scholarly journals Aging With Intellectual and Developmental Disabilities: When Dementia Is Diagnosed or Suspected

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 433-433
Author(s):  
Phillip Clark ◽  
Kelly Munly
Keyword(s):  
Developmental Disabilities ◽  
Interprofessional Education ◽  
Virtual Community ◽  
Accurate Information ◽  
Intellectual And Developmental Disabilities ◽  
Healthcare Outcomes ◽  
Provider Education ◽  
Hub And Spoke ◽  
Community Healthcare ◽  
Health And Social Care

Abstract Individuals with lifelong intellectual and developmental disabilities (IDD) have unique needs associated with aging that pose challenges for them and their families. In particular, an increased likelihood for early onset Alzheimer’s disease is a major concern that can place individuals at risk for a host of biomedical, psychological, and social challenges. Faced with providers not trained in how to properly screen for, diagnose, and treat conditions, individuals and families are often left with inadequate care, services, and support. To address these concerns, education for professionals is essential in providing accurate information based on clinical best practices. This symposium presents an innovative and interprofessional model developed by a partnership of geriatrics and IDD educational and service organizations based on Project ECHO (Extension for Community Healthcare Outcomes) methodology. A virtual community is created in which participants both teach and learn from each other through a combination of didactic and case presentations. The first paper describes the ECHO model, including the development of the hub and spoke structure, recruitment of providers, and collaborative and multidisciplinary process of curriculum development. The second paper explores educational experiences of participating spoke agencies in the program, including professionals’ and clients’ outcomes. The third paper presents the implications of creating a foundation based on interprofessional education and networking principles to bridge the gap between health and social care disciplines and parallel service systems. The final paper provides recommendations and implications for developing and refining methods to address the need for provider education in this rapidly expanding field.

scholarly journals Developing a New Model of Interprofessional Education in Aging and IDD

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 226-226
Author(s):  
Faith Helm ◽  
Edward Ansello ◽  
Phillip Clark
Keyword(s):  
Interprofessional Education ◽  
Virtual Community ◽  
Team Approach ◽  
Healthcare Outcomes ◽  
Care Providers ◽  
Community Healthcare ◽  
Complex Needs ◽  
Project Echo ◽  
Virtual Community Of Practice ◽  
Health And Social Care

Abstract Health and social care providers are ill-equipped to address the complex needs of individuals growing older with IDD and their families when dementia is suspected or diagnosed. Addressing the growing need for professionals to acquire practical diagnostic, treatment, and management methods requires an interorganizational and interprofessional approach. A consortium of aging and IDD organizations developed a successful Project ECHO (Extension for Community Healthcare Outcomes) model to create a virtual community of practice connecting a hub team and participating spoke sites. This paper reviews reasons for the model’s success, including: (1) curriculum providing practical solutions to complex problems, (2) integration of interprofessional team approach, (3) “all teach, all learn” model promoting sharing among participants, and (4) the inclusion of case studies engaging participants in developing solutions and strategies to improve the quality of life of clients and families. Implications of this model and recommendations for future professional educational programs are presented.

Humanising health and social care support for people with intellectual and developmental disabilities: Protocol for a scoping review (Preprint)

2021 ◽  
Author(s):  
Madison Milne-Ives ◽  
Rohit Shankar ◽  
Daniel Goodley ◽  
Kristen Lamb ◽  
Richard Laugharne ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Scoping Review ◽  
Social Care ◽  
Care Practice ◽  
Intellectual And Developmental Disabilities ◽  
Eligibility Criteria ◽  
Health And Social Care ◽  
Scoping Reviews ◽  
Care Practices ◽  
Improve Health

