Palliative care in the Philippines

Author(s):  
Ayda G. Nambayan ◽  
Henry U. Lu

Culture, traditions, beliefs, and religion play an important part in every Filipino‘s life and death. In addition, the family is central and carries a significant importance especially in healthcare decisions. Families are generally very involved in caring for their loved ones who are dying and equally expect healthcare providers to do the same. These are the hospice/palliative care activists who, against all odds, continuously try to improve their patients‘ quality of life and provide them with elements of dignity.

Author(s):  
Mary S. McCabe ◽  
Stacie Corcoran

Being told you are cancer-free does not mean you are free of the consequences of the disease. Seventy-six percent of cancer survivors are over age 60 years and have coexisting medical conditions that complicate posttreatment recovery to maximum health. Childhood cancer survivors also carry a heavy burden of medical and psychological problems resulting from their experience with cancer. Cancer diagnosis and treatment affects the family as well as the patient. Improvements are needed in the coordination of care for cancer survivors to assure optimal quality of life.


2016 ◽  
Vol 34 (5) ◽  
pp. 417-422 ◽  
Author(s):  
Stephen Claxton-Oldfield ◽  
Anamika Bhatt

A survey was conducted to examine the frequency, acceptability, and functions of humor between hospice palliative care volunteers and their patients, from the volunteers’ perspective. Thirty-two volunteers completed the survey, which was developed for this study. The results revealed that most patients and volunteers initiated humor either “often” or “sometimes” in their interactions. Over half of the volunteers considered humor to be either “very important” or “extremely important” in their interactions with patients (42% and 13%, respectively), with the patient being the determining factor as to whether and when it is appropriate or not (ie, volunteers take their lead from their patients). Volunteers mentioned a number of functions that humor serves within their patient interactions (eg, to relieve tension, to foster relationships/connections, and to distract). Laughter and humor fulfills one of the main goals of hospice palliative care, namely, improving patients’ overall quality of life.


2018 ◽  
Vol 28 (2) ◽  
pp. 603-611
Author(s):  
Tsvetka Boycheva ◽  
Mariya Dimitrova

In recent decades, there has been a growing public interest in palliative care. This is dictated by the ever increasing number of people who need it. With advances in medical science and the development of new technologies, life expectancy has increased, but at the same time, the number of years spent in illness and suffering has increased. Still, death is not defeated, but pain and suffering can be relieved, and the quality of life of the terminally ill and their families can be improved. Palliative care is overwhelming. They target the patient and his family. They meet the psychic, social, spiritual and cultural needs of the patient, provide training and support to relatives. The family is a social institution that ensures the biological and social continuity of the human race. There is a correlation between it and health. Today it is impossible to function and develop properly without providing optimal health to its members. Diseases of a family member adversely affect his or her functions. Reproductive, economic and psycho-emotional function is impaired. A home is a place where one lives fully and most people prefer their care to be done at home. The needs of patients in need of palliative care are specific. Apart from a health problem, they also have spiritual, social and mental needs. The most frequent care of these patients is taken by a relative or a family member. In most cases, they lack the necessary skills, resources and time. This clearly shows that the quality of life of these patients and their families is not guaranteed. The purpose of this study is to find out what influence has the care of terminally ill on his family. The subject of the study is 602 persons, close to terminally ill in 30 medical institutions in the country. Within a six-month period from 01.11.2017 to 30.04.2018. With the help of a direct individual survey, how the care of the terminally ill is reflected in his family was identified. Statistical methods for data processing and analysis were used. Results: The family is experiencing great stress when there is a severely sick patient in it. The lifestyle of the whole family is changing. Negative emotions accumulate and social contacts are disturbed. Economic and social difficulties, lack of time and lack of knowledge and skills are major problems in families with patients in need of palliative care. Respondents want to participate in training for the care of the sick, need professional help and support to ensure a better quality of life for their close and normal family functioning.


