scholarly journals FAMILY CONFLICT: A WELL KEPT SECRET IN LATINO DEMENTIA CAREGIVING

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S881-S881
Author(s):  
Gabriela Zaragoza ◽  
Lyda C Arevalo-Flechas ◽  
Bertha E Flores ◽  
Janna Lesser

Abstract The number of Latino older adults living with Alzheimer’s disease and related dementias (ADRD) could increase more than six-fold, from fewer than 200,000 in 2004 to more than 1.3 million by 2050 . One-third of Hispanic households report having at least one family caregiver (36%). 63% of Latino family caregivers are in high burden situations compared to 51% of non-Latino caregivers. Although in recent years research with Latino caregivers has increased, studies examining the family as a unit in a culture in which familismo is a central value, remain limited. The purpose of this study was to describe the experience of Latino families caring for loved ones living with ADRD along the illness trajectory. Group interviews were conducted with families caring for individuals in different stages of dementia. Interviews were conducted in English or Spanish, transcribed verbatim, and analyzed in the source language by bilingual investigators. In contrast to the numerous positive aspects of caregiving reported by individual Latino caregivers in previous studies, preliminary analysis of family group interviews revealed predominantly negative perceptions of the family caregiving experience. Families reported conflict between family members, feelings of resentment, lack of family member involvement, and uneven distribution of caregiving duties. The complex nature of fulfilling family duties as dictated by familismo appears to have idealistic and realistic consequences for families. Further exploration of Latino family dynamics in the context of dementia caregiving is needed.

2021 ◽  
pp. 003022282199362
Author(s):  
Inbar Levkovich ◽  
Zohar Elyoseph

This qualitative study examined teachers’ experiences dealing with bereaved students following the death of a parent. The researchers conducted in-depth, semi-structured, face-to-face interviews with 25 teachers in Israeli schools who had counseled one of their students after the death of a parent. The interviews were recorded and transcribed and underwent content analysis. Analysis of the findings revealed that the teachers felt helpless, confused, overloaded emotionally and anxious when counseling students who had lost a parent. In addition, the teachers discussed the complex nature of their relationship with the remaining parent, ranging from a desire to support the family through avoidance for fear of hurting the parent to fears of being overwhelmed by the child’s problems. Many teachers mentioned their need for support from school officials.


2017 ◽  
Vol 30 (3) ◽  
pp. 375-384 ◽  
Author(s):  
Ching-Lin Wang ◽  
Li-Min Kuo ◽  
Yi-Chen Chiu ◽  
Hsiu-Li Huang ◽  
Huei-Ling Huang ◽  
...  

ABSTRACTBackground:To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.Methods:A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.Results:One core theme emerged: “protective preparation.” This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.Conclusions:Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.


1892 ◽  
Vol 9 (12) ◽  
pp. 529-534 ◽  
Author(s):  
Arthur Smith Woodward

In the “Catalogue of Fossil Fishes in the British Museum“ (pt. i. 1889, p. 76, pl. iii. fig. 1), the imperfect rostrum of a Selachian fish from the Upper Cretaceous of Mount Lebanon was described under the new generic and specific name of Sclerorhynchm atavus. Presenting some resemblances to the rostrum both of the typical saw-fish (Prislis) and of PristiopJtorus, hesitation was expressed in determining the systematic position of the genus to which the fossil pertained; but from the apparently complex nature of the rostral cartilages and the absence of extended prepalatines, it was deemed advisable to place the fish provisionally in the family of Pristidæ.


