Supportive maternity care services: A Danish study exploring parents’ experiences with perinatal mental health issues

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
M S Frederiksen ◽  
V Schmied ◽  
C Overgaard
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Negative Impact ◽  
Postnatal Period ◽  
Supportive Services ◽  
Women’S Experiences ◽  
Early Motherhood ◽  
Women's Experiences ◽  
Additional Support ◽  
High Level

Abstract Background Mental illness can have negative impact on pregnant women, their infants and their families, including adverse birth outcomes, as well as place children at risk of developing mental illness later in life. It is recommended to offer additional support in the ante - and postnatal period, but to be able to offer appropriate, timely and effective care, more knowledge is needed on women's own experiences. The aim of this paper is to explore women's experiences with mental illness in the context of pregnancy and early motherhood, and how they experience and engage with supportive services. Methods This paper presents selected findings from an ethnographic field study carried out in a Danish municipality. The findings are based on data from 22 women, who were recruited when they were pregnant or had a newborn baby. The women were currently facing or had previously suffered from one or multiple mental health conditions. Results Analysis found that women with current or prior mental illness experienced a high level of fear, worries and uncertainty during pregnancy and early motherhood, which shaped how they engaged with supportive maternity services. Some were deeply worried about their mental health and reached out for support to cope with this. Concerns about being a bad mother and about the potential influence of their mental illness on their infants were common. Furthermore, some women were scared of being judged as unfit mothers and losing custody of their children. Many experienced stigma surrounding mental illness, making some more hesitant about reaching out for support. Conclusions By providing new insight into women's own perspectives, this study contributes with in-depth knowledge on women's experiences with mental illness during pregnancy and early motherhood, and illustrates how engaging with supportive services may be an ambivalent experience.

scholarly journals The COVID19 pandemic has changed women's experiences of pregnancy in the UK

2021 ◽  
Author(s):  
Sarah S Sturrock ◽  
Kim Turner ◽  
Chelon Lee-Wo ◽  
Vanessa Greening ◽  
Asma Khalil ◽  
...  
Keyword(s):  
Social Media ◽  
Online Survey ◽  
Perinatal Care ◽  
Postnatal Period ◽  
Women’S Experiences ◽  
Antibody Persistence ◽  
Women's Experiences ◽  
Additional Support ◽  
The Uk ◽  
The Impact

Introduction During the SARS-CoV-2 pandemic, maternity care has been substantially altered to reduce transmission of the SARS-CoV-2 virus. Many antenatal services are now restricted or delivered online, and visiting has been restricted during labour and in the postnatal period. Methods We conducted an online survey from 1st August to 31st December 2020 to investigate the experiences of women who were pregnant or breastfeeding in the UK during the SARS-CoV-2 pandemic. The survey included 55 open and closed questions and required 5 minutes to complete. We publicised the survey using social media. Results We received 96 responses, including 66 currently pregnant women and 22 women who were pregnant during the pandemic. The response rate was 70.1% of survey views. We found mixed experiences of the impact of the pandemic on antenatal and perinatal care, notably with some women feeling visiting restrictions were insufficient and others feeling they were too strict. Twenty-nine women received no information about COVID-19, and 6 women found it very difficult to find information. Thirty-nine women would have liked to have more information about breastfeeding after a pregnancy affected by COVID-19, and 37 women wanted more information about antibody persistence and transfer. Discussion Additional support is required for pregnant and lactating women during the current pandemic. Provision of information and support, including via social media, may improve women's experiences of pregnancy in the current environment.

scholarly journals Women’s experiences of diagnosis and management of polycystic ovary syndrome: a mixed-methods study in general practice

2020 ◽  
Vol 70 (694) ◽  
pp. e322-e329 ◽  
Author(s):  
Sarah C Hillman ◽  
Carol Bryce ◽  
Rachel Caleychetty ◽  
Jeremy Dale
Keyword(s):  
Mental Health ◽  
General Practice ◽  
Mixed Methods ◽  
Polycystic Ovary Syndrome ◽  
Mental Health Problems ◽  
Polycystic Ovary ◽  
Mixed Methods Study ◽  
Ovary Syndrome ◽  
Women’S Experiences ◽  
Women's Experiences

