What Matters in Population Health and How We Count It Among People With Intellectual and Developmental Disabilities

2019 ◽  
Vol 57 (5) ◽  
pp. 347-356 ◽  
Author(s):  
Susan M. Havercamp ◽  
Gloria L. Krahn
Keyword(s):  
Public Health ◽  
Developmental Disabilities ◽  
Population Health ◽  
The United States ◽  
Health Data ◽  
Health Surveillance ◽  
Accurate Information ◽  
Intellectual And Developmental Disabilities ◽  
Methodological Issues ◽  
What Matters

Abstract This issue, On Counting What Matters: Finding Adults With Intellectual and Developmental Disabilities in Population Health Data, presents an overview of health surveillance research for people with intellectual and developmental disabilities (IDD) in the United States. Although public health now conducts surveillance of people with disabilities broadly defined and compares their health status with that of individuals without disabilities, there are many challenges in conducting health surveillance of people with IDD. Difficulties include how to define cases, how to find cases, and how to obtain accurate information (Krahn, Fox, Campbell, Ramon, & Jesien, 2010). This issue will present critical conceptual and methodological issues, including recent prevalence and population health analyses, along with proposals that can lead to more equitable health and improved health surveillance for people with IDD.

Disaggregation of Latina/o Child and Adult Health Data: A Systematic Review of Public Health Surveillance Surveys in the United States

2021 ◽  
Vol 40 (1) ◽  
pp. 61-79
Author(s):  
Carmela Alcántara ◽  
Shakira F. Suglia ◽  
Irene Perez Ibarra ◽  
A. Louise Falzon ◽  
Elliot McCullough ◽  
...  
Keyword(s):  
Public Health ◽  
United States ◽  
Systematic Review ◽  
Public Health Surveillance ◽  
The United States ◽  
Health Data ◽  
Health Surveillance ◽  
Adult Health

scholarly journals Dual MD–MPH Degree Students in the United States: Moving the Medical Workforce Toward Population Health

2021 ◽  
pp. 003335492097842
Author(s):  
Jo Marie Reilly ◽  
Christine M. Plepys ◽  
Michael R. Cousineau
Keyword(s):  
Public Health ◽  
United States ◽  
Population Health ◽  
Health Care Policy ◽  
The United States ◽  
Extensive Literature ◽  
Master Of Public Health ◽  
Telephone Interviews ◽  
Public Health Training ◽  
The Impact

Objective A growing need exists to train physicians in population health to meet the increasing need and demand for physicians with leadership, health data management/metrics, and epidemiology skills to better serve the health of the community. This study examines current trends in students pursuing a dual doctor of medicine (MD)–master of public health (MPH) degree (MD–MPH) in the United States. Methods We conducted an extensive literature review of existing MD–MPH databases to determine characteristics (eg, sex, race/ethnicity, MPH area of study) of this student cohort in 2019. We examined a trend in the MD community to pursue an MPH career, adding additional public health and health care policy training to the MD workforce. We conducted targeted telephone interviews with 20 admissions personnel and faculty at schools offering MD–MPH degrees in the United States with the highest number of matriculants and graduates. Interviews focused on curricula trends in medical schools that offer an MD–MPH degree. Results No literature describes the US MD–MPH cohort, and available MD–MPH databases are limited and incomplete. We found a 434% increase in the number of students pursuing an MD–MPH degree from 2010 to 2018. The rate of growth was greater than the increase in either the number of medical students (16%) or the number of MPH students (65%) alone. Moreover, MD–MPH students as a percentage of total MPH students more than tripled, from 1.1% in 2010 to 3.6% in 2018. Conclusions As more MD students pursue public health training, the impact of an MPH degree on medical school curricula, MD–MPH graduates, and MD–MPH career pursuits should be studied using accurate and comprehensive databases.

