scholarly journals Transcending Inequities in Dementia Care in Black Communities: Lessons From the MIND Care Coordination Program

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 518-519
Author(s):  
Danetta Sloan ◽  
Deirdre Johnston ◽  
Chanee Fabius ◽  
Inga Antonsdottir ◽  
Morgan Spliedt ◽  
...  

Abstract Resolution of ongoing inequities in dementia care requires careful examination of how care is delivered to ensure we are aware of, and meeting needs for all people affected, especially those most vulnerable and in under-resourced communities. Maximizing Independence at Home (MIND) is a multicomponent, home-based dementia care program designed to provide high quality, wholistic care coordination for to persons and families living with dementia. Program goals are to delay transition from home, improve life quality, and reduce unmet care needs. We completed three focus groups (n = 25) with Black (e.g., African American) dementia caregivers who received the intervention to understand (1) the unique dementia related needs of Black dementia caregivers and barriers and challenges to caregiving experienced within the Black community , (2) perceived benefits of MIND, and (3) ways to improve the MIND intervention. Participants noted three overarching themes related to needs and challenges in dementia care in the Black community: difficulty finding and accessing dementia information, help, and related services; familial conflict/lack of sibling and familial support; and lack of effective communication about dementia within Black Communities. Regarding benefits of the program, four themes emerged including that the program helped find resources (formal and informal); provided caregivers an opportunity for socialization and interaction; included comprehensive assessments and helpful linked information; and resulted in a “much needed break.” Increased diversity of MIND personnel and greater clarity and consistency in MIND program promotion and communications were themes for how the program could be improved.

2017 ◽  
Vol 20 (4) ◽  
pp. 123-134 ◽  
Author(s):  
Quincy M Samus ◽  
Karen Davis ◽  
Amber Willink ◽  
Betty S Black ◽  
Melissa Reuland ◽  
...  

Introduction Despite availability of effective care strategies for dementia, most health care systems are not yet organized or equipped to provide comprehensive family-centered dementia care management. Maximizing Independence at Home-Plus is a promising new model of dementia care coordination being tested in the U.S. through a Health Care Innovation Award funded by the Centers for Medicare and Medicaid Services that may serve as a model to address these delivery gaps, improve outcomes, and lower costs. This report provides an overview of the Health Care Innovation Award aims, study design, and methodology. Methods This is a prospective, quasi-experimental intervention study of 342 community-living Medicare–Medicaid dual eligibles and Medicare-only beneficiaries with dementia in Maryland. Primary analyses will assess the impact of Maximizing Independence at Home-Plus on risk of nursing home long-term care placement, hospitalization, and health care expenditures (Medicare, Medicaid) at 12, 18 (primary end point), and 24 months, compared to a propensity-matched comparison group. Discussion The goals of the Maximizing Independence at Home-Plus model are to improve care coordination, ability to remain at home, and life quality for participants and caregivers, while reducing total costs of care for this vulnerable population. This Health Care Innovation Award project will provide timely information on the impact of Maximizing Independence at Home-Plus care coordination model on a variety of outcomes including effects on Medicaid and Medicare expenditures and service utilization. Participant characteristic data, cost savings, and program delivery costs will be analyzed to develop a risk-adjusted payment model to encourage sustainability and facilitate spread.


This book examines the entrepreneurial experiences of and contributions by African American entrepreneurs in Chicago. Through a careful examination of black business activity in areas such as finance, media, and the underground economy known as “Policy,” this work illuminates the manner in which blacks in Chicago built a network of competing and cooperative enterprises and a culture of entrepreneurship unique to the city. This network lay at the center of black business development in Chicago as it allowed blacks there greater opportunity to fund and build businesses reliant on other blacks rather than those whose interests lay outside the black community. Further, it examines how blacks’ business enterprises challenged and changed the economic and political culture of the city to help fashion black communities on Chicago’s South and West sides. For much of the 20th century, Chicago was considered the single best demonstration of blacks’ entrepreneurial potential. From the time the city was founded by black entrepreneur Jean Baptiste DuSable and throughout the 20th century, business enterprises have been part black community life. From DuSable through black business titans like John H. Johnson, Oprah Winfrey, and Anthony Overton black entrepreneurs called the city home and built their empires there. How they did so and the impact of their success (and failure) is a key theme within this book. Additionally, this work analyzes how blacks in Chicago built their enterprises at the same time grappling with the major cultural, political, and economic shifts in America in the 19th and 20th century.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S794-S795
Author(s):  
Quincy M Samus ◽  
Joseph E Gaugler ◽  
George W Rebok