BackgroundPolycystic ovary syndrome (PCOS) is a common lifelong metabolic condition with serious associated comorbidities. Evidence points to a delay in diagnosis and inconsistency in the information provided to women with PCOS.AimTo capture women’s experiences of how PCOS is diagnosed and managed in UK general practice.Design and settingThis was a mixed-methods study with an online questionnaire survey and semi-structured telephone interviews with a subset of responders.MethodAn online survey to elicit women’s experiences of general practice PCOS care was promoted by charities and BBC Radio Leicester. The survey was accessible online between January 2018 and November 2018. A subset of responders undertook a semi-structured telephone interview to provide more in-depth data.ResultsA total of 323 women completed the survey (average age 35.4 years) and semi-structured interviews were conducted with 11 women. There were five key themes identified through the survey responses. Participants described a variable lag time from presentation to PCOS diagnosis, with a median of 6–12 months. Many had experienced mental health problems associated with their PCOS symptoms, but had not discussed these with the GP. Many were unable to recall any discussion about associated comorbidities with the GP. Some differences were identified between the experiences of women from white British backgrounds and those from other ethnic backgrounds.ConclusionFrom the experiences of the women in this study, it appears that PCOS in general practice is not viewed as a long-term condition with an increased risk of comorbidities including mental health problems. Further research should explore GPs’ awareness of comorbidities and the differences in PCOS care experienced by women from different ethnic backgrounds.

Vietnamese-American family caregivers of persons with mental illness: Exploring caregiving experience in cultural context

2018 ◽  
Vol 55 (6) ◽  
pp. 846-865 ◽  
Author(s):  
Quynh Nhu (Natasha) Bui ◽  
Meekyung Han ◽  
Sadhna Diwan ◽  
Tran Dao
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Cultural Values ◽  
Family Caregivers ◽  
Cultural Context ◽  
Negative Impact ◽  
Recovery Process ◽  
American Family ◽  
Snowball Sampling ◽  
Vietnamese American

While involvement of family caregivers can play an important role in the recovery process of persons with serious mental illness (SMI), family caregivers often endure poor health and mental health issues due to caregiving-related distress. These challenges may be exacerbated for Vietnamese American families due to cultural values (e.g., familism and stigma). This qualitative exploratory study examined how Vietnamese American family caregivers of persons with SMI describe their caregiving experience. Using convenience and snowball sampling, the study recruited 21 participants who took part in two Vietnamese-language focus groups. Key findings of the study addressed three themes: (1) the influence of cultural and religious values on caregiving and mental health; (2) the negative impact of caregiving on caregivers’ wellbeing; and (3) the stigma attached to mental illness. The study offers useful insights to assist mental health practitioners in tailoring culturally appropriate and effective services for Vietnamese caregivers.

Mental Health, Post-Secondary Education, and Information Communications Technology

2014 ◽  
pp. 196-213 ◽  
Author(s):  
Jenny Martin ◽  
Elspeth McKay
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Human Rights ◽  
Secondary Education ◽  
Negative Impact ◽  
Information And Communications Technology ◽  
Communications Technology ◽  
Post Secondary Education ◽  
Post Secondary ◽  
Ict Tools

