Nursing Research

Author(s):  
Terrah Foster Akard ◽  
Karen Hyden ◽  
Mary Jo Gilmer

Palliative care nursing research aims to improve care for patients with life-threatening conditions and their families and includes physical, emotional, social, and spiritual domains. This chapter will help guide nurses and other healthcare providers in understanding the current state of nursing research and future directions. Published articles, information from leading palliative care and research organizations, and authors’ ongoing research were used to describe selected components of palliative care nursing research including (a) goals of palliative care research, (b) benefits and challenges in palliative care research, (c) priority research areas in palliative care, (d) palliative care funding source, and (e) preparation of a research proposal. Nurses are in ideal roles not only to provide palliative care at the bedside, but also to serve as leaders in research to advance the science of palliative care.

Author(s):  
Nancy Robertson ◽  
Barbara Sutton

Palliative care, as its own specialty, has grown exponentially within the hospital setting and is now flowing over into the communities where seriously ill people and their loved ones live. But how to deliver this approach is as uncertain as the socioeconomic and political influences currently at play. What is not unclear is the huge opportunity presented for nursing’s impact on this field. Palliative care is nursing at its core. Along with nursing’s long history of serving in the community, the nursing discipline stands to contribute greatly to the success of this specialty. This chapter reviews the current state of community-based palliative care. It looks at the efficacy of the community-based palliative care interventions, the various models being utilized to deliver these services, and the structure as it exists of the interdisciplinary teams providing this care, as well as the reimbursement challenges currently faced. Rules and regulations along with standards governing palliative care nursing practice will be reviewed, and the future of nursing in this arena is discussed.


Obiter ◽  
2020 ◽  
Vol 41 (2) ◽  
pp. 348-370
Author(s):  
Marc Welgemoed ◽  
Henry Lerm

This article has a critical look at the current state of affairs in palliative care in South Africa. While euthanasia remains unlawful in South Africa, there is only one alternative – namely, palliative care – to mitigate pain and symptoms, make life tolerable, and ease the emotional stress of dying for patients and their families. Palliative care, unlike euthanasia, has always been regarded as a sound medical practice, ethically, morally and legally. The practice the world over includes family, friends and community. However, no system or legislation has been put in place in South Africa to serve as a guideline for end-of-life practices. The focus of this article is to try to establish guidelines through a multidisciplinary approach that includes the family and makes use of community resources to improve the quality of life of patients and families facing the problems associated with life-threatening illness, through the prevention and relief of suffering.


Author(s):  
Rana Limbo ◽  
Kathie Kobler ◽  
Betty Davies

The diagnosis of a life-threatening condition in a young child (including the unborn) brings staggering grief when the prognosis predicts the likelihood of an early death. The diagnoses range from genetic or chromosomal disorders that will cause death either during pregnancy or shortly after birth to malignancy, severe prematurity, and trauma, among others. Perinatal and pediatric palliative care are discussed from the standpoint of relationship, highlighting nursing care that focuses on a theory of teaching and learning—guided participation. As family members learn to deal with their own and their child’s suffering and physical condition, the nurse joins with them in identifying how relational, task-related, and emotional competencies can be attained and maintained by establishing new goals (regoaling) and hopes. The purpose of this chapter is to discuss grief as a life-long, relational process. The trajectory of grief reflects how survivors of loving relationships maintain closeness and connection, cherishing dear ones who are no longer physically present. The authors highlight grief theory and provide examples of clinical application. Chapter content also includes practical strategies for grief assessment and supporting bereaved parents and children. Finally, the authors focus on how healthcare providers are affected by the intensity of bearing witness to the child’s, family’s, and other team members’ suffering.


Author(s):  
John D. Chovan ◽  
Betty D. Morgan

This chapter describes the challenges and special needs for persons living with severe and persistent mental illness as they face chronic and life-threatening illnesses. Healthcare providers, especially those working on palliative care interdisciplinary teams, will learn the magnitude of this underserved population; their circumstances; the special needs of the persons with schizophrenia, bipolar disorder, and personality disorders; and those aspects of their mental illness that limit access to and delivery of appropriate healthcare throughout the trajectory of their illnesses. Techniques for caring for and communicating with patients and their families are offered, as are ethical decision-making advice regarding refusal of treatment, capacity and competence, advance directives, and interpersonal issues.


2022 ◽  
Vol 9 (1) ◽  
pp. 33
Author(s):  
Houman Farzin

This presentation will review the history of scientific research into the use of psychedelic medicines for the treatment of existential distress due to life-threatening illnesses, it will then outline the current state of affairs in North America, and conclude with exploring the implications it will have on the future of palliative care. Despite the significant advances in the field of palliative care with regards to symptom management, and pain control in particular, we have yet to devise an effective treatment strategy for individuals facing the existential distress associated with the inevitable reality of facing death. Psychedelic-assisted therapy, which involves the use of various psychoactive substances in the right set and setting to experience an altered state of consciousness, could serve as a powerful tool to alleviate the anxiety that many face after receiving a life-threatening diagnosis.  


2000 ◽  
Vol 6 (1) ◽  
pp. 32-38 ◽  
Author(s):  
Lesley Wilkes ◽  
Sally Tracy ◽  
Kate White

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