Holding the Future

Author(s):  
Lisa Freitag

Long wait lists for services and a dearth of people willing to work as caregivers ensure that many people, particularly with intellectual disabilities, continue to live with their aging parents. Informed by a personal narrative of a successful future for a person with intellectual disabilities, this chapter proposes three components that are essential for success. Adults with disabilities can benefit from establishing a life outside their parents’ home. They also need place to work and inclusion in the community. The communities created by L’Arche and the Brothers of Charity, where caregivers live and work together with people with intellectual disabilities, provide one model for care. The extent of current need makes it impossible to provide this for everyone, but some of the lessons learned from “living with” people with disabilities can perhaps be carried over into existing group homes or even institutional care settings.

2015 ◽  
Vol 32 (1) ◽  
pp. 19-33 ◽  
Author(s):  
Kate Ferrara ◽  
Jan Burns ◽  
Hayley Mills

Despite some changes to the way that people with intellectual disabilities (ID) are viewed in society, negative attitudes prevail. One of the aspirations of the 2012 Paralympic games was to influence the public’s attitudes toward people with disabilities. The aim of this study was to investigate whether stimuli depicting people with ID performing at Paralympic level of competition change attitudes toward ID. A mixed randomized comparison design was employed comparing 2 groups: those who viewed Paralympic-level ID sport footage and information and those who viewed Olympic footage and information. One hundred fourteen students, mean age 25 yr, were administered measures of implicit (subconscious) attitudes toward disability and explicit (belief-based) attitudes toward ID. Implicit attitudes significantly changed in a positive direction for both groups. The findings provide evidence that both Paralympic (ID) and Olympic media coverage may have at least a short-term effect on attitudes toward people with disabilities.


2021 ◽  
Vol 571 (10) ◽  
pp. 23-28
Author(s):  
Elżbieta Zakrzewska-Manterys

Disability is a wide concept, encompassing different types of disability, different capabilities of people with disabilities and different social support needs. People with intellectual disabilities belong to a specific group. They do not fit into the mainstream of support and activation measures for disabled people. Although they are a small group (about 1%), they require care which is not provided within the current social policy towards people with disabilities. The article provides examples of public activities unfavourable and favourable for the well-being of people with intellectual disabilities. This could be a starting point for a preparation of a policy project of accurate public support for this group of people


2021 ◽  
pp. 002087282110604
Author(s):  
Monika Parchomiuk

People with intellectual disabilities benefit from many forms of institutional support, which include residential, rehabilitation, and educational services. Changes caused by the pandemic, especially the introduction of new rules relating to various aspects of life, raised several challenges and problems in the functioning of these institutions and for the people with disabilities during the COVID-19 pandemic. The research concerned facilities providing services for people with intellectual disabilities in Poland during the pandemic. The research goal was to determine what changes took place in the rehabilitation and care institutions during the pandemic in terms of their organization and the functioning of their clients and personnel. An online questionnaire was used. The respondents were institution employees. Data showed a number of preventive, educational, and supportive activities carried out by the institutions. Adverse changes in the psychosocial functioning of people with intellectual disabilities and other problems during the pandemic were reported.


Somatechnics ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. 92-111
Author(s):  
Jen Rinaldi ◽  
Kate Rossiter

Frequently missing from histories of forced institutionalisation are close readings of the enduring impact on survivors' corporeality. In this article the authors analyse interview data featuring people who survived the Huronia Regional Centre: a total institution designed to warehouse people with intellectual disabilities that operated in Canada from 1876 to 2009. These interviews reveal the impact of institutional technologies on the bodies of the institutionalised, and how institutional survivors resisted those technologies. Institutional rituals meant to organise and cleanse residents, resulted in the reification of institutional subjects as inescapably contaminated. Drawing from Mary Douglas's theory of dirt and Julia Kristeva's interpretation of dirt as abjection, the authors engage with interview data on daily institutional care routines, particularly dressing, eating, showering, and the administration of medication, to show how these rituals produced for the institutionalised subject meanings around gender and disability as markers of defilement. The authors argue that the kinds of deeply oppressive and often violent rituals central to lived experiences of institutionalisation are grounded in the assumption that disabled gendered bodies are already-abject, hence the institutional demand for the institutionalised to be brought under control.


Author(s):  
Monika Mužáková ◽  
Iva Strnadová

This chapter explores life in Czechoslovakia (later Czech Republic) in the 20th Century for people with intellectual disabilities. It opens at the time that the Czech lands were part of the Austrian-Hungarian Empire. This was a period marked by efforts to increase the quality of institutional care for people with intellectual disabilities. The authors then describe the period of communism. They discuss the controversial nature of an Education Act (1948), which contained a well-established network of special schools for students with disabilities as a regular part of the school system, and yet it introduced the concept of “being uneducable” for students with severe and profound intellectual disabilities. The authors also debate the role of a parental movement in advocacy for the rights of people with intellectual disabilities. The chapter concludes with the period after the fall of communism, when compulsory education was introduced for all children with no exception.


2017 ◽  
Vol 2 (36) ◽  
pp. 59-74
Author(s):  
Marta Rawińska ◽  
Artur Teroiłowski

The aim of the study was to investigate teachers’ and therapists’ attitudes towards the sexuality of people with intellectual disabilities. Teachers working with people with intellectual disabilities in special schools and residential special needs schools act within the institutional framework – according to a specific model of support based on official regulations as well as their personal standards and values. Their knowledge and beliefs determine to a large extent whether the environment of people with disabilities will have a supportive or repressive and restraining influence on the development and expression of sexuality in people with disabilities. The results of the study indicate that teachers and therapists show acceptance and understanding towards the sexuality of people with intellectual disabilities. They respect their rights in this area. The attitudes towards the sexuality of people with mild intellectual disabilities are more positive than towards the sexuality of people with severe intellectual disabilities. Moreover, older teachers and therapists are more likely to perceive people with intellectual disabilities in more asexual terms and treat them as people without sexual needs or rights.


2016 ◽  
Vol 20 (2) ◽  
pp. 152-164 ◽  
Author(s):  
Edurne García Iriarte ◽  
Janine Stockdale ◽  
Roy McConkey ◽  
Fiona Keogh

The movement of people with intellectual disabilities into the community is increasingly endorsed by public policy. Whilst staff are critical to a successful transition to the community, there is only scattered research on their role in supporting people to move. In this study, 32 staff and the 16 people with intellectual disabilities they supported to move from congregated settings to group homes or personalized living arrangements in the community were interviewed on two occasions, before (time 1) and after (time 2) the move. In congregated settings, staff steered the move to community living, they helped them to settle in community group homes and supported them to increase control over their lives in personalized community arrangements, where they support became increasingly more personalized and geared towards community participation and development of social relationships. Implications for staff training are drawn.


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