scholarly journals The REDCap Mobile Application: a data collection platform for research in regions or situations with internet scarcity

JAMIA Open ◽  
2021 ◽  
Vol 4 (3) ◽  
Author(s):  
Paul A Harris ◽  
Giovanni Delacqua ◽  
Robert Taylor ◽  
Scott Pearson ◽  
Michelle Fernandez ◽  
...  
Keyword(s):  
Mobile Application ◽  
Study Data ◽  
Lessons Learned ◽  
Data Capture ◽  
Sub Saharan Africa ◽  
Global Network ◽  
Direct Access ◽  
Mobile Platforms ◽  
Development Framework ◽  
Sub Saharan

Abstract Objectives To share our approach for designing, developing, and deploying the Research Electronic Data Capture (REDCap) Mobile Application, details about its dissemination and support through the REDCap Consortium, and a set of lessons learned and guidance recommendations for others developing mobile platforms to support research in regions or situations with internet scarcity. Materials and Methods We defined minimum viable product requirements centered around Android and iOS platform availability, data capture specifications and project initiation workflow, study data synchronization, and data security. After launch, we added features based on feedback from end-users and REDCap administrators. We prioritized new features based on expected impact, difficulty, and anticipated long-term cost for sustainability. Results We chose Apache Cordova, a combined iOS and Android development framework, based on targeted end-user technology expectations, available programmer resources, and the need to provide solutions for resource-limited settings. The REDCap Mobile Application was launched in 2015, has been enabled at over 800 REDCap Consortium partner organizations, and has supported diverse scientific studies around the world. Discussion Apache Cordova enabled early software releases for both iOS and Android, but required ongoing optimization efforts to improve software responsiveness. Developing a robust and efficient mobile device synchronization architecture was difficult without direct access to global network infrastructures for testing. Research teams in sub-Saharan Africa helped our development team understand and simulate real-world scenarios of intermittent internet connectivity. Conclusion Guidance recommendations based on designing, developing, deploying, and disseminating the REDCap Mobile Application may help other teams looking to develop clinical research informatics applications.

scholarly journals Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Kufre Joseph Okop ◽  
Kathy Murphy ◽  
Estelle Victoria Lambert ◽  
Kiya Kedir ◽  
Hailemichael Getachew ◽  
...  
Keyword(s):  
Cardiovascular Disease ◽  
Citizen Science ◽  
Risk Perceptions ◽  
Disease Risk ◽  
Cardiovascular Disease Risk ◽  
Data Gathering ◽  
Lessons Learned ◽  
Sub Saharan Africa ◽  
Rural And Urban ◽  
Sub Saharan

Abstract Background In sub-Saharan Africa (SSA), which experiences a disproportionately high cardiovascular disease (CVD) burden, population-based screening and prevention measures are hampered by low levels of knowledge about CVD and associated risk factors, and inaccurate perceptions of severity of risk. Methods This protocol describes the planned processes for implementing community-driven participatory research, using a citizen science method to explore CVD risk perceptions and to develop community-specific advocacy and prevention strategies in the rural and urban SSA settings. Multi-disciplinary research teams in four selected African countries will engage with and train community members living in rural and urban communities as citizen scientists to facilitate conceptualization, co-designing of research, data gathering, and co-creation of knowledge that can lead to a shared agenda to support collaborative participation in community-engaged science. The emphasis is on robust community engagement, using mobile technology to support data gathering, participatory learning, and co-creation of knowledge and disease prevention advocacy. Discussion Contextual processes applied and lessons learned in specific settings will support redefining or disassembling boundaries in participatory science to foster effective implementation of sustainable prevention intervention programmes in Low- and Middle-income countries.

scholarly journals Conducting clinical trials in sub-Saharan Africa: challenges and lessons learned from the Malawi Cryptosporidium study

Trials ◽  
2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Neema Toto ◽  
Elaine Douglas ◽  
Markus Gmeiner ◽  
Lynn K. Barrett ◽  
Robert Lindblad ◽  
...  
Keyword(s):  
Clinical Trials ◽  
Lessons Learned ◽  
Sub Saharan Africa ◽  
Sub Saharan

scholarly journals #RESISTHUDUMANAMBA: KENYAN GOVERNMENT AT A CROSSROAD

2019 ◽  
Vol 2019 ◽  
Author(s):  
Job Mwaura
Keyword(s):  
Identity Management ◽  
Digital Technologies ◽  
Study Data ◽  
Sub Saharan Africa ◽  
Biometric Data ◽  
Qualitative Research Study ◽  
Online Spaces ◽  
Identity Management System ◽  
Sub Saharan ◽  
The Government

In the past few years, Kenya’s digital landscape has transformed and this has been made possible by proliferation of the usage of digital technologies, particularly - mobile phones. Due to increased access to digital technologies, faster internet speeds, increased securitization among other issues, data on individuals in online spaces has also increased. Recently, the government rolled out a National Integrated Identity Management System (NIIMS) which is meant to capture biometric data but this has generated a huge debate online in Kenya under the hashtag #ResistHudumaNamba. This paper will therefore examine the following issues: What has contributed to the decline of trust between the government and its citizens when it comes to internet technologies? What are the actual sentiments given for and against in the introduction of Huduma Number? What are the underlying reasons for continued registration of individuals in Kenya? This research will be a qualitative research study. Data will be generated from social media sites (Twitter and Facebook), as well as blog posts and newspaper articles. A discourse analysis of the events around #ResistsHudumaNamba in these sources will be done so as to answer the research questions. This research has the potential to contribute to literature on trust in sub-Saharan Africa as well as establish trust issues between government and citizens when digital technologies are involved.