Abstract The public health implications of Alzheimer’s disease or related dementias (ADRDs) are significant and have placed considerable pressure on the U.S. healthcare system. Training and mobilizing a critical mass of volunteers to address unmet dementia care needs may be a potent, scalable, and cost efficient approach to address gaps in dementia care and to support family caregivers. Further, by engaging older volunteers to do this work and remain in productive and impactful post-retirement roles, additive population health benefits may be possible. This session will focus on ways we might harness the power of senior volunteers to meet the public health challenges associated with ADRD. Presentations will draw from three innovative community-based projects that utilize senior volunteers to support and enhance health in aging and dementia care. Dr. Carlson will provide an update on the evaluation and scaling Experience Corps, an intergenerational program that engages senior volunteers to work in elementary schools. Dr. Gaugler will discuss the Porchlight Project, a new multicomponent training approach for senior volunteers in Minnesota to enhance dementia care capabilities and support to underserved older persons. Dr. Samus will introduce the MEMORI Corps program, a novel activity-based companion care program for home-residing persons with ADRD delivered by trained senior volunteers. Given the current and impending shortages in the geriatric work force and family caregivers, respectively, innovative and readily available long term service and support options are needed to offset potential care gaps. The current session proposes the novel incorporation of volunteers as one solution to do so.


Author(s):  
Hillary E. Swann-Thomsen ◽  
Jared Vineyard ◽  
John Hanks ◽  
Rylon Hofacer ◽  
Claire Sitts ◽  
...  

PURPOSE: The goal of this study was to evaluate the performance of a pediatric stratification tool that incorporates health and non-medical determinants to identify children and youth with special health care needs (CYSHCN) patients according to increasing levels of complexity and compare this method to existing tools for pediatric populations. METHODS: This retrospective cohort study examined pediatric patients aged 0 to 21 years who received care at our institution between 2012 and 2015. We used the St. Luke’s Children’s Acuity Tool (SLCAT) to evaluate mean differences in dollars billed, number of encounters, and number of problems on the problem list and compared the SLCAT to the Pediatric Chronic Conditions Classification System version2 (CCCv2). RESULTS: Results indicate that the SLCAT assigned pediatric patients into levels reflective of resource utilization and found that children with highly complex chronic conditions had significantly higher utilization than those with mild and/or moderate complex conditions. The SLCAT found 515 patients not identified by the CCCv2. Nearly half of those patients had a mental/behavioral health diagnosis. CONCLUSIONS: The findings of this study provide evidence that a tiered classification model that incorporates all aspects of a child’s care may result in more accurate identification of CYSHCN. This would allow for primary care provider and care coordination teams to match patients and families with the appropriate amount and type of care coordination services.


2015 ◽  
Vol 35 (3) ◽  
pp. 62-68 ◽  
Author(s):  
Margaret M. Ecklund ◽  
Jill W. Bloss

With changing health care, progressive care nurses are working in diverse practice settings to meet patient care needs. Progressive care is practiced along the continuum from the intensive care unit to home. The benefits of early progressive mobility are examined with a focus on the interdisciplinary collaboration for care in a transitional care program of a skilled nursing facility. The program’s goals are improved functional status, self-care management, and home discharge with reduced risk for hospital readmission. The core culture of the program is interdisciplinary collaboration and team partnership for care of patients and their families.


2021 ◽  
pp. 104973232110024
Author(s):  
Stephanie T. Lumpkin ◽  
Eileen Harvey ◽  
Paul Mihas ◽  
Timothy Carey ◽  
Alessandro Fichera ◽  
...  

Readmissions and emergency department (ED) visits after colorectal surgery (CRS) are common, burdensome, and costly. Effective strategies to reduce these unplanned postdischarge health care visits require a nuanced understanding of how and why patients make the decision to seek care. We used a purposefully stratified sample of 18 interview participants from a prospective cohort of adult CRS patients. Thirteen (72%) participants had an unplanned postdischarge health care visit. Participant decision-making was classified by methodology (algorithmic, guided, or impulsive), preexisting rationale, and emotional response to perceived health care needs. Participants voiced clear mental algorithms about when to visit an ED. In addition, participants identified facilitators and barriers to optimal health care use. They also identified tangible targets for health care utilization reduction efforts, such as improved care coordination with streamlined discharge instructions and improved communication with the surgical team. Efforts should be directed at improving postdischarge communication and care coordination to reduce CRS patients’ high-resource health care utilization.


2017 ◽  
Vol 13 (7S_Part_9) ◽  
pp. P490-P490 ◽  
Author(s):  
Gabriella Garcia ◽  
Kelsey Gosselin ◽  
Liz McCarthy

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