scholarly journals P159 Factors associated between SLE and work amongst South Asian people: an explorative qualitative study

Rheumatology ◽  
2021 ◽  
Vol 60 (Supplement_1) ◽  
Author(s):  
Mandeep Ubhi ◽  
Shirish Dubey ◽  
John Reynolds ◽  
Caroline Gordon ◽  
Tochukwu Adizie ◽  
...  
Keyword(s):  
South Asian ◽  
Work Ability ◽  
Lupus Erythematosus ◽  
Full Time ◽  
Structured Interviews ◽  
Related Factors ◽  
Asian Origin ◽  
South Asian Origin ◽  
The Impact ◽  
Minority Ethnic

Abstract Background/Aims  Systemic lupus erythematosus (SLE) affect patients from minority ethnic backgrounds, with many patients experiencing symptoms that affect their daily lives despite receiving long-term controller medication. Work is a large part of most people’s lives, yet little has been explored into how people from minority ethnic backgrounds cope at work whilst living with SLE. We conducted a study to understand the impact of SLE on working lives of South Asian patients. The aim was to identify and develop support mechanisms that could assist them with remaining at work. Methods  Semi-structured interviews were conducted with ten patients of South Asian origin with SLE to explore their work experiences. Patients were recruited from three rheumatology centres in the West Midlands, UK and were interviewed between November 2019 and March 2020. Interviews were audio-recorded and typed by an independent transcribing company. Returned transcripts were analysed using thematic analysis and QSR NVivo 12 software was used to organise and manage the data. Results  The majority (n = 8) of patients were female. Eight patients were from an Indian background, and two were from a Pakistani background. Half of all patients were educated to degree level. The age range of patients was 23 - 58 years old (S.D = 10.79), and disease duration varied between 3 months-33 years (S.D = 9.52). All patients had permanent jobs; six were in full-time employment, and four were in part-time employment. Four main themes emerged from the data: 1) Disease related factors; impacting work ability; 2) Employment related factors; impacting work ability; 3) Personal and cultural related factors; impacting work ability; 4) Recommendations for improvement were made by patients. Conclusion  In this novel study we highlight patients’ experiences of being at work. This study reports low awareness of SLE and mixed support in the workplace. Patients discussed work to varying degrees with their clinicians and needed further information for employers that was not available nor provided by their clinicians. The study reports cultural barriers in understanding SLE that could lead to lack of family support to remain in employment. Moreover, recommendations made in this study require further investigation and could be used by clinicians and Lupus UK to support patients of South Asian origin at work. Disclosure  M. Ubhi: None. S. Dubey: None. J. Reynolds: None. C. Gordon: None. T. Adizie: None. T. Sheeran: None. K. Allen: None. R. Jordan: None. S. Sadhra: None. J. Adams: None. R. Daji: None. K. Kumar: None.

scholarly journals Understanding the impact of systemic lupus erythematosus on work amongst South Asian people in the UK: An explorative qualitative study

Lupus ◽  
2021 ◽  
pp. 096120332110228
Author(s):  
Mandeep Ubhi ◽  
Shirish Dubey ◽  
Caroline Gordon ◽  
Tochukwu Adizie ◽  
Tom Sheeran ◽  
...  
Keyword(s):  
South Asian ◽  
Lupus Erythematosus ◽  
Cultural Barriers ◽  
Structured Interviews ◽  
Ability To Work ◽  
Related Factors ◽  
Work Related ◽  
Increased Risk ◽  
The Uk ◽  
The Impact

SLE has a range of fluctuating symptoms affecting individuals and their ability to work. Although South Asian (SA) patients are at increased risk of developing SLE there is limited knowledge of the impact on employment for these patients in the UK. Understanding ethnicity and disease-specific issues are important to ensure patients are adequately supported at work. Semi-structured interviews were conducted with patients of SA origin to explore how SLE impacted on their employment. Thematic analysis was used to analyse the data which are reported following COREQ guidelines. Ten patients (8 female; 2 male) were recruited from three rheumatology centres in the UK and interviewed between November 2019 and March 2020. Patients were from Indian (n = 8) or Pakistani (n = 2) origin and worked in a range of employment sectors. Four themes emerged from the data: (1) Disease related factors; (2) Employment related factors; (3) Cultural and interpersonal factors impacting on work ability; (4) Recommendations for improvement. Patients’ ability to work was affected by variable work-related support from their hospital clinicians, low awareness of SLE and variable support from their employers, and cultural barriers in their communities that could affect levels of family support received. These findings highlight the need for additional support for SA patients with SLE in the workplace.