Transition to Adulthood: Perspectives of Korean Immigrant Parents of Individuals With Intellectual and Developmental Disabilities

2021 ◽  
pp. 216514342110434
Author(s):  
Irang Kim ◽  
Sarah Dababnah
Keyword(s):  
Developmental Disabilities ◽  
Transition To Adulthood ◽  
Culturally Responsive ◽  
Ethnically Diverse ◽  
The United States ◽  
Immigrant Parents ◽  
Intellectual And Developmental Disabilities ◽  
Korean Immigrant ◽  
Culturally Responsive Practice ◽  
Korean Immigrant Parents

As the United States grows more racially and ethnically diverse, Koreans have become one of the largest ethnic minority populations. We conducted this qualitative study to explore the perspectives of Korean immigrant parents about their child’s future and the factors that shape those perspectives. We used modified grounded theory methods. Twenty Korean immigrant parents of children and adults with intellectual and developmental disabilities participated in the study. Four themes emerged: navigating complicated and limited service systems, maintaining safety and relationships through work and higher education, ongoing parental care at home, and the need for culturally relevant adult services. We discuss implications for culturally responsive practice and inclusive research.

Structural Transphobia, Homophobia, and Biphobia in Public Health Practice: The Example of COVID-19 Surveillance

2021 ◽  
pp. e1-e7
Author(s):  
Randall L. Sell ◽  
Elise I. Krims
Keyword(s):  
Public Health ◽  
United States ◽  
Race And Ethnicity ◽  
Public Health Surveillance ◽  
Public Health Practice ◽  
The United States ◽  
Health Surveillance ◽  
Essential Information ◽  
And Gender ◽  
Public Health Surveillance System

Public health surveillance can have profound impacts on the health of populations, with COVID-19 surveillance offering an illuminating example. Surveillance surrounding COVID-19 testing, confirmed cases, and deaths has provided essential information to public health professionals about how to minimize morbidity and mortality. In the United States, surveillance has also pointed out how populations, on the basis of geography, age, and race and ethnicity, are being impacted disproportionately, allowing targeted intervention and evaluation. However, COVID-19 surveillance has also highlighted how the public health surveillance system fails some communities, including sexual and gender minorities. This failure has come about because of the haphazard and disorganized way disease reporting data are collected, analyzed, and reported in the United States, and the structural homophobia, transphobia, and biphobia acting within these systems. We provide recommendations for addressing these concerns after examining experiences collecting race data in COVID-19 surveillance and attempts in Pennsylvania and California to incorporate sexual orientation and gender identity variables into their pandemic surveillance efforts. (Am J Public Health. Published online ahead of print June 10, 2021: e1–e7. https://doi.org/10.2105/AJPH.2021.3062727 )

Participatory, art-based appreciative inquiry with artists labelled/with intellectual and developmental disabilities

2021 ◽  
Vol 00 (00) ◽  
pp. 1-17
Author(s):  
Sara Miller
Keyword(s):  
Developmental Disabilities ◽  
Appreciative Inquiry ◽  
The United States ◽  
Intellectual And Developmental Disabilities ◽  
Community Based ◽  
Participatory Art ◽  
The Future ◽  
Online Methods ◽  
And Control ◽  
Community Access

People labelled/with intellectual and developmental disabilities (IDD) participate in community-based studio programming across the United States, yet their experiences and preferences for studio programming are not well known. The goal of this research was to learn what artists in a community-based studio think is important about their studio and what they want to change in the future. Using art-based appreciative inquiry and online methods, the artists were prompted to talk and create artwork about ‘what is most important’ in the studio and ‘what we want for the future’. The artists reported that the most important aspects of the studio are the staff and their friends at the studio and the opportunity to make art that is motivated by their interests. The wishes expressed by the artists included increased opportunities to be social, to make more money, to have more community access and more choice and control in the studio.

Overview: The Accelerating Movement of Partnerships for Health

2019 ◽  
pp. 3-6
Author(s):  
J. Lloyd Michener ◽  
Brian C. Castrucci ◽  
Don W. Bradley ◽  
Edward L. Hunter ◽  
Craig W. Thomas
Keyword(s):  
Public Health ◽  
United States ◽  
Primary Care ◽  
Population Health ◽  
The United States ◽  
Improve Population Health ◽  
Second Development ◽  
Working Together ◽  
General Desire

Chapter 1 provides an introduction to the history and background to a general desire to try to find ways to improve population health through primary care and public health. The first Practical Playbook derived from an internet-based initiative that sought to find, assemble, assess, and share stories of how communities and agencies across the United States were working together to improve health. This text is the second development from that, after the realization that a completely new text was needed that would build on the experiences of the broadening array of sites and sectors and provide a concise set of tools, methods, and examples that support multi-sector partnerships to improve population health. The chapter then outlines the coverage of the rest of the chapters.

