scholarly journals Considerations for Developing and Implementing an Online Community-Based Exercise Intervention for Adults Living with HIV: a qualitative study

2021 ◽  
Author(s):  
Bernice Lau ◽  
Isha Sharma ◽  
Sukhbir Manku ◽  
Julia Kobylianski ◽  
Li Yin Wong ◽  
...  
Keyword(s):  
Digital Literacy ◽  
Online Community ◽  
Exercise Intervention ◽  
Physical Space ◽  
Analytical Techniques ◽  
Hiv Disclosure ◽  
Structured Interviews ◽  
Community Based ◽  
Rehabilitation Professionals ◽  
Living With Hiv

Objectives: To describe the need for and utility of online community-based exercise (CBE) interventions with adults living with HIV and identify factors to consider in developing and implementing an online CBE intervention with adults living with HIV. Design: Qualitative descriptive study using web-based semi-structured interviews. Participants: We recruited adults representing at least one of five stakeholder groups with experience in CBE and/or HIV: 1) adults living with HIV, 2) rehabilitation professionals, 3) fitness personnel, 4) educators with eLearning experience, and 5) representatives from HIV community-based organizations (CBOs). Data Collection: We asked participants to describe their experiences with online CBE, need and utility for online CBE, and factors in developing and implementing online CBE interventions. We analyzed data using group-based content analytical techniques. Results: Among the 11 participants, most had experience working with adults living with HIV (73%) or with tele-health/rehabilitation/coaching in HIV or other chronic conditions (91%). Participants identified the need and utility for online CBE interventions to increase accessibility and continuity of care with adults living with HIV. Six factors to consider in developing and implementing online CBE included: 1)person-specific considerations (episodic nature of HIV, stigma, HIV disclosure), 2)accessibility of program (physical space to exercise, reliable internet, access to devices, digital literacy), 3)program delivery and technology (live versus pre-recorded online classes, multiple online platforms for delivery, physical activity tracking, troubleshooting technology), 4)attributes of program personnel (working with CBOs, relatable instructors, diverse staff), 5)program content and design (tailored exercise classes, educational sessions) and 6)building community (shared experiences, peer support, social opportunities). Conclusions: There is a need and utility for online CBE in the context of HIV. Considerations for development and implementation span individual, structural and technical, and community dimensions. Results can inform the future development and implementation of online CBE with adults living with HIV and other chronic episodic conditions.

scholarly journals Community-Based Exercise in the Context of HIV: Factors to Consider when Developing and Implementing Community-Based Exercise Programs for People Living with HIV

2017 ◽  
Vol 16 (3) ◽  
pp. 267-275 ◽  
Author(s):  
Anna Li ◽  
Taylor McCabe ◽  
Erin Silverstein ◽  
Stephanie Dragan ◽  
Nancy M. Salbach ◽  
...  
Keyword(s):  
Analytical Techniques ◽  
People Living With Hiv ◽  
Structured Interviews ◽  
Community Based ◽  
Exercise Participation ◽  
Rehabilitation Professionals ◽  
The United Kingdom ◽  
Qualitative Descriptive ◽  
Facilitators And Barriers ◽  
Living With Hiv

Objective: To identify factors to consider for developing and implementing a community-based exercise (CBE) program for people living with HIV (PLWH). Methods: We conducted a qualitative descriptive study using semi-structured interviews with PLWH, rehabilitation professionals, and recreation providers from Canada and the United Kingdom. We asked participants to describe their experience with exercise, facilitators, and barriers to accessing and participating in exercise, and factors to consider in developing a CBE program for PLWH. Interviews were analyzed using content analytical techniques. Results: We developed a Framework of CBE in the Context of HIV that describes (1) exercise experiences of PLWH (nature of exercise, motivators for initiating or sustaining exercise, perceived benefits, and barriers and facilitators to exercise) and (2) 11 factors to consider in developing and implementing a CBE program for PLWH. Conclusion: Recommendations for the development and implementation of an accessible and feasible CBE program may enhance exercise participation among PLWH.

