scholarly journals Caregiver-Assisted Pain Coping Skills Training for Patients With Dementia: A Pilot Study

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 290-290
Author(s):  
Laura Porter ◽  
Francis Keefe ◽  
Deborah Barnes ◽  
Lisa Gwyther ◽  
Kenneth Schmader ◽  
...  
Keyword(s):  
Coping Skills ◽  
Neuropsychiatric Symptoms ◽  
Brief Pain Inventory ◽  
Skills Training ◽  
Community Dwelling ◽  
Pain Coping ◽  
Care Clinic ◽  
Coping Skills Training ◽  
Moderate Dementia ◽  
Hispanic White

Abstract Pain is common and undertreated in patients with dementia, and contributes to disability, psychological distress, neuropsychiatric symptoms and caregiver stress. The goal of this study was to develop a caregiver-assisted pain coping skills training protocol tailored for community-dwelling adults with mild-moderate dementia and their family caregivers. We conducted interviews with patients and caregivers to develop the protocol. We then conducted a single arm pilot test of the intervention’s feasibility and acceptability. Patients were recruited from an outpatient memory care clinic and screened for pain using the validated Pain, Enjoyment, General Activity (PEG) scale. The intervention included five sessions of training in pain assessment, relaxation, pleasant activity scheduling, and integrative movement. Initially sessions were conducted in person or by videoconference according to the dyad’s preference; during COVID-19 (latter half of study) all sessions were conducted remotely. Eleven dyads consented and provided baseline data [patients: mean age=77.7 years (SD=4.8), 70% non-Hispanic white; caregivers: mean age=69.6 years (SD=13.3); 91% non-Hispanic white; 73% spouses]. Nine dyads (82%) completed all five sessions. Caregivers reported high levels of satisfaction with the intervention (mean=3.4 on 1-4 scale) and frequent use of pain coping skills (mean=3-4 days/week). On average, patients reported pre-post decreases in pain severity (mean=-1.2, SD=1.8) and pain interference (mean=-0.64, SD=0.67) on the Brief Pain Inventory. Overall these findings suggest that a behavioral pain coping intervention for patients with mild-moderate dementia and their caregivers is feasible, acceptable, and potentially helpful for managing pain.

Partnering to cope with pain: A pilot study of a caregiver-assisted pain coping skills intervention for patients with cognitive impairment and dementia

2021 ◽  
pp. 1-9
Author(s):  
Laura S. Porter ◽  
Debra K. Weiner ◽  
Katherine Ramos ◽  
Deborah E. Barnes ◽  
Kenneth E. Schmader ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Pilot Study ◽  
Coping Skills ◽  
Skills Training ◽  
Community Dwelling ◽  
Pain Coping ◽  
Post Intervention ◽  
Coping Skills Training ◽  
High Satisfaction ◽  
Intervention Content

Abstract Objective To develop a new caregiver-assisted pain coping skills training protocol specifically tailored for community-dwelling persons with cognitive impairment and pain, and assess its feasibility and acceptability. Method In Phase I, we conducted interviews with 10 patient–caregiver dyads to gather feedback about intervention content and delivery. Phase II was a single-arm pilot test to evaluate the intervention's feasibility and acceptability. Dyads in the pilot study (n = 11) completed baseline surveys, received five intervention sessions, and then completed post-intervention surveys. Analyses focused on feasibility and acceptability. Results Dyads responded positively to the pain coping skills presented in the interviews; their feedback was used to refine the intervention. Findings from the pilot study suggested that the intervention was feasible and acceptable. 69% of eligible dyads consented, 82% completed all five intervention sessions, and 100% completed the post-treatment assessment. Caregivers reported high satisfaction ratings. They also reported using the pain coping skills on a regular basis, and that they found most of the skills helpful and easy to use. Significance of results These preliminary findings suggest that a caregiver-assisted pain coping skills intervention is feasible and acceptable, and that it may be a promising approach to managing pain in patients with cognitive impairment.

Pain coping skills training in the management of osteoarthritic knee pain-II: Follow-up results

1990 ◽  
Vol 21 (4) ◽  
pp. 435-447 ◽  
Author(s):  
Francis J. Keefe ◽  
David S. Caldwell ◽  
David A. Williams ◽  
Karen M. Gil ◽  
David Mitchell ◽  
...  
Keyword(s):  
Knee Pain ◽  
Coping Skills ◽  
Skills Training ◽  
Pain Coping ◽  
Coping Skills Training ◽  
Osteoarthritic Knee

scholarly journals Pain coping skills training for African Americans with osteoarthritis

Pain ◽  
2019 ◽  
Vol 160 (6) ◽  
pp. 1297-1307 ◽  
Author(s):  
Kelli D. Allen ◽  
Tamara J. Somers ◽  
Lisa C. Campbell ◽  
Liubov Arbeeva ◽  
Cynthia J. Coffman ◽  
...  
Keyword(s):  
African Americans ◽  
Coping Skills ◽  
Skills Training ◽  
Pain Coping ◽  
Coping Skills Training

scholarly journals Caregiver-guided pain coping skills training for patients with advanced cancer: Background, design, and challenges for the CaringPals study

