scholarly journals Comparing reactions to written leaflets, online information and real-time Doppler images among South Asian patients with rheumatoid arthritis

2020 ◽  
Vol 4 (1) ◽  
Author(s):  
Kanta Kumar ◽  
Caroline Bradbury-Jones ◽  
Christopher J Armitage ◽  
Sarah Peters ◽  
Sabrina Raizada ◽  
...  
Keyword(s):  
Real Time ◽  
South Asian ◽  
Patient Engagement ◽  
Health Care Professionals ◽  
Online Information ◽  
Structured Interviews ◽  
Asian Origin ◽  
South Asian Origin ◽  
Doppler Us ◽  
Adherence To Medication

Abstract Objective There is poor adherence to medication in patients of South Asian origin with RA. There are limited numbers of interventions to improve patient engagement. The objective of this study was to explore how patients of South Asian origin make sense of their disease after receiving written leaflets compared with online information or visualizing real-time Doppler US images of their inflamed joints. Methods Patients of South Asian origin with RA were recruited from two National Health Service hospitals in the West Midlands, UK. In-depth semi-structured interviews were undertaken after exposure to vignettes designed to elicit patients’ perspectives on: written leaflets; online information to complement face-to-face interaction with health-care professionals; and Doppler US during the early stages of the disease journey. Data were analysed thematically until data saturation was reached in 20 individuals. Results The responses to vignette scenarios were described by the patients. Overall, patients found real-time Doppler US more valuable in understanding RA and RA medications compared with other methods. Patients reported that Doppler US reduced anxiety and helped to address misconceptions about the long-term disease and its ability to be controlled. Conclusion We have developed new understanding regarding the educational utility of a Doppler US session in patients of South Asian origin and how these sessions can be optimized to increase patient engagement and adherence to medication.

scholarly journals EP24 A comparison of the effect of written leaflets, online information and real-time Doppler images: a qualitative study in South Asians

Rheumatology ◽  
2020 ◽  
Vol 59 (Supplement_2) ◽  
Author(s):  
Kanta Kumar ◽  
Caroline Bradbury-Jones ◽  
Christopher J Armitage ◽  
Sarah Peters ◽  
Sabrina Raizada ◽  
...  
Keyword(s):  
Medication Adherence ◽  
Real Time ◽  
South Asian ◽  
Patient Engagement ◽  
Healthcare Professionals ◽  
Online Information ◽  
Asian Origin ◽  
Face To Face ◽  
South Asian Origin ◽  
Early Stages

Abstract Background There is poor medication adherence in patients of South Asian origin with rheumatoid arthritis (RA). There are limited interventions to improve patient engagement. The objective of this study was to explore how patients of South Asian origin make sense of their disease after receiving written leaflets compared to online information or visualising real-time Doppler Ultrasound (DUS) images of their inflamed joints. Methods Patients of South Asian origin with RA were recruited from two NHS hospitals in the West Midlands, UK. In-depth semi-structured interviews were undertaken following exposure to vignettes designed to elicit patients’ perspectives on: (1) written leaflets, (2) online information to complement face-to-face interaction with healthcare professionals, and (3) DUS during the early stages of the disease journey. Data were analysed thematically until data saturation was reached in twenty individuals. Results The responses to vignette scenarios were described by patients: [1] perspectives on written leaflets at the early stages of the disease journey, [2] perspectives of online information to compliment face-to-face interaction with healthcare professionals, [3] perspective of DUS during the early stages of the disease journey. Overall, patients found real-time DUS more valuable in understanding RA and RA medications compared to other methods. Patients reported DUS reduced anxiety and helped address misconceptions about long-term disease and its ability to be controlled. Conclusion We have developed new understanding regarding the educational utility of a DUS session in patients of South Asian origin and how these sessions can be optimised to increase patient engagement and medication adherence. Disclosures K. Kumar None. C. Bradbury-Jones None. C. Armitage None. S. Peters None. S. Raizada None. P. Wong None.

scholarly journals Health-care professionals’ perceptions of interacting with patients of South Asian origin attending early inflammatory arthritis clinics

2019 ◽  
Vol 3 (2) ◽  
Author(s):  
Kanta Kumar ◽  
Rebecca J Stack ◽  
Ade Adebajo ◽  
Jo Adams
Keyword(s):  
Health Care ◽  
South Asian ◽  
Health Care Professionals ◽  
Inflammatory Arthritis ◽  
Good Practice ◽  
Future Research ◽  
Asian Origin ◽  
South Asian Origin ◽  
Adherence To Medication ◽  
Early Inflammatory Arthritis

