uru, Janu, Jangha and Pada. Gridhrasi can be compared with Sciatica. Pain is the chief cause of person to visit a doctor. Although low back pain is a common condition that affects as many as 80 to 90 percent of people during their lifetime. Gridhrasi can be cured by the help of Vaitarana Basti. Hence in the case study of male patient of age 30 yrs presenting with cardinal clinical sign and symptoms of Gridhrasi are Ruka, Toda and Muhu Spandana in the Sphika, Kati, Uru, Janu, Jangha and Pada in order and Sakthikshepanigraha that is restricted lifting of the leg.

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Co-constructing engagement in pediatric rehabilitation: a multiple case study approach

Disability and Rehabilitation ◽

10.1080/09638288.2021.1910353 ◽

2021 ◽

pp. 1-12

Author(s):

Gillian King ◽

Lisa A. Chiarello ◽

Michelle Phoenix ◽

Rachel D’Arrigo ◽

Madhu Pinto

Keyword(s):

Multiple Case Study ◽

Case Study Approach ◽

Pediatric Rehabilitation ◽

Study Approach ◽

Multiple Case

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Towards a Model for Integrating Informal and Formal Learning for Children in Refugee Camps: The Example of the Lesbos School for Peace

Social Sciences ◽

10.3390/socsci10030111 ◽

2021 ◽

Vol 10 (3) ◽

pp. 111

Author(s):

Ephrat Huss ◽

Smadar Ben Asher ◽

Tsvia Walden ◽

Eitan Shahar

Keyword(s):

Lived Experience ◽

Single Case ◽

Refugee Children ◽

Refugee Camps ◽

Arts Based Research ◽

Whole School ◽

School Based ◽

Research Interviews ◽

Post Disaster

The aim of this paper is to describe a unique, bottom-up model for building a school based on humanistic intercultural values in a post-disaster/refugee area. We think that this model will be of use in similar contexts. This single-case study can teach us about the needs of refugee children, as well as provide strategies to reach these needs with limited resources in additional similar contexts. Additionally, this paper will outline a qualitative arts-based methodology to understand and to evaluate refugee children’s lived experience of in-detention camp schools. Our field site is an afternoon school for refugee children operated and maintained by volunteers and refugee teachers. The methodology is a participatory case study using arts-based research, interviews, and observation of a school built for refugee camp children in Lesbos. Participants in this study included the whole school, from children to teachers, to volunteers and managers. The research design was used to inform the school itself, and to outline the key components found to be meaningful in making the school a positive experience. These components could be emulated by similar educational projects and used to evaluate them on an ongoing basis.

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The Cinematic Chiasm

Janus Head ◽

10.5840/jh201514219 ◽

2015 ◽

Vol 14 (2) ◽

pp. 35-48

Author(s):

Nisha Gupta ◽

Keyword(s):

Social Justice ◽

Lived Experience ◽

The Other ◽

Audience Member ◽

Self And Other

This paper is a recommendation for phenomenologists to use film as a perceptually-faithful language with which to disseminate research and insights about lived experience. I use Merleau-Ponty’s philosophy to illustrate how film can evoke a state of profound, embodied empathy between self-and-other, which I refer to as “the cinematic chiasm”. I incorporate a case study of my experience as audience member becoming intertwined with the flesh of the film “The Diving Bell and the Butterfly.” I discuss four aesthetic techniques of this film through which I became enveloped in a state of visceral empathy towards the “other” on-screen. The cinematic chiasm offers exciting, creative possibilities for phenomenologists, particularly those who are interested in evoking widespread empathy for social justice purposes.

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The role of family adaptation in the transition to adulthood for youth with medical complexity: a qualitative case study protocol

Journal of Transition Medicine ◽

10.1515/jtm-2021-0005 ◽

2021 ◽

Vol 0 (0) ◽

Author(s):

Lin Li ◽

Nancy Carter ◽

Jenny Ploeg ◽

Jan Willem Gorter ◽

Patricia H. Strachan

Keyword(s):

Lived Experience ◽

Transition To Adulthood ◽

Evidence Base ◽

Adult Health ◽

Structured Interviews ◽

Adult Services ◽

Development Framework ◽

Medical Complexity ◽

Life Course Health

Abstract Background For youth with medical complexity and their families, the transition to adulthood is a stressful and disruptive period that is further complicated by the transfer from relatively integrated and familiar pediatric services to more fragmented and unfamiliar adult services. Previous studies report that families feel abandoned, overwhelmed, and unsupported during transition. In order to provide better support to families, we need to understand how families currently manage transition, what supports they need most, and how key factors influence their experiences. The aim of this study is to understand how families of youth with medical complexity adapt to the youth’s transition to adulthood and transfer to adult health care, social, and education services, and to explain how contextual factors interact to influence this process. Methods Informed by the Life Course Health Development framework, this study will use a qualitative explanatory case study design. The sample will include 10–15 families (1–3 participants per family) of youth with medical complexity (aged 16–30 years) who have lived experience with the youth’s transition to adulthood and transfer to adult services. Data sources will include semi-structured interviews and resources participants identified as supporting the youth’s transition. Reflexive thematic analysis will be used to analyze interview data; directed content analysis will be used for documentary evidence. Discussion While previous studies report that families experience significant challenges and emotional toll during transition, it is not known how they adapt to these challenges. Through this study, we will identify what is currently working for families, what they continue to struggle with, and what their most urgent needs are in relation to transition. The anticipated findings will inform both practice solutions and policy changes to address the needs of these families during transition. This study will contribute to the evidence base needed to develop novel solutions and advance policies that will meaningfully support successful transitions for families of youth with medical complexity.

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