scholarly journals 1415. A qualitative study of intersectional stigma among older adults living with HIV who are victims of childhood sexual abuse

2020 ◽  
Vol 7 (Supplement_1) ◽  
pp. S715-S715
Author(s):  
Chigozie A Nkwonta ◽  
Monique Brown ◽  
Titilayo James ◽  
Amandeep Kaur
Keyword(s):  
Older Adults ◽  
Sexual Abuse ◽  
South Carolina ◽  
Childhood Sexual Abuse ◽  
Hiv Disclosure ◽  
Structured Interviews ◽  
Public Health Programs ◽  
Intersecting Identities ◽  
Living With Hiv ◽  
The Impact

Abstract Background Intersectional stigma is based upon co-occurring and intersecting identities or conditions and occurs at multiple levels of influence. Intersectional stigma has been repeatedly associated with poor health behaviors and outcomes. The effect of intersectional stigma among older adults are particularly challenging due to issues related to ageism, loss of social support, and comorbidities. We examined the impact of multiple stigmas on older adults living with HIV who are victims of childhood sexual abuse. Methods Semi-structured interviews were conducted with a purposefully selected heterogeneous sample of 24 adults living with HIV who are 50 years and older in South Carolina. Interviews were audio-recorded, transcribed verbatim, and coded using thematic analysis. Results Participants shared experiences and perceptions of stigma and discrimination most commonly related to their HIV status and sexuality at the interpersonal/familial and community levels. Four themes emerged to explain the impact of intersectional stigma: depression, lack of HIV disclosure, limited support, and reduced intimacy. Conclusion The complexity of multiple stigmas profoundly shapes life experiences, opportunities, and mental health of older adults living with HIV. This study highlights that public health programs need to consider the impact of intersectional stigma in order to promote the wellbeing of and improve quality of life for older adults living with HIV. Disclosures All Authors: No reported disclosures

scholarly journals Evaluating a community-based exercise intervention with adults living with HIV: protocol for an interrupted time series study

BMJ Open ◽  
2016 ◽  
Vol 6 (10) ◽  
pp. e013618 ◽  
Author(s):  
Kelly K O'Brien ◽  
Ahmed M Bayoumi ◽  
Patricia Solomon ◽  
Ada Tang ◽  
Kate Murzin ◽  
...  
Keyword(s):  
Time Series ◽  
Exercise Intervention ◽  
Interrupted Time Series ◽  
Community Based ◽  
Time Series Study ◽  
Living With Hiv ◽  
Series Study

scholarly journals Experiences of People Living With HIV in Community Based Exercise: A Qualitative Longitudinal Study

2021 ◽  
Vol 20 ◽  
pp. 232595822199534
Author(s):  
Patricia Solomon ◽  
Soo Chan Carusone ◽  
Aileen M. Davis ◽  
Rachel Aubry ◽  
Kelly K. O’Brien
Keyword(s):  
Longitudinal Study ◽  
Self Management ◽  
People Living With Hiv ◽  
Health Providers ◽  
Structured Interviews ◽  
Community Based ◽  
Weekly Session ◽  
Living With Hiv ◽  
Over Time

This qualitative longitudinal study examined the experiences of people living with HIV who engaged in a structured community-based exercise (CBE) program under the supervision of a fitness coach. Twenty people living with HIV were invited to participate in 3 semi-structured interviews over time. Participants engaged in exercise 3 times per week for 6 months with one weekly session supervised by a coach. Interviews were audio-recorded, transcribed verbatim and underwent longitudinal thematic analyses. Eleven participants were included representing a total of 30 interviews. Participants valued their experiences with the CBE program, particularly the motivation provided by the coach. Concerns about the environment, stigma and episodic health challenges affected their overall experience. To foster independence and promote self-management, health providers should consider these findings when encouraging CBE with people living with HIV. It is important to understand their goals and offer a variety of exercise options to meet their needs.