Design-Based Approach for the Implementation of an International Cyberlearning Community of Inquiry for Medical Education

2013 ◽  
pp. 509-525
Author(s):  
Yianna Vovides ◽  
Kristine Korhumel
Keyword(s):  
Community Of Inquiry ◽  
Virtual Community ◽  
Medical Schools ◽  
Lessons Learned ◽  
Communication Strategy ◽  
Sub Saharan Africa ◽  
Teaching Presence ◽  
Web Based ◽  
Sub Saharan ◽  
Theoretical Foundations

This chapter describes the conceptualization and implementation of a cyberlearning environment as a community of inquiry (CoI). This environment includes 13 medical schools from Sub-Saharan Africa and their 50-plus partners from around the world. The theoretical foundations of Communities of Inquiry provided the framework that drove the design of the web-based platform used in this project. Through an emphasis on learning from conversations, the resulting cyberlearning environment was designed to foster engagement among faculty, staff, and students of the 13 medical schools and their partners. Recognizing that generating a virtual community of inquiry framed around the cognitive, social, and teaching presence is no easy task, the approach taken for the design was based on conceptualizing the development of such a community along a continuum that addressed the depth of interaction for each presence. This type of design assumes a phased-in implementation. The chapter describes this conceptualization by addressing the core communication strategy used, which underlies the interactions to support learning from conversations. In addition, the chapter addresses key environmental constraints and how these constraints guided operational decisions during implementation. In addition, the chapter discusses challenges and solutions, as well as lessons learned.

A Systems Approach for Sustainably Reducing Childhood Diarrheal Deaths in Developing Countries

2016 ◽  
pp. 1208-1227
Author(s):  
Monica Gray
Keyword(s):  
Developing Countries ◽  
Low Income ◽  
Systems Approach ◽  
Developed Countries ◽  
Lessons Learned ◽  
Sub Saharan Africa ◽  
Low Income Countries ◽  
Health Crisis ◽  
Industrialized Nations ◽  
Sub Saharan

Diarrhea is the second leading cause of death and is the major cause of malnutrition in children under age 5 worldwide. More than 50 percent of the cases occur in developing countries, particularly in sub-Saharan Africa and Southeast Asia. Open defecation, substandard fecal disposal systems, and contaminated water supplies are the typical causes of diarrheal diseases. This public health crisis in low income countries mirrors the experiences of today's industrialized nations two centuries ago. The lessons learned from their sanitary evolution can be instructive in charting a sustainable path towards saving the lives of almost 2 million children annually. In this chapter a case study of Cuba's sanitary reformation is also presented to showcase successes, similar to those of developed countries, within a developing country and economically challenging context.

Initial Experience with Cancer Guidelines Navigator, a tool to standardize and improve the quality of cancer care in Sub-Saharan Africa, at Ocean Road Cancer Institute in Tanzania.

2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e14106-e14106
Author(s):  
Fernando Jose Suarez Saiz ◽  
Leemor Yuravlivker ◽  
Jerry Ndumbalo ◽  
Julius Mwaiselage ◽  
Sadiq Maalim Siu ◽  
...  
Keyword(s):  
Cancer Treatment ◽  
Treatment Planning ◽  
Reference System ◽  
Point Of Care ◽  
Lessons Learned ◽  
Ease Of Use ◽  
Sub Saharan Africa ◽  
Digital Reference ◽  
Sub Saharan ◽  
Cancer Guidelines

e14106 Background: The IBM Cancer Guidelines Navigator (CGN) is a digital reference system to support treatment planning that allows clinicians to enter a cancer patient’s clinical characteristics and presents the corresponding treatment options in the NCCN Harmonized Guidelines (TM) for Sub-Saharan Africa. In October 2019, Ocean Road Cancer Institute (ORCI) in Tanzania became the first site in Africa to initiate a hospital-wide implementation of the tool to help clinicians reduce cancer treatment variability by increasing adherence to standard evidence-based care. We describe training and lessons learned from system introduction. Methods: Training for clinical staff at ORCI occurred over one week and included daily one-hour lectures, followed by personalized hands-on training. A survey was administered to assess usability and use cases of the tool. Results: Thirty-one ORCI clinical and IT staff members participated in training, and 12 completed the survey. Responses indicated that the most beneficial uses for CGN were at point of care and for self-learning. Participants indicated that the top benefits of the tool were quick access to guidelines and evidence (75%) and ease of use (58%). Expanding cancer coverage (42%), offline access and better integration into the workflow (25%) were identified as areas for improvement. Post-training, ORCI implemented easier access to CGN on each computer and tablet used for consultation and care management. Conclusions: CGN is a digital reference system that is designed to support easy and efficient access to regionalized cancer-treatment guidelines for point-of-care treatment planning and education. Expansion of this program has been planned for other hospitals in Tanzania. Future studies will examine whether CGN usage affects guideline adherence.

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