BACKGROUND Healthcare is shifting towards a more person-centred model, however, people with intellectual and developmental disabilities can still experience difficulties in accessing equitable healthcare. Given these difficulties, it is important to consider how principles such as empathy and respect can be best incorporated into health and social care practices for people with intellectual and developmental disabilities, to ensure they are receiving humanising and equitable treatment and support. OBJECTIVE The purpose of this scoping review is to provide an overview of the current research landscape and knowledge gaps regarding the development and implementation of interventions based on humanising principles that aim to improve health and social care practices for people with intellectual and developmental disabilities. METHODS The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) and Population, Intervention, Comparator, Outcome, and Study (PICOS) frameworks will be used to structure the review. Six databases (PubMed, MEDLINE, Embase, CINAHL, PsycInfo, and Web of Science) will be searched for articles published in English in the previous 10 years that describe or evaluate health and social care practice interventions under-pinned by humanising principles of empathy, compassion, dignity, and respect. Two reviewers will collaboratively screen and select references based on the eligibility criteria and extract the data into a predetermined form. A descriptive analysis will be conducted to summarise the results and provide an overview of interventions in three main care areas: health care, social care, and informal social support. RESULTS Results will be included in the scoping review, which will be submitted for publication by December 2021. CONCLUSIONS This scoping review will summarize the state of the field of interventions that are using humanising principles to improve health and social care for adults with intellectual and developmental disabilities.

scholarly journals Mental healthcare and service user impact of the COVID-19 pandemic: results of a UK survey of staff working with people with intellectual disability and developmental disorders

2020 ◽  
Author(s):  
Rory Sheehan ◽  
Christian Dalton-Locke ◽  
Afia Ali ◽  
Vasiliki Totsika ◽  
Norha Vera San Juan ◽  
...  
Keyword(s):  
Mental Health ◽  
Developmental Disabilities ◽  
Mental Health Services ◽  
Health Services ◽  
Service User ◽  
Mental Healthcare ◽  
Free Text ◽  
Intellectual And Developmental Disabilities ◽  
Health And Social Care ◽  
The Impact

Background Very little is known about the impact of previous epidemics on the care of people with intellectual and developmental disabilities, particularly in terms of mental health services. The COVID-19 pandemic has the potential to exacerbate existing health inequalities as well as expose gaps in service provision for this vulnerable population group. Methods We investigated the responses of 648 staff working in mental healthcare with people with intellectual disabilities and/or developmental disabilities. Participants contributed to a UK-wide online survey undertaken by the National Institute for Health Research Mental Health Policy Research Unit between 22nd April and 12th May 2020. Recruitment was via professional networks, social media and third sector organisations. Quantitative data describing staff experience over three domains (challenges at work, service user and carer problems, sources of help at work) were summarised and differences between groups explored using Chi square tests. Content analysis was used to organise qualitative data focusing on service changes in response to the pandemic. Results The majority of survey respondents worked in the NHS and in community mental health services. One third had managerial responsibility. Major concerns expressed by mental healthcare staff were: difficulties for service users due to lack of access to usual support networks and health and social care services during the pandemic; and difficulties maintaining adequate levels of support secondary to increased service user need. Staff reported having to quickly adopt new digital ways of working was challenging; nevertheless, free text responses identified remote working as the innovation that staff would most like to retain after the pandemic subsides. Conclusions Understanding the experiences of staff working across different settings in mental healthcare for people with intellectual and developmental disabilities during the COVID-19 pandemic is essential in guiding contingency planning and fostering service developments to ensure the health of this vulnerable group is protected in any future disease outbreaks.

Looking across health and healthcare outcomes for people with intellectual and developmental disabilities and psychiatric disorders: population-based longitudinal study

2020 ◽  
Vol 218 (1) ◽  
pp. 51-57
Author(s):  
Elizabeth Lin ◽  
Robert Balogh ◽  
Hannah Chung ◽  
Kristin Dobranowski ◽  
Anna Durbin ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Psychiatric Disorders ◽  
Long Term Care ◽  
Premature Mortality ◽  
System Level ◽  
Intellectual And Developmental Disabilities ◽  
Healthcare Outcomes ◽  
Term Care ◽  
Delayed Discharge

