scholarly journals Disaster Caregiving: Caregivers Negotiating Storms and COVID-19 for Veterans and Non-Veterans on the Gulf Coast

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 450-450
Author(s):  
Nathan Boucher ◽  
Kevin McKenna ◽  
Carrie Dombeck ◽  
Amy Clark ◽  
Ke Wang ◽  
...  
Keyword(s):  
Gulf Coast ◽  
Emergency Planning ◽  
Psychological Effects ◽  
Health Needs ◽  
Support Programs ◽  
Emotional Impact ◽  
Access To Information ◽  
Caregiver Support ◽  
Access To Health ◽  
Special Health

Abstract Natural disasters and COVID-19 likely add complexity to caregiving efforts, yet little is known about these effects. We will discuss our findings exploring additional needs and challenges experienced by caregivers during hurricanes, floods, and COVID focused on US Gulf Coast states. We interviewed caregivers of both Veterans (n=13) and non-Veterans (n=11). The presentation will include an overview of 1) types of resources needed or used related to storms and to COVID, including social support and access to information for both emergency planning and recovery; 2) caregiver experience before, during, and after the disaster including psychological effects on caregivers and addressing special health needs; 3) comparisons of challenges during storms versus COVID including emotional impact and access to health and specialty care; and 4) additional resources used by caregivers of Veterans. We will also address how these data are informing national caregiver support programs.

scholarly journals Family challenges experienced in the care of children with special health needs

2018 ◽  
Vol 5 (2) ◽  
Author(s):  
Sandra Beatriz Pedra Branca Dourado ◽  
Maria Liamara Alves Da Silva ◽  
Samara E Silva Gomes ◽  
Suely Martins Da Silva ◽  
Danieli Maria Matias Coêlho ◽  
...  
Keyword(s):  
Health Needs ◽  
Special Health

scholarly journals Conhecimento prévio de cuidadoras de crianças com necessidades especiais de saúde: uma abordagem freiriana / Previous knowledge of caregivers for children with special health needs: a freirian approach

2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Valéria Regina Gais Severo ◽  
Raissa Passos dos Santos ◽  
Eliane Tatsch Neves ◽  
Caroline Felix Ribeiro
Keyword(s):  
Paulo Freire ◽  
Health Needs ◽  
Previous Knowledge ◽  
Special Health

Objetivo: o objetivo deste estudo foi descrever o conhecimento prévio de cuidadoras de crianças com necessidades especiais de saúde sobre os cuidados com seus filhos. Métodos: utilizou-se a Pesquisa Convergente Assistencial para a produção de dados por meio de observação participante e entrevistas antes e após a realização da prática de educação em saúde com as participantes. Participaram do estudo cinco mães cuidadoras de crianças com necessidades especiais de saúde, hospitalizadas num hospital escola do sul do país. As necessidades especiais apresentadas pelas crianças incluíram uso de sonda de gastrostomia, insulina e sonda nasogástrica. Utilizou-se o referencial de empoderamento e educação libertadora de Paulo Freire como condutor da análise dos dados. Resultados: as cuidadoras destas crianças possuem um conhecimento prévio oriundo, especialmente, de observações da realização de cuidados com seus filhos durante a hospitalização. Esses conhecimentos devem ser considerados para a realização da prática da educação em saúde pautada em relação dialógica de troca com o usuário. Conclusão: sugere-se a elaboração de um plano de cuidados singular e coerente com a realidade das crianças com necessidades especiais de saúde, contribuindo para a qualidade do cuidado dessas crianças.

Nutrition Care for Children with Special Health Needs: A Chart Review

1993 ◽  
Vol 10 (3) ◽  
pp. 177-182
Author(s):  
Mary Lee ◽  
Rebecca Freeman ◽  
Josephine Cialone ◽  
Lee Lichtenwalter
Keyword(s):  
Chart Review ◽  
Health Needs ◽  
Nutrition Care ◽  
Special Health

Phenomenon of Autism in the Prospect of Cultural Anthropology

2018 ◽  
Vol 7 (3) ◽  
pp. 33-38 ◽  
Author(s):  
Елена Викторук ◽  
Elena Viktoruk ◽  
А. Гох ◽  
A. Goh ◽  
В. Минеев ◽  
...  
Keyword(s):  
Cultural Anthropology ◽  
Participant Observation ◽  
Management Strategies ◽  
Health Needs ◽  
Primary Data ◽  
World Population ◽  
The People ◽  
The Social ◽  
Special Health ◽  
Autistic Community

The entity of people with special health needs (SHN), in particular with disorders of the autistic spectrum becomes an important socio-cultural subsystem. This subsystem covers not only persons with SHN, but also their environment. The implementation of the correctional system is a disadvantage, in comparison with the inclusive model in which people with SHN are integrated into society. The problem for the solution of which the authors’ efforts are made is that, for the present, the considerable part of the world population is not ready to accept the autistic community as a real agent of the social planning, which fulfills its own management strategies. Researchers of autism quite often ignore a position of the most autistic community on this or that question. The purpose of this article consists in search of approaches to creation of a conceptual model of autism and autistic community, which could form the reliable basis for development of the social technologies promoting a full integration of the people with special health needs into society. Mainly theoretical methods of research are used: logical analysis, elements of the structural-functional analysis, comparative analysis, and also axiological approach. At the same time, an attempt to generalize a primary data obtained by empirical methods, such as observation, participant observation, questioning, the content analysis, interview is made. It is shown that for the stated goal to be achieved it is fruitful to consider a phenomenon of autism in the prospect of cultural anthropology. The concept of autistic culture is clarified and its relevance for study of autism and autistic community is substantiated. Some features of autistic culture are revealed. The discussion showed that many criteria of autism can be fully understood from the cultural-anthropological standpoint. The proposed approach meets the principles of post-non-classical rationality and allows to mitigate the social-biological dilemma. The results obtained can form a methodological-and-world-outlook basis for investigations in the fields of pedagogics, psychology, culturology.

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