scholarly journals Strengths and Challenges of Implementing Physiotherapy in an HIV Community-Based Care Setting: A Qualitative Study of Perspectives of People Living with HIV and Healthcare Providers

2021 ◽  
Vol 20 ◽  
pp. 232595822110056
Author(s):  
Kyle Vader ◽  
Soo Chan Carusone ◽  
Rachel Aubry ◽  
Puja Ahluwalia ◽  
Carolann Murray ◽  
...  
Keyword(s):  
Healthcare Providers ◽  
Unmet Need ◽  
People Living With Hiv ◽  
Structured Interviews ◽  
Community Based ◽  
Life Challenges ◽  
Qualitative Descriptive ◽  
Tailored Approach ◽  
Living With Hiv ◽  
Need For Rehabilitation

The needs of people living with HIV (PLWH) who have access to antiretroviral therapy have shifted from hospital to community care; however, little is known about physiotherapy within HIV community-based care. Our aim was to understand strengths and challenges of implementing physiotherapy within an interprofessional HIV day health program in Toronto, Ontario, Canada. We conducted a qualitative descriptive study using semi-structured interviews. Data were analyzed using inductive content analysis. Fifteen PLWH and 5 healthcare providers participated. Strengths included improved access to physiotherapy and fulfilling an unmet need for rehabilitation; a tailored approach to physiotherapy; co-location improved communication, coordination, and engagement in care; and improved health outcomes for PLWH (i.e. function, psychosocial outcomes, and quality of life). Challenges related to managing expectations; variable attendance at visits; and managing complex and diverse needs of PLWH. Results may be transferable to other community-based care settings that provide care for PLWH and complex multi-morbidity.

Community-based evaluation in online communities

2017 ◽  
Vol 30 (2) ◽  
pp. 371-395
Author(s):  
Juliane Jarke
Keyword(s):  
Online Communities ◽  
Online Community ◽  
Large Scale ◽  
Best Practice ◽  
Actor Network Theory ◽  
Ethnographic Study ◽  
Structured Interviews ◽  
Community Members ◽  
Community Based ◽  
Content Type

Purpose The idea of “best practice” is very much built into information systems and the ways in which they organise and structure work. The purpose of this paper is to examine how “best practice” may be identified (produced) through a community-based evaluation process as opposed to traditional expert-based evaluation frameworks. The paper poses the following research questions: how does “best practice” (e)valuation in online communities differ depending on whether they are produced by community members or experts? And what role play these two practices of valuation for online community performance? Design/methodology/approach The paper is based on a three-year ethnographic study of a large-scale online community initiative run by the European Commission. Participant observation of online and offline activities (23 events) was complemented with 73 semi-structured interviews with 58 interviewees. The paper draws on Science and Technology Studies, and in particular actor-network theory. Findings Promoting the idea of “best practice” is not just an exercise about determining what “best” is but rather supposes that best is something that can travel across sites and be replicated. The paper argues that it is crucial to understand the work performed to coordinate multiple practices of producing “best practice” as apparatuses of valuation. Hence if practices are shared or circulate within an online community, this is possible because of material-discursive practices of dissociation and association, through agential cuts. These cuts demarcate what is important – and foregrounded – and what is backgrounded. In so doing new “practice objects” are produced. Research limitations/implications The research was conducted in the European public sector where participants are not associated through shared organisational membership (e.g. as employees of the same organisation). An environment for determining “best practice” that is limited to an organisation’s employees and more homogeneous may reveal further dynamics for “best practice” production. Practical implications This paper sheds light on why it is so difficult to reach commensuration in crowd-sourced environments. Originality/value The paper provides an analysis of how online community members collaborate in order to identify relevant and meaningful user-generated content. It argues that “best practice” is produced through a process of commensuration.

scholarly journals Views on HIV Disclosure Among Older Adults Living With HIV Who Are Childhood Sexual Abuse Survivors

