O-097 The presentation of medical risks and incentives in egg donation: an analysis of Belgian, Spanish and UK fertility clinic websites

2021 ◽  
Vol 36 (Supplement_1) ◽  
Author(s):  
L Jacxsens ◽  
C Coveney ◽  
L Culley ◽  
C Herbrand ◽  
S Lafuente-Funes ◽  
...  

Abstract Study question How do fertility clinics’ websites of the UK, Belgium and Spain present the medical risks of egg donation and incentives? Summary answer Spanish and UK websites typically included more incentives to recruit egg donors compared to the Belgian websites. OHSS was overall the most discussed risk. What is known already People commonly turn to the internet for initial information. Primary presentations of information of a subject co-determine how an individual interprets the topic and thus influence later decisions. Considering the growing demand and clinics’ dependency on egg donors, some scholars have expressed concerns that clinics might (initially) misrepresent risks to recruit more egg donors. Offering appealing incentives may also encourage potential donors to dismiss possible risks and side-effects. Therefore, it is important to see how incentives (both monetary and non-monetary rewards) and risks are presented on the websites of fertility clinics, the first source of information for egg donors. Study design, size, duration This study is part of the EDNA-project, a multi-phased comparative study (2017-2021), that aims to explore the social, political, economic and moral configuration of egg donation in the United Kingdom, Belgium and Spain. In this study, we only focused on the medical risks of egg donation and incentives presented on the fertility clinics’ websites of the three countries. Participants/materials, setting, methods We analysed the websites of all Belgian fertility clinics (n = 18), and a maximum variation sample in the UK (n = 21) and Spain (n = 23). The sampling was based on the geographical location of the clinic, size/number of cycles performed each year, the clinic’s status (independent or part of a larger clinical group) and whether the clinic was public or privately funded in the UK. Frame analysis and content analysis were used for analysis in Nvivo12. Main results and the role of chance No misrepresentation of risks was found. There was an extensive variety in the representation of risks. There were differences between the websites of the three countries (e.g. the risks of having acne was only discussed on Spanish websites), but also remarkable differences within the websites of a particular country (of the 40 risks, 13 were one-off mentions, each found on a single website). A description of a risk was generally accompanied by a minimization or normalization of the risk, or a statement about the fertility clinic’s excellent care for their egg donors. These three approaches were often combined. Our analysis differentiated between incentives (i.e. external rewards) and emotional appeals. An appeal to emotions (e.g. empathy) can also motivate behavioural action (e.g. donation) but was not considered as an incentive since there is no external reward. While Belgian websites used almost no incentives, Spanish and UK websites used gratitude and a rewarding experience as incentives. However, only Spanish websites used free medical tests as incentives, while UK websites were the only ones that used discounts received with egg sharing as an incentive. All countries’ websites used emotional appeals by enticing feelings of empathy for the recipients. Limitations, reasons for caution Not all UK and Spanish fertility clinics’ websites were analysed. However, our international team of researchers applied a maximum variation sampling strategy. This generated samples of clinics per country that were as diversified as possible. Wider implications of the findings The study shows that incentives are more often used on the UK and Spanish websites than on the Belgian websites. All three countries’ websites used emotional appeals. It should be studied how effective these incentives and emotional appeals are, and if there is a correlation with the potential donors’ risk-perceptions. Trial registration number not applicable

2020 ◽  
Vol 16 (4) ◽  
pp. 1429-1450 ◽  
Author(s):  
Charles J. R. Williams ◽  
Maria-Vittoria Guarino ◽  
Emilie Capron ◽  
Irene Malmierca-Vallet ◽  
Joy S. Singarayer ◽  
...  