BackgroundIntellectual and developmental disabilities (IDDs) and psychiatric disorders frequently co-occur. Although each has been associated with negative outcomes, their combined effect has rarely been studied.AimsTo examine the likelihood of five negative health and healthcare outcomes for adults with IDD and mental health/addiction disorders (MHAs), both separately and together. For each outcome, demographic, clinical and system-level factors were also examined.MethodLinked administrative data-sets were used to identify adults in Ontario, Canada, with IDD and MHA (n = 29 476), IDD-only (n = 35 223) and MHA-only (n = 727 591). Five outcomes (30-day readmission, 30-day repeat ED visit, delayed discharge, long-term care admission and premature mortality) were examined by logistic regression models with generalised estimating equation or survival analyses. For each outcome, crude (disorder groups only) and complete (adding biosocial covariates) models were run using a general population reference group.ResultsThe IDD and MHA group had the highest proportions across outcomes for both crude and complete models. They had the highest adjusted ratios for readmissions (aOR 1.93, 95%CI 1.88–1.99), repeat ED visit (aOR 2.00, 95%CI 1.98–2.02) and long-term care admission (aHR 12.19, 95%CI 10.84–13.71). For delayed discharge, the IDD and MHA and IDD-only groups had similar results (aOR 2.00 (95%CI 1.90–2.11) and 2.21 (95%CI 2.07–2.36). For premature mortality, the adjusted ratios were similar for all groups.ConclusionsPoorer outcomes for adults with IDD, particularly those with MHA, suggest a need for a comprehensive, system-wide approach spanning health, disability and social support.

scholarly journals Aging With Intellectual and Developmental Disabilities: A Critical Examination of Supports for Healthy Aging

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 225-226
Author(s):  
Lieke van Heumen ◽  
Kelly Munly ◽  
Patricia Heyn
Keyword(s):  
Older Adults ◽  
Developmental Disabilities ◽  
Interprofessional Education ◽  
Healthy Aging ◽  
Population Aging ◽  
Well Being ◽  
Critical Examination ◽  
Intellectual And Developmental Disabilities ◽  
New Normal ◽  
Age Related

Abstract The number of older adults with intellectual and developmental disabilities (IDD) in the U.S. is expected to double and potentially triple by 2030. Despite this demographic urgency, there continues to be a lack of research directly addressing aging of people with IDD. Individuals with IDD have on average twice as many health problems than others without IDD, experience earlier age-related declines in health and function than the general population and are more likely to develop secondary conditions as they age. The increase in the number of people aging with IDD and the challenges experienced by this population have demanded new directions for research, practice and policy that promote social justice and improve this population’s health and well-being. This symposium brings together research that critically examines and calls for a “new normal” of supports for healthy aging provided to the population aging with IDD. The first presentation consists of a systematic review of healthy aging interventions for adults with IDD. The authors conclude that such interventions for adults with IDD remain scarce, incipient and sporadic. The second presentation critically reviews an interprofessional education model aimed to address the complex and unique needs of older adults with IDD and dementia. The authors provide recommendations for the future development of interprofessional education in this field. In the third and final presentation the authors offer further transformation toward a new normal as they outline future directions for research on aging with IDD that is informed by positive psychology and disability studies theory.

What Matters in Population Health and How We Count It Among People With Intellectual and Developmental Disabilities

2019 ◽  
Vol 57 (5) ◽  
pp. 347-356 ◽  
Author(s):  
Susan M. Havercamp ◽  
Gloria L. Krahn
Keyword(s):  
Public Health ◽  
Developmental Disabilities ◽  
Population Health ◽  
The United States ◽  
Health Data ◽  
Health Surveillance ◽  
Accurate Information ◽  
Intellectual And Developmental Disabilities ◽  
Methodological Issues ◽  
What Matters