2019 ◽  
Vol 14 (1) ◽  
pp. 165-190 ◽  
Author(s):  
Siv Oltedal ◽  
Angela Peña ◽  
Sarah Catherine Patricia Duff Hean

EnglishThis paper explores the differences and similarities in three social work processes as viewed by social workers in Norway and Cuba. Contrasting social work processes in these exemplars of de-familialized and familialized welfare contexts offer insight into where social work practices can be governed by international and universal policy, and where context specific national policies may be more appropriate. A qualitative study and thematic analysis based on four focus group interviews (two in each country), with a total of 19 social workers from the respective contexts, were conducted. An international validated vignette of a typical social work case was employed as a tool to help facilitate a group interaction and discussion. The first is an engagement process: how social workers make their decisions on how, or if, to engage with clients. Both Cuban and Norwegian social workers will respond to a client in need, prioritizing children in particular. A second process related to the social worker is needing to obtain a considered overview of the case. Norwegian social workers rely heavily on information about the case coming from the client, and formal rules restrict information flows between services. In Cuba, clients are important and the participation of the family is obligatory, with social workers drawing on a wide group of stakeholders to gather information. The final process is one of distributing responsibility for care and support among the appropriate services and actors. In Cuba, social workers emphasize the family`s role in resolving the case. There is a cultural element here based on the role of the family, but a lack of state services and resources available for social workers in practice is also relevant. In Norway, the Welfare State presents more resources, although social workers refer instead to difficulties in coordination between services. Professionals are held to account in Cuba, whereas institutions take responsibility in Norway. SpanishProcesos de división del trabajo en Trabajo social con familias en Cuba y Noruega. Este artículo explora las diferencias y similitudes en tres procesos del trabajo social a partir de la visión de trabajadores sociales de Noruega y Cuba. A partir de contrastar los procesos del trabajo social en estos casos ejemplares de contextos de bienestar de-familiarista y familiarista respectivamente, el artículo ofrece una visión de hasta dónde la práctica del trabajo social puede estar gobernada por políticas universales e internacionales, y hasta dónde lecturas más específicas según el contexto de las políticas nacionales puede ser más apropiado.  Fue desarrollado un estudio cualitativo con un análisis temático basado en cuatro entrevistas a grupos focales (dos en cada país), con un total de 19 trabajadores sociales en ambos contextos. Par el estudio temático se utilizó una viñeta que valida un caso típico para el trabajo social, como herramienta que facilitó la interacción grupal y la discusión. El primer proceso identificado fue el de comprometimiento con el caso: este alude a cómo los trabajadores sociales toman sus decisiones sobre cómo se involucran, o incluso si lo hacen o no, con los clientes. Trabajadores sociales de ambos países responderán a un cliente que lo necesite, priorizando en particular a los niños. Un segundo proceso se relaciona con la necesidad de los trabajadores sociales de obtener una descripción adecuada del caso. Trabajadores sociales de Noruega se apoyan fuertemente en la información proveída por el cliente y en las reglas formales que restringen el flujo de información entre los servicios. Para el caso de los cubanos, los clientes son importantes, y la participación de la familia es vista como obligatoria, pero se apoyan en un amplio grupo de posibles interesados para recopilar información. El proceso final tiene que ver con la distribución de responsabilidades de cuidado y apoyo entre los servicios apropiados y los actores. En Cuba los trabajadores sociales enfatizan en el rol de la familia para la resolución de los casos. Aquí se aprecia un elemento cultural que refuerza la intervención de la familia, pero a la vez la escasez de servicios públicos o recursos para la práctica del trabajo social en familias. En Noruega, el Estado de Bienestar ofrece más recursos, pero los trabajadores sociales refieren en cambio dificultades para la coordinación de la variedad de servicios disponibles. Los profesionales en Cuba retienen más responsabilidad, mientras que en Noruega las instituciones toman más responsabilidades.


2021 ◽  
pp. 1295-1311
Author(s):  
David W. Kissane ◽  
Christopher H. Grossman ◽  
Clare O’Callaghan

Psychological, existential, spiritual, and social issues cause much suffering and deserve extensive study to understand these concerns more fully and to intervene more effectively. Themes that abound include communication, coping, ethics, the family, caregiving, quality of life, death and dying, psychiatric disorders, suffering, and the many expressions of distress. Many study designs are possible to explore these themes, often with complementary quantitative and qualitative components. This chapter summarizes the psychometric properties of many of the instruments that are commonly employed in such studies, and describes quantitative, qualitative, and mixed methods designs used. The goal is to strengthen research design and optimize research outcomes to benefit the discipline.