Abstract. Palaeoclimate model simulations are an important tool to improve our understanding of the mechanisms of climate change. These simulations also provide tests of the ability of models to simulate climates very different to today. Here we present the results from two brand-new simulations using the latest version of the UK's physical climate model, HadGEM3-GC3.1; they are the mid-Holocene (∼6 ka) and Last Interglacial (∼127 ka) simulations, both conducted under the auspices of CMIP6/PMIP4. This is the first time this version of the UK model has been used to conduct palaeoclimate simulations. These periods are of particular interest to PMIP4 because they represent the two most recent warm periods in Earth history, where atmospheric concentration of greenhouse gases and continental configuration are similar to the pre-industrial period but where there were significant changes to the Earth's orbital configuration, resulting in a very different seasonal cycle of radiative forcing. Results for these simulations are assessed firstly against the same model's pre-industrial control simulation (a simulation comparison, to describe and understand the differences between the pre-industrial – PI – and the two palaeo simulations) and secondly against previous versions of the same model relative to newly available proxy data (a model–data comparison, to compare all available simulations from the same model with proxy data to assess any improvements due to model advances). The introduction of this newly available proxy data adds further novelty to this study. Globally, for metrics such as 1.5 m temperature and surface rainfall, whilst both the recent palaeoclimate simulations are mostly capturing the expected sign and, in some places, magnitude of change relative to the pre-industrial, this is geographically and seasonally dependent. Compared to newly available proxy data (including sea surface temperature – SST – and rainfall) and also incorporating data from previous versions of the model shows that the relative accuracy of the simulations appears to vary according to metric, proxy reconstruction used for comparison and geographical location. In some instances, such as mean rainfall in the mid-Holocene, there is a clear and linear improvement, relative to proxy data, from the oldest to the newest generation of the model. When zooming into northern Africa, a region known to be problematic for models in terms of rainfall enhancement, the behaviour of the West African monsoon in both recent palaeoclimate simulations is consistent with current understanding, suggesting a wetter monsoon during the mid-Holocene and (more so) the Last Interglacial, relative to the pre-industrial era. However, regarding the well-documented “Saharan greening” during the mid-Holocene, results here suggest that the most recent version of the UK's physical model is still unable to reproduce the increases suggested by proxy data, consistent with all other previous models to date.


2020 ◽  
Author(s):  
Richard Douglas Brown ◽  
Lynne Coventry ◽  
Gillian V Pepper

Background Understanding COVID-19 risk perceptions and their impact on behaviour can improve the effectiveness of public health strategies in the future. Prior evidence suggests that, when people perceive uncontrollable risks to their health, they are less likely to make efforts to protect their health in those ways which they can control (e.g. through diet, exercise, and limiting alcohol intake). It is therefore important to understand the extent to which the threat of COVID-19 is perceived to be an uncontrollable risk, and to assess whether this perceived risk is associated with differences in health behaviour. MethodsWe surveyed a nationally representative sample of 496 participants, shortly after the peak of the pandemic in the UK. We collected data to assess people’s perceptions of COVID-19-related risk, and how these perceptions were associated with behaviours. We examined self-reported adherence to behaviours recommended by the UK Government and National Health Service to prevent the spread of the virus, as well as more general health behaviours. We predicted that increased perceived extrinsic mortality risk (the portion of a person’s mortality risk which they perceive to be uncontrollable) would disincentivise healthy behaviour. ResultsPerceived threat to life was found to be the most consistent predictor of reported adherence to measures designed to prevent the spread of infection. Perceived extrinsic mortality risk was found to have increased due to the pandemic, and was also associated with lower reported adherence to Government advice on diet and physical activity, as well as smoking. ConclusionsOur findings suggest that promoting a message that highlights threat to life may be effective in raising levels of adherence to measures of infection control, but may also have unintended consequences, leading to a reduction in health-promoting behaviours. We suggest that messages that highlight threat to life should be accompanied by statements of efficacy, and that messages evoking feelings of concern for others may also be effective in promoting compliance with anti-infection measures.


2021 ◽  
Vol 7 (1) ◽  
pp. 80-88
Author(s):  
H. Deniz Kocas ◽  
Tonya Pavlenko ◽  
Ellen Yom ◽  
Lisa R. Rubin
Keyword(s):  

Author(s):  
Daisy Deomampo

Chapter 3 analyzes constructions of skin color and race in intended parents’ narratives about the experience of selecting an egg donor. This chapter shows how egg donors of different backgrounds are differently valued, bolstering social hierarchies. At the same time, the chapter describes the diversity of ways that intended parents approach race and skin tone when choosing an egg donor. In contrast to dominant assumptions that intended parents seek donors who match their own ethnic backgrounds in order to reproduce whiteness, the process of egg donation represented an opportunity for many intended parents to subvert racial hierarchies by selecting Indian donors with darker skin tones. The chapter argues that such narratives, however, misrecognize donor egg selection as an opening to challenge racial hierarchies; instead, such decisions rely on essentialized notions of race and beauty that exoticize Indian women and reflect new articulations of biological race.


Somatechnics ◽  
2015 ◽  
Vol 5 (1) ◽  
pp. 12-31 ◽  
Author(s):  
Charlotte Kroløkke

Feminist scholars have critically questioned the practices and ethics of reproductive mobility. While the reproductive mobility of fertility patients has been foregrounded, little is known of egg donor mobility including the experiences of travelling internationally to donate eggs. Based on written stories and photographic material provided by forty-two egg donors, this article uses feminist cluster analysis and the concept of eggpreneurship to illustrate how global egg donors negotiate reproductive agency and choice when they travel internationally to donate their eggs. In their stories, global egg donors position egg donation through a moral economy of gifting and an affective economy of desire in which reproductive mobility is transformed from a gift to a trip of a lifetime.


