Cancer Information Seeking Behaviors of Korean American Women: A Mixed-Methods Study Using Surveys and Focus Group Interviews

Abstract Background: As population ageing and dementia incidence continue to increase worldwide, health systems are urged to empower the public to address factors related to dementia. This study aims to assess Macau citizens’ knowledge of dementia, attitudes towards persons with dementia, and help-seeking behaviours and intention toward dementia.Methods: This is a mixed-methods study with both quantitative (cross-sectional survey) and qualitative components (focus group interviews). The Alzheimer’s Disease Knowledge Scale (ADKS) and Dementia Attitude Scale (DAS) were utilized in the quantitative data collection, whereas focus group interviews were employed to gather context-specific understanding of dementia in the local setting. Descriptive statistics and Chi-square tests were used to analyze quantitative data, while content analysis was used for qualitative data.Results: The overall level of knowledge on dementia was low (ADKS mean total score = 17.38, SD = 3.31), with the least amount of knowledge in the caregiving domain. Meanwhile, attitudes toward persons with dementia was generally positive (mean [SD] = 89.07 [11.99]). Many of the focus group participants were also uncertain regarding the availability of dementia services in the region. The general public was interested to obtain dementia information through social media.Conclusions: Efforts should be made to build up dementia literacy in Macau, especially in terms of caregiving. Information about dementia could be disseminated in social media and by healthcare professionals.

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FRI0703-HPR Evaluation of an individual targeted intervention with the purpose of reducing sedentary time in people with rheumatoid arthritis – a mixed methods study based on questionnaires and focus group interviews

10.1136/annrheumdis-2018-eular.3258 ◽

2018 ◽

Author(s):

B.A. Esbensen ◽

T. Thomsen ◽

M.R. Petersen ◽

M. Aadahl

Keyword(s):

Rheumatoid Arthritis ◽

Mixed Methods ◽

Focus Group ◽

Sedentary Time ◽

Mixed Methods Study ◽

Targeted Intervention ◽

Focus Group Interviews ◽

Group Interviews

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Perceived relevance of tasks in organic chemistry by preservice chemistry teachers

Chemistry Teacher International ◽

10.1515/cti-2020-0002 ◽

2020 ◽

Vol 0 (0) ◽

Cited By ~ 1

Author(s):

Jolanda Hermanns

Keyword(s):

Organic Chemistry ◽

Focus Group ◽

Content Knowledge ◽

School Curriculum ◽

Mixed Methods Study ◽

Focus Group Interviews ◽

Chemistry Teachers ◽

Research Questions ◽

Group Interviews ◽

Perceived Relevance

AbstractIn this article the development, use and evaluation of tasks in organic chemistry is discussed. These tasks are designed following the concept of school-related content knowledge. In this study the perceived relevance of these new tasks by preservice chemistry teachers was evaluated. Of special interest was the question how new tasks should be designed to be perceived as relevant; are some features of the tasks more suitable than others? To answer all research questions a mixed methods study was conducted. To understand the students’ rating of the new tasks by using questionnaires, in addition focus group interviews were conducted. The suitability of these new tasks for use in written exams was also evaluated. The results show that the students perceived the tasks as relevant for their future profession if they included contents of the school curriculum, realistic situations and were personalized. They perceived the new tasks also as relevant for practicing skills in communication and explanations.

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Mixed-Methods Analysis of Supports and Barriers for Rural College Students

Journal of College Orientation, Transition, and Retention ◽

10.24926/jcotr.v27i2.2975 ◽

2020 ◽

Vol 27 (2) ◽

Author(s):

Stephen Flynn ◽

Eric Laflamme ◽

Danica Hays

Keyword(s):

Mixed Methods ◽

Focus Group ◽

Student Success ◽

Mixed Methods Study ◽

Focus Group Interviews ◽

Initial Sample ◽

Sequential Mixed Methods ◽

Convergence And Divergence ◽

Group Interviews ◽

Rural College

This article outlines an exploratory sequential mixed-methods study on the environmental supports and barriers for students attending a rural college. Data collected through six focus group interviews (N = 19) indicated 20 themes associated with student success; faculty practices with students; administrative issues; or president, cabinet, and board of trustee vision. An 86-item survey, grounded in qualitative themes, yielded evidence of convergence and divergence for an initial sample of 256 students.

