How do you build your care team?

2021 ◽  
pp. 221-236
Author(s):  
Andrew E. Budson ◽  
Maureen K. O’Connor
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Support Groups ◽  
Emotional Support ◽  
Respite Care ◽  
Care Team ◽  
Loved One ◽  
Overnight Stay ◽  
National Organizations ◽  
Day Program

No one person can manage the demands of dementia alone. Building a strong care team early following a diagnosis is critical to your wellbeing and to providing your loved one with the best care. By reaching out to family, friends, neighbors, and professional caregivers, you can limit your burden, reduce your feelings of isolation, and create a healthier environment for you and your loved one. Your loved one’s doctor should be a source of help as well. Support groups can provide you with information and important skills in addition to emotional support. Whether as a day program or overnight stay, respite care may be an invaluable resource for you. National organizations dedicated to Alzheimer’s disease and dementia can also be an invaluable resource.

How do you build your care team?

2021 ◽  
pp. 221-236
Author(s):  
Andrew E. Budson ◽  
Maureen K. O’Connor
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Support Groups ◽  
Emotional Support ◽  
Respite Care ◽  
Care Team ◽  
Loved One ◽  
Overnight Stay ◽  
National Organizations ◽  
Day Program

No one person can manage the demands of dementia alone. Building a strong care team early following a diagnosis is critical to your wellbeing and to providing your loved one with the best care. By reaching out to family, friends, neighbors, and professional caregivers, you can limit your burden, reduce your feelings of isolation, and create a healthier environment for you and your loved one. Your loved one’s doctor should be a source of help as well. Support groups can provide you with information and important skills in addition to emotional support. Whether as a day program or overnight stay, respite care may be an invaluable resource for you. National organizations dedicated to Alzheimer’s disease and dementia can also be an invaluable resource.

Six Steps to Managing Alzheimer's Disease and Dementia

2021 ◽  
Author(s):  
Andrew E. Budson ◽  
Maureen K. O'Connor
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Family Member ◽  
Real Life ◽  
Care Team ◽  
Loved One ◽  
Clinical Vignettes ◽  
Caregiver Needs ◽  
Eventual Death ◽  
With Memory

Six Steps to Managing Alzheimer’s Disease and Dementia: A Guide for Families explains everything that a family member or other caregiver needs to care for their loved one with Alzheimer’s disease or another dementia, all the way from the mild stage through death—and beyond. It begins by explaining Alzheimer’s and dementia, and how to manage problems with memory, language, vision, emotion, behavior, sleep, and bodily functions. Next discussed are which medications help—and which make things worse. Caring for yourself and building a care team are then covered, as well as how to sustain your relationship. Final chapters discuss the progression of dementia, the eventual death, and how to plan for life afterward. It is written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer’s disease and dementia.

S2-01-02: Effectiveness of time-limited support groups for people with early-stage Alzheimer's disease

2011 ◽  
Vol 7 ◽  
pp. S279-S279 ◽  
Author(s):  
Rebecca Logsdon ◽  
Kenneth Pike ◽  
Susan McCurry ◽  
Patricia Hunter ◽  
Joanne Maher ◽  
...  
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Support Groups ◽  
Early Stage ◽  
Limited Support

Interventions for Family Caregivers of Patients With Alzheimer's Disease in Community-Based Settings: Items for Consideration

1996 ◽  
Vol 8 (S1) ◽  
pp. 121-122 ◽  
Author(s):  
Kathleen Buckwalter
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Family Caregivers ◽  
Day Care ◽  
Evaluation Research ◽  
Respite Care ◽  
Community Based ◽  
Rigorous Evaluation ◽  
Rural Caregivers

There is a need for more rigorous evaluation research on existing services for Alzheimer's disease (AD; e.g., specialized day care, respite care, etc.). The needs, resources, and responses of rural caregivers, and the development, implementation, and evaluation of innovative services where they do not exist are of particular interest.

scholarly journals “Making Sense of a Disease That Makes No Sense”: Understanding Alzheimer’s Disease and Related Disorders Among Caregivers and Providers Within Alaska Native Communities

2020 ◽  
Author(s):  
Jordan P Lewis ◽  
Spero M Manson ◽  
Valarie B Jernigan ◽  
Carolyn Noonan
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Health Care ◽  
Support Groups ◽  
Health Care Providers ◽  
Alaska Native ◽  
Adult Population ◽  
Memory Loss ◽  
Cost Of Care ◽  
Care Providers

Abstract Background and Objectives With the rate of Alzheimer’s disease and related dementias (ADRD) increasing among Alaska Indian/Alaska Native (AI/AN) people, the Alaska Native Health system is ill-prepared to meet the challenges associated with the growing population at risk of ADRD. The high cost of care, inadequate training of health care providers, and lack of supportive services for caregivers are especially concerning. Research Design and Methods Interviews were conducted with 22 AN caregivers for ANs with ADRD and 12 ANs and non-Native health care providers in communities across Alaska. Interviews lasted approximately 60 min and were transcribed verbatim. We employed directed content analysis to examine the major agreements and disagreements between the participants’ understandings of ADRD in each of the domains of Kleinman’s Explanatory Model of Illness. Results Caregivers and health care providers expressed concerns about the lack of understanding, resources, and awareness of ADRD among ANs in rural and urban communities. Both caregivers and providers recognized the need to obtain an early diagnosis, blend Western and traditional medicines, promote lifestyle and dietary changes, and foster training for caregivers. Health care providers acknowledged their limited exposure to AN understanding of ADRD and wish to receive culturally relevant training to better serve AN. Discussion and Implications As the older AN adult population grows, the need for culturally responsive training and support services will continue to increase. We recommend establishing rural outreach and support groups for caregivers, developing an understanding of how ANs view ADRD to train and educate health care providers, and implement screening early for memory loss during routine medical examinations.

Caring for a Loved One With Alzheimer’s Disease

2012 ◽  
Vol 27 (8) ◽  
pp. 579-583 ◽  
Author(s):  
Charles Van Liew ◽  
Terry A. Cronan
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Health Status ◽  
Cognitive Status ◽  
Negative Effects ◽  
Loved One ◽  
Social Burden ◽  
Independent Variable ◽  
The Impact ◽  
The Relationship

Objective: Alzheimer’s disease (AD) is associated with considerable caregiver and social burden. It is important to examine ways to minimize the negative effects of AD. Health care advocates (HCAs) may be one means of limiting the aversive effects of AD. Method: Participants completed a short survey that assessed their perceptions of the impact of comorbid AD on health status and their likelihood of hiring an HCA to assist in managing it. A mediational model was proposed: cognitive status (AD vs cognitively healthy) was the independent variable, perception of severity was the mediator, and the probability of hiring an HCA was the dependent variable. Results: The results indicated that the relationship between cognitive status and probability of hiring an HCA was fully mediated by perceptions of severity. Conclusion: This study demonstrated that participants appreciated the impact of AD on health status, and this translated into a greater probability of hiring an HCA.

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