The primary aim of this chapter is to explore the use of information and communications technology (ICT) in post-secondary education to provide opportunities for students with mental health difficulties to remain engaged in their studies during times of mental illness. Higher incompletion rates are particularly concerning amongst this group. The authors discuss how improved outcomes can be achieved through effective use of ICT. This is particularly important from a human rights perspective so that people diagnosed with mental illness are afforded the same opportunities as other members of the community. Strategies afforded by ICT tools that are essential for supporting students with mental illness to optimise their chances of success in their post-secondary education outcomes are outlined. The authors combine mental health and human-computer interaction (HCI) to argue for the need to design appropriate instructional ICT strategies to support students experiencing mental illness to remain engaged with their studies. ICT has evolved with powerful and unique features, offering special applications such as educational software, eCommerce, and healthcare. Yet, very little is being said about how to streamline these applications as effective HCI environments to enhance mental health and wellbeing. The chapter explores the positive and negative impact of ICT tools on teaching and learning. In considering mental health and post-secondary education, it focuses on human rights issues of access and equity, disclosure, and stigma. Authors suggest that ICT can enable students to remain engaged with their learning in general, while at the same time promote a deep sense of community.

scholarly journals Microaggressions towards people affected by mental health problems: a scoping review

2019 ◽  
Vol 29 ◽  
Author(s):  
S. Barber ◽  
P. C. Gronholm ◽  
S. Ahuja ◽  
N. Rüsch ◽  
G. Thornicroft
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Scoping Review ◽  
Mental Health Problems ◽  
Negative Impact ◽  
Racial Microaggressions ◽  
Health Problems ◽  
Inclusion Criteria ◽  
Thematic Synthesis ◽  
The Impact

Abstract Aims This review aims to understand the scope of the literature regarding mental health-related microaggressions towards people affected by mental health problems. Methods A scoping review was conducted to explore this question. Four electronic health-oriented databases were searched alongside Google Scholar. As per scoping review principles, the inclusion criteria were developed iteratively. The results of included studies were synthesised using a basic narrative synthesis approach, utilising principles of thematic analysis and thematic synthesis where appropriate. Results A total of 1196 records were identified, of which 17 met inclusion criteria. Of these, 12 were peer-reviewed journal articles, three were research degree theses and two were book chapters. Six included empirical studies were qualitative, four were quantitative and two employed a mixed-methods design. Within these, five qualitative studies aimed to describe the nature of mental health microaggressions experienced by people with mental health problems. Themes identified in a thematic synthesis of these five studies included stereotypes about mental illness, invalidating peoples' experience and blaming people with mental illness for their condition. The included publications informed on the perpetration of mental health microaggressions by family, friends, health professionals and social workers. In addition, two studies created scales, which were then used in cross-sectional surveys of the general public and community members to assess characteristics, such as right-wing political views, associated with endorsement of mental health microaggressions. A consensus definition of microaggressions emerged from the included studies: microaggressions are brief, everyday slights, snubs or insults, that may be subtle or ambiguous, but communicate a negative message to a target person based on their membership of a marginalised group, in this case, people affected by mental illness. Conclusions The study of mental health microaggressions is an emerging, heterogeneous field, embedded in the wider stigma and discrimination literature. It has been influenced by earlier work on racial microaggressions. Both can be ambiguous and contradictory, which creates difficulty defining the boundaries of the concept, but also underpins the key theoretical basis for the negative impact of microaggressions. Mental illness is a more concealable potential type of identity, so it follows that the reported perpetrators of microaggressions are largely friends, family and professionals. This has implications for intervening to reduce the impact of microaggressions. There are several challenges facing research in this area, and further work is needed to understand the impact of mental health microaggressions on people affected by mental health problems.

Wellbeing and experiences of Chinese and Vietnamese carers of people with mental illness in Australia

2020 ◽  
pp. 136346152095262
Author(s):  
Abner Weng Cheong Poon ◽  
Maria Cassaniti ◽  
Michele Sapucci ◽  
Rosaleen Ow
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Mental Health Services ◽  
Health Services ◽  
Support Groups ◽  
Negative Impact ◽  
Cultural Safety ◽  
Structured Interviews ◽  
People With Mental Illness ◽  
Qualitative Thematic Analysis