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Clinicians and Older Adults’ Perceptions of the Utility of Patient-Generated Health Data in Caring for Older Adults: Exploratory Mixed Methods Study

JMIR Aging ◽

10.2196/29788 ◽

2021 ◽

Vol 4 (4) ◽

pp. e29788

Author(s):

Ben Kim ◽

Peyman Ghasemi ◽

Paul Stolee ◽

Joon Lee

Keyword(s):

Older Adults ◽

Health Care ◽

Mixed Methods ◽

Focus Group ◽

Data Quality ◽

Health Data ◽

Perceived Usefulness ◽

Mixed Methods Study ◽

Focus Group Interviews ◽

Group Interviews

Background Many people are motivated to self-track their health and optimize their well-being through mobile health apps and wearable devices. The diversity and complexity of these systems have evolved over time, resulting in a large amount of data referred to as patient-generated health data (PGHD), which has recently emerged as a useful set of data elements in health care systems around the world. Despite the increased interest in PGHD, clinicians and older adults’ perceptions of PGHD are poorly understood. In particular, although some clinician barriers to using PGHD have been identified, such as concerns about data quality, ease of use, reliability, privacy, and regulatory issues, little is known from the perspectives of older adults. Objective This study aims to explore the similarities and differences in the perceptions of older adults and clinicians with regard to how various types of PGHD can be used to care for older adults. Methods A mixed methods study was conducted to explore clinicians and older adults’ perceptions of PGHD. Focus groups were conducted with older adults and health care providers from the Greater Toronto area and the Kitchener-Waterloo region. The participants were asked to discuss their perceptions of PGHD, including facilitators and barriers. A questionnaire aimed at exploring the perceived usefulness of a range of different PGHD was also embedded in the study design. Focus group interviews were transcribed for thematic analysis, whereas the questionnaire results were analyzed using descriptive statistics. Results Of the 9 participants, 4 (44%) were clinicians (average age 38.3 years, SD 7 years), and 5 (56%) were older adults (average age 81.0 years, SD 9.1 years). Four main themes were identified from the focus group interviews: influence of PGHD on patient-provider trust, reliability of PGHD, meaningful use of PGHD and PGHD-based decision support systems, and perceived clinical benefits and intrusiveness of PGHD. The questionnaire results were significantly correlated with the frequency of PGHD mentioned in the focus group interviews (r=0.42; P=.03) and demonstrated that older adults and clinicians perceived blood glucose, step count, physical activity, sleep, blood pressure, and stress level as the most useful data for managing health and delivering high-quality care. Conclusions This embedded mixed methods study generated several important findings about older adults and clinicians’ perceptions and perceived usefulness of a range of PGHD. Owing to the exploratory nature of this study, further research is needed to understand the concerns about data privacy, potential negative impact on the trust between older adults and clinicians, data quality and quantity, and usability of PGHD-related technologies for older adults.

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Beliefs and Information Seeking in Patients With Cancer in Southwest China: Survey Study (Preprint)

10.2196/preprints.16138 ◽

2019 ◽

Author(s):

Juan Xie ◽

Shi Xie ◽

Ying Cheng ◽

Zhe He

Keyword(s):

Cancer Patients ◽

Information Seeking ◽

Southwest China ◽

Survey Study ◽

Cancer Information ◽

Cancer Fatalism ◽

Middle Income ◽

Related Information ◽

Cancer Information Seeking ◽

Information Seeking Behaviors

BACKGROUND Although previous studies have reported the cancer information-seeking behaviors among patients in high-income countries, the cancer information-seeking practices of patients living in low- and middle-income areas are less known. OBJECTIVE This study investigated the beliefs and information-seeking patterns of cancer patients in southwest China. METHODS A questionnaire was designed, and data were collected in two hospitals (N=285) in southwest China. Statistical analyses included bivariate analyses and regressions. RESULTS Patients’ attitudes towards cancer fatalism were significantly influenced by marital status (P<.001), education (P<.001), and household income (P<.001). Moreover, endorsing fatalistic belief was positively associated with age (r=0.35, P<.001). The regression model showed that younger patients (odds ratio [OR] 0.96, 95% CI 0.93-0.99) and those with higher education (OR 1.75, 95% CI 1.09-2.81) were more likely to seek information. Additionally, patients who were less confident in getting information were more likely to find information (OR 1.70, 95% CI 1.15-2.52), while fatalism belief was not significant in the regression (OR 0.65, 95% CI 0.22-1.95). CONCLUSIONS This study explored the information-seeking patterns of cancer patients in southwest China. It was found that many Chinese people endorsed cancer fatalism. These pessimistic beliefs about the potential to prevent and to cure cancer correlate with rather than cause cancer-related information seeking. However, self-efficacy about the confidence in finding needed cancer information was a significant predictor of information-seeking.

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Inter-organisational collaboration in palliative care trajectories for nursing home residents: A nation-wide mixed methods study among key persons

International Journal of Care Coordination ◽

10.1177/2053434519857352 ◽

2019 ◽

Vol 22 (2) ◽

pp. 69-80 ◽

Cited By ~ 1

Author(s):

Sofie Hermans ◽

Aline Sevenants ◽

Anja Declercq ◽

Nady V Broeck ◽

Luc Deliens ◽

...