Introduction: Palliative care with the Cicely Saunders, in the 20th century and consists of the care and assistance to the patient and their families, ensuring better quality of life, aiming at controlling pain and suffering, with attention to physical aspects, spiritual, social and psychic. Objectives: To approach the respiratory and motor care of a pediatric patient in palliative care by nursing and physiotherapy, restricted to the bed, with non-progressive Hypoxic-Ischemic Encephalopathy, with metabolic syndrome under investigation, chronic pulmonary disease dependent on oxygen, alternating macronebulization and ventilatory prosthesis (PSV) for nocturnal breathing comfort. Methodology: This is an experience report lived by residents in a public university hospital in Rio de Janeiro, during the month of June 2018 in the pediatric ward. Through multidisciplinary action, interventions were carried out to improve the patient’s condition and minimize pain aspects through the care of the patient’s respiratory and motor functions and maternal guidance. Results and Discussion: Bearing in mind that palliative care focuses on minimizing pain and suffering, the actions presented above are in line with most of the published studies relating palliative care and improving quality of life with reducing the suffering of child and family members, guided by the bioethical principles of beneficence and non-maleficence. Conclusion: Through the applied procedures, greater independence of the ventilatory prosthesis was found, enabling the strengthening of the family bond, concomitant to the learning of the professionals involved related to palliative care in pediatric patients.


2008 ◽  
Vol 21 (3) ◽  
pp. 504-508 ◽  
Author(s):  
Ednamare Pereira da Silva ◽  
Dora Sudigursky

This literature review study aimed to identify the conceptions of palliative care mentioned in Brazilian journals. The databases LILACS, SciELO and BDENF were used. In total, 47 articles were selected, published from 2000 to 2006. The conceptions found refer to the concept of palliative care, understood as integral care for individuals in terminal conditions, emphasizing the physical, psychosocial and spiritual aspects of the individual and the family; quality of life; care based on a humanistic approach and valuation of life; pain and symptom control; ethical issues about life and death; multidisciplinary approach; dying as a natural process; the priority of care over cure; communication, spirituality and mourning support. These conceptions are considered highly important in palliative care; however, there is a lack of services and centers to deliver these types of care.


10.3823/2298 ◽  
2017 ◽  
Vol 10 ◽  
Author(s):  
Irany Carvalho da Silva ◽  
Patrícia Serpa de Souza Batista ◽  
Indiara Carvalho dos Santos Platel ◽  
Jessyka Cibelly Minervina Da Costa Silv ◽  
Débora Rodrigues Alves de Lima ◽  
...  

Palliative care is aimed at people with diseases without perspective of cure or terminally, aiming to provide a better quality of life. This study aims to investigating the discourse of nurses about their understanding of palliative care to elderly patient with cancer and identify strategies used by nurses to promote palliative care to the elderly cancer patient. It is an exploratory research of a qualitative nature, carried out with thirteen nurses from a philanthropic institution in the city of João Pessoa, through a questionnaire. The empirical material was subjected to thematic content analysis, resulting in three categories: design of nurses to assist the elderly in Palliative Care: promoting comfort and minimizing the suffering, the importance of palliative care in humanized care to the elderly with cancer and strategies for the Promotion of Care of the Elderly with Cancer. Participants highlighted the palliative care as essential in the humanization of care, ensuring the dignity and quality of life among the elderly with cancer without possibilities of cure, adding such assistance, the family. Keywords: Palliative Care; Nurse; Elderly; Cancer.


Introduction: Palliative care with the Cicely Saunders, in the 20th century and consists of the care and assistance to the patient and their families, ensuring better quality of life, aiming at controlling pain and suffering, with attention to physical aspects, spiritual, social and psychic.Objectives: To approach the respiratory and motor care of a pediatric patient in palliative care by nursing and physiotherapy, restricted to the bed, with non-progressive Hypoxic-Ischemic Encephalopathy, with metabolic syndrome under investigation, chronic pulmonary disease dependent on oxygen, alternating macronebulization and ventilatory prosthesis (PSV) for nocturnal breathing comfort. Methodology: This is an experience report lived by residents in a public university hospital in Rio de Janeiro, during the month of June 2018 in the pediatric ward. Through multidisciplinary action, interventions were carried out to improve the patient’s condition and minimize pain aspects through the care of the patient’s respiratory and motor functions and maternal guidance.Results and Discussion: Bearing in mind that palliative care focuses on minimizing pain and suffering, the actions presented above are in line with most of the published studies relating palliative care and improving quality of life with reducing the suffering of child and family members, guided by the bioethical principles of beneficence and non-maleficence.Conclusion: Through the applied procedures, greater independence of the ventilatory prosthesis was found, enabling the strengthening of the family bond, concomitant to the learning of the professionals involved related to palliative care in pediatric patients.


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