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 339-339
Author(s):  
Monique Brown ◽  
Titilayo James ◽  
Chigozie Nkwonta ◽  
Amandeep Kaur
Keyword(s):  
Older Adults ◽  
Sexual Abuse ◽  
Childhood Sexual Abuse ◽  
Casual Sex ◽  
Hiv Disclosure ◽  
People Living With Hiv ◽  
Hiv Status ◽  
Structured Interviews ◽  
Related Stigma ◽  
Living With Hiv

Abstract Rates of childhood sexual abuse (CSA) among people living with HIV are twice the CSA estimates among the general population. These statistics suggest that CSA prevalence may range from 16-22% among older adults living HIV (OALH). HIV disclosure continues to be a key consideration among people living with HIV. However, studies examining the views on HIV disclosure among OALH who are CSA survivors are lacking. Therefore, the aim of this study was to explore the views on HIV disclosure among OALH who are CSA survivors using a qualitative approach. Twenty-four adults aged 50-67 years, living with HIV and with a CSA history participated in the study. In-depth semi-structured interviews were conducted, audio-recorded and were analyzed using thematic analysis. The iterative analytic process included discussion of initial thoughts and key concepts, identification and reconciliation of codes, and naming of emergent themes. Three themes emerged: “You don’t have to tell the person if it’s just casual sex”, “Nothing ought to be hidden especially when you get ready to engage in sex”, and “As for me, I don’t disclose”. Views on HIV disclosure among OALH varied. Some participants stated that disclosure of HIV status should be dependent on the type of sexual relationship, while some OALH stated that participants should disclose regardless of type of relationship. Some participants were hesitant to disclose their HIV status due to anticipated HIV-related stigma. Understanding the perspectives on HIV disclosure among OALH with a CSA history may help to inform disclosure intervention programs for this vulnerable population.

Maternal and child health nurses’ experiences of implementing two community-based breastfeeding interventions in Victoria, Australia: A mixed methods process evaluation

2019 ◽  
Vol 16 (1) ◽  
pp. 4-14 ◽  
Author(s):  
Rhian L Cramer ◽  
Helen L McLachlan ◽  
Touran Shafiei ◽  
Lisa H Amir ◽  
Meabh Cullinane ◽  
...  
Keyword(s):  
Child Health ◽  
Maternal And Child Health ◽  
Randomised Trial ◽  
Cluster Randomised Trial ◽  
Breastfeeding Initiation ◽  
Structured Interviews ◽  
Breastfeeding Support ◽  
Community Based ◽  
Significant Drop ◽  
And Child Health

Despite high rates of breastfeeding initiation in Australia, there is a significant drop in breastfeeding rates in the early postpartum period, and Australian government breastfeeding targets are not being met. The Supporting breastfeeding In Local Communities (SILC) trial was a three-arm cluster randomised trial implemented in 10 Victorian local government areas (LGAs). It aimed to determine whether early home-based breastfeeding support by a maternal and child health nurse (MCH nurse) with or without access to a community-based breastfeeding drop-in centre increased the proportion of infants receiving ‘any’ breast milk at four months. Focus groups, a written questionnaire and semi-structured interviews were undertaken to explore the interventions from the perspective of the SILC-MCH nurses (n=13) and coordinators (n=6), who established and implemented the interventions. Inductive thematic analysis was used to identify themes, then findings further examined using Diffusion of Innovations Theory as a framework. SILC-MCH nurses and coordinators reported high levels of satisfaction, valuing the opportunity to improve breastfeeding in our community; and having focused breastfeeding time with women in their own homes. They felt the SILC interventions offered benefits to women, nurses and the MCH service. Implementing new interventions into existing, complex community health services presented unforeseen challenges, which were different in each LGA and were in part due to the complexity of the individual LGAs and not the interventions themselves. These findings will help inform the planning and development of future programs aimed at improving breastfeeding and other interventions in MCH.

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