Keyword(s):

Palliative Care ◽

Nursing Home ◽

Mixed Methods ◽

Focus Group ◽

Home Care ◽

Residential Care ◽

Nursing Home Residents ◽

Mixed Methods Study ◽

Focus Group Interviews ◽

Group Interviews

Introduction Multiple care organisations, such as home care services, nursing homes and hospitals, are responsible for providing an appropriate response to the palliative care needs of older people admitted into long-term care facilities. Integrated palliative care aims to provide seamless and continuous care. A possible organisational strategy to help realise integrated palliative care for this population is to create a network in which these organisations collaborate. The aim is to analyse the collaboration processes of the various organisations involved in providing palliative care to nursing home residents. Method A sequential mixed-methods study, including a survey sent to 502 participants to evaluate the collaboration between home and residential care, and between hospital and residential care, and additionally three focus group interviews involving a purposive selection among the survey participants. Participants are key persons from the nursing homes, hospitals and home care organisations that are part of the 15 Flemish palliative care networks dispersed throughout the region of Flanders, Belgium. Results Survey data were gathered from 308 key persons (response rate: 61%), and 16 people participated in three focus group interviews. Interpersonal dimensions of collaboration are rated higher than structural dimensions. This effect is statistically significant. Qualitative analyses identified guidelines, education, and information-transfer as structural challenges. Additionally, for further development, members should become acquainted and the network should prioritise the establishment of a communication infrastructure, shared leadership support and formalisation. Discussion The insights of key persons suggest the need for further structuration and can serve as a guideline for interventions directed at improving inter-organisational collaboration in palliative care trajectories for nursing home residents.

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The Dynamics of Sensemaking and Information Seeking in a Crisis Situation

Nordicom Review ◽

10.1515/nor-2016-0003 ◽

2016 ◽

Vol 37 (1) ◽

pp. 71-84 ◽

Cited By ~ 5

Author(s):

Orla Vigsø ◽

Tomas Odén

Keyword(s):

Focus Group ◽

Present Article ◽

Information Seeking ◽

Storage Facility ◽

Focus Group Interviews ◽

Crisis Situation ◽

The World ◽

Group Interviews ◽

Toxic Fumes ◽

The City

Abstract The present article investigates two questions: What determines citizens’ use of different media to seek information in a crisis situation, and what influences their evaluation of the information found. The case analysed is a major fire at a chemical storage facility in the harbour of Halmstad in Sweden, where there was a risk of toxic fumes reaching the city and its approximately 60,000 inhabitants. The study is part of a larger project, financed by the Swedish Civil Contingencies Agency, and in this part, focus group interviews are analysed. The results point to an interaction between citizens’ perception of the world, the perceived information, and the development of how the situation is regarded, where sensemaking is the pivotal concept.

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Beliefs and Information Seeking in Patients With Cancer in Southwest China: Survey Study

JMIR Cancer ◽

10.2196/16138 ◽

2020 ◽

Vol 6 (2) ◽

pp. e16138

Author(s):

Juan Xie ◽

Shi Xie ◽

Ying Cheng ◽

Zhe He

Keyword(s):

Cancer Patients ◽

Information Seeking ◽

Southwest China ◽

Survey Study ◽

Cancer Information ◽

Cancer Fatalism ◽

Middle Income ◽

Related Information ◽

Cancer Information Seeking ◽

Information Seeking Behaviors

Background Although previous studies have reported the cancer information-seeking behaviors among patients in high-income countries, the cancer information-seeking practices of patients living in low- and middle-income areas are less known. Objective This study investigated the beliefs and information-seeking patterns of cancer patients in southwest China. Methods A questionnaire was designed, and data were collected in two hospitals (N=285) in southwest China. Statistical analyses included bivariate analyses and regressions. Results Patients’ attitudes towards cancer fatalism were significantly influenced by marital status (P<.001), education (P<.001), and household income (P<.001). Moreover, endorsing fatalistic belief was positively associated with age (r=0.35, P<.001). The regression model showed that younger patients (odds ratio [OR] 0.96, 95% CI 0.93-0.99) and those with higher education (OR 1.75, 95% CI 1.09-2.81) were more likely to seek information. Additionally, patients who were less confident in getting information were more likely to find information (OR 1.70, 95% CI 1.15-2.52), while fatalism belief was not significant in the regression (OR 0.65, 95% CI 0.22-1.95). Conclusions This study explored the information-seeking patterns of cancer patients in southwest China. It was found that many Chinese people endorsed cancer fatalism. These pessimistic beliefs about the potential to prevent and to cure cancer correlate with rather than cause cancer-related information seeking. However, self-efficacy about the confidence in finding needed cancer information was a significant predictor of information-seeking.

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