Abstract Objective The aim was to explore the perceptions of rheumatology health-care professionals (HCPs) of interacting with patients of South Asian origin attending early inflammatory arthritis clinics. Methods We used face-to-face semi-structured interviews, designed in partnership with a clinician partner, to interview 10 HCPs involved in the running of early inflammatory arthritis clinics across seven centres in the UK. Data were recorded, transcribed by an independent company and analysed using inductive thematic analysis. Results Three emerging themes were identified that characterized consulting experiences of HCPs: varied approaches were used in early inflammatory arthritis clinic; the challenges for rheumatology HCPs in managing and delivering information to patients of South Asian origin in early inflammatory arthritis clinics; and moving towards good practice, the views on managing future patients of South Asian origin in early inflammatory arthritis clinics. Overall, HCPs found that they required additional skills to support the engagement and management for patients of South Asian origin living with inflammatory arthritis. The HCPs felt that they were less effective in addressing self-management issues for this patient group, and they found it difficult to determine adherence to medication. In such consultations, HCPs perceived that their own limitation of inadequate training contributed towards poor consultations. Conclusion For the first time, our data demonstrate that the management of patients of South Asian origin in early inflammatory arthritis clinics is under-served. To address this, HCPs have identified training needs to improve knowledge and skills in engaging with and supporting patients of South Asian origin. These findings provide a good direction for future research.

scholarly journals P159 Factors associated between SLE and work amongst South Asian people: an explorative qualitative study

Rheumatology ◽  
2021 ◽  
Vol 60 (Supplement_1) ◽  
Author(s):  
Mandeep Ubhi ◽  
Shirish Dubey ◽  
John Reynolds ◽  
Caroline Gordon ◽  
Tochukwu Adizie ◽  
...  
Keyword(s):  
South Asian ◽  
Work Ability ◽  
Lupus Erythematosus ◽  
Full Time ◽  
Structured Interviews ◽  
Related Factors ◽  
Asian Origin ◽  
South Asian Origin ◽  
The Impact ◽  
Minority Ethnic

Abstract Background/Aims  Systemic lupus erythematosus (SLE) affect patients from minority ethnic backgrounds, with many patients experiencing symptoms that affect their daily lives despite receiving long-term controller medication. Work is a large part of most people’s lives, yet little has been explored into how people from minority ethnic backgrounds cope at work whilst living with SLE. We conducted a study to understand the impact of SLE on working lives of South Asian patients. The aim was to identify and develop support mechanisms that could assist them with remaining at work. Methods  Semi-structured interviews were conducted with ten patients of South Asian origin with SLE to explore their work experiences. Patients were recruited from three rheumatology centres in the West Midlands, UK and were interviewed between November 2019 and March 2020. Interviews were audio-recorded and typed by an independent transcribing company. Returned transcripts were analysed using thematic analysis and QSR NVivo 12 software was used to organise and manage the data. Results  The majority (n = 8) of patients were female. Eight patients were from an Indian background, and two were from a Pakistani background. Half of all patients were educated to degree level. The age range of patients was 23 - 58 years old (S.D = 10.79), and disease duration varied between 3 months-33 years (S.D = 9.52). All patients had permanent jobs; six were in full-time employment, and four were in part-time employment. Four main themes emerged from the data: 1) Disease related factors; impacting work ability; 2) Employment related factors; impacting work ability; 3) Personal and cultural related factors; impacting work ability; 4) Recommendations for improvement were made by patients. Conclusion  In this novel study we highlight patients’ experiences of being at work. This study reports low awareness of SLE and mixed support in the workplace. Patients discussed work to varying degrees with their clinicians and needed further information for employers that was not available nor provided by their clinicians. The study reports cultural barriers in understanding SLE that could lead to lack of family support to remain in employment. Moreover, recommendations made in this study require further investigation and could be used by clinicians and Lupus UK to support patients of South Asian origin at work. Disclosure  M. Ubhi: None. S. Dubey: None. J. Reynolds: None. C. Gordon: None. T. Adizie: None. T. Sheeran: None. K. Allen: None. R. Jordan: None. S. Sadhra: None. J. Adams: None. R. Daji: None. K. Kumar: None.