Many studies show that carers of people with mental illness experience a negative impact on their wellbeing. Given the growing number of people relocating to Australia every year, there are limited studies examining the experience of carers of people with mental illness from culturally and linguistically diverse communities in Australia. Using cultural safety as a conceptual framework, this exploratory study recruited 14 carers of Chinese and Vietnamese heritage who were attending culturally and linguistically oriented support groups in Sydney, Australia. Standardised, validated scales were administered to measure carers’ wellbeing and knowledge of recovery. Structured interviews were conducted to understand carers’ perceived needs. Descriptive statistical and qualitative thematic analysis were used. Findings show that carers experienced social isolation and psychological distress, had multiple diverse needs and had a reasonably good understanding of recovery. Six themes were identified: i) obtaining information in own language; ii) attaining emotional support from support groups; iii) needing respite services to cope with caregiving responsibilities; iv) involvement in planning of treatment and care; v) migration process influencing caregiving, and; vi) cultural and transcultural factors influencing caregiving experience. Findings indicate that some carers might be experiencing some level of culturally unsafe practices in mainstream mental health services. Implications for support groups and mental health services are discussed.

Contending with Psychological Distress in Contexts with Limited Mental Health Resources: HIV-Positive Kenyan Women's Experiences

2016 ◽  
Vol 37 (1) ◽  
pp. 2-9 ◽  
Author(s):  
Peninnah M. Kako ◽  
Angela R. Wendorf ◽  
Patricia E. Stevens ◽  
Emmanuel Ngui ◽  
Laura L. Otto-Salaj
Keyword(s):  
Mental Health ◽  
Psychological Distress ◽  
Health Resources ◽  
Hiv Positive ◽  
Women’S Experiences ◽  
Women's Experiences

scholarly journals “They’re very passionate about making sure that women stay healthy”: a qualitative examination of women’s experiences participating in a community paramedicine program

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Laura M. Schwab-Reese ◽  
Lynette M. Renner ◽  
Hannah King ◽  
R. Paul Miller ◽  
Darren Forman ◽  
...  
Keyword(s):  
Healthcare Providers ◽  
Primary Care Providers ◽  
Holistic Health ◽  
Care Providers ◽  
Women’S Experiences ◽  
Early Motherhood ◽  
Women's Experiences ◽  
Community Paramedicine ◽  
Novel Approach ◽  
Physician Extenders

Abstract Background Community paramedicine programs (i.e., physician-directed preventive care by emergency medical services personnel embedded in communities) offer a novel approach to community-based health care. Project Swaddle, a community paramedicine program for mothers and their infants, seeks to address (directly or through referrals) the physical, mental, social, and economic needs of its participants. The objective of this process evaluation was to describe women’s experiences in Project Swaddle. By understanding their experiences, our work begins to build the foundation for similar programs and future examinations of the efficacy and effectiveness of these approaches. Methods We completed 21 interviews with women living in Indiana (July 2019–February 2020) who were currently participating in or had graduated from Project Swaddle. Interviews were audio-recorded, transcribed, and analyzed using a six-phase approach to thematic analysis. Results Program enrollment was influenced by the community paramedics’ experience and connections, as well as information received in the community from related clinics or organizations. Participants viewed the community paramedic as a trusted provider who supplied necessary health information and support and served as their advocate. In their role as physician extenders, the community paramedics enhanced patient care through monitoring critical situations, facilitating communication with other providers, and supporting routine healthcare. Women noted how community paramedics connected them to outside resources (i.e., other experts, tangible goods), which aimed to support their holistic health and wellbeing. Conclusions Results demonstrate Project Swaddle helped women connect with other healthcare providers, including increased access to mental health services. The community paramedics were able to help women establish care with primary care providers and pediatricians, then facilitate communication with these providers. Women were supported through their early motherhood experience, received education on parenting and taking control of their health, and gained access to resources that met their diverse needs.

scholarly journals Women’s experiences of the Odon Device to assist vaginal birth and participation in intrapartum research: a qualitative study in a maternity unit in the Southwest of England