2018 ◽  
Vol 14 (1) ◽  
pp. 23-31 ◽  
Author(s):  
Sarah Jo Stephens ◽  
Michael J. Moravan ◽  
Joseph K. Salama

Metastatic lung cancer has long been considered incurable, with the goal of treatment being palliation. However, a clinically meaningful number of these patients with limited metastases (approximately 25%) are living long term after definitive treatment to all sites of active disease. These patients with so-called oligometastatic disease likely represent a distinct clinical group who may possess a more indolent biology compared with their more widely metastatic counterparts. Hellman and Weichselbaum proposed the existence of the oligometastatic state, on the basis of the spectrum theory of cancer spread. The literature suggests that an oligometastatic state exists in patients with non–small-cell lung cancer (NSCLC). This observation in the setting of rapidly evolving systemic therapies, including immune checkpoint inhibitors and an increasing number of targeted therapies, represents a unique clinical opportunity. Metastasis-directed therapies to address sites of disease include surgery (metastasectomy) and/or radiation therapy. Available evidence suggests that treating patients with limited or oligometastases may improve outcomes in a meaningful way; however, the majority of the randomized data includes patients with intracranial metastatic disease, and there are limited robust, randomized data available in the setting of NSCLC with only extracranial sites of metastatic disease. Ongoing randomized trials, including NRG-LU002 and the UK Conventional Care Versus Radioablation (Stereotactic Body Radiotherapy) for Extracranial Oligometastases trial, are aimed at evaluating this question further. One of the current limitations of aggressive treatment of oligometastatic NSCLC is the inability to accurately identify these patients before therapy, yet molecular markers, including microRNA profiles, are being investigated as a promising way to identify these patients.


2018 ◽  
Vol 48 (1) ◽  
pp. 101-124 ◽  
Author(s):  
Dawn Goodwin

In the UK, a series of high-profile healthcare ‘scandals’ and subsequent inquiries repeatedly point to the pivotal role culture plays in producing and sustaining healthcare failures. Inquiries are a sociotechnology of accountability that signal a shift in how personal accountabilities of healthcare professionals are being configured. In focusing on problematic organizational cultures, these inquiries acknowledge, make visible, and seek to distribute a collective responsibility for healthcare failures. In this article, I examine how the output of one particular inquiry – The Report of the Morecambe Bay Investigation – seeks to make culture visible and accountable. I question what it means to make culture accountable and show how the inquiry report enacts new and old forms of accountability: conventional forms that position actors as individuals, where actions or decisions have distinct boundaries that can be isolated from the ongoing flow of care, and transformative forms that bring into play a remote geographical location, the role of professional ideology, as well as a collective cultural responsibility.


2014 ◽  
Vol 22 (1) ◽  
pp. 54-76 ◽  
Author(s):  
Martin E. Persson ◽  
Christopher J. Napier

Purpose – The purpose of this paper is to examine the challenges faced by an Australian accounting academic, R. J. Chambers, in the 1950s, in breaking into the accounting research community, at that time, almost entirely located in the USA and the UK. For academics outside the networks of accounting research publication in these countries, there were significant, but not insurmountable obstacles to conducting and publishing accounting research. We examine how these obstacles could be overcome, using the notion of “trials of strength” to trace the efforts of Chambers in wrestling with intellectual issues arising from post-war inflation, acquiring accounting literature from abroad and publishing his endeavours. Design/methodology/approach – The article uses actor-network theory to provide an analytical structure for a “counter-narrative” history firmly grounded in the archives. Findings – Documents from the R. J. Chambers Archive at the University of Sydney form the empirical basis for a narrative that portrays accounting research as a diverse process driven as much by circumstances – such as geographical location, access to accounting literature and personal connections – as the merits of the intellectual arguments. Research limitations/implications – Although the historical details are specific to the case being studied, the article provides insights into the challenges faced by researchers on the outside of international research networks in achieving recognition and in participating in academic debates. Practical implications – The findings of this article can provide guidance and inspiration to accounting researchers attempting to participate in wider academic communities. Originality/value – The article uses documents from perhaps the most extensive archive relating to an individual accounting academic. It examines the process of academic research in accounting in terms of the material context in which such research takes place, whereas most discussions have focussed on the underlying ideas and concepts, abstracted from the context in which they emerge.


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