‘The apple doesnʼt fall far from the tree’: the role of parents in chronic disease self-management

2008 ◽  
Vol 20 (6) ◽  
pp. 703-704 ◽  
Author(s):  
Joan K Orrell-Valente ◽  
Michael D Cabana
Keyword(s):  
Chronic Disease ◽  
Self Management ◽  
Role Of Parents

Diabetes self-care in-the-wild

2014 ◽  
Vol 27 (4) ◽  
pp. 397-420 ◽  
Author(s):  
Cristiano Storni
Keyword(s):  
Chronic Disease ◽  
Everyday Life ◽  
Self Care ◽  
Self Management ◽  
Self Monitoring ◽  
Content Type ◽  
In The Wild ◽  
Care Practices

Purpose – The purpose of this paper is to raise issues about the design of personal health record systems (PHRs) and self-monitoring technology supporting self-care practices of an increasing number of individuals dealing with the management of a chronic disease in everyday life. It discusses the results of an ethnographic study exposing to analysis the intricacies and practicalities of managing diabetes “in the wild”. It then describe and discuss the patient-centric design of a diabetes journaling platform that followed the analysis. Design/methodology/approach – The study includes ethnometodological investigation based on in depth interviews, observations in a support group for adults with type 1 diabetes, home visits, shadowing sessions and semi-structured interviews with a series of medical experts (endocrinologists, general practitioners and diabetes nurses). Findings informed the design of a proof-of-concept PHR called Tag-it-Yourself (TiY): a mobile journaling platform that enables the personalization of self-monitoring practices. The platform is thoroughly described along with an evaluation of its use with real users. Findings – The investigation sheds light on a series of general characters of everyday chronic self-care practices, and how they ask to re-think some of the assumptions and connotations of the current medical model and the traditional sick role of the patient – often unreflectively assumed also in the design of personal technologies (e.g. PHR) to be used by patients in clinically un-controlled settings. In particular, the analysis discusses: the ubiquitous nature of diabetes that is better seen as a lifestyle, the key role of lay expertises and different forms of knowledge developed by the patient in dealing with a disease on a daily basis, and the need of more symmetrical interactions and collaborations with the medical experts. Research limitations/implications – Reported discussions suggest the need of a more holistic view of self-management of chronic disease in everyday life with more attention being paid on the perspective of the affected individuals. Findings have potential implications on the way PHR and systems to support self-management of chronic disease in everyday life are conceived and designed. Practical implications – The paper suggests designers and policy makers to look at chronic disease not as a medical condition to be disciplined by a clinical perspective but rather as a complex life-style where the medical cannot be separated by other aspects of everyday life. Such shift in the perspective might suggest new forms of collaborations, new ways of creative evidence and new form of knowledge creation and validation in chronic self-care. Social implications – The paper suggests re-thinking the role of the patient in chronic-disease self-management. In particular, it suggests giving more room to the patient voice and concerns and suggest how these can enrich rather than complicate the generation of knowledge about self-care practices, at least in type 1 diabetes. Originality/value – The paper sheds light on everyday intricacies and practicalities of dealing with a chronic disease. Studies of self-care practices that shed light on the patient perspectives are sporadic and often assume a clinical perspective, its assumptions (e.g. biomedical knowledge is the only one available to improve health outcome, doctors know best) and implications (e.g. compliance, asymmetry between the specialist and the patient).

Optimizing Self-Management of Diabetes and the Role of the Physiotherapist on an Interdisciplinary Chronic Disease Management Team

2018 ◽  
Vol 42 (5) ◽  
pp. S29
Author(s):  
Bonnie Doyle ◽  
Tara Jones ◽  
Laura Burchell ◽  
Jennifer Moore ◽  
Cindy Keith ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Disease Management ◽  
Chronic Disease Management ◽  
Management Team ◽  
Self Management

scholarly journals Music and dance in chronic lung disease

Breathe ◽  
2019 ◽  
Vol 15 (2) ◽  
pp. 116-120 ◽  
Author(s):  
Keir Philip ◽  
Adam Lewis ◽  
Nicholas S. Hopkinson
Keyword(s):  
Chronic Disease ◽  
Lung Disease ◽  
Chronic Lung Disease ◽  
Personalised Medicine ◽  
Evidence Base ◽  
Self Management ◽  
Music Making ◽  
Arts In Health

Arts in Health interventions show potential to improve the quality of life of people with chronic lung disease. Listening to music, making music, and dance have accepted and established roles in the lives of people without chronic disease. However, their potential utility in chronic disease management is infrequently considered by medical professionals. The aim of this review is to examine the use of music and dance in the treatment and self-management of chronic lung disease. Although the evidence base is currently limited, existing research suggests a range of biopsychosocial benefits. As personalised medicine and social prescribing become more prominent, further research is required to establish the role of arts interventions in chronic lung disease.

