scholarly journals INTEREST GROUP SESSION—RAINBOW RESEARCH GROUP: ADAPTING AN EVIDENCE-BASED INTERVENTION TO LGBT ADULTS WITH DEMENTIA AND CARE PARTNERS: MOBILIZING SUPPORT NETWORKS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S344-S344
Author(s):  
Karen Fredriksen Goldsen ◽  
Linda Teri

Abstract LGBT (lesbian, gay, bisexual, and transgender) older adults have been found to have elevated risks of cognitive impairment. Maintaining quality of life is a challenge for those experiencing cognitive decline and their caregivers. Whereas support networks are essential for quality of life, LGBT older adults with dementia may face unique risks, such as stigma, social isolation, lack of family support, and barriers to healthcare. Aging with Pride: IDEA (Innovations in Dementia Empowerment and Action), is the first federally funded clinical trial to test an intervention designed to improve quality of life of LGBT older adults with dementia and caregivers adapting a preexisting program teaching behavioral strategies and physical exercises. The intervention incorporated empirical findings from a longitudinal study, Aging with Pride: National Health, Aging, and Sexuality/Gender Study (NHAS) and developed innovative and culturally responsive approaches. Kim and colleagues examine predictors of longitudinal changes in physical functioning among LGBT older adults with cognitive impairment focusing on physical, social, and recreational activities as well as stigma. Emlet and colleagues investigate caregiving experiences among LGBT older adults and identify factors that are associated with their physical and mental health. Lastly, Fredriksen Goldsen and colleagues introduce how the modifiable factors identified from the Aging with Pride: NHAS were incorporated in the IDEA intervention and evaluate the processes of the culturally-responsive approaches implemented in the study. The presentations in this symposium illustrate the importance of tailoring clinical trial studies for hard-to-reach and underserved populations with dementia responding to their unique health needs.

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 112-112
Author(s):  
Hyun-Jun Kim ◽  
Karen Fredriksen Goldsen

Abstract Cognitive impairment can lead to significant decline in health-related quality of life (HRQOL) in later life especially among those who are socially marginalized. While Lesbian, gay, bisexual, transgender, and queer (LGBTQ) older adults are documented to be at heightened risks of cognitive impairment, they may face unique challenges due to discrimination, social isolation, and other LGBTQ-related risks. This study examined factors associated with psychological and physical HRQOL among LGBTQ adults aged 50 and older analyzing a sub-set of longitudinal data (N = 646) from National Health, Aging, and Sexuality/Gender Study: Aging with Pride. Lifetime LGBTQ discrimination and victimization and insufficient food intake were negatively, and physical and leisure activities were positively associated with both HRQOL dimensions. Community engagement, social support, and social activities were positively associated with psychological HRQOL. Culturally responsive interventions addressing these modifiable factors are needed to improve HRQOL of this socially marginalized but resilient population.


2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Pei Ern Mary Ng ◽  
Sean Olivia Nicholas ◽  
Shiou Liang Wee ◽  
Teng Yan Yau ◽  
Alvin Chan ◽  
...  

AbstractTo address the paucity of research investigating the implementation of multi-domain dementia prevention interventions, we implemented and evaluated a 24-week, bi-weekly multi-domain program for older adults at risk of cognitive impairment at neighborhood senior centres (SCs). It comprised dual-task exercises, cognitive training, and mobile application-based nutritional guidance. An RCT design informed by the Reach, Effectiveness, Adoption, Implementation, Maintenance framework was adopted. Outcome measures include cognition, quality of life, blood parameters, and physical performance. Implementation was evaluated through questionnaires administered to participants, implementers, SC managers, attendance lists, and observations. The program reached almost 50% of eligible participants, had an attrition rate of 22%, and was adopted by 8.7% of the SCs approached. It was implemented as intended; only the nutritional component was re-designed due to participants’ unfamiliarity with the mobile application. While there were no between-group differences in cognition, quality of life, and blood parameters, quality of life reduced in the control group and physical function improved in the intervention group after 24 weeks. The program was well-received by participants and SCs. Our findings show that a multi-domain program for at-risk older adults has benefits and can be implemented through neighborhood SCs. Areas of improvement are discussed.Trial registration: ClinicalTrials.gov NCT04440969 retrospectively registered on 22 June 2020.


2018 ◽  
Vol 18 (3) ◽  
pp. 182-189 ◽  
Author(s):  
Bernice O.C. Lam Nogueira ◽  
Lu Li ◽  
Li-Rong Meng ◽  
Gabor S. Ungvari ◽  
Chee H. Ng ◽  
...  