South Asian music education in Essex: an ethnography of bhangra

2004 ◽  
Vol 21 (1) ◽  
pp. 7-24 ◽  
Author(s):  
Adrian Poole
Keyword(s):  
Secondary School ◽  
Music Education ◽  
South Asian ◽  
Cultural Environment ◽  
Educational Context ◽  
Structured Interviews ◽  
Learning Methods ◽  
Asian Origin ◽  
South Asian Origin ◽  
Asian Music

The general aim of this article is to explore South Asian music and culture in an educational context. The fieldwork on which it is based mainly consists of semi-structured interviews with pupils of South Asian origin (aged 11–18) who attend a secondary school in Ilford, Essex. The learning methods of South Asian musicians are considered and a detailed investigation of the socio-cultural environment in which these learning methods are related is undertaken, focusing on the role that music plays in the formation of concepts of culture, ‘identity’ and ‘place’. The majority of the musical material is drawn from the South Asian genre of bhangra, concentrating on the improvisations and rhythms of dhol players.

scholarly journals Comparing reactions to written leaflets, online information and real-time Doppler images among South Asian patients with rheumatoid arthritis

2020 ◽  
Vol 4 (1) ◽  
Author(s):  
Kanta Kumar ◽  
Caroline Bradbury-Jones ◽  
Christopher J Armitage ◽  
Sarah Peters ◽  
Sabrina Raizada ◽  
...  
Keyword(s):  
Real Time ◽  
South Asian ◽  
Patient Engagement ◽  
Health Care Professionals ◽  
Online Information ◽  
Structured Interviews ◽  
Asian Origin ◽  
South Asian Origin ◽  
Doppler Us ◽  
Adherence To Medication

Abstract Objective There is poor adherence to medication in patients of South Asian origin with RA. There are limited numbers of interventions to improve patient engagement. The objective of this study was to explore how patients of South Asian origin make sense of their disease after receiving written leaflets compared with online information or visualizing real-time Doppler US images of their inflamed joints. Methods Patients of South Asian origin with RA were recruited from two National Health Service hospitals in the West Midlands, UK. In-depth semi-structured interviews were undertaken after exposure to vignettes designed to elicit patients’ perspectives on: written leaflets; online information to complement face-to-face interaction with health-care professionals; and Doppler US during the early stages of the disease journey. Data were analysed thematically until data saturation was reached in 20 individuals. Results The responses to vignette scenarios were described by the patients. Overall, patients found real-time Doppler US more valuable in understanding RA and RA medications compared with other methods. Patients reported that Doppler US reduced anxiety and helped to address misconceptions about the long-term disease and its ability to be controlled. Conclusion We have developed new understanding regarding the educational utility of a Doppler US session in patients of South Asian origin and how these sessions can be optimized to increase patient engagement and adherence to medication.

scholarly journals South Asian Heroes

2020 ◽  
Vol 13 (3) ◽  
Author(s):  
Triya Chakravorty
Keyword(s):  
Health Care ◽  
National Health Service ◽  
Health Service ◽  
South Asian ◽  
Health Care Workers ◽  
Asian Origin ◽  
South Asian Origin ◽  
The United Kingdom ◽  
Care Workers ◽  
Research And Education

The United Kingdom National Health Service (NHS) staff and students have been working tirelessly throughout the pandemic in a multitude of ways, including caring for patients, volunteering their time, or being involved in research and education. People of Asian origin make up 29.7% of the NHS medical workforce1. In recognition of South Asian Heritage Month, we asked our readers to nominate health care workers of South Asian origin who have demonstrated their tenacity, innovation, and excellence in recent months.

Ethnic Differences in Women's Employment

1997 ◽  
Vol 11 (3) ◽  
pp. 435-457 ◽  
Author(s):  
Clare Holdsworth ◽  
Angela Dale
Keyword(s):  
Ethnic Groups ◽  
Economic Activity ◽  
White Women ◽  
Occupational Attainment ◽  
Women's Employment ◽  
Full Time ◽  
Women’S Employment ◽  
Part Time ◽  
The Impact ◽  
Minority Ethnic

This paper uses the 1 per cent household file from the Samples of Anonymised Records (SARs) for the 1991 Census and the ONS Longitudinal Study (LS) to explore variations in patterns of employment and occupational attainment among women from different ethnic groups. The analysis of the SARs focuses on the impact of lifecycle events on women's employment status and economic activity. The presence of a partner is identified as having the greatest impact on Pakinstani and Bangladeshi women's employment, while the presence of a pre-school child is most significant for White women's economic activity. White women also have a higher rate of part-time worlding than all other ethnic groups. These patterns are for malised in two models, one for economic activity and a second for full-time/part-time work. The LS is used to investigate the impact of these employment patterns on women's occupational attainment over a ten-year period. The analysis demonstrates that, while minority ethnic women in nonmanual occupations have similar longitudinal occupational profiles to White women, those in manual occupations fare worse than their White counterparts, despite the fact that a larger propotion of minority ethnic women are in fill-time employment.

Karbala in London: Battle of Expressions of Ashura Ritual Commemorations among Twelver Shia Muslims of South Asian Background

2017 ◽  
Vol 6 (2) ◽  
pp. 158-178 ◽  
Author(s):  
Sufyan Abid Dogra
Keyword(s):  
South Asia ◽  
South Asian ◽  
Transnational Networks ◽  
Power Struggle ◽  
Asian Origin ◽  
South Asian Origin ◽  
History Of

Abstract The roots of the struggle for authority among various groups of Twelver Shias of South Asian background living in London revolves around the idea of what is ‘true and authentic’ Shia Islam. The theological and political genealogy of this power struggle can be traced by examining the history of Shia Islam in South Asia. This article provides historical analyses and ethnographic accounts of Shia Islam and how it is practised in London. It investigates the influence of London-based Iranian and Iraqi Shia transnational networks on South Asian Hussainias and those who attend them. While some London-based Shias of South Asian origin conform to the Iran-backed reformist versions of globally standardised ritual commemoration of Ashura, others detest this and search for religious reinterpretations that assert South Asian ways of commemorating the Ashura ritual.

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