Nursing Forum ◽  
2019 ◽  
Vol 54 (4) ◽  
pp. 582-592 ◽  
Author(s):  
Janice D. Crist ◽  
Jian Liu ◽  
Kim D. Shea ◽  
Rachel L. Peterson ◽  
Lori Martin‐Plank ◽  
...  

2019 ◽  
Vol 33 (4) ◽  
pp. 185-194
Author(s):  
Guilherme Moraes Balbim ◽  
Melissa Magallanes ◽  
Isabela Gouveia Marques ◽  
Karen Ciruelas ◽  
Susan Aguiñaga ◽  
...  

Objective: We aimed to identify sources of caregiver burden in middle-aged and older Latino caregivers of people with Alzheimer disease and related dementia (ADRD). Methods: Participants were recruited through an agreement with the Rush Alzheimer’s Disease Center Clinic Data Repository. We conducted semistructured interviews with 16 middle-aged and older Latinos who were the primary caregiver for a family member diagnosed with ADRD. The interview guide consisted of questions and probes to capture participants’ perceptions of family caregiving. Direct content analysis was performed. Results: Participants were aged 50 to 75 years (n = 16) and a majority female (n = 12). The sources of burden identified were (1) caregiver responsibilities, (2) caregiving-related health decline, (3) lack of support, (4) financial status, (5) vigilance, and (6) concerns about the future. Conclusions: The influence of gender roles seemed to play a role in caregivers’ perceptions of sources of burden, especially on caregiver responsibilities and perceptions of lack of support. Latinos cultural values such as familismo and marianismo likely reinforced gender disparities in family caregiving.


2018 ◽  
Vol 35 (3) ◽  
pp. 179-195
Author(s):  
Eli Marie Wiig ◽  
Astrid Halsa ◽  
Jørgen Bramness ◽  
Siv Merete Myra ◽  
Bente Storm Mowatt Haugland

Aims: Dual treatment of parents with substance-use disorders (SUD) is an approach which aims to meet the needs of both SUD patients and their children. Whereas the parents need to learn to live without substances, the children need a predictable and structured environment with parents who are sensitive and psychologically available. In this study we explore the possibilities and challenges of this joint approach from the perspectives of professionals employed in an in-patient facility for families with parental SUD. Methods: A qualitative design was used comprising three focus-group interviews with 15 professionals: two groups with ward staff and one with therapists, all working at a family ward for parents with SUD and their children. Data were analysed using thematic analysis. Results: Professionals faced difficulties combining the needs of parents and children and seemed to choose to prioritise either the adult with SUD or the wellbeing of the child. However, some professionals described what might be a third and alternative solution by supporting the mothers in everyday life, routines, and care, through exploring present moment situations. This approach seemed to help parents become more conscious of the child, their interaction with the child, and their own feelings. Professionals described working at the family ward as emotionally challenging. Conclusion: Combining treatment of parental SUD, interventions to improve parenting roles and practice, and at the same time focusing on the developmental needs of children, is experienced as a complex and demanding task. Different priorities and treatment aims may enhance tensions between professionals. Even though professionals experience in-patient dual treatment as challenging, they believe this approach facilitates positive development in substance dependent parents and their children.


2017 ◽  
Vol 22 (2) ◽  
pp. 302-320
Author(s):  
Andrea L. Miller

Much remains unknown about the boundary conditions of stereotype threat and the factors that influence how it manifests in various domains. In particular, non-performance-related responses to stereotype threat have been relatively neglected, and little is known about stereotype threats in domains where group membership is less stable over the life course. Using both correlational and experimental methods, these studies use the work–life conflict domain to contribute to stereotype threat theory along these dimensions. Studies 1 and 2 demonstrated that stereotype threat based on caregiver status predicts increased use of coping strategies that involve sacrifices in work productivity, family caregiving, and personal well-being. Studies 1 through 3 suggest that formal flexibility accommodation policies (such as the Family and Medical Leave Act of 1993) may not be an effective intervention in stereotype threat in the work–life conflict domain; providing informal social cues of support for employees with caregiving responsibilities, however, may be effective.


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