scholarly journals Accountable Care Organizations and Clinical Commissioning Groups face an uncertain challenge for improving public health

2012 ◽  
Vol 1 (2) ◽  
pp. 16
Author(s):  
Douglas J. Noble
Keyword(s):  
Public Health ◽  
Health Services ◽  
Population Health ◽  
The United States ◽  
Accountable Care Organizations ◽  
Health Needs ◽  
Local Health ◽  
Accountable Care ◽  
The Usa ◽  
The Uk

<p>Accountable Care Organizations (ACO) in the United States of America (USA) and Clinical Commissioning Groups (CCG) in the United Kingdom (UK) are new proposed organizations in health services both tasked with a role which includes improving public health.  Although there are very significant differences between the UK and USA health systems there appears to be a similar confusion as to how ACO and CCG will regard and address public or population health.  The role of ACO in improving population health and evaluating the health needs of their registered and insured patients remains ill-defined and poorly explored.  Likewise, in the current UK National Health Service (NHS) reorganisation, control and commissioning of appropriate local health services are passing from Primary Care Trusts (PCT) to new cross-organizational structures (CCG).  CCG groups aim to be, like ACO, physician led.  They will also assume a role for public or population health, but this role, like that of the newly-forming ACO, is currently unclear.  Lessons learned from the USA and UK experience of new organizations tasked with a role in improving public health may inform mechanisms for physician led organizations in the UK and the USA to assess health needs, monitor population health information and improve population health outcomes.</p>

Public health nurses’ workforce factors and population health outcomes in the United States

2020 ◽  
Vol 37 (6) ◽  
pp. 829-836
Author(s):  
Seok Hyun Gwon ◽  
Young Ik Cho ◽  
Soonhwa Paek ◽  
Weiming Ke
Keyword(s):  
Public Health ◽  
United States ◽  
Health Outcomes ◽  
Population Health ◽  
The United States ◽  
Public Health Nurses

scholarly journals Collection of Data on Race, Ethnicity, Language, and Nativity by US Public Health Surveillance and Monitoring Systems: Gaps and Opportunities

2017 ◽  
Vol 133 (1) ◽  
pp. 45-54 ◽  
Author(s):  
Alfonso Rodriguez-Lainz ◽  
Mariana McDonald ◽  
Maureen Fonseca-Ford ◽  
Ana Penman-Aguilar ◽  
Stephen H. Waterman ◽  
...  
Keyword(s):  
Public Health ◽  
United States ◽  
Data Collection ◽  
Public Health Surveillance ◽  
The United States ◽  
Health Surveillance ◽  
Monitoring Systems ◽  
Primary Language ◽  
Use Of Data ◽  
Race Ethnicity

Objective: Despite increasing diversity in the US population, substantial gaps in collecting data on race, ethnicity, primary language, and nativity indicators persist in public health surveillance and monitoring systems. In addition, few systems provide questionnaires in foreign languages for inclusion of non-English speakers. We assessed (1) the extent of data collected on race, ethnicity, primary language, and nativity indicators (ie, place of birth, immigration status, and years in the United States) and (2) the use of data-collection instruments in non-English languages among Centers for Disease Control and Prevention (CDC)–supported public health surveillance and monitoring systems in the United States. Methods: We identified CDC-supported surveillance and health monitoring systems in place from 2010 through 2013 by searching CDC websites and other federal websites. For each system, we assessed its website, documentation, and publications for evidence of the variables of interest and use of data-collection instruments in non-English languages. We requested missing information from CDC program officials, as needed. Results: Of 125 data systems, 100 (80%) collected data on race and ethnicity, 2 more collected data on ethnicity but not race, 26 (21%) collected data on racial/ethnic subcategories, 40 (32%) collected data on place of birth, 21 (17%) collected data on years in the United States, 14 (11%) collected data on immigration status, 13 (10%) collected data on primary language, and 29 (23%) used non-English data-collection instruments. Population-based surveys and disease registries more often collected data on detailed variables than did case-based, administrative, and multiple-source systems. Conclusions: More complete and accurate data on race, ethnicity, primary language, and nativity can improve the quality, representativeness, and usefulness of public health surveillance and monitoring systems to plan and evaluate targeted public health interventions to eliminate health disparities.

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