scholarly journals North American Neuroendocrine Tumor Society Guide for Neuroendocrine Tumor Patient Health Care Providers During COVID-19

Pancreas ◽  
2020 ◽  
Vol 49 (6) ◽  
pp. 723-728 ◽  
Author(s):  
Emily K. Bergsland ◽  
Daniel M. Halperin ◽  
Joseph S. Dillon ◽  
N. Arvind Dasari ◽  
Pamela L. Kunz ◽  
...  
2021 ◽  
Vol 8 ◽  
pp. 237437352110340
Author(s):  
Shirley Chien-Chieh Huang ◽  
Alden Morgan ◽  
Vanessa Peck ◽  
Lara Khoury

There has been little published literature examining the unique communication challenges older adults pose for health care providers. Using an explanatory mixed-methods design, this study explored patients’ and their family/caregivers’ experiences communicating with health care providers on a Canadian tertiary care, inpatient Geriatric unit between March and September 2018. In part 1, the modified patient–health care provider communication scale was used and responses scored using a 5-point scale. In part 2, one-on-one telephone interviews were conducted and responses transcribed, coded, and thematically analyzed. Thirteen patients and 7 family/caregivers completed part 1. Both groups scored items pertaining to adequacy of information sharing and involvement in decision-making in the lowest 25th percentile. Two patients and 4 family/caregivers participated in telephone interviews in part 2. Interview transcript analysis resulted in key themes that fit into the “How, When, and What” framework outlining the aspects of communication most important to the participants. Patients and family/caregivers identified strategic use of written information and predischarge family meetings as potentially valuable tools to improve communication and shared decision-making.


2020 ◽  
Vol 28 (5) ◽  
pp. 542-544
Author(s):  
Shaun L Greene ◽  
Anton Scamvougeras ◽  
Amanda Norman ◽  
Yvonne Bonomo ◽  
David J Castle

Objective: North American and other jurisdictions have seen an alarming rise in the abuse of the fentanyls, with related overdose deaths. We sought to review this group of drugs to alert Australian psychiatrists and drug and alcohol clinicians to their clinical effects and potential harms. Conclusions: The extreme potency of the fentanyls underlie their lethality. Vigilance and investment from both policy makers and health care providers are required to mitigate harm from a possible future Australian fentanyl epidemic.


Children ◽  
2020 ◽  
Vol 7 (10) ◽  
pp. 179
Author(s):  
Helen Koechlin ◽  
Cosima Locher ◽  
Alice Prchal

Chronic pain in children and adolescents is a common and debilitating health problem. This narrative review will give a brief overview on what pediatric chronic pain is and what treatment options there are for children and adolescents. The specific emphasis will be on pediatric chronic pain education and communication: this narrative review aims to show how important a good patient–health care provider relationship is—it builds the foundation for successful communication—and how this relationship can be established. In addition, we will present five steps that health care providers can perform to explain pediatric chronic pain to patients and their parents and what to keep in mind in their clinical routine. Our review is intended for pediatricians and other health care providers who treat pediatric patients with chronic pain but might feel uncertain on how to best communicate with them.


2017 ◽  
Vol 3 (4) ◽  
pp. 380-388 ◽  
Author(s):  
Eva Segelov ◽  
David Chan ◽  
Ben Lawrence ◽  
Nick Pavlakis ◽  
Hagen F. Kennecke ◽  
...  

Purpose Neuroendocrine tumors (NETs) are a diverse group of malignancies that pose challenges common to all rare tumors. The Commonwealth Neuroendocrine Tumor Collaboration (CommNETS) was established in 2015 to enhance outcomes for patients with NETs in Canada, Australia, and New Zealand. A modified Delphi process was undertaken involving patients, clinicians, and researchers to identify gaps in NETs research to produce a comprehensive and defensible research action plan. Methods A three-round modified Delphi process was undertaken with larger representation than usual for medical consensus processes. Patient/advocate and health care provider/researcher expert panels undertook Round 1, which canvassed 17 research priorities and 42 potential topics; in Round 2, these priorities were ranked. Round 3 comprised a face-to-face meeting to generate final consensus rankings and formulate the research action plan. Results The Delphi groups consisted of 203 participants in Round 1 (64% health care providers/researchers, 36% patient/advocates; 52% Canadian, 32% Australian, and 17% New Zealander), of whom 132 participated in Round 2. The top eight priorities were biomarker development; peptide receptor radionuclide therapy optimization; trials of new agents in advanced NETs; functional imaging; sequencing therapies for metastatic NETs, including development of validated surrogate end points for studies; pathologic classification; early diagnosis; interventional therapeutics; and curative surgery. Two major areas were ranked significantly higher by patients/advocates: early diagnosis and curative surgery. Six CommNETS working parties were established. Conclusion This modified Delphi process resulted in a well-founded set of research priorities for the newly formed CommNETS collaboration by involving a large, diverse group of stakeholders. This approach to setting a research agenda for a new collaborative group should be adopted to ensure that research plans reflect unmet needs and priorities in the field.