2019 ◽  
Vol 16 (3) ◽  
pp. 263-272 ◽  
Author(s):  
Laura S Porter ◽  
Gregory Samsa ◽  
Jennifer L Steel ◽  
Laura C Hanson ◽  
Thomas W LeBlanc ◽  
...  
Keyword(s):  
Psychological Distress ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Self Efficacy ◽  
Coping Skills ◽  
Skills Training ◽  
Training Intervention ◽  
Pain Coping ◽  
Coping Skills Training ◽  
Training Interventions

Background/Aims Pain is a major concern of patients with advanced cancer and their caregivers. There is strong evidence that pain coping skills training interventions based on cognitive-behavioral principles can reduce pain severity and pain interference. However, few such interventions have been tested for patients with advanced cancer and their family caregivers. This study aims to test the efficacy of a caregiver-guided pain coping skills training protocol on patient and caregiver outcomes. Methods A total of 214 patients age ≥18 with Stage III–Stage IV cancer and moderate to severe pain, along with their family caregivers, are being identified and randomized with a 1:1 allocation to the caregiver-guided pain coping skills training intervention or enhanced treatment-as-usual. Dyads in both conditions receive educational resources on pain management, and the caregiver-guided pain coping skills training intervention includes three weekly 60-min sessions conducted with the patient–caregiver dyad via videoconference. Measures of caregiver outcomes (self-efficacy for helping the patient manage pain, caregiver strain, caregiving satisfaction, psychological distress) and patient outcomes (self-efficacy for pain management, pain intensity and interference, psychological distress) are collected at baseline and post-intervention. Caregiver outcomes are also collected 3 and 6 months following the patient’s death. The study is enrolling patients from four tertiary care academic medical centers and one free-standing hospice and palliative care organization. The primary outcome is caregiver self-efficacy for helping the patient manage pain. Results This article describes challenges in the design and implementation of the CaringPals trial. Key issues for trial design include the identification and recruitment of patients with advanced cancer and pain, and the follow-up and collection of data from caregivers following the patient’s death. Conclusion The CaringPals trial addresses a gap in research in pain coping skills training interventions by addressing the unique needs of patients with advanced cancer and their caregivers. Findings from this study may lead to advances in the clinical care of patients with advanced cancer and pain, as well as a better understanding of the effects of training family caregivers to help patients cope with pain.

A qualitative study of patient and provider perspectives on using web-based pain coping skills training to treat persistent cancer pain

2017 ◽  
Vol 16 (2) ◽  
pp. 155-169 ◽  
Author(s):  
Christine Rini ◽  
Maihan B. Vu ◽  
Hannah Lerner ◽  
Catherine Bloom ◽  
Jessica Carda-Auten ◽  
...  
Keyword(s):  
Cancer Pain ◽  
Focus Groups ◽  
Bone Pain ◽  
Coping Skills ◽  
Clinical Care ◽  
Healthcare Providers ◽  
Skills Training ◽  
Pain Coping ◽  
Web Based ◽  
Coping Skills Training

AbstractObjective:Persistent pain is common and inadequately treated in cancer patients. Behavioral pain interventions are a recommended part of multimodal pain treatments, but they are underused in clinical care due to barriers such as a lack of the resources needed to deliver them in person and difficulties coordinating their use with clinical care. Pain coping skills training (PCST) is an evidence-based behavioral pain intervention traditionally delivered in person. Delivering this training via the web would increase access to it by addressing barriers that currently limit its use. We conducted a patient pilot study of an 8-week web-based PCST program to determine the acceptability of this approach to patients and the program features needed to meet their needs. Focus groups with healthcare providers identified strategies for coordinating the use of web-based PCST in clinical care.Method:Participants included 7 adults with bone pain due to multiple myeloma or metastasized breast or prostate cancer and 12 healthcare providers (4 physicians and 8 advanced practice providers) who treat cancer-related bone pain. Patients completed web-based PCST at home and then took part in an in-depth qualitative interview. Providers attended focus groups led by a trained moderator. Qualitative analyses identified themes in the patient and provider data.Results:Patients reported strongly favorable responses to web-based PCST and described emotional and physical benefits. They offered suggestions for adapting the approach to better fit their needs and to overcome barriers to completion. Focus groups indicated a need to familiarize healthcare providers with PCST and to address concerns about overburdening patients. Providers would recommend the program to patients they felt could benefit. They suggested applying a broad definition of cancer pain and having various types of providers help coordinate program its use with clinical care.Significance of results:Web-based PCST was acceptable to patients and providers. Our findings suggest that patients could benefit from this approach, especially if patient and provider barriers are addressed.

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