BMJ Open ◽  
2021 ◽  
Vol 11 (12) ◽  
pp. e057023
Author(s):  
Emily J Hotton ◽  
Natalie S Blencowe ◽  
Erik Lenguerrand ◽  
Tim J Draycott ◽  
Joanna F Crofts ◽  
...  
Keyword(s):  
Participant Observation ◽  
Case Study Research ◽  
Postnatal Period ◽  
Vaginal Birth ◽  
Maternity Unit ◽  
Women’S Experiences ◽  
Link Type ◽  
Women's Experiences ◽  
Registration Number

ObjectiveTo investigate women’s experiences of having a birth assisted by the Odon Device (an innovative device for assisted vaginal birth) and participation in intrapartum research.DesignQualitative semistructured interviews and observations undertaken in the context of case study work embedded in the ASSIST feasibility study.SettingA tertiary referral National Health Service (NHS) maternity unit in the Southwest of England, between 8 October 2018 and 26 January 2019.ParticipantsEight women, four operators and 11 midwives participated with eight observations of the assisted vaginal birth, eight interviews with women in the postnatal period, 39 interviews/reflections with operators and 19 interviews with midwives. Women in the case study research were recruited from participants in the main ASSIST Study.InterventionThe Odon Device, an innovative device for assisted vaginal birth.ResultsThirty-nine case studies were undertaken. Triangulation of data sources (participant observation, interviews with women, operators and midwives) enabled the exploration of women’s experiences of the Odon Device and recruitment in the intrapartum trial. Experiences were overwhelmingly positive. Women were motivated to take part by a wish for a kinder birth, and because they perceived both the recruitment and research processes (including observation) to be highly acceptable, regardless of whether the Odon-assisted birth was successful or not.ConclusionsInterviews and observations from multiple stakeholders enabled insight into women’s experiences of an innovative device for assisted vaginal birth. Applying these qualitative methods more broadly may illuminate perspectives of key stakeholders in future intrapartum intervention research and beyond.Trial registration numberISRCTN10203171; ASSIST Study registration; https://doi.org/10.1186/ISRCTN10203171.

scholarly journals Midwives’ Time and Presence: A Key Factor in Facilitating Breastfeeding Support for New Mothers

2014 ◽  
Vol 4 (4) ◽  
pp. 219-227 ◽  
Author(s):  
Danielle Gleeson ◽  
Karen Flowers ◽  
Jennifer Fenwick
Keyword(s):  
Postnatal Period ◽  
Early Postnatal Period ◽  
Negative Consequences ◽  
Breastfeeding Support ◽  
New Mothers ◽  
Data Set ◽  
Women’S Experiences ◽  
Women's Experiences ◽  
The Gift ◽  
Key Factor

BACKGROUND: There is now a plethora of work that has examined new mothers’ experiences of receiving breastfeeding support. However, there remains limited literature describing women’s experiences of receiving this support from midwives in the early postnatal period.AIM: The study aimed to explore and describe women’s experiences of receiving breastfeeding support from midwives in the early postnatal period.METHOD: A qualitative descriptive approach was used. Six first-time mothers who initiated breastfeeding after birth consented to be involved and participated in an in-depth interview. The techniques associated with dimensional analysis and constant comparison were used to analyze the data set.FINDINGS: Two categories were identified that described women’s experiences of midwifery breastfeeding support. These were related to the midwives’ ability to spend and give the gift of time to women. Alternatively, the midwife’s busyness and inability to be present for the woman was considered a barrier to receiving positive breastfeeding support and the woman’s ability to problem solve any breastfeeding issues.CONCLUSION: The findings of this study confirm both the importance of midwives spending time providing breastfeeding support and the negative consequences of a lack of time given for the provision of this support. Mothers have asked for midwives to be present; investing time in them, listening to them, and helping them solve problems. Current care models present barriers contributing to both the perceptions and realities of midwives’ lack of time, presenting a need to reconsider the design of maternity care environments and to adopt a caseload approach where women receive relationship-based care.

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