2021 ◽  
pp. 135910532199910
Author(s):  
Ad A Kaptein

Novels represent a corpus of data that offers innovative opportunities for research and theory in health psychology. This article discusses how adding ‘health humanities’ to health psychology opens up a potentially rich domain for research and clinical application. The concept of ‘health humanities’ is discussed and put into a context of related fields. The concepts of ‘illness perceptions’ and ‘models of patient–health care provider interaction’ are used as illustrations. Applications are given, focusing on patients and their caregivers, health care providers and society at large (bibliotherapy and expressive writing). Suggestions for further development of the area are included.


2002 ◽  
Vol 30 (2) ◽  
pp. 309-312
Author(s):  
Curly Kelly

In 1996, Congress passed the Health Insurance Portability and Accountability Act (HIPAA), which required the enactment of new regulations to protect confidential patient health information. In December 2000, the U.S. Department of Health and Human Services (DHHS) published the agency's final rule on patient privacy and the proper use of privileged health information. The HIPAA privacy regulations cover all health-care providers that handle medical records or other identifiable patient health information. Most health-care organizations have until April 14,2003, to comply with HIPPA.


Author(s):  
Sulaiman Sulaiman ◽  
Emy Rosnawati

BPJS health is a government program to guarantee the health of the people. In fact there are still health-care providers who do not perform their functions properly because they refuse patients participating BPJS health. This study aims to determine the legal protection for patients participating BJPS health and find out whether the hospital in bekasi violate. This research uses normative method with approach of regulation of law. Patient's legal protection of health BPJS that is rejected by the hospital ie the patient can sue through general court or special authorized institution. The rejection of the patient by the hospital home is the responsibility of BPJS Health and the hospital is responsible for the negligence of his medical personnel. This research is useful for writers and readers to increase knowledge about legal protection of BPJS participants' patients, for legal practitioner is expected to give input about solving problem of patient protection of patient health BPJS for hospital rejection to give health service. 


2014 ◽  
Vol 5 (1) ◽  
Author(s):  
Ryan Shelquist ◽  
Elisa Greene

Healthcare providers spend years studying pathophysiology and therapeutics, often neglecting to consider the whole picture of influences on a person's health. House calls are a beneficial tool in that they provide the opportunity for trainees to experience these concepts firsthand, often opening student eyes to suffering, poverty, and unexpectedly, hope. Exposure to this broader perspective may empower health care providers to see beyond the limitations of disease and medication, into deeper issues that affect patient health.   Type: Idea Paper


2021 ◽  
Vol 6 (4) ◽  

Background: Health care providers often struggle with the management of MUS patients, especially with a different ethnic and /or cultural background. Objectives: A review on behaviors and attitudes of health care providers towards MUS patients and of patients themselves, in order to improve healthcare provider-patient interaction. Methods: Screening of PubMed, Web of Science, Cinahl and Cochrane Library on the keywords ‘Medical unexplained (physical) symptoms (MUS)’, ‘Somatoform disorder’, ‘Functional syndrome’, ‘Diversity’, ‘Migrants’, ‘Ethnicity’, ‘Care models’, ‘Medical education’, ‘Communication skills’, ‘Health literacy’. Results: MUS patients, especially with a different ethnic background, often feel not-understood, which may provoke medical shopping. Health care providers experience feelings of helplessness. From undergraduate trainees to senior physicians, attitudes and perceptions tend to be negative, impacting on the quality of the patient/health care provider relationship and subsequently on health outcomes, patient satisfaction and therapeutic adherence. Conclusion: This review identified significant room for improvement in both attitudes and behavior of health care providers towards MUS patients, including migrants and patients from cultural diverse backgrounds. These need to be addressed in order to improve outcomes.


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