2017 ◽  
Vol 29 (12) ◽  
pp. 1965-1977 ◽  
Author(s):  
Nikki L. Hill ◽  
Caroline McDermott ◽  
Jacqueline Mogle ◽  
Elizabeth Munoz ◽  
Nicole DePasquale ◽  
...  

ABSTRACTBackground:Older adults with subjective cognitive impairment (SCI) experience increased affective symptoms, reduced engagement in a range of activities, as well as more functional problems when compared to those without SCI. These associations suggest that SCI may be detrimental to older adults’ quality of life (QoL). The purpose of this paper is to advance understanding of the SCI–QoL relationship through a comprehensive review of the empirical literature relating SCI and QoL.Methods:A systematic literature review was conducted in CINAHL, PsycINFO, and PubMed per the Preferred Reporting Items for Systematic Reviews and Meta-Analyses criteria. Eligible articles were appraised using the weight of evidence (WoE) framework to evaluate methodological quality, methodological relevance, and topic relevance. A narrative synthesis of results was conducted, based on conceptual definitions of QoL.Results:Eleven articles were identified that met eligibility criteria. WoE ratings ranged from low to high scores. Studies reviewed reported that the presence, greater frequency, or greater severity of SCI is associated with lower QoL regardless of methodological quality rating, sample characteristics (e.g. geographic location, clinical vs. community settings), study design (e.g. cross-sectional vs. longitudinal), and operationalization of SCI or QoL.Conclusion:Across studies, QoL was negatively associated with SCI. However, a frequent limitation of the reviewed literature was the mismatch between the conceptual and operational definitions of SCI and QoL. Similarly, SCI measures varied in quality across the reviewed literature. This suggests future empirical work should focus on the appropriate strategies for conceptually and operationally defining these constructs.


2020 ◽  
Vol 14 (3) ◽  
pp. 152-159
Author(s):  
Vandrize Meneghini ◽  
Eduardo Hauser ◽  
Camilo Luis Monteiro Lourenço ◽  
Aline Rodrigues Barbosa

OBJECTIVE: To analyze the effects of an exergame-based training compared to resistance training on the quality of life and symptoms of depression in older adults. METHODS: This was a two-arm, non-blinded, randomized clinical trial. Thirty-five participants (62.09 ± 7.11 years) were randomized either on the Exergame-based Training Group (n = 17) or the Resistance Training Group (n = 18). Sessions lasted 50 to 60 minutes, three times per week, for 13 weeks. For the Exergame-based Training Group, we used games that simulate sports and adventure activities through Xbox360 Kinect™. The Resistance Training Group performed ten exercises per session for upper and lower limbs using free weights and machines, following linear periodization and individualized loads. Quality of life and symptoms of depression were assessed using the World Health Organization Quality of Life assessment - an abbreviated version (WHOQOL-BREF) and the Geriatric Depression Scale, respectively. We performed a two-way analysis of variance (p ≤ 0.05). RESULTS: Only time effects were identified for overall quality of life, general health, and symptoms of depression. After the intervention, overall quality of life score increased (3.82 ± 0.95 versus 4.18 ± 0.53, p = 0.05), whereas symptoms of depression decreased (3.35 ± 1.73 versus 2.59 ± 1.54, p = 0.02) in the Exergame-based Training Group, and the general health improved in the Resistance Training Group (3.78 ± 0.81 versus 4.11 ± 0.68, p = 0.05) compared with the baseline scores. CONCLUSION: Both training groups improved different aspects of quality of life. The Exergaming-based Training Group improved the overall perception, whereas the Resistance Training Group improved the general health-related perception. Participants in the Exergame-based Training Group also decreased the number of symptoms of depression.


2019 ◽  
Vol 36 (4) ◽  
pp. 413-430 ◽  
Author(s):  
Leah S. Goudy ◽  
Brandon Rhett Rigby ◽  
Lisa Silliman-French ◽  
Kevin A. Becker

The purpose of this study was to determine changes in balance, postural sway, and quality of life after 6 wk of simulated horseback riding in adults diagnosed with Parkinson’s disease. Eight older adults completed two 60-min riding sessions weekly for 6 wk. Variables of balance, postural sway, and quality of life were measured 6 wks before and within 1 wk before and after the intervention. Berg Balance Scale scores decreased from baseline to preintervention (48.36 ± 5.97 vs. 45.86 ± 6.42,p = .050) and increased from preintervention to postintervention (45.86 ± 6.42 vs. 50.00 ± 4.38,p = .002). Cognitive impairment, a dimension of quality of life, improved from baseline to postintervention (37.5 ± 20.5 vs. 21.5 ± 14.4,p = .007). Six weeks of simulated horseback riding may improve balance and cognitive impairment in older adults with Parkinson’s disease.


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