Abstract This issue, On Counting What Matters: Finding Adults With Intellectual and Developmental Disabilities in Population Health Data, presents an overview of health surveillance research for people with intellectual and developmental disabilities (IDD) in the United States. Although public health now conducts surveillance of people with disabilities broadly defined and compares their health status with that of individuals without disabilities, there are many challenges in conducting health surveillance of people with IDD. Difficulties include how to define cases, how to find cases, and how to obtain accurate information (Krahn, Fox, Campbell, Ramon, & Jesien, 2010). This issue will present critical conceptual and methodological issues, including recent prevalence and population health analyses, along with proposals that can lead to more equitable health and improved health surveillance for people with IDD.

scholarly journals Feasibility, acceptability, and sustainability of Project ECHO to expand capacity for pediatricians in Vietnam

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Le Hong Nhung ◽  
Vu Duy Kien ◽  
Nguyen Phuong Lan ◽  
Pham Viet Cuong ◽  
Pham Quoc Thanh ◽  
...  
Keyword(s):  
Medical Education ◽  
Continuing Medical Education ◽  
Underserved Populations ◽  
Healthcare Providers ◽  
Healthcare Outcomes ◽  
Hub And Spoke ◽  
Community Healthcare ◽  
Project Echo ◽  
The Impact ◽  
Depth Interviews

Abstract Background The Project Extension for Community Healthcare Outcomes (ECHO) model is considered a platform for academic medical centers to expand their healthcare workforce capacity to medically underserved populations. It has been known as an effective solution of continuing medical education (CME) for healthcare workers that used a hub-and-spoke model to leverage knowledge from specialists to primary healthcare providers in different regions. In this study, we aim to explore the views of healthcare providers and hospital leaders regarding the feasibility, acceptability, and sustainability of Project ECHO for pediatricians. Methods This qualitative study was conducted at the Vietnam National Children’s Hospital and its satellite hospitals from July to December 2020. We conducted 39 in-depth interviews with hospital managers and healthcare providers who participated in online Project ECHO courses. A thematic analysis approach was performed to extract the qualitative data from in-depth interviews. Results Project ECHO shows high feasibility when healthcare providers find motivated to improve their professional knowledge. Besides, they realized the advantages of saving time and money with online training. Although the courses had been covered fully by the Ministry of Health’s fund, the participants said they could pay fees or be supported by the hospital’s fund. In particular, the expectation of attaining the CME-credited certificates after completing the course also contributes to the sustainability of the program. Project ECHO’s online courses should be improved if the session was better monitored with suitable time arrangements. Conclusions Project ECHO model is highly feasible, acceptable, and sustainable as it brings great benefits to the healthcare providers, and is appropriate with the policy theme of continuing medical education of the Ministry of Health. We recommend that further studies should be conducted to assess the impact of the ECHO program, especially for patient and community outcomes.

scholarly journals Birley Place: a virtual community for the delivery of health and social care education

2021 ◽  
pp. bmjstel-2020-000849
Author(s):  
David J Wright ◽  
Leah Greene ◽  
Kirsten Jack ◽  
Eleanor Hannan ◽  
Claire Hamshire
Keyword(s):  
Interprofessional Education ◽  
Large Scale ◽  
Social Care ◽  
Physical Simulation ◽  
Virtual Community ◽  
Population Data ◽  
Virtual Simulation ◽  
Learning Activities ◽  
Novel Approach ◽  
Health And Social Care

Virtual simulation can provide high-quality learning experiences through innovative and engaging activities while also overcoming some of the constraints associated with physical simulation. We developed a virtual community, called Birley Place, to facilitate simulation-based learning activities. Adopting a novel approach, we modelled the virtual community on the large metropolitan city in which our institution is based. Publicly available health and population data were used to ensure that the homes, businesses and services in the community were representative of distinct socioeconomic areas of our city. The residents of the virtual community were also matched with the real-world areas based on health and lifestyle data. Our virtual community is used to facilitate learning activities across our health and social care degree programmes. In this article, we summarise how we developed Birley Place, before providing one example of how it is used to facilitate the delivery of a large-scale interprofessional education project. Birley Place is an innovative tool for delivering online and virtual simulation. The use of this virtual community facilitates learners’ understanding of the connection between settings and health status.

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