South Asian music education in Essex: an ethnography of bhangra

2004 ◽  
Vol 21 (1) ◽  
pp. 7-24 ◽  
Author(s):  
Adrian Poole
Keyword(s):  
Secondary School ◽  
Music Education ◽  
South Asian ◽  
Cultural Environment ◽  
Educational Context ◽  
Structured Interviews ◽  
Learning Methods ◽  
Asian Origin ◽  
South Asian Origin ◽  
Asian Music

The general aim of this article is to explore South Asian music and culture in an educational context. The fieldwork on which it is based mainly consists of semi-structured interviews with pupils of South Asian origin (aged 11–18) who attend a secondary school in Ilford, Essex. The learning methods of South Asian musicians are considered and a detailed investigation of the socio-cultural environment in which these learning methods are related is undertaken, focusing on the role that music plays in the formation of concepts of culture, ‘identity’ and ‘place’. The majority of the musical material is drawn from the South Asian genre of bhangra, concentrating on the improvisations and rhythms of dhol players.

scholarly journals Hepatitis A virus infection in people of South Asian origin in England and Wales: analysis of laboratory reports between 1992 and 2004

2006 ◽  
Vol 135 (4) ◽  
pp. 549-554 ◽  
Author(s):  
U. GUNGABISSOON ◽  
N. ANDREWS ◽  
N. S. CROWCROFT
Keyword(s):  
General Population ◽  
South Asian ◽  
Health Care Professionals ◽  
Hepatitis A ◽  
Age Distribution ◽  
The South ◽  
Asian Origin ◽  
Asian Group ◽  
England And Wales ◽  
South Asian Origin

SUMMARYThe aim of the study was to determine whether rates of hepatitis A infection are higher in people of South Asian origin compared to the general population, to look for evidence of spread to the general population, and to identify ways to improve preventive strategies. Routine laboratory reports of hepatitis A infection in England and Wales in 1992–2004 were analysed. Study participants were patients with confirmed hepatitis A infection reported to the Health Protection Agency by the diagnosing laboratory. Nam Pehchan software was used to identify patients of South Asian ethnicity. Main outcome measures were comparison of incidence of hepatitis A in South Asian and non-South Asian groups, by age and region. Rates of infection were significantly higher in the South Asian group compared to the non-South Asian group (rate ratio 2·68, 95% confidence interval 2·07–3·47). Patients in the South Asian group had a younger age distribution. Travel was an important risk factor with 85% of those of South Asian origin acquiring their infection abroad, most frequently in the Indian subcontinent, compared to less than one third of those in other groups. Health-care professionals should ensure that all travellers to high-risk countries are protected by hepatitis A vaccination. Targeted information campaigns may be indicated in regions of the United Kingdom for people in South Asian minority ethnic groups.

scholarly journals South Asian Heroes

2020 ◽  
Vol 13 (3) ◽  
Author(s):  
Triya Chakravorty
Keyword(s):  
Health Care ◽  
National Health Service ◽  
Health Service ◽  
South Asian ◽  
Health Care Workers ◽  
Asian Origin ◽  
South Asian Origin ◽  
The United Kingdom ◽  
Care Workers ◽  
Research And Education

The United Kingdom National Health Service (NHS) staff and students have been working tirelessly throughout the pandemic in a multitude of ways, including caring for patients, volunteering their time, or being involved in research and education. People of Asian origin make up 29.7% of the NHS medical workforce1. In recognition of South Asian Heritage Month, we asked our readers to nominate health care workers of South Asian origin who have demonstrated their tenacity, innovation, and excellence in recent months.

Karbala in London: Battle of Expressions of Ashura Ritual Commemorations among Twelver Shia Muslims of South Asian Background

2017 ◽  
Vol 6 (2) ◽  
pp. 158-178 ◽  
Author(s):  
Sufyan Abid Dogra
Keyword(s):  
South Asia ◽  
South Asian ◽  
Transnational Networks ◽  
Power Struggle ◽  
Asian Origin ◽  
South Asian Origin ◽  
History Of

Abstract The roots of the struggle for authority among various groups of Twelver Shias of South Asian background living in London revolves around the idea of what is ‘true and authentic’ Shia Islam. The theological and political genealogy of this power struggle can be traced by examining the history of Shia Islam in South Asia. This article provides historical analyses and ethnographic accounts of Shia Islam and how it is practised in London. It investigates the influence of London-based Iranian and Iraqi Shia transnational networks on South Asian Hussainias and those who attend them. While some London-based Shias of South Asian origin conform to the Iran-backed reformist versions of globally standardised ritual commemoration of Ashura, others detest this and search for religious reinterpretations that assert South Asian ways of commemorating the Ashura ritual.

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