What distinguishes clinicians who better support patients for chronic disease self-management?

2012 ◽  
Vol 18 (3) ◽  
pp. 220 ◽  
Author(s):  
Sue E. Kirby ◽  
Sarah M. Dennis ◽  
Pat Bazeley ◽  
Mark F. Harris
Keyword(s):  
Chronic Disease ◽  
Hospital Readmissions ◽  
Patient Activation ◽  
Self Management ◽  
Community Based ◽  
Supportive Role ◽  
Acute Exacerbations ◽  
Gp Services ◽  
Management Services

Many frequent readmissions due to acute exacerbations of chronic disease could be prevented if patients self-managed. This study explored factors involved in patient activation for chronic disease self-management by qualitative analysis of interview data from hospital and community-based clinicians and patients. All clinicians reported that many frequently readmitted patients did not readily take up referral to chronic disease self-management services. This reluctance was compounded by system or access barriers. Clinicians who had a defined role in chronic disease management and patient-centred and behaviour change skills reported that although some patients were more resistant than others, patients could be persuaded to adopt self-management behaviours. Hospital clinicians and GPs were more inclined to attribute blame to clinical, social and personal patient factors, such as difficulty with support at home, social circumstances and reluctance to take responsibility. Investment in extending the skills and role of hospital clinicians and GPs to take a more supportive role in patient uptake of referrals to chronic disease self-management services would reduce hospital readmissions. Improvements in access to chronic disease self-management and GP services are also needed to address failure to take up chronic disease self-management.

Understanding ADA Education Program Recognition and the Pharmacist’s Role

2009 ◽  
Vol 22 (6) ◽  
pp. 591-593
Author(s):  
Holly S. Divine
Keyword(s):  
Chronic Disease ◽  
American Diabetes Association ◽  
Management Education ◽  
Diabetes Education ◽  
National Standards ◽  
Self Management ◽  
Education Programs ◽  
Education Services ◽  
Program Recognition

Diabetes is a prevalent chronic disease with costly humanistic and clinical outcomes. Pharmacists have proven their value in the provision of diabetes education and management services that lead to improvement in disease. A primary barrier to pharmacists’ providers has been compensation for services. Although pharmacists are not recognized as providers by most nationally recognized payers, pharmacists can serve as instructors through diabetes self-management education programs accredited by the American Diabetes Association. These accredited programs are recognized by Medicare and can receive payment for diabetes self-management education services. Newly revised national standards have further recognized the role of a pharmacist educator and have made it more attainable for pharmacies to achieve program recognition status.

scholarly journals The Role of Session Zero in Successful Completion of Chronic Disease Self-Management Program Workshops

2015 ◽  
Vol 2 ◽  
Author(s):  
Luohua Jiang ◽  
Matthew Lee Smith ◽  
Shuai Chen ◽  
SangNam Ahn ◽  
Kristie P. Kulinski ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Management Program ◽  
Self Management ◽  
Successful Completion

The perceived benefits of the chronic disease self-management program among participants with stroke: A qualitative study

2003 ◽  
Vol 9 (3) ◽  
pp. 80 ◽  
Author(s):  
Tara Catalano ◽  
Paul Dickson ◽  
Elizabeth Kendall ◽  
Kim Kuipers ◽  
T. Natasha Posner
Keyword(s):  
Social Support ◽  
Chronic Disease ◽  
Social Contact ◽  
Psychosocial Interventions ◽  
Management Program ◽  
Self Management ◽  
Rehabilitation System ◽  
Key Aspects

Despite the expense associated with rehabilitation following stroke, dissatisfaction with psychosocial outcomes is common (Thomas & Parry, 1996). The rehabilitation system has been critiqued as lacking a theoretical base for psychosocial interventions (Goldberg, Segal, Berk, Schall, & Gershkoff, 1997). The current paper examines the possible role of the Chronic Disease Self-Management Program ([CDSMP] Lorig, 1996) in contributing to the psychosocial rehabilitation of people with stroke. This paper focuses on the analysis of incidental comments made by participants about a version of the CDSMP, tailored for people with stroke. These comments, collected over an 18-month follow-up period, provide interesting insights into the key aspects of the program. Six informative themes emerged from the more specific comments, namely (1) the importance of social contact and comparison, (2) increased awareness and knowledge about stroke, (3) motivation to pursue goals and activities, (4) a sense of achievement, (5) maintenance of gains, and (6) the paradoxical nature of social support. According to participants, the program was associated with enhanced self-efficacy. Other reported benefits (such as social support and enhanced knowledge) were indirectly associated with the program and appeared to reflect social aspects of the group and its stroke-specific focus. Maintenance of gains made by